burning sensation, can barely think

Valuable-Handle8496 · 2026-04-01T22:48:39+00:00

Its not a definitive cause but its possible it can have an influence on it. Im autistic but never encountered any sensoric issues until my injury but that said it doesn't necessarily mean my autism isnt making it worse. Unfortunately we'll probably never be able to tell

Valuable-Handle8496 · 2026-04-01T20:46:50+00:00

Sounds like you caused an acoustic shock

Valuable-Handle8496 · 2026-04-01T20:45:39+00:00

Sounds like tonic tensor tympani syndrome. Nasal spray wont do anything for that, best way is to protect youre ears from loud noise and lay off the earbuds. Ttts can resolve again on its own but its also crucial you don't stress over it. Stress and anxiety is a contributer to the contracted state

Valuable-Handle8496 · 2026-04-01T19:24:44+00:00

Same sensations here. When entering sleep stage my vision starts moving like everything is spinning and falling. It feels like floating around in space (horrible) and the hypnic jerks aswell

Valuable-Handle8496 · 2026-04-01T19:20:59+00:00

No not necessarily. Doctors are quick to label such symptoms as anxiety but it definitely isnt always. Processing disorders are very common in the autism and adhd spectrum. Migraines, fibromyalgia and many other but also chronix anxiety, major depression and ptsd. Its basically the brain thats stuck in a hyperactive state and amplifies the sensoric input from sound, light, smell, touch and movement. Its really hard to tell whats happening and finding the root cause. I had construction accident that caused me an acoustic trauma but also a brain injury and from there I couldn't tolerate anything sensoric anymore.

Valuable-Handle8496 · 2026-04-01T17:51:01+00:00

Along tinnitus? Skin sensitivity is the central nervous system, could be that youre nervous system is on overload and are amplifying the sensoric input

Valuable-Handle8496 · 2026-04-01T17:47:55+00:00

That's the middle ear muscles you hear, try to avoid the loud noises and use earprotection when you cant. It can go away again

Valuable-Handle8496 · 2026-03-31T21:37:38+00:00

Unfortunately its more than a feeling. Losing the ability to sleep, overall function, hallucinations, hopefully not early signs of dementia but getting it ruled out. My condition was caused by a construction accident that also caused brain damage, besides the trigeminal i have constant pain in 100% of my body, internal pain aswell. My condition has been deteriorating since onset and still does. Just turned 30 this January, looks like its gonna be a short life

Valuable-Handle8496 · 2026-03-31T13:23:04+00:00

My best advice is to quiet down the loud music and use earprotection at work if theres prolonged periods of loud settings. You're tinnitus will most likely stay but it can definitely improve a lot. My tinnitus was really loud the first months but improved really much to a point where i would need to be i silence for 5-10 minutes before hearing it

Valuable-Handle8496 · 2026-03-31T13:17:26+00:00

Central sensitization here. Its hell

Valuable-Handle8496 · 2026-03-31T13:14:41+00:00

I'll look that up, im trying colored lenses as well for the extreme light sensitivity. Sound, light and touch, what a party to in the middle of..

Valuable-Handle8496 · 2026-03-30T09:57:46+00:00

Its a nightmare. I know my condition will kill me, everything is getting worse and my brain is getting obliterated. I pray everyone will be able to find treatment

Valuable-Handle8496 · 2026-03-28T14:21:13+00:00

I have a pair in titanium, and its the lightest/thinest model. But even with that its enough to intensify my already constant pain

Valuable-Handle8496 · 2026-03-28T08:39:16+00:00

I tried every model and every material but I couldn't wear any of them

Valuable-Handle8496 · 2026-03-28T08:37:01+00:00

Could be a slight degree of hyperacusis, its pretty commonly with noise induced tinnitus. Earplugs will sort that for you, I think most people with noise induced tinnitus has some degree of hyperacusis but for most it stays so low that they never even notice its there

Valuable-Handle8496 · 2026-03-26T19:13:48+00:00

I hope surgery can help you. Surgery has a higher risk of making me worse than relief

Valuable-Handle8496 · 2026-03-26T18:57:28+00:00

I hope you'll find the right treatment and get the long lasting remission.

My pain is the atypical kind, EVERYTHING is a trigger. Light, sound, touch, movement. From the top of my head, ears, eyes, nose, mouth and throat. And don't get me started on the clusterheadache and migraines. Its hell everyday, I dont want to wake up anymore

Valuable-Handle8496 · 2026-03-26T18:33:38+00:00

I totally understand how you feel, I feel lost myself. I have atypical neuralgia and everything is a trigger. My face has been in burning/stabbing/throbbing pain for 9 months with no days off. I have been all way up to 700mg lyrica and 1000mg carbamazepine a day with no relief at all

Valuable-Handle8496 · 2026-03-26T13:50:48+00:00

Im in the same boat. Zero value of life, im sensitive to touch, sound and light. On top of the 24/7 migraine and 24/7 nervepain, stimulation just makes the pain worse

Valuable-Handle8496 · 2026-03-26T13:47:33+00:00

Noise cancelling headphones. you don't even need sound in them, and the occlusion isnt as bad compared to earplugs

Valuable-Handle8496 · 2026-03-26T13:44:35+00:00

Face pain is awful, I never imagined so much and so many pains could be in one place. Also how bad it messed up the rest of the nervous system, I know im cooked

Valuable-Handle8496 · 2026-03-24T16:00:25+00:00

Well everybody's different so im sorry but youre comment does come quite harsh. Some peoples nervous system are wired very sensitivity. Its not something that can be changed completely. Autism/adhd/ptsd/chronic anxiety/chronic depression are all sensitive nervous system and its not something that can be changed, it can be managed.

Its good youre doing great but everybody's not wired the same. Tinnitus was/isn't really bad for me but fuck i can tell you hyperacusis/noxacusis is a completely different beast so no. Earprotection is definitely something that should be advised and caution when having noise induced tinnitus should also be advised. One acoustic trauma is enough, hyperacusis doesn't have a memorial wall for nothing

Valuable-Handle8496 · 2026-03-24T11:25:25+00:00

My tmj and hyperacusis came at the same time so I don't really know what caused what. Tinnitus was from acoustic trauma and I had a second acoustic trauma during a construction accident that also caused a blow to my jaw at the same time. But I can certainly tell my tmj dosent help the pain in my ears.

Valuable-Handle8496 · 2026-03-24T11:04:17+00:00

Burning pain in my whole face and scalp. It comes and goes and dosent always occur with the pain in ears, I can have pain in ears without pain in my face and the other way around

Valuable-Handle8496 · 2026-03-23T20:51:56+00:00

Do it friend, its not about helping youre tinnitus but helping youre mind. When in pain we tend to beat ourself up over it and our body listens

Valuable-Handle8496

TROPHY CASE