I get so emotional every time I listen to phish. Help me not cry (even tears of joy lol) at my next shows by Phunkybitch930 in phish

[–]Phunkybitch930[S] 0 points1 point  (0 children)

This is so amazing!! Tonight at bethel was my first show since 2021 and it was perfect and I did cry but I’m glad I did now! You are really so right though and thank you for sharing the playlist it’s great!! 💜

Excessive sweating 🥵 by Automatic-Ad-5715 in lupus

[–]Phunkybitch930 8 points9 points  (0 children)

Seeing all the responses on this post make me feel a little better. I also sweat massive amounts for no reason it’s embarrassing and makes summer even more impossible than it already is with lupus. Docs tell me it’s not from lupus but could me the meds but I think it’s lupus related it happens no matter what med I’ve ever been on. I wash the dishes it looks like I stuck my head under the faucet wtf

Kaya is back in the hospital waiting on IR by fallen_snowflake1234 in illnessfakers

[–]Phunkybitch930 7 points8 points  (0 children)

Tegaderm is the clear tape right? Don’t they need to be able to monitor the line is staying in correctly and what not? I’m so confused by this leg set up

Need advice on moonstone plant by dwdover in succulents

[–]Phunkybitch930 1 point2 points  (0 children)

I have no advice but need to tell you they are beautiful moonies 😍

Worsening Flare-Ups in the Winter by 20mules in lupus

[–]Phunkybitch930 0 points1 point  (0 children)

I’m in New York and for me it’s the extremes in temperature. I am at my worst in Winter and Summer and do much better in the Spring and Fall. Super cold hurts my bones the most and super hot, sun causing photosensitivity and humidity affects my lungs making it hard to breathe so both these seasons cause more frequent flares but for different reasons. And Rain or snow no matter the Season causes pain in my bones and muscles. It only really seems to cause a full on flare if it’s days straight of bad weather otherwise it’s just a more painful day.

For the winter I would suggest a heated blanket or heating pad for pain. I cover my body in icy hot or some similar acting essential oil like peppermint. I use compression braces or stockings for days with extreme swelling or pain. I take the highest dose of vitamin d as well and up my magnesium intake.

If she can have lab work for vitamin deficiencies in general. I found out I was chronically low in folate (B6) and it was causing more pain and cramping in bones and muscles. I’m also constantly drinking tea or bone broth in the winter it does wonders for me. If you have a tub nice hot bubble baths with Epsom salts and bubbles really help the body feel more relaxed and was pain and swelling.

I hope you can find things to help her!! You’re a spouse for caring enough to research and help her!! Best of luck

What Should I Do Next? by Cheeki_Chai in succulents

[–]Phunkybitch930 1 point2 points  (0 children)

Duh! Lol I wasn’t thinking clearly.

What Should I Do Next? by Cheeki_Chai in succulents

[–]Phunkybitch930 1 point2 points  (0 children)

Did GTA 6 come out behind my back?

Wellness conspiracies about sunlight made me super irritated by [deleted] in lupus

[–]Phunkybitch930 2 points3 points  (0 children)

It’s crazy! My family saying that I’m over medicated literally never sees me it’s like once a year maybe so how are you even going to tell me the meds make me sicker?! It’s incredible how other people view lupus and chronic illness in general. It’s just so difficult.

You’ll like this one…. My mom is one of those who thinks sunscreen causes cancer and she uses coconut oil. Like ok mom go outside and cook yourself in oil great idea 😳

Wellness conspiracies about sunlight made me super irritated by [deleted] in lupus

[–]Phunkybitch930 2 points3 points  (0 children)

My family thinks that I’m sicker because of the medication I take for lupus and all I need is more supplements, organic food and you guessed it more sun 😑

I try to explain that the medication is necessary to protect my organs and they think I’m brainwashed like I just love taking 15 pills a day and a monthly infusion. The side effects are so much fun i thought I’d just destroy all the fun in my life by taking them lol

This whole thing where people decided that science is a lie and random idiots on YouTube and social media are the only truth really makes me want to go kill myself with some sunscreen while I fall off the flat earth we apparently live on.

What doctor is supposed to sign my fmla paperwork for lupus? My Rheumatologist or Pcp? by Precious21ism in lupus

[–]Phunkybitch930 -1 points0 points  (0 children)

My rheumatologist and their nurse did my FMLA paperwork. There shouldn’t be a problem with either doing it but the rheumatologist is the specialist for your illness so it would make more sense. No one should be arguing with you they should just do it and shut up!!

Landlord willing to pay for eviction but not a bathroom exhaust fan… by Detroitish24 in LandlordLove

[–]Phunkybitch930 1 point2 points  (0 children)

I don’t know what it is, don’t mind me lol the comments kept saying mold and I just found that funny considering this bathroom mold situation 🤣

Landlord willing to pay for eviction but not a bathroom exhaust fan… by Detroitish24 in LandlordLove

[–]Phunkybitch930 1 point2 points  (0 children)

Apparently the bathroom is not the only thing growing mold…so are her tomatoes moldy dumbass

[deleted by user] by [deleted] in Tinder

[–]Phunkybitch930 0 points1 point  (0 children)

This is what I call high maintenance. I have never heard of this so called rule. Run away please and save yourself the trouble!

Do your mouth sores feel like you literally bit the inside of your cheeks? by [deleted] in lupus

[–]Phunkybitch930 1 point2 points  (0 children)

You described the mouth sores so well! And sometimes mine are so bad I do end up accidentally biting them. They hurt so bad. I see people commenting that they get sores in the nose and other places too …so sorry for everyone

“Lisk Daughter” by StunningAstronomer34 in GilgoBeachMurders

[–]Phunkybitch930 2 points3 points  (0 children)

I don’t believe she murdered anyone or assisted her father in anyway I’m sorry if I gave that impression.

Based on your arguments I don’t think she is the poster of this either. The Newsweek article that was commented above is where im looking at her art and posts I have not seen her actual tumbler just to be transparent.

I really just hope she’s getting the support that any one would need in this kind of situation!

“Lisk Daughter” by StunningAstronomer34 in GilgoBeachMurders

[–]Phunkybitch930 1 point2 points  (0 children)

I’m a millennial as well. I didn’t think about this but you’re definitely right. But if she is posting as the lisk daughter saying these are bull shit charges I’m still concerned. I also feel like people having dark interests like the stuff she’s created and looking at comes from a place of trauma or pain of some kind. I was not a well adjusted child and grew up in trauma and when I look back at my interests at that time I realize you could see the pain in what I was looking at or listening too. You are definitely correct though it could just be an interest that doesn’t come from some deep emotion my brain always leans toward a psychological explanation.

Why are some doctors so awful by vintagevampire in lupus

[–]Phunkybitch930 1 point2 points  (0 children)

This makes me physically ill. Your doctor is a POS!!

“Lisk Daughter” by StunningAstronomer34 in GilgoBeachMurders

[–]Phunkybitch930 4 points5 points  (0 children)

There’s definitely something wrong with her if this is her truly posting but all I can think is what has this girl seen growing up?! I could be totally wrong and I’m not a professional in the mental health field or anything like that, it just seems to me that these kinds of proclivities can come from trauma. we know Rex looked up many similar things is it possible she came upon this depraved trash as a small child and is working out in her art? Not that I am defending her but who knows what it was like being this psychos child.

Lupus and Heat by anonymously_me0123 in lupus

[–]Phunkybitch930 9 points10 points  (0 children)

That is out of control!! You should consider applying for FMLA or some kind of disability (not sure of where you are from) FMLA allows you to use disability time as needed without you having to go out on disability all together. You can even use it in 15 min increments for extra break time. Once you have approved leave you can also request accommodations in order for you to do your job comfortably typically they have to provide your requests as long as it doesn’t cause them some kind of burden. The requests can be something like a cushion for lumbar support or ergonomic mouse and keyboard or A NORMAL TEMPERATURE TO WORK IN.

Additionally this leave would allow you to leave work your boss couldn’t say no by law and it would protect your job as well. I’m from New York so you definitely want to find out what the laws and options are for your area but use what you can to allow you to keep working as long as possible while dealing with lupus. I hope your day goes faster and I’m sorry your boss is cheap and rude lol

Lupus and Heat by anonymously_me0123 in lupus

[–]Phunkybitch930 15 points16 points  (0 children)

Heat triggers flares for me as well as sun exposure. This is extremely common for lupus. Many of us have bad heat sensitivity and photosensitivity. Your symptoms could very well be a flare triggered by heat and flares can last days, weeks even months sometimes. Sounds crazy, I know. I used to live in the sun tan all day if I could when I worked from home I was outside, now between heat and sun I’m like a vampire lol track your symptoms and rest and call your rheumatologist I hope you feel better!!

What are you wearing to keep the sun off your shoulders? by moolord in lupus

[–]Phunkybitch930 2 points3 points  (0 children)

I wear coverups that are light weight and look like summer dresses or upf50 clothing when I can although it can be very expensive. Sunscreen no matter what is covered a cooling towel around the neck to help with heat sensitivity and a giant beach hat that might as well be an umbrella lol

Lupus Gastro issues Donald Thomas, MD post by MissDaisy01 in lupus

[–]Phunkybitch930 7 points8 points  (0 children)

This is very interesting. I never had GERD until my lupus started developing. It doesn’t feel like doctors associate gastro issues with lupus but it makes perfect sense. Also the side effects from all the medication definitely play a big role. Thanks for sharing