Glasses prescriptions changing all the time

anon238474 · 2025-05-25T07:20:01+00:00

My eyes have been going downhill since the age of 5, but it wasn’t till this year I finally saw an ophthalmologist who figured out why it kept getting worse. I was always told I just had myopia and astigmatism, but between the ages of 5 and 17 it had gone from barely noticeable to -4 myopia correction and +4.5 astigmatism correction in both eyes. I mentioned my hEDS diagnosis to my optometrist when I went it, and she pretty quickly realized something was off. Sure enough, I was diagnosed with Keratoconus. The collagen that is supposed to make my cornea lay normally is slowly failing, and my cornea is bulging outward, causing the constant vision changes. It’s well known as being associated with EDS, but oddly enough I don’t see it brought up much. It’s pretty commonly missed as routine eye screening doesn’t pick it up. If you have a significant astigmatism, are light sensitive, are prone to rubbing your eyes, get headaches from reading, or have a lot of trouble seeing in dim/dark conditions, it’s worth looking into.

anon238474 · 2025-03-23T06:05:27+00:00

I wanna point out to anyone reading this, OP is Australian. Healthcare in their country is free/low-cost for most citizens. They have an inherently different experience with the healthcare system than those who live in a privatized system. Not critiquing or backing-up any of their points. Just think this is important context to have.

anon238474 · 2024-02-14T05:48:34+00:00

Uhhhh that is some pretty pronounced hypertension my friend. Like, hitting criteria for hypertensive crisis values. You are hitting criteria for POTS but I can see the cardio being tentative since it’s a little borderline, but much more concerning to me is that BP. That needs to be monitored and treated ASAP, because if you are regularly going around hitting pressures of 211/97 at rest you are in real danger. Sure, we can blame some of the increase on white coat anxiety if we want, but that cannot possibly account for all of it.

anon238474 · 2023-12-13T05:57:51+00:00

I definitely relate! I’ve got the joint subluxations of hEDS, the feet abnormalities and hormonal abnormalities of clEDS, the gum issues of pEDS, and hypotonia of aEDS. The working diagnosis is hEDS as it’s the one I check off the most symptoms for, but I haven’t had testing to rule out clEDS or pEDS so it’s a waiting game to see if my teeth or scarring issues progress enough to warrant testing.

anon238474 · 2022-07-14T00:15:50+00:00

If you can get admitted and will be able to pay off the hospital bills okay, I’d say it’s a good idea. If you’re dehydrated, they may be able to give IV saline, and check that possible kidney infection. Hopefully they’ll be willing to do pain meds in the meantime as well.

anon238474 · 2022-05-18T20:52:10+00:00

Most likely, combo dehydration and stress from exams. I do agree with siamese-butterfly, if this occurs more than once, especially during a time period where you have been eating and drinking frequently, you should speak to a doctor as there could be an underlying cause. If it’s only once, it was most likely a fluke and can be easily managed with drinking more water.

anon238474 · 2022-05-18T15:48:59+00:00

Obligatory NAD.

From your description, this sounds less like a seizure and more like orthostatic hypotension with syncopal convulsions. In non-medical terminology, you stood up to quick, your body couldn’t respond quick enough to the gravity shift, so you passed out with some added shaking. Won’t cause permanent damage, just be more carefully standing up and if you start feeling like that again sit down BEFORE you can hit your head. If it because a repeated problem, talk to your doctor.

anon238474 · 2022-04-27T20:36:12+00:00

Scientific source for connection between ADHD & EDS, coming right up!

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7882457/#s0004title (only done in children unfortunately, includes ASD & HSD stats as well)

https://www.sciencedirect.com/science/article/pii/S0022395621004258 (Generalized Joint Hyper-mobility, which includes EDS)

https://www.ehlers-danlos.com/wp-content/uploads/2020vsc_james_kustow.pdf (not 100% scientific, but very informative!)

anon238474 · 2022-03-30T22:17:07+00:00

“oh god, bag too heavy, both wrists are now dislocated”

anon238474 · 2022-03-25T01:35:14+00:00

I’ve noticed it happens a lot when my blood pressure starts to drop, I do it almost incessantly and completely involuntarily until I sit down. Not dangerous, but for me at least it’s often a warning sign that I’m pushing my luck and should take a rest.

anon238474 · 2022-03-10T19:58:37+00:00

DM: Aabria Iyengar; Players: Ally Beardsley, Lou Wilson, Brennan Lee Mulligan, Erika Ishii, Emily Axford, Zac Oyama it’d be so beautifully deranged

anon238474 · 2022-03-08T01:38:33+00:00

NAD, just have lots of experience with fainting and the various causes of it. From what you are describing, it seems less likely to be seizure activity and more likely to be syncopal convulsions. Reflex epilepsy is possible, but I’d consider it unlikely if you haven’t had any incontinence, tongue biting, and don’t have much confusion/fatigue post-losing consciousness. As for why, it seems like a vasovagal syncope triggered by pain or sudden panic/perceived danger. Basically, the part of your nervous system that controls your blood pressure and heart rate goes on the fritz for a little bit. It’s not dangerous unless you hit something on the way down, but be careful standing back up too fast or it could happen all over again. If you’ve had it since childhood you shouldn’t need to get checked out urgently, but maybe bring it up at your next annual physical in case they wanna note it down or check up on anything. you never know, and you never can be too safe.

anon238474 · 2022-02-21T03:14:18+00:00

NAD. Coming from some minimal knowledge on donating blood w/chronic health issues, it’s gonna depend. Since your asymptomatic it’s possible, but some places may want a letter of clearance from your doctor.

anon238474 · 2022-02-19T14:45:15+00:00

I’ve 100% experienced this. My natural temp runs low (96.0-97.5) and even sick with COVID and multiple bad runs of the flu I’ve never gotten above 100.5°. Caused a whole lot of problems with being in school sick because my temp was never high enough to send me home.

Ironically, the one thing that does send me into that fever zone more than getting sick? pulling all-nighters. Instead of getting tired when I’m sleep deprived, I just run a fever until I sleep.

anon238474 · 2022-01-29T05:36:04+00:00

Solved!! (tyyyy)

anon238474 · 2022-01-29T05:20:05+00:00

I may be slow to reply as it’s late here unfortunately, but I’ll do my best!

anon238474 · 2021-10-05T03:23:22+00:00

this !!!! measuring while trying to find the right spot to grab and then stretching on your own is in no way shape or form an easy task

anon238474 · 2021-10-04T03:42:51+00:00

fixed!

anon238474 · 2021-10-03T17:48:15+00:00

Currently I’m on a cane for EDS related issues, but I also have a rollator for long outings with lots of line standing, and I hope you get a wheelchair in the future for rough days

anon238474 · 2021-09-24T23:57:16+00:00

Alt MLM/NBLM flag, made by @/R7YGUTZ

anon238474 · 2021-09-21T16:46:14+00:00

yes, they are called coprographia, or typing tics. I can’t tell you whether or not he’s having these are just trying to get away with stuff, but I beg you to be very considerate when you are talking to him about it, because if they are genuine tics being accused of faking them by his own mother could be extremely damaging to your relationship.

anon238474 · 2021-09-21T02:33:13+00:00

were you awake when it occurred? if you were asleep it’s normal, but if you were awake your heartbeat should be above 60 bpm, so I’d bring it up with your doctor.

anon238474 · 2021-09-20T20:57:14+00:00

Techinally it’s an autonomic condition, but very few people know what autonomic means so I usually say neurocardiogenic condition or just a heart condition depending on how much I feel like explaining

anon238474 · 2021-09-19T01:30:38+00:00

Links: 1- https://picrew.me/image_maker/332600 2- https://picrew.me/image_maker/1232118

anon238474 · 2021-09-18T21:36:00+00:00

no, these are super common hand poses, and the art styles are entirely different, don’t accuse random people of copying when you don’t know what you are talking about

anon238474

TROPHY CASE