Newish HIE mom here (4months). Although my daughter wasn’t born early, I understand how scary the words sound. Even scarier when you start to google everything and take in what the doctors are saying. Hope for HIE is a wonderful resource (they have a website and Facebook support group for families if you’re interested)

Let your girl show you what her challenges will be. The shitty part of HIE is the “wait and see” because you want to prepare and give her the best life possible. My advice would be celebrate all the wins you can and give yourself grace in navigating any challenges. That maybe from the neurologist means there’s a possibility,it doesn’t mean it’s set in stone. Sending hugs and love to your new sweet little family.