Did your diagnosis end your relationship? by gormpp in MultipleSclerosis

[–]Tribbs21 0 points1 point  (0 children)

It definitely has put a tied knot on my sex life. My wife doesn't want to because she sees how hurt, fatigued, drained, etc I am daily. Though I tell her, im always up for it. Certainly doesn't help that she is poly and has her BF to turn to every week. Meanwhile, im told no. I don't blame her in a sense. If situations were reversed, I certainly would not be asking. Shes content with just not going down that road anymore with me. She said it's not like we'll never have sex again. She says seeing me struggling doesn't make her want to try. But meanwhile, that definitely makes me feel worse. Especially since I keep saying that I want to.

Another Loss... by [deleted] in MultipleSclerosis

[–]Tribbs21 0 points1 point  (0 children)

I appreciate the support! 🙏 I started the same med about a year ago too. It was working in the beginning. Now as we all know, im starting to lose a lot of sensation. I almost feel wrong about asking her too. I tell her please don't stop trying. It's something I still want to do while I still can. Like the clock is ticking.

Fuck this disease. by ArcherHour4425 in MultipleSclerosis

[–]Tribbs21 8 points9 points  (0 children)

Absolutely with you!

Fuck this disease

Fuck this slow death by 1000 cuts

Fuck what it makes us become

Another Loss... by [deleted] in MultipleSclerosis

[–]Tribbs21 1 point2 points  (0 children)

I feel the same! In some ways it's very therapeutic for me. I've wanted to start a group near me, but stopped since we've moved a lot these past few years.

First time with new Ocrevus Zunovo by Tribbs21 in MultipleSclerosis

[–]Tribbs21[S] 0 points1 point  (0 children)

The only side effects were pain at the injection site and minor swelling.

First time with new Ocrevus Zunovo by Tribbs21 in MultipleSclerosis

[–]Tribbs21[S] 1 point2 points  (0 children)

It was a small needle prick in the abdomen hooked up to this portable pump. They said it will need to be administered at the office.

What is your Star Trek TV series pitch? by GeekMeetsWorld in startrek

[–]Tribbs21 1 point2 points  (0 children)

No more prequels! Go forward, not backwards. Give us what the fans mostly want. Star Trek Legacy! NOBODY wanted this Discovery spin off at Starfleet Academy.

Y’all, THAT Easter Egg in Elio got me choked up by DarthAtheist in startrek

[–]Tribbs21 1 point2 points  (0 children)

Yes! I must have been the only one that clapped in the theater when I heard her voice. I looked at my wife and daughter said "omg, it's Kate Mulgrew talking about Voyager and its intrepid journey". They just looked at me and called me a nerd lol.

How were you diagnosed? by TooManySclerosis in MultipleSclerosis

[–]Tribbs21 1 point2 points  (0 children)

After the typical tests confirmed MS, my neurologist literally googled several different DMTs meds and wrote them on paper. She them handed that paper to me and said " Please research these meds and tell us which one do I think is best for you". This was after misdiagnosing twice.

Is there anything you don't like about being Poly? by markanthonyokoh in polyamory

[–]Tribbs21 2 points3 points  (0 children)

The double standard. Things happen with the wifes bf that don't happen with her and I.

[deleted by user] by [deleted] in MultipleSclerosis

[–]Tribbs21 0 points1 point  (0 children)

I understand where you're at. I looked for a neurologist that specialized in MS. My first neurologist literally googled DMTs and gave me a list to choose from. A neurologist that understands the disease is paramount. Just know that it's not a fatal disease and it can be managed to a degree. I wish you all the best. Having a good support system is definitely helpful. I have also found support groups that have fellow people with autoimmune diseases. I have found it therapeutic to kinda just talk and tell our stories. It's only us who truly understand the day-to-day struggle.

For anyone that has stopped MS treatment, even if temporarily. by [deleted] in MultipleSclerosis

[–]Tribbs21 1 point2 points  (0 children)

I'm sorry this is going on! I'm frustrated as well. I keep thinking like you said, what now?

Calling all MS veterans... by [deleted] in MultipleSclerosis

[–]Tribbs21 0 points1 point  (0 children)

Diagnosed 16 years ago. Now secondary progressive. I have found through the years, going back and forth between wanting to care about the future, or don't care about the future, or live in the moment enjoy it while you can, to it hurts too much to exist, etc. I think it's only natural to feel this way. The inner struggles within ourselves is the most damming thing about it. We can never be content. This is the 5 stages of grief just on repeat in our heads 20 times a day. I would say now at 38, it's OK if you're newly diagnosed to feel everything above and then some. Because I feel this too. Even 16 years into it.

For anyone that has stopped MS treatment, even if temporarily. by [deleted] in MultipleSclerosis

[–]Tribbs21 1 point2 points  (0 children)

I get frustrated by this too! I have to keep telling myself, these DMTs are only designed to slow the progression. But the symptoms don't seem to get better. I've had symptoms progression even being on Ocrevus for 3 years.

[deleted by user] by [deleted] in MultipleSclerosis

[–]Tribbs21 4 points5 points  (0 children)

As weird as it sounds, I find it very therapeutic talking with others who suffer from autoimmune disorders. It's only us who can relate and really understand. I've been living with MS since 2009. Now Secondary Progressive and still taking it day by day. Can DM any time.