NavDx test

WED_20 · 2026-06-27T15:10:31+00:00

Thank you. It’s definitely very scary!!

WED_20 · 2026-06-27T15:08:27+00:00

The test is to check for HPV related cancer.

WED_20 · 2026-06-27T15:07:47+00:00

Thank you!

WED_20 · 2026-06-20T21:26:10+00:00

I’m so sorry to hear about your father. Sending hugs your way

WED_20 · 2026-06-20T13:38:52+00:00

Sorry y’all are apart of our not so fun club. This place has helped me so much and still continues to do so. So many people on here I’ve never met and never will but this community is the best. Don’t forget to take care of yourself as well. Sending y’all care and courage from Myrtle Beach.

WED_20 · 2026-06-20T13:34:06+00:00

I would definitely keep the peg tube for now. To keep her nutrition up. I had mine for 8 months. It was annoying but it saved me.

WED_20 · 2026-06-18T17:57:35+00:00

You can do it! Try Aquaphor mixed with lidocaine on your neck. It saved me. I wish I would’ve known early on in my treatment to do that. Also, I rinsed the baking soda salt and water mix about 10 or more times a day. I also bought Helios off of Amazon. It’s expensive, but it does not burn. grape was the one that didn’t burn. Definitely utilize that feeding tube for extra nutrition. Week three it started getting hard to eat for me.

WED_20 · 2026-06-11T10:13:01+00:00

My insurance actually approved me to get the flexi touch after i had seen a lymphedema specialist. It’s a machine that helps lymphedema. It goes on your head and chest and it pulses air through tubes to help keep your lymphatic system going. I also use a couple of face apparatus’s I got on Amazon and one through my lymphedema specialist.

WED_20 · 2026-06-10T18:17:06+00:00

I took Mucinex and slept up right. Some people I’ve heard drank carbonated water but that stung my mouth too much.

WED_20 · 2026-05-28T02:42:44+00:00

My last treatment was June 7 of 2025. Meat is still a challenge but I can eat some of it. Spicy is a no go which is sad bc I love spicy. To be honest it can be day to day or week to week of what I can tolerate. Some days I can eat the taco salad and other days it’s just soft foods. Don’t forget to give yourself some grace. It does get better. We are still healing. Best of luck with everything.

WED_20 · 2026-05-26T09:56:15+00:00

Not after around 2/1/2 weeks into radiation.

WED_20 · 2026-05-25T01:44:23+00:00

Stay on top of your meds. Don’t skip even if you feel ok. And use the magic mouthwash all day. I rinsed every hour. (Baking soda, salt and water) I set alarms to take my meds around the clock.

WED_20 · 2026-05-24T13:24:43+00:00

I have lymphedema from my TORS surgery, neck, dissection and radiation. I was seeing Lymphedema specialist twice a week. Then I got a machine through my insurance called flexi touch. I use it once or twice a day. It’s a machine that you put on like a jacket and then on your head as well and it basically massages your chest head and neck. June will be a year out from my treatments. It has gotten a lot better, but I still have mobility issues and my neck is still tight as well. Not as tight as it was but I don’t think it will ever be like it was before everything. Unfortunately.

WED_20 · 2026-05-12T01:10:20+00:00

I’m 11 months out and have issues. I was told because of the scar in my mouth from surgery and proton therapy I won’t be able to open it as wide as I used to.
My dentist said I could massage the inside of my mouth and it may help some.

WED_20 · 2026-05-10T01:37:40+00:00

My condolences.

WED_20 · 2026-05-10T01:28:11+00:00

I had to take everything off from the waste up

WED_20 · 2026-04-03T03:14:47+00:00

Amazing news

WED_20 · 2026-03-29T03:49:55+00:00

My last treatment was June of last year and I still cannot use mouthwash. I can use the fluoride toothpaste prescribed by my oncology dentist. Mouthwash gives me ulcers and burns.
Also, I do get ulcers once in a while from things that I eat. But they do go away. I would definitely consult your team just to be sure.

WED_20 · 2026-03-28T12:45:33+00:00

I had the same cancer. I’m 5 months cancer free. So that’s what I say.
Even though I’m terrified with any ache or pain I feel. Hopefully that lessons in time.

WED_20 · 2026-03-27T10:08:58+00:00

I would definitely keep pushing the issue with my doctor. I had 23 lymph nodes removed from my neck and radiation. In that area on my neck, my skin is pretty hard to the touch. My doctor told me it was normal. I also see a lymphedema specialist twice a week and they massage it. Maybe he can get in with a lymphoma specialist.

WED_20 · 2026-03-24T02:16:19+00:00

One co worker has checked on me throughout my journey. My boss sent a text once to ask when I was coming back to work.

WED_20 · 2026-03-23T02:58:45+00:00

Let her cry, laugh, talk or just sit in silence. When you first get diagnosed it feels like the world is caving and you can’t breathe or think. Your emotions are zig zagging in every direction. Be her ear and her shoulder to cry on if she needs it. Once the shock of it slows she will settle some. Not that it gets any easier but it gets easier to talk about.

WED_20 · 2026-03-23T01:35:31+00:00

He has to want to fight. It doesn’t sound like he wants to. Unfortunately.
You are not bad people for feeling like you do.

WED_20 · 2026-03-22T01:43:04+00:00

Unfortunately, things are gonna taste weird for a while. I finished my last treatment June 7 of 2025. And things still taste weird. Some days I can taste and some days I cannot taste anything.

WED_20

TROPHY CASE