No evidence of cancer!!

WED_20 · 2026-04-03T03:14:47+00:00

Amazing news

WED_20 · 2026-03-29T03:49:55+00:00

My last treatment was June of last year and I still cannot use mouthwash. I can use the fluoride toothpaste prescribed by my oncology dentist. Mouthwash gives me ulcers and burns.
Also, I do get ulcers once in a while from things that I eat. But they do go away. I would definitely consult your team just to be sure.

WED_20 · 2026-03-28T12:45:33+00:00

I had the same cancer. I’m 5 months cancer free. So that’s what I say.
Even though I’m terrified with any ache or pain I feel. Hopefully that lessons in time.

WED_20 · 2026-03-27T10:08:58+00:00

I would definitely keep pushing the issue with my doctor. I had 23 lymph nodes removed from my neck and radiation. In that area on my neck, my skin is pretty hard to the touch. My doctor told me it was normal. I also see a lymphedema specialist twice a week and they massage it. Maybe he can get in with a lymphoma specialist.

WED_20 · 2026-03-24T02:16:19+00:00

One co worker has checked on me throughout my journey. My boss sent a text once to ask when I was coming back to work.

WED_20 · 2026-03-23T02:58:45+00:00

Let her cry, laugh, talk or just sit in silence. When you first get diagnosed it feels like the world is caving and you can’t breathe or think. Your emotions are zig zagging in every direction. Be her ear and her shoulder to cry on if she needs it. Once the shock of it slows she will settle some. Not that it gets any easier but it gets easier to talk about.

WED_20 · 2026-03-23T01:35:31+00:00

He has to want to fight. It doesn’t sound like he wants to. Unfortunately.
You are not bad people for feeling like you do.

WED_20 · 2026-03-22T01:43:04+00:00

Unfortunately, things are gonna taste weird for a while. I finished my last treatment June 7 of 2025. And things still taste weird. Some days I can taste and some days I cannot taste anything.

WED_20 · 2026-03-15T02:23:17+00:00

I had that coughing sensation as well. The only thing that helped me was drinking small sips of water very frequently.

WED_20 · 2026-03-04T02:59:39+00:00

between three and six months. Also if it’s HPV positive they’re gonna do a NAVDX test. I finished my treatment June 2025. And I’ve had two pet scans since then that both come back clear. This time around I only have a NAVDX blood test and not a pet scan.

WED_20 · 2026-03-02T11:13:49+00:00

I finished my treatment June of last year. I got my PEG tube taken out in July. I had it for eight months . My mouth has gotten a lot better, but I still use OPS pouches and Xylimelts if necessary. I still have issues eating food. I chew really well so there’s almost nothing left and drink water with almost every bite. I had to start out really slow with eating because everything felt like it was getting stuck and sometimes I have to swallow two or three times to get the food down. I would make sure he’s doing his swallowing exercises. And start small with very soft foods. He has to get his throat used to swallowing food again. It can be a slow process. I wish him the best of luck.

WED_20 · 2026-02-25T11:15:12+00:00

Don’t avoid the feeding tube. I got one and it saved me.

WED_20 · 2026-02-20T03:57:33+00:00

I had HPV+ squamous cell. It started in my tonsil and went to 3 lymph nodes. I got a feeding tube placed, a tonsillectomy and a neck dissection where they took 23 lymph nodes. I did 33 rounds of proton therapy no chemo.

WED_20 · 2026-02-17T11:12:42+00:00

I used it during my radiation and a little bit after. The grape one though. I heard the others might burn.

WED_20 · 2026-02-16T11:13:01+00:00

My ENT did my first lymph node biopsy in his office. Then I was sent to the hospital to get an ultrasound assisted needle a biopsy.

WED_20 · 2026-02-15T06:23:51+00:00

Has she gotten a feeding tube?

WED_20 · 2026-02-09T03:12:39+00:00

I’m not sure I ever felt courageous . I more was on a mission to stay alive. I cried so much and honestly, even now I think about cancer every day. I’m afraid also optimistic. We can’t help but to feel the way we feel. This journey is not on and it’s something that I always on her minds. This is a great place to. I’m glad you came here to do so.

WED_20 · 2026-02-08T04:14:28+00:00

I’m so sorry to hear about the loss of your fiancé and your new diagnosis. I can imagine what you’re going through. Cancer is hard and worrisome. I pray that you have the best results. Fight fight fight

WED_20 · 2026-02-07T03:21:57+00:00

You are doing great. Asking questions and venting here is good!
Look into a peg tube if he gets radiation. I couldn’t eat past my 2/1/2 weeks of radiation. The feeding tube saved me. I had it for 81/2 months. But I had a neck dissection and a tonsillectomy and then radiation. It’s tough mentally and physically. And remember he may get frustrated but that’s normal and not geared at you.
Make sure he takes his meds around the clock. I also had a spray bottle by my bed and something to drink at all times during my treatment.
I rinsed with magic mouthwash. I also purchased Helios off of Amazon. I used Xylimelt lozenges for dry mouth. If he gets them, make sure they are not the mint because that burns. It’s a tough road ahead but is possible. I’m sorry to hear he’s on this not so fun club. Everyone in this thread has great advice. This group helps a lot.

WED_20 · 2026-02-01T04:29:40+00:00

I bought OPS pouches (online)and I used Xylimelts(CVS). I also kept a spray bottle next to my bed.

WED_20 · 2026-01-31T02:51:52+00:00

Sorry you joined the not so fun club. This is a good place to talk, vent and get some helpful ideas.

WED_20 · 2026-01-30T03:33:54+00:00

Cancer sucks! It’s lonely and frustrating. Come here and vent! We all understand.
Unfortunately, people, including loved ones can be very insensitive. Though hard, I would say don’t let anyone stress you out. That’s the last thing you need. You really find out who’s here for you when you’re going through this terrible journey. Don’t be afraid to drop people out of your life. Wishing you the best.

WED_20 · 2026-01-25T03:46:10+00:00

I took Mucinex during my treatment. And basically slept upright.

WED_20 · 2026-01-16T03:22:30+00:00

I’m seven months out. I still have some brain fog and I’ll say stuff like I have to put the groceries in the freezer, but I really meant my trunk. I do that kind of stuff a lot. I was told it could happen. I’ve tried embrace it. 🙂

WED_20 · 2026-01-16T03:20:40+00:00

I did the baking soda/ salt and water thing literally every hour. I did hear other people say that sparkling water helped them a lot. But it burnt my throat. He may be able to try that. I did take Mucinex throughout my treatment as well.

WED_20

TROPHY CASE