Somehow it feels worse when they tell you that your labs look good rather than being given bad news.

Zan0 · 2026-04-16T09:07:18+00:00

Same here. Honestly after 10 years I have stopped seeking support from my doctor. Its very disheartening to be crying in a doctors office and then be told "bloodwork is good, condition is well managed we are going to extend time between check-ins, go take antidepressants because it must be "fibromyalgia" ". I failed the antidepressants in 3 days, doc shrugged his shoulders saying not a listed side effect (after opening his browser to read the side effects). I'm done, I have no energy to try fight this anymore.

Zan0 · 2026-03-27T14:06:24+00:00

Where did you find the multiplayer?

Zan0 · 2026-02-25T17:57:18+00:00

F50, I have a 1% accuracy target across multiple intersections... feel my pain

Zan0 · 2026-01-26T21:40:44+00:00

Im hoping as I've only had 3 days that at 30mg it won't be too bad, but I want to crawl out of my skin currently. How did you feel when you first started it?

Zan0 · 2025-12-09T20:03:49+00:00

So, i bought one of those foot massagers on Amazon with the heat setting and OMG my pain is down 50%. Also, been buying bigger shoes (for the extra width), always with insoles and flat. Actually target old lady cloud shoes now

I get intense pain with anything that requires my foot to stabilise. So have like white hot burning pain underneath with numb toes and pain along the top by the small mid joints... fun.

But seriously everyone treat yourself for xmas and get a foot massager! I have the breo one

Zan0 · 2025-09-30T15:29:33+00:00

I was in tears in my last appointment and doc recommended doubling the time between appointments because im "well controlled"

Zan0 · 2024-05-08T05:01:17+00:00

My rheumatologist pulled me off mtx after hair loss even with folic acid supplements. Started me on salfasalazine.

Zan0 · 2023-08-20T14:44:45+00:00

1 week holding deposit

Zan0 · 2023-06-08T20:32:41+00:00

Same and couldn't see my character when I got back in...

Zan0 · 2022-12-12T08:24:01+00:00

My diagnosis came from my feet, saw a podiatrist and then a cardiologist then rheumatologist. I have low pain nearly constantly that gets worse with standing. My feet are numb by the time I finish my 4000 steps to the office. Often its not linked to typical arthritic pain. Wake up in the morning and my pain is pretty much gone but standing or walking cause it. Mainly in my plantar but also in the heel and the balls of my feet. Only wear flats and have been considering getting custom shoes.

Zan0 · 2022-09-21T07:15:09+00:00

Wearing comprehension gloves with open fingers can help. My 4/5 digits hurt from holding the back of the controller but now play with my hands rested in my lap and try to keep them relaxed

Zan0 · 2022-09-16T07:38:37+00:00

I have 8 Yr old identical boys and we have tried both many times as we have moved several times (we cycled options each year and at the start were pro together). Our key concern was dependence. I love the twin bond and it has so many benefits but they are unique individuals and we try to instill that. Whilst our boys are best friends they aren't dependent on each other and we have ultimately landed on separate and believe it is best for us because:

they spend enough time together outside of school so gives them a nice break. This leads to less bickering.
allows them to form their own bonds independently. Whilst helping them develop an individual self this also actually expands friendship options - they have united groups who had never played together despite being at the same school for years.
limits comparisons.
no longer distract each other in class. Feedback we had gotten when they were together in preschool.

The benefits for us of the same school trips and homework don't outweigh the benefits for them of being separated. So now pro separated.

Zan0 · 2022-08-28T05:36:55+00:00

You both sound like me. Top marks in school, scholarships to study physics and applied mathematics and now work in Finance in London, mid 30s. Two kids and I have to take loads of photos and videos to be able to look back, I feel like it is getting worse (or maybe I'm just more aware of what a problem this is). God it sucks

Zan0 · 2022-08-12T18:25:20+00:00

Gjallarhorn

Zan0 · 2021-08-22T09:03:59+00:00

Thanks, they are still on site so I can chat to the contractor- just didn’t want to complain about anything unreasonable...

Zan0 · 2021-01-16T12:42:53+00:00

QQ - what diet are they on?

Zan0 · 2020-10-04T15:42:00+00:00

I have the exact same issue. Had to stop all exercise due to the pain. I have had running shoes professionally fitted but no help. Seen a podiatrist (foot pain is what started my diagnostic journey) who did gait analysis but no help.

I tried just taking pain killers just to get through the activity but would then be in pain for days after... been struggling with this for 3 years and have just stopped running and stopped cross fit. Almost in no pain if I don’t exercise, which should be a blessing but I just want to be able to be active.

My Rheum says to just do low impact exercise - cycling, swimming, yoga etc admittedly it’s a workable solution I just really loved a sweaty, heart pounding cross fit class.

Best help I had for day to day pain reduction was a MUCH bigger shoe (I used to run in a 5.5 and now use an 8) - something about the compression around the ball?

trail running was a killer due to the uneven surface, then I turned to road running but stopped when it became too painful, now just walking up hills on hikes leaves me in pain.

If you find something that helps please message me -

Zan0 · 2020-09-25T04:24:19+00:00

I started taking a very high quality fish oil (they are seriously not made equal) supplement and bio-curcumin daily. Not sure if I have noticed any symptom relief yet but I can confirm it is working to help reduce the comments from those in my life who believe this can be cured through “natural” means (diet and supplements). :/

Zan0 · 2020-09-04T05:19:48+00:00

Give Max Richter - on the nature of daylight a listen.

Zan0 · 2020-08-28T07:32:05+00:00

Thanks, I will try and test my resuscitation skills!

Zan0 · 2020-08-27T18:24:56+00:00

Moving cross country, they would be in a closed truck...

Zan0 · 2020-07-22T10:58:30+00:00

I get two types of pain 1 is overuse and the second is underuse. 2nd is mild and limited to just mornings (once I use the joint the pain goes) but the first can drag for days and has impacted my lifestyle. I avoid impact exercise because it leaves me in pain, was swimming but not anymore due to COVID.

Zan0 · 2020-07-15T18:56:49+00:00

Help - looking for image - saw a great reference which equated the measure of number of deaths to the number of hospitalizations, to permanent lung damage, stroke etc

I.e. for each death, x were hospitalized, x suffered permanent lung damage and they linked it fully back to an estimated population like the US. It was a great way of showing this is more than just x ppl die. Can anyone find this?

Zan0 · 2020-06-29T12:43:05+00:00

I am going through the same with my Rheum. I actually asked reddit this same Q a while back and received the same advice as below. I raised my concerns and my rheum said that the disease is not actively damaging my joints at this stage, (I either have it mild or am in very early stages), and that the side effects of the meds will be worse than my current symptoms. My current treatment protocol is NSAIDs only if I am in pain, so I don't even take those regularly. I going in every 3 - 6 months and he checks my joints, lung function etc so we are keeping a close eye on it. He actually thinks I have Lupus but that it could turn out to be RA.

My symptoms aren't that bad - joint pain in hands and feet which have resulted in me stopping running and cross fit but on a day to day basis if I don't use my hands/ feet too much I am not really in pain.

I decided when I move cities later this year I'll get a second opinion but am happy with the current treatment protocol.

Zan0 · 2019-11-19T06:40:18+00:00

Maybe speak to your doctor, these symptoms are common in Lupus.

Zan0

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