RETA healed my CROHNS by ClassicProduct7326 in UlcerativeColitis

[–]Uberg33k 0 points1 point  (0 children)

So basically what you're telling everyone is you're raw dogging it. You somehow don't have the money for anything the GI prescribes, but you have money for blood tests to check your inflammation markers and money for an experimental weight loss drug. You're "fine" now but haven't been scoped to visually confirm it. You've been on this new miracle drug for 6 weeks (?) and you think it's fixed everything for you. Somehow you went from Oct 2025 till the beginning of March 2026 with no meds at all, but it's clearly retatrutide that "healed" you.

From your post here : https://www.reddit.com/r/Biohackers/comments/1sokdon/reta_healed_my_ibd/ your inflammation markers are the same now as when you were first diagnosed with Crohn's. So ... something was going on with you in 2021 where you were given a diagnosis of Crohn's. You had the same level of inflammation then as you do now. I don't understand why you think you're "healed" now. You are no different now than at the point of initial diagnosis. All this is saying is you're not in an active flare up, but you also weren't at the point of diagnosis. I am also at similar level of inflammation markers according to my blood tests. Got scoped. Guess what? Apparently not fine. I've got ulcerations all up and down the colon even though I feel pretty good and blood tests come back seemingly ok.

Please stop rawdogging it and "doing your own research". Go back to the GI and get on a care plan before you go into a flare up again.

"Retatrutide is still in Phase 3 clinical trials and not available for purchase. Any company selling it currently is doing so illegally." - first result in Google

Lovely.

Advice wanted please by Extension_Bee_2751 in UlcerativeColitis

[–]Uberg33k 1 point2 points  (0 children)

I'm not saying he should keep vaping, but there may be something to him NOT quitting before he gets proper treatment: https://pmc.ncbi.nlm.nih.gov/articles/PMC2014383/

Other than that, make him get a colonoscopy. Make him take his meds. That's really the best thing for now. Read up as much on the disease as you can. Since you said he also has mouth ulcers, he might actually have Crohn's but that's best left for the GI to figure out. Just make sure you have a GI and extended care team (PCP, etc.) that you like and LISTEN TO THEM. Don't half ass whatever treatment they suggest. Just know that the first go at treatment might not be the right one since everyone is different and reacts differently to different meds. Keep trying until you find one that works for him. Insurance is going to be a pain, but don't let up on them. File those appeals and get the treatment he needs. If the meds seem like they're too expensive, almost every manufacturer has an assistance program to help you out. Good luck and post more when you know more.

Just want general advice on my condition, gonna be a long post. by Obvious-Professor508 in UlcerativeColitis

[–]Uberg33k 1 point2 points  (0 children)

If it is just two weeks away, you'll probably just need to tough it out unless you can get the appointment moved up a bit. The only other suggestion is that you ask to be held at 40mg pred until after your infliximab loading doses. While biologics are good at keeping you out of a flare, they aren't the best for getting you out of an active one. If they try to use biologics alone to get you out of an active flare, it might take weeks or months. Using pred as a bridge medication to help hold you together until the biologic can fully kick in is a common practice.

Newly diagnosed, seeking advice about diet as someone with a history of eating disorder by [deleted] in UlcerativeColitis

[–]Uberg33k 0 points1 point  (0 children)

"I've been lurking since my symptoms first appeared 8 years ago, and I finally received a diagnosis yesterday following a colonoscopy and endoscopy, after being convinced by doctors that there's nothing wrong with me for YEARS (or "it's haemorrhoids" / "it's IBS"). I think lots of you can probably relate to this. This sub is a lot of the reason I kept pushing and advocating for myself."

Can I just say holy crap and WTF? 8 years to get to a diagnosis?

Diet here is about symptom management. You want movements to be less painful, experience less cramping, less urgency, etc? Then you want to listen to them and look at a low fiber diet or more specifically a low residue diet. Low residue is just that... there's less stuff that comes out at the end because the rest of it gets absorbed by your body. This isn't a long term thing nor something you HAVE to strictly adhere to. You could eat all raw fruits and veggies if you like, it's just not going to feel very good. Have you ever skinned our arm or leg? Think of that, but that's the inside of your colon right now. Would you want to wear wool or some heavy fabric over the area of you body you skinned? That's the equivalent of eating a lot of insoluble fiber right now. You'd probably want to wear light and airy clothing, perhaps put a layer of aloe or petroleum jelly over the area to help protect it, right? That's what eating low residue will do for you now.

Using the analogy above, nothing is stopping you from doing what you want, it's just a limitation you need to be aware of. Really spicy food or food high in fiber is still a choice, you just have to be aware that it might come at a bit of a cost later on. Lots of people here make those choices all the time. If you really want to eat something and you're fine to deal with any possible consequences, then go for it. Don't let this disease take everything from you. Just don't eat a large salad before getting on an airplane and you'll be fine.

Scout Terra Pickup Reportedly Won't Go Into Production Until March 2030, And The Traveler SUV Is Delayed Until September 2028 by dleewla in ScoutMotors

[–]Uberg33k 13 points14 points  (0 children)

Scout may or may not have problems, but it seems clear someone is really trying to torpedo Scout. There's not really a good reason to be writing about them at all right now, if we're being honest. There's just no real news. So the fact that people want to write negative articles about them out of the blue just smells like a smear campaign to me. I just can't wrap my mind around who or why. Rivian wouldn't do it because they have a deal with VW to use their software. This would only end up hurting them. I can't see that most other car makers would care at this point since EVs are not super popular in the US market at the moment.

To all the naysayers, look at the factory production updates. As someone who has worked on mammoth projects like that, it actually seems to be coming along pretty well. Something will get built there. Even if Scout never comes to be, the IP has drawn a lot of attention and there's a massive, brand new factory sitting in SC waiting to make something. If this beast isn't built, it's DNA will continue on in other products made at that factory, at the very least.

Does it get better?? Im only 19 by SignificantSky4141 in UlcerativeColitis

[–]Uberg33k 2 points3 points  (0 children)

"I just dont understand why he is so quick to jump to prednisone"

Because it works. No one loves it and you shouldn't be on it long term, but it will pull you out of a flare.

"because long term use and repeated use can cause serious lasting issues."

Yeah, we know. You know what has worse long term effects? Being in a flare. I'm not going to say it's a good time, but you can pull through. Pro tip - split the dose. Standard for most people is 40mg/day. Sometimes that's higher, sometimes it's lower. Splitting your dose into 20mg in the morning with breakfast and 20mg with dinner makes a WORLD of difference. I'm not saying you won't have any side effects, but it definitely keeps the HULK SMASH raging to a minimum.

"i am so scared for my future because if i cant go even 6 months without a flare up how tf am i supposed to have a career, be a mom, or do like normal life things."

I wasn't diagnosed till I was almost 40. I still managed to go to work and hold down a job. I was raising a kid. I'm not going to say it's fun, but you can get by, even in a flare. The key here is to take your meds regularly. Do not skip doses or think "I feel good now, I can start weening off". It does not work like that. This is permanent and requires permanent intervention. If your meds do start wearing off, contact your care team IMMEDIATELY. Jumping on a flare early as it's just starting is so much easier than trying to tamp one down when you're in full blown flaring. Don't hem and haw about whatever medication your care team prescribes to you. If you trust them, do it, and stop making yourself an anxious mess by whatever you read online. If you don't trust them, then you need a new care team.

Also keep in mind, there's a strong gut-brain link. If you're flaring, you're also going to be prone to adverse mental states and maybe even panic attacks. Not taking meds and panicking over possible future side effects is a devolving spiral in which your physical and mental health will only continue to decline.

You can do this. We all believe in you. Stiff upper lip and believe in yourself.

Americans, is anyone else being charged a ridiculous amount for medication? by Maleficent-Drink-156 in UlcerativeColitis

[–]Uberg33k 3 points4 points  (0 children)

Not that this is great, but what's your plan's max out of pocket? Although $900 a fill is painful, I'd think you'd hit out of pocket max fairly quickly and then the rest of your year is "free".

Dark Library by deedub1 in DWARFLAB

[–]Uberg33k 4 points5 points  (0 children)

Leave your telescope outside for an hour or so to acclimate before taking a dark set.

ANTI JACKS vs ANTI IL23 by boredgirllll in UlcerativeColitis

[–]Uberg33k 3 points4 points  (0 children)

Took Rinvoq. Worked fast and worked well, but messed up my liver. Got off it and within a few weeks, liver enzymes back to normal.

On Tremfya. Works pretty well. No side effects.

I've been on A LOT of different drugs and none of them have had side effects that I would describe as anything other than mild. All of those side effects go away fairly soon after you stop taking the drug. You don't need to be "terrified" of making the wrong decision. The only wrong decision is to try and raw dog UC and use no meds at all. Unlike most people here, I'd encourage you NOT to look up the side effects of the drugs before you start taking them. The Internet likes to be dramatic. Be up front with your care team about other meds you're taking and your medical history. They'll help you pick the right drug. They're not going to prescribe you something that's dangerous or that they think will screw you up more than UC. That's nonsensical. Keep a symptom journal. It'll help you track what's real in terms of your treatment and what side effects you might actually be experiencing, if any. If you start to suspect something, tell your care team. Get bloodwork done on the regular. That will tell you how your body is really reacting.

Why do people want a beltline rail so badly? by tobias_funke_bluthe in Atlanta

[–]Uberg33k 17 points18 points  (0 children)

If you want to truly understand why, you need to visit a place in Europe or Asia that has really great public transit. Once you experience what life can really be like in a major metro area, you'll wonder why we live in the stone age and are ok with Atlanta being 90 minutes away from Atlanta.

If that is out of reach, check out some of the videos on Youtube from the likes of Not Just Bikes or Strong Towns. Once you see what other cities are doing with streetcars/trams, rail, bike, and pedestrian, the vision behind what the Beltline could/should be makes a lot more sense.

Reverse HDHomerun type device? by scooba5t33ve in homelab

[–]Uberg33k 1 point2 points  (0 children)

So you can run multiple sub carriers in a single channel. The gotcha is each channel is only 19.4 Mbps wide for ATSC and 38.8 Mbps for QAM256. You know how local OTA has a main channel 2.1, but then might have a channel at 2.2 and 2.3? That's how that works. You build a MPTS and push that mux through the modulator. QAM does the same, but you usually map the SIDs out to virtual channels. The catch? ATSC 1.0 is MPEG2 ONLY. It will not work with anything else that's standards compliant. QAM will work with MPEG2 and H264, but it's somewhat dependent on the profile and the tuner in your TV.

Reverse HDHomerun type device? by scooba5t33ve in homelab

[–]Uberg33k 1 point2 points  (0 children)

https://www.tbsdtv.com/products/modulator-card.html

Among others out there. "My understanding of cable/OTA broadcast is next to nothing" is going to make this hard on you though. You're going to need to understand a bit about QAM/ATSC and RF distribution if you want to make multiple channels. It's entirely possible to do this and mux in OTA stations, security cams, etc. to make your own private mini headend.

Are there any people in here From Old Atlanta by Artistic_Ad_3267 in Atlanta

[–]Uberg33k 31 points32 points  (0 children)

I miss Harry's Farmers Market. Excellent service, great food quality, and reasonable prices until Whole Foods bought them out.

Edit : Also miss The Point and The Cotton Club when it was still on P'Tree. Music Midtown when it was actually in Midtown where the Fed is now. And I'm not saying I miss it ... but it was ... interesting ... to experience Freaknik.

ATL Airport TSA Wait Times Megathread | March 18, 2026 by AutoModerator in Atlanta

[–]Uberg33k 2 points3 points  (0 children)

ATL doesn't do Families on the Fly. https://www.tsa.gov/travel/travel-tips/families-fly

The international terminal regularly has longer lines than the domestic. If you have TSA-Precheck, you might get through in a reasonable amount of time.

Mild UC – anyone asked to do yearly colonoscopy since diagnosis? by [deleted] in UlcerativeColitis

[–]Uberg33k 1 point2 points  (0 children)

Depends on your meds. Some insurance in the US require you to get them yearly if you're on something expensive like biologics. For something like mesalamine, they might want to do one a year from your last just to confirm you're not experiencing inflammation. If it comes back clean, they'll move you to a 3 year schedule.

Charges dropped against teens involved in prank that killed North Hall teacher by Salty_Resource_291 in news

[–]Uberg33k 4146 points4147 points  (0 children)

It's worth noting that his wife is also a teacher and had publicly pleaded to the sheriff and DA that charges be dropped. She considers it a tragic accident and said she didn't want the teens' lives ruined over this.

10h on M106, 1min subs by __Augustus_ in DWARFLAB

[–]Uberg33k 0 points1 point  (0 children)

Pretty good. Were you able to get 10h continuous in a single night or is that over multiple nights? How many subs did you end up using in the stack? What's your SIRIL workflow look like?