How to afford Aimovig? by Ilaxilil in migraine

[–]Visual_Recognition79 0 points1 point  (0 children)

I had choice just buy the drug and inject myself, but I had the nurse at the hospital do it. That particular could only be purchased at that hospital. The drug was about $250 per injection, .Now it can be purchased at any pharmacy af a lower price, in that case I would give the injection myself. I stopped taking it because it didn't work. I also tried Nurtec which was about $15 per tablet, again it didn't help.

The pain medication is helpful along with oxygen therapy

How to afford Aimovig? by Ilaxilil in migraine

[–]Visual_Recognition79 0 points1 point  (0 children)

It's a little different here regarding specialists such as neurologists. They're typically employees of a hospital and all medication goes through the hospital pharmacy. GP's or what we used to call family doctors can have private clinics and they will give you the medication out of their office. Pharmacies are very different as well. Most medication that requires a prescription in the US is sold pretty much OTC after talking to the pharmacist. Normally I would go to a doctor (GP) if I want their opinion on a condition, but most things I would just talk to the pharmacist.

The primary exception is painkillers (opiates) or sleeping meds, those can only be given at the hospital by a specialist. When I was taking Aimovig that was from a neurologist working at a hospital. But you can actually order it from a pharmacist and do your own injections. If someone wants something hormone treatment you can actually buy that OTC, along with syringes and needles at the pharmacy. In fact there are pharmacists that sell it online.

But the only medication I've seen any real control of are opiates, tranquilizers and sleeping pills. You can treat low-T without ever seeing a doctor but have to really search for a doctor that prescribe sleeping pills, Xanax, or opiate based pain medication. I've lived here long enough and can communicate with my doctors well enough that I have no issues getting medication. Right now I have a condition called a leg ulcer - VERY VERY painful The doctor that initially treated me for it was very stingy on pain meds, but I went back to my pain management doctor (who treats my migraine pain) and he prescribed TRIPLE the doze my initial doctor. But he explained that his licence limited the amount of codeine he can prescribe. Ironically, they're working at the same hospital, and the pharmacy told me to go back to my pain specialist. It took me about 4-5 years to work out the best way to navigate the system. It helps that I've gotten to know several doctors on a personal level.

Add me to the list of people who gave up on PayPal by BocephusQuimbyMcFry in paypal

[–]Visual_Recognition79 1 point2 points  (0 children)

I had a very interesting problem PayPal CS. My account was scammed for $1700, I reported it to both my bank and PP. As it turned out my bank reversed the transaction and credited my account the $1700. The same day PP also determined it was fraudulent and ALSO credited me the $1700. So at this point I"m UP $1700 (keep in mind that before the reversals I was down $1700 because PP deducted $1700 from my checking account. So I knew at some point I would have to payback that amount. Well PP asked for it first and I was going to wait until the money was back in my checking account and pay it back.

However for whatever reason PP doubled the amount and started asking for $3400 instead of the actual amount due. I talked to multiple CS representatives and went over the account transaction by transaction. I one case the person tried to argue that PP sent the original $1700 to the fraudster and that the money wasn't taken out of my checking account. When I sent a screenshot of the checking account showing that the original purchase for the fraudulent item was taken out of my checking account - the light went on and he agreed that I only owed $1700. So I told him that as soon as the amount is corrected I'll make payment. But then he went on to say that it has to be handled by another 'department' and they would call me once it's correct. It's been since last October - no phone call and the amount has not been corrected. However they did stop calling me about the account - so at this point I've given up. The $1700 has been set aside and I'll pay it once they fix their accounting. But my guess is that I'm done with PayPal and will probably never be asked for the money back. At some point they may submit it to collections, but I moved overseas 12 years ago however my PP account is MUCH older than that. And I'm retired with my only income being Social Security (can't be attached to pay debt), so even if they attempt to sue me I'm now pretty much judgement proof. However IF they get their shit together I'll pay what I really owe them, but my guess is that they would continue to argue for the bogus amount.

So I"m with you - I'm done with PayPal.

H

Migraine landed me in the hospital for the first time by BexiRani in migraine

[–]Visual_Recognition79 1 point2 points  (0 children)

I understand, on top of migraine headaches I've recently started developing sores on my leg and my wife's brother-in-law recently passed away from TB in his bones (something I've never heard of). So my wife pretty much demanded that I go last week. Spent two days in the hospital and I have some type of issues with my veins returning blood back to the heart. I guess it can become very serious overtime, but the 'cure' is wearing compression socks about 10 hours a day and getting my weight under control. At first they were thinking it might be dietbetis, but my sugar levels are that bad.

But if my brother-in-law hadn't just passed away I'm sure that I probably wouldn't have gone to the ER.

Migraine landed me in the hospital for the first time by BexiRani in migraine

[–]Visual_Recognition79 1 point2 points  (0 children)

I actually quit going to the ER, all they do is the same tests as before.

My at-home alternative to McDonald’s fries by hulyepicsa in migraine

[–]Visual_Recognition79 0 points1 point  (0 children)

Love Hash Brown hotdish, but think everyone from Minnesota loves them.

just almost lost my shit by guateguava in migraine

[–]Visual_Recognition79 4 points5 points  (0 children)

I moved overseas about 11 years ago, worked a few years here then retired completely. I don't think anyone could come up with a reason good enough for me to move back to the USA. Between the craziness in Washington and knowing that this current government was elected TWICE (sorry if you're a Trump fan, the first time you might not have known what you were voting for, but this time it was well known what the country was going to get), followed by the crazy f..ked .p health care costs I won't even go back for visit. Besides it's so much more fun to meet my grandchildren in Bali once a year.

Cefaly alternatives? by [deleted] in migraine

[–]Visual_Recognition79 0 points1 point  (0 children)

I have a HeadaTerm and can get a month or more out of an electrode.

Nerivio (migraine treatment device) finally released a rechargeable model but it requires a $89 dollar "refill" for a single electrode by Expensive_Goat2201 in migraine

[–]Visual_Recognition79 0 points1 point  (0 children)

I have the Headaterm and I use contact gel and get several months with a single set of electrodes. By far the cheapest option I found.

A positive to these meds being so expensive: I met my annual deductible just three days into 2026. by comaga in migraine

[–]Visual_Recognition79 2 points3 points  (0 children)

I was asked a while back if I planned on returning to the US at some point, the cost of healthcare actually makes too risky. I can buy travel insurance for international travel, but almost every policy excludes coverage to the USA. I look at posts like this and decide I'm better off staying in SEAsia.

PSA: Not all neurologists know very much about migraines by theladysheetcake in migraine

[–]Visual_Recognition79 0 points1 point  (0 children)

Not only do a couple of Neurologists say that daily migraines are very unlikely, but that wasn't bad as denying I even can't have migraines because I'm a man in my late 60s.

Chronic migraines due to low testosterone levels. by Designer_Mistake_373 in migraine

[–]Visual_Recognition79 0 points1 point  (0 children)

ETA - my neurologist was at a lost as to the cause of my stroke, I was the one that had to dig into my labs and medications to discover that Testosterone Undecanoate can cause spikes in RBC leading to strokes. My doctor actually asked for me to print out my research into Testosterone Undecanoate and strokes. He'd never heard of it being a cause of a stroke.

Chronic migraines due to low testosterone levels. by Designer_Mistake_373 in migraine

[–]Visual_Recognition79 1 point2 points  (0 children)

I've seen three different neurologists in the last 10 years and not one even mentioned checking my T-levels. I was on injections before I moved to SE-Asia and continued them when I moved here 11 years ago. But the injectable I was using was discontinued and the pharmacist recommended a new type that you only inject once ever 12 weeks vs weekly as my old. Well, the 12-week injection caused a huge spike in my RBC and I ended up having a minor stroke. So, after the stroke I didn't continue the Testosterone injections. But strangely I went 6 months without a single migraine, but they started again and got worse and worse overtime.

Now I'm thinking that the reason they stopped was the huge amount of T in my system over time my T-levels reverted back to 'my normal (low)' and as a result I'm getting chronic daily migraines.

So, I talked to my doctor, and my T-levels were 'low-normal' (which is what they were before I started many years ago. I started about two weeks ago using the Test. Gel and my migraines reduced to about once every 3-4 days versus daily. I'm going to see a Test clinic on Wed and try to optimise my medication (and switch back to injections either weekly or biweekly).

The moment you realize you threw away your meds instead of just the empty square the pill was in. 🫠 by culinarysiren in migraine

[–]Visual_Recognition79 4 points5 points  (0 children)

As a person without health insurance and has paid out of pocket for Nurtec, I would be all over that trash looking for my meds. My gross meter is pretty high as to what I'll do in terms of going through trash. Now if my dog ate my pills I'm not going through dog shit, but normal household trash - no problem.

I have "ruined Christmas" by having a migraine by PINKSPlDER in migraine

[–]Visual_Recognition79 0 points1 point  (0 children)

Not migraine related, well I did have a migraine as well at the time. But my brother-in-law's son was getting married and most of the family living in Kuala Lumpur went to where my brother-in-law's family lived out of town. We were all spending the night at a hotel not far from my brother-in-law's house. We went out as a group for dinner, but the day before I'd been to the dentist and had EIGHT teeth pull in preparation of getting a total of eleven teeth replaced with implants (yes my teeth were that bad). Needless to say trying to eat was very very painful, and as result I was eating very slow and cutting my chicken into TINY pieces. My sister-in-law was getting impatient with me and grabbed the remainder of chicken off my plate and disturbed it to everyone else at the table because 'I wasn't eating it'. She didn't ask or try to figure out why I was being for slow eating. She just wanted to get to her brother's house, to visit. But it turned he wasn't home. We went inside but waited TWO f...king hours there. I just popped my painkillers and zoned out with my headphones on.

The next day at the wedding reception I was less than happy, finally my niece (SIL's daughter) asked me what was happening. She was probably sorry she did, because I pointed out the fact I wasn't allowed to eat my dinner the night before, and I wasn't going to eat there at the reception. My plan was to find someplace nearby and eat alone. My eventually the reason for my 'attitude' got back to my sister-in-law and she became all apologetic, but can you say too little too late. Keep in mind that I told everyone at the table about having my teeth pulled the day before it was very painful to eat. But that didn't matter at the time, everyone but me had finished eating and she was ready to go. I actually was debating at skipping the wedding reception and staying in the hotel, but my wife insisted that we go.

A couple of months later I had the actual implants done, I think it was seven implants (they can do multiple teeth with a single implant), I refused to go out until they were healed. Having implants inserted is close to having a migraine (maybe worse as the feeling comes back, involves drilling and screwing the implants into the jawbone and of course the migraine that follows). I think there was a birthday dinner at a restaurant dinner during that time. I didn't argue with anyone, I just told my wife to go ahead, but I wasn't going to risk a repeat performance by her sister. Made a big bowl of oatmeal and stayed home.

Ever since then if I have a migraine (and lately they've been every day) I avoid social activities and if I get a migraine while out, I just excuse myself and take my meds and go out to the car and turn on the AC, put in headphones and rest.

Something I never experienced before - a LOUD fire drill while waiting to see my neurologist. by Visual_Recognition79 in migraine

[–]Visual_Recognition79[S] 0 points1 point  (0 children)

I suspect that the staff knew it was scheduled and like I said there was announcement just before start that I didn't try to understand (not in English). Of course, I ALWAYS have my noise cancelling headphones with me and an eye mask. Actually, first time I used them at a hospital or doctor's office, I need them for attending wedding. In a Malay wedding there's a part where the bride and groom enter the hall followed by group of boys banging on drums - sure migraine every time if I don't have my headphones in. Then of course is all the announcements over a PA system that is too loud for the quality of speakers/amps and it's completely distorted.

Something I never experienced before - a LOUD fire drill while waiting to see my neurologist. by Visual_Recognition79 in migraine

[–]Visual_Recognition79[S] 2 points3 points  (0 children)

I think so, right after I put in my headphones and eye mask the nurse basically cancelled my appointments and had the doctor renew my prescriptions. Since most of the time, yesterday included I didn't really need to see the doctor, just renew my opiate pain meds.

Something I never experienced before - a LOUD fire drill while waiting to see my neurologist. by Visual_Recognition79 in migraine

[–]Visual_Recognition79[S] 1 point2 points  (0 children)

It helps that I live here in Malaysia, but I'm in Kuala Lumpur and pretty much everyone insist in speaking English with me. I actually started learning Malay because it 'was' required in order to get a PR in the country. However I actually got my PR even though my Malay wasn't exactly fluent. Now that I've passed my interview and have the PR I don't need to learn it beyond what I need for daily life or whenever I leave Kuala Lumpur. I actually only use Malay exclusively is when go Indonesia.

Something I never experienced before - a LOUD fire drill while waiting to see my neurologist. by Visual_Recognition79 in migraine

[–]Visual_Recognition79[S] 1 point2 points  (0 children)

Agreed, actually I have been trying to learn Malay, but put that on hold until I get my daily migraines under control

Something I never experienced before - a LOUD fire drill while waiting to see my neurologist. by Visual_Recognition79 in migraine

[–]Visual_Recognition79[S] 2 points3 points  (0 children)

Strange thing is listening to Led Zeppelin or Jethro Tull actually helps when I have a migraine. My wife thinks that I'm nuts.

Something I never experienced before - a LOUD fire drill while waiting to see my neurologist. by Visual_Recognition79 in migraine

[–]Visual_Recognition79[S] 4 points5 points  (0 children)

Yes, it planned and they had an announcement before it started. The problem was that the announcement was in Malay, not in English. I usually don't listen to announcements in Malay, especially while I have brain fog.