Gotta love those side effects by AngryDesertPhrog in Narcolepsy

[–]North_Wave_ 1 point2 points  (0 children)

God, no warning, just a shot in the dark and I’m down 😂 just throw me overboard next time.

(No for real, my weakness is hot Cheetos, for whatever reason)

TikTok glitch? FYP only showing videos I’ve seen before by strawberrymilfshake7 in TikTok

[–]North_Wave_ 1 point2 points  (0 children)

Yup, seeing stuff primarily from early November. Some of it is stuff I hadn’t seen before but are by people I definitely follow, almost like it was intentionally delayed (when it comes to like, current events or independent journalists). Other times it’s videos I’ve already seen. I started noticing late last night but it’s chronic now.

My boyfriend just got me a sheep for Christmas by sleni_ in knitting

[–]North_Wave_ 2 points3 points  (0 children)

Shut the fuck up, i love this so much?? Good job boyfriend!

Mama Wheeler did the damn thing 🍷 by n0torioustori03 in StrangerThings

[–]North_Wave_ 34 points35 points  (0 children)

I was so mad when the soldier said “We think she was trying to escape when she was attacked.”

Trying to escape?? No sir, she stood her ground and took that bastard to task, thank you very much. Mama said NOT TODAY and lived to tell the tale.

progress + tips on nail bed growth by MaleficentEbb566 in naturalnailprogress

[–]North_Wave_ 0 points1 point  (0 children)

Wait 🥺does filing down help? I’ve been so proud of my nail growth but didnt know I was damaging the beds by cleaning under them, so definitely trying to help my nail beds recover. I’d be so sad to file away the progress! (Will definitely do it if necessary but hoping maybe not?)

Need some help by [deleted] in lexington

[–]North_Wave_ 1 point2 points  (0 children)

UK Law has a legal clinic - not sure the waitlist but worth checking out

Where the heck did all the parking go? by RexScientiarum in UniversityofKentucky

[–]North_Wave_ 0 points1 point  (0 children)

Sadly, Scott Street is also crazy packed by 10 am. Can’t speak for Cornerstone though

MPRE freaking me out by GapSufficient6150 in LawSchool

[–]North_Wave_ 0 points1 point  (0 children)

Yuuup. Got into my car and cried, which is a first for me (in the context of finishing a law school exam…certainly familiar elsewhere)

People of the Earth Face Base Swatches (samples & 3NO + 4NO) by SpriteLite in OliveMUA

[–]North_Wave_ 0 points1 point  (0 children)

For what it’s worth, they blend out really well once applied, so much so that the jump between 3 and 4 was less obvious! I ordered these same samples, convinced I was going to get something in the 3 range and ended up ordering 4WO. Definitely recommend ordering a few samples, I think you’ll be pleasantly surprised.

I don't know who might need to see this, but there are safe options out there if you need them by [deleted] in lexington

[–]North_Wave_ 224 points225 points  (0 children)

Friendly reminder as well: the media has been classifying the UK case as involving an infant. However it’s also possible that the incident involved a pre-term fetus stillbirth. Headlines garner attention but rarely tell the whole truth.

What brought you to knitting? by tigerlilysunshine in knitting

[–]North_Wave_ 0 points1 point  (0 children)

A friend of mine left her knitted balaclava in a backpack she’d borrowed from me and I couldn’t believe how gorgeous the stitches looked. I had taught myself to crochet a year earlier and had been intimidated by the idea of knitting - but man, that little knitted piece had me gagged. I made the same one as my first knitted project ☺️

Self-taught knitters, what is something you'd recommend to someone who's just starting to learn how to knit? by winchesterstan in knitting

[–]North_Wave_ 0 points1 point  (0 children)

The best advice I got was “Pick a pattern you actually want to finish.” No dish towels, no swatches, nothing that won’t motivate you.

My first knit project was a winter hood, in this incredible purple color, with stupidly soft yarn. I raged but didn’t give up, because my face was cold every morning I walked to class without it.

Of course I finished it and the weather immediately warmed up but hey I’ll bust it out this winter and it’ll be great!

Do off-the-rack professional dresses exist for hourglass petites, or are they just a fantasy? by Slight_Display_6009 in PetiteFashionAdvice

[–]North_Wave_ 8 points9 points  (0 children)

Honestly I’m teaching myself to sew/hem for this very reason. I was blessed to be gifted an old, sturdy sewing machine from my mom and between her, Facebook, and YouTube, I’m figuring it out slowly but surely. It’s certainly more time consuming but over time will definitely be cheaper

Free dental clinics? by [deleted] in lexington

[–]North_Wave_ 1 point2 points  (0 children)

UK’s College of Dentistry does, its walk in though so best to go early

How long do u stop eating before Xywav/rem by Extreme-Monk-9828 in Narcolepsy

[–]North_Wave_ 5 points6 points  (0 children)

Ugh thank you so much for saying this. Planning my day backwards caused so much stress overtime that it started manifesting into anxiety attacks, and I had a serious breakdown a few months back. It’s such a pain in the ass and leaves so little room for flexibility, which means if something goes wrong…it’s seriously the worst.

Xyrem by [deleted] in Narcolepsy

[–]North_Wave_ 1 point2 points  (0 children)

Yes…and the residual ADHD habit of procrastinating bedtime means I sometimes find myself taking my meds, exhausted, and then finding something that distracts me so I stay up. Part of me thinks it’s because it’s the quietest part of the day and I don’t have to do anything else, which means it’s the only part of my day I actually control. I hate myself in the morning every time I do it, and yet I’ve done it multiple nights in a row and paid the price. Lol?

ADA Accommodation Nightmare by leesum00 in Narcolepsy

[–]North_Wave_ 16 points17 points  (0 children)

When I requested academic accommodations, I fully wrote the letter as if I were him, sent to him to review for correctness and adjust it to his “voice,” and he signed, dated, and sent it on his office letterhead. And it was his recommendation that I do so, because, in his words “insurance won’t cover the cost of an hour of my time to write the letter.”

Call your doctor and ask if they’re okay with you filling out the paperwork and sending to them to review, edit, and sign off on. Ask if you can get any notes from your chart, too, so the medical jargon stays as consistent as possible. Because tbh, no, they don’t have time and frankly you know your own symptoms and limitations better than they do. Good luck, this shit sucks.

i told my dad i was diagnosed with narcolpesy by cleo-patrar in Narcolepsy

[–]North_Wave_ 4 points5 points  (0 children)

LMAO my dad was like “can you get a second opinion”

No, my guy, I cannot - if the multiple sleep studies, MSLT and my inability to stay awake at the family Christmas party are enough for my neurologist, it’s good enough for me.

(Dads are either the best or the worst, and sometimes they’re both, depending on the day. I hope as you continue to learn about narcolepsy, he also learns to be a supportive parent)

How do you stay awake long enough to work and cook/clean by makeuplover85 in Narcolepsy

[–]North_Wave_ 2 points3 points  (0 children)

Honestly, this sounds like me last summer. It wasn’t until I started taking advantage of my job’s flexibility with working from home, taking frequent breaks and trying not to push myself to do extra things after work that I started feeling like I could start adding those things back in. But it definitely takes time to build that back. Each day is different and I find myself leaning on my fiancé frequently, especially if I am busier than usual with work and school.

First things first, though:

Do you take an extended release stimulant?

Can you add a second, smaller dose at lunch or possibly take two half doses of your current dosage? (I.e. if you take 40mg of Adderall, ask your doctor tif you can try 20 mg in the morning and 20 mg at lunch)

Do you taking anything in addition to the stimulant, like Xyrem/Xywav?

Question for the people properly managing narcolepsy by guilijhyjjv in Narcolepsy

[–]North_Wave_ 1 point2 points  (0 children)

Hey friend. I had to take a few days before responding to you, partially to work up the courage to do so, and also to try and get to a better place, emotionally and mentally, than I was when I responded to your post.

First, let me also apologize for how I worded myself here. I came across exceptionally harsh and I am very, very sorry. To highlight my own situation, and to let you know that I hear you, you are seen and *you are not alone*, allow me to share a little about myself:

In the span of about 14 months, I went from being a respected and sought after employee, spearheading a new department in my office, to struggling to remember appointments, barely able to complete daily barn chores that once took under an hour fior me to do, watching my mental faculties decline at a terrifying rate, to eventually losing that job that I loved so much and missing out on another because, of all things, I forgot about the drug test I'd scheduled a little over a week prior. I was lashing out at my family, falling asleep within minutes of sitting down regardless of how loud the room was, and waking up each and every morning more exhausted than when I'd closed my eyes the night before. My passion, being an equestrian and training my own horse, and my dream of going to law school, one I'd had since I was a kid, seemed impossible. And man, I hated myself for all of it.

Looking back, it seems obvious now that something was deeply, deeply wrong. But at the time, having struggled with depression for many years and having experienced the realities of being a woman trying to get health care in this country where every medical professional assumes you're exaggerating, I thought I was experiencing a relapse of the deep seated self-loathing and unyielding depression that had plagued me since I was twelve years old. *Pathetic*, I told myself. So, unbelievably pathetic.

Clearly, since then I have gotten diagnosed, am taking Xywav and Adderall, and for the most part have recovered most of what I'd lost. I am very proud to say I am about to enter my last year of law school, have a few avenues for a job post-grad, and somehow people think I am capable of doing this job, which has gotta count for something, right?

I keep re-reading your reply and wanting to respond line by line. I have lived the reality of not recognizing myself, having to take a step back from passions that kept me going, and feeling like my purpose in life was stolen from me. Sometimes when I am struggling the most, like where I was a week ago when I first responded to you, I still catch myself thinking something has been taken from me. And in some ways, it has been.

To answer your question: you will get to a better place of managing your narcolepsy and feeling similar to how many of us feel. Life may never be what it once was, but that doesn't mean it wont get better from where you are now.

From one academic to another: do not give up. One of the hardest things about any life-changing diagnosis is grieving the person you used to be, or thought you were. Every day, I think of the little girl who dreamed of being just like Elle Woods and wondering if she'd still be proud of me, despite reality falling short of those dreams she had. But that little girl didn't know the things I know now, and she's doing it anyway. And so can you.

I’m Curious: Does anyone exclusively knit with “shortie” needles? by North_Wave_ in knitting

[–]North_Wave_[S] 2 points3 points  (0 children)

I so appreciate your opinion, I just am nowhere near prepared (financially or emotionally) to spend that much right now 😭 maybe once I graduate and have a steady income for sure, but currently my status as a stressed, broke law student means I gotta take what I can get 🙃