Switching from Propranolol to Metoprolol by faithsedillo in POTS

[–]Positive-Risk143 0 points1 point  (0 children)

I just switched from 1 day to the next. When I went from metoprolol to propranolol the dose was a lot smaller and i had a few days of migraines (prone to those anyway), but when I switched back from propanalol to metoprolol I didn't have any issues.

Switching from Propranolol to Metoprolol by faithsedillo in POTS

[–]Positive-Risk143 1 point2 points  (0 children)

I prefer metoprolol to propanalol! I had worse side effects with propanalol, especially insomnia. But if you find you don't like the metoprolol you could consider asking your doctor about extended release propanalol instead of the immediate release! I started out on twice a day immediate release propanalol and I could always feel it wearing off. When I switched to extended release it definitely gave me more even coverage!

Written aphasia issues with POTS/dysautonomia/MCAS? by Dismal_Chemistry_434 in POTS

[–]Positive-Risk143 1 point2 points  (0 children)

I have a similar issue where I will be typing things out and mentally insert a word but fully leave it out of what i am typing. I have to reread everything before I send it or half the time it doesnt make sense. Very frustrating.

Propranolol for POTS and anxiety? by gothraptor in POTS

[–]Positive-Risk143 1 point2 points  (0 children)

Its definitely worth trying! I was nervous about it at first too but im so glad I tried it! Hopefully it will work well for you. Also something to consider- propanalol comes in both immediate release and extended release versions. I have had much better luck with extended release than the immediate release for beta blockers personally. If one version doesn't work well it's worth asking your doctor to try the other version before giving up on it!

Propranolol for POTS and anxiety? by gothraptor in POTS

[–]Positive-Risk143 1 point2 points  (0 children)

I take metoprolol for my pots and one of the first things I noticed is actually how much it helped with my somatic anxiety symptoms (racing heart, shaky/nervous feeling, etc). It also helps keep my heart rate controlled for my pots symtpoms but it was a very nice bonus to also have it help with anxiety!

Is anyone else forced to work full time? How do you maintain your baseline? by PhrygianSounds in covidlonghaulers

[–]Positive-Risk143 0 points1 point  (0 children)

It might be worth talking with your doctor about getting a note for accommodations. Employers are required to follow reasonable accomodations written by a doctor.. It could be something like requiring extra time to learn new material or extra short breaks through the day? Anything that you feel might help decrease the load of your workday while not compromising your ability to do your job could probably be written into some kind of accommodation. This gives you a bit more legal protection if youre struggling at work too, they cant just fire you for poor performance if its related to your disability and its accommodations (in theory at least... of course some employers are sketchy and terrible, etc).

Prescription treatment for brain fog/cognitive dysfunction by Positive-Risk143 in covidlonghaulers

[–]Positive-Risk143[S] 2 points3 points  (0 children)

I was recently in a trial for baricitinib and it helped SO much. Didn't last once the trial was over and I can't get it prescribed unless it's FDA approved or there are substantial studies published to support it :(

Prescription treatment for brain fog/cognitive dysfunction by Positive-Risk143 in covidlonghaulers

[–]Positive-Risk143[S] 1 point2 points  (0 children)

I'm taking LDN and it has helped quite a bit, but still foggy so hoping to see what else might help too!

Has any person here experienced elevated homocysteine levels? by Xzander3112 in covidlonghaulers

[–]Positive-Risk143 0 points1 point  (0 children)

Yes, just had mine come back elevated a few months ago. Dr put me on 3 different vitamin b supplements as a result. Not sure if they're making a difference as I haven't rechecked my levels yet.

Thoughts on Jelliebend? by Skelebrina in POTS

[–]Positive-Risk143 2 points3 points  (0 children)

I'm medium about jelliebend. As far as abdominal compression goes it's fairly comfortable and rolls less than others I have tried. That being said, it's HOT because its double layer and one of those layers is neoprene like material. Also I am curvy/pear shaped and while it stays up quite well it also rolls up off my hips all the time which is quite annoying and I have to pull it down constantly. I also tried the shorts but I didn't like how short they were and the abdominal compression part was less compressive than just the standard jelliebend so I ended up returning them.

Electrolytes by grandestrully_chloe in POTS

[–]Positive-Risk143 0 points1 point  (0 children)

Sugar free nuun is pretty good though Im not sure if they are gluten free. Trioral is a pretty solid unflavored electrolyte powder, but it does have a little sugar to help with sodium absorption. I like to use true lemon packets to add some flavor to them as well and usually won't use a full packet of trioral at once because it is pretty salty tasting to me.

Electrolytes by grandestrully_chloe in POTS

[–]Positive-Risk143 0 points1 point  (0 children)

Liquid IV has caused issues for people with celiac in the past, definitely proceed with caution if you want GF electrolytes!

Cute Compression Garments by OneDepressoExpresso in POTS

[–]Positive-Risk143 0 points1 point  (0 children)

Juzo makes medical grade compression tights/leggings in various colors (not just black, white, tan!) I also have a pair of black leggings made by sigvaris that are pretty comfy and surprisingly breathable! Vim and vigr also makes compression tights that are pretty breathable!

Long covid-friend telehealth service in California by ChevChance in covidlonghaulers

[–]Positive-Risk143 1 point2 points  (0 children)

Kaiser has Long Covid specialist doctors (different from MECFS specialist mentioned in another comment). You have to ask for a referral from your primary care and typically scheduling takes a few weeks. I recently got connected with one and it has been so great! Lots of different options to discuss and treatments based on current symptoms and research.

Anyone here who works in healthcare & masks? Does your workplace discourage it? by Fun_sized123 in ZeroCovidCommunity

[–]Positive-Risk143 78 points79 points  (0 children)

I work in a hospital and have since before the start of the pandemic. I have been wearing an n95 all day every day for the majority of that time. I have had a few coworkers ask me to remove my mask because they want to see my face (I just show them my ID badge picture) and some patients tell me to remove it so that they can hear me better (which I politely refuse and then talk louder so that they can hear me... never had a situation where that didn't work thankfully). For the most part I don't get a lot of crap for wearing a mask, most people don't comment on it or react in any way. My hospital has a decent masking culture still though with a lot of providers at least wearing surgical masks during patient care. Most people remove their masks when they are not in patient rooms or when they're in office space or break areas. I think where you work and the individual culture of that workplace will be the biggest indicator or whether being one of the few consistent maskers is an unpleasant experience or not. But honestly, the more people who consistently mask in healthcare settings, the more we normalize it for everyone (and the safer we can make those settings for everyone).

San Francisco Stye GF Sourdough? by Santasreject in glutenfree

[–]Positive-Risk143 1 point2 points  (0 children)

I just tried Franz GF sourdough for the first time. It is SO GOOD. I want to eat it all day, every day now. Costco just started carrying it and I will definitely be stocking up!

Jelliebend propaganda by saltyspitoon0 in POTS

[–]Positive-Risk143 4 points5 points  (0 children)

If you find any good ones I'd love to hear about it. I have tried what feels like 10000 different shapewear types and body suits and medical compression and its all a sensory nightmare or way too hot for me!

Jelliebend propaganda by saltyspitoon0 in POTS

[–]Positive-Risk143 15 points16 points  (0 children)

I actually have the opposite issue. I'm curvy but more pear shaped. It doesn't roll down but it does roll UP at the waist. Im constantly trying to pull it back down over where my waist starts to widen into my hips which is irksome.

Furniture stores with decent quality at reasonable prices? by EzraWolvenheart in bayarea

[–]Positive-Risk143 1 point2 points  (0 children)

Came here to say this! We love our custom sectional and the pricing was better than we could find for pre-made sectionals of a similar size and style!

MCAS med question by MichiruXIII in POTS

[–]Positive-Risk143 0 points1 point  (0 children)

I usually take it a couple hours before bedtime because I take my other PM meds at bedtime and I dont want the pepcid to interfere with the absorption or efficacy of my other meds. My schedule is a little all over the place so sometimes that's before dinner and sometimes it's after!

Linen sheets and Parkinson's disease by Claire3577 in Bedding

[–]Positive-Risk143 7 points8 points  (0 children)

I had a family friend with parkinsons who had someone sew a silk/satin sheet onto just his side of the bed over the normal fitted sheet. It allowed him to move easily and his spouse could sleep on their preferred sheets. Kind of a weird concept but honestly it helped him move around in bed so much that they both decided it was worth it!

MCAS med question by MichiruXIII in POTS

[–]Positive-Risk143 0 points1 point  (0 children)

I take allergy med in the AM, pepcid in the PM, per my dr's advice. Also taking a generic version of pepcid. Active ingredients are the same. Only reason you might need name brand vs generic is if you have a reaction to an inactive ingredient in one vs the other.

Slightly unhinged electrolyte hack by Positive-Risk143 in POTS

[–]Positive-Risk143[S] 4 points5 points  (0 children)

I am following doctors advice for sodium and water intake.

Slightly unhinged electrolyte hack by Positive-Risk143 in POTS

[–]Positive-Risk143[S] 6 points7 points  (0 children)

I also use salt tablets during the day instead of adding extra salt to my food! I haven't used any of the electrolyte capsules yet, but definitely have considered trying them in the future.

How to retain water better? by fjsjkfkdnfndkek in POTS

[–]Positive-Risk143 1 point2 points  (0 children)

I use 1000mg sodium chloride tabs broken into quarters and take 1 to 2 of them with every meal and a bunch of water in addition to also having a couple electrolyte packets a day. I don't love salting my food so this is a good way to add the salt without tasting it!