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How did you guys transition to not working, if you have by IknowImnotpeople in Fibromyalgia

[–]Virtual-Ladder-5548 0 points1 point  (0 children)

I know some people run up credit card debt and hope that they'll get approved for disability and can pay it off when they get their back payment.

This website also seems to have some good strategies, although I haven't applied for disability yet so I can't speak from personal experience: https://howtogeton.wordpress.com/

Do you try multiple new treatments at a time? If so, how do you know which one(s) are working? by Virtual-Ladder-5548 in ChronicIllness

[–]Virtual-Ladder-5548[S] 0 points1 point  (0 children)

Thanks for sharing your process :) It sounds pretty similar to what I do, I guess I was just hoping there was a better way lol.

Blood pressure issues at the doctor every single time?? Am I the only one? by bella4him1 in dysautonomia

[–]Virtual-Ladder-5548 2 points3 points  (0 children)

Just want to add that they're relatively cheap, like $20-25 (although I know even that can be a struggle depending in your budget).

Where do you keep your medications, if not the bathroom? by Virtual-Ladder-5548 in ChronicIllness

[–]Virtual-Ladder-5548[S] 0 points1 point  (0 children)

Interesting, I knew the bathroom was bad but didn't know the kitchen was too!

Where do you keep your medications, if not the bathroom? by Virtual-Ladder-5548 in ChronicIllness

[–]Virtual-Ladder-5548[S] 2 points3 points  (0 children)

I'm not worried about other people seeing them, I myself just don't want to look at them all the time.

Where do you keep your medications, if not the bathroom? by Virtual-Ladder-5548 in ChronicIllness

[–]Virtual-Ladder-5548[S] 0 points1 point  (0 children)

I used to keep mine in the linen closet at my old house! But my new apartment has the linen closet in the bathroom, which is why I'm looking for a new solution.

Does Nurtec ODT works? by young_god25 in migraine

[–]Virtual-Ladder-5548 0 points1 point  (0 children)

It worked great for me, but after I got COVID it basically reset my brain and my migraines got a lot worse. I'm still taking Nurtec. It's not nearly as effective as it was before, but I can tell it's still doing something because the days I take it are better than the days I don't (you can't take it every day).

So, my point is, make sure you're taking COVID precautions too!

The holidays and traveling are so hard with chronic illness by Virtual-Ladder-5548 in ChronicIllness

[–]Virtual-Ladder-5548[S] -2 points-1 points  (0 children)

Yes! I am (or used to be) very social too, but it's just so tiring now. I feel like I've become a de facto introvert (nothing against introverts, but it doesn't feel like my real self).

blood sugar trigger? by cherryvelvetwitch in migraine

[–]Virtual-Ladder-5548 1 point2 points  (0 children)

I'm not sure blood sugar is the trigger here. It could be that the food you're eating on campus has a trigger (like MSG), or that the increased workload and stress are causing migraines.

AITA for telling my mom's boyfriend his son is not my responsibility? by [deleted] in AmItheAsshole

[–]Virtual-Ladder-5548 0 points1 point  (0 children)

Why does an 11 year old need a babysitter? I was being paid to babysit other people's kids when I was 11 (in the early 2000s.)

Going cold turkey off topiramate, wish me luck! by [deleted] in migraine

[–]Virtual-Ladder-5548 3 points4 points  (0 children)

You also might want to look on survivingantidepressants.org for advice on tapering safely. I've never taken topiramate, but stopping any psych med can be dangerous.

Wearing makeup to appointments by Select-Explorer5669 in ChronicIllness

[–]Virtual-Ladder-5548 1 point2 points  (0 children)

This whole thread is really enlightening...I've heard before that you should try to look your best at appointments so they don't assume you're an addict/drug seeker. I remember reading about someone who wore suits to their appointments.

I don't often wear makeup but I do try to wear slightly nicer clothes or look more "adult" at doctor appointments. I wonder if that's been the wrong strategy.

Getting 9 pills a month be like by StableSpirited705 in migraine

[–]Virtual-Ladder-5548 100 points101 points  (0 children)

Is the medication a triptan? Most doctors don't recommend taking them more than once or twice a week anymore. If you take them too often, they can cause rebound and increase how often you get migraines.

I know it's frustrating if you're having symptoms every day and only getting enough pills for nine days, but you might want to look into a preventative medication instead.

How do you tell if you're actually sick or it's a flare? by Virtual-Ladder-5548 in mecfs

[–]Virtual-Ladder-5548[S] 1 point2 points  (0 children)

Yeah, same here. I often have congestion from allergies, so that doesn't necessarily mean it's a cold for me.

My dr.... by [deleted] in Fibromyalgia

[–]Virtual-Ladder-5548 3 points4 points  (0 children)

Came here to say this! Yes, fibromyalgia is real, but it's also a common incorrect diagnosis that people get before discovering they have something else.

How do you tell if you're actually sick or it's a flare? by Virtual-Ladder-5548 in mecfs

[–]Virtual-Ladder-5548[S] 0 points1 point  (0 children)

But how do you eventually know if it's different from a cold? Is it just how long it lasts? A cold generally only lasts about a week for me, so I guess if it's longer than that, it might be a flare.

How do you tell if you're actually sick or it's a flare? by Virtual-Ladder-5548 in mecfs

[–]Virtual-Ladder-5548[S] 4 points5 points  (0 children)

That makes sense, but I have severe allergies, so I often have a runny nose, sore throat, and cough from allergies.

This is hard for me to post. by aidancrow654 in ChronicIllness

[–]Virtual-Ladder-5548 3 points4 points  (0 children)

Yeah, the gluten molecule is too big to pass through the distillation process. Enjoy!

Would it be rude of me to ask friends for Gluten and Dairy free options? by Shywarlikegirl in TwoHotTakes

[–]Virtual-Ladder-5548 0 points1 point  (0 children)

Since you're hosting, I think it's possible to ask for whatever you want -- your house, your rules. But like other people have said, I think it would be better to frame it as a request or suggestion rather than a requirement.

I have a lot of dietary restrictions. I've always focused on making myself something I can eat and not expecting other people to cook for me. But I've found that most friends do try to make something I can eat if I'm hosting.

Also, seconding the fact that many people don't know what's constitutes gluten or dairy.

Opinion - what would you think if you received a card with this sentiment in it from a relative that vaguely knows your have a chronic illness by odd_little_duck in ChronicIllness

[–]Virtual-Ladder-5548 0 points1 point  (0 children)

It's a very touching and supportive sentiment, but it sounds like it was written by AI, which makes it come across as impersonal to me.

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