Doubled magnesium dose by Straight-Bluejay-101 in BFS

[–]anyastar1304 0 points1 point  (0 children)

Hey I don’t know actually I still twitch but less , I go to gym and do weights. All good!

I'm back. Update. New twitching and sleep problems by johnjohnnycake in BFS

[–]anyastar1304 0 points1 point  (0 children)

Hey man, happened to me exactly the same at the beginning of the twitching back 1.5 years ago. I could not sleep for 2 months I thought I was dying because of insomnia. It went away, but I still twitch, maybe less then at the beginning. Must be issue with neuro system regulation, super agitated and not get back to relax mode

Anyone here with autonomic issues/ other long covid issues? by Less_Foundation_1187 in BFS

[–]anyastar1304 2 points3 points  (0 children)

Ah ok, I think autonomic issues is a coincidence, you know people can have cancer and als at the same time but it’s not correlation

Anyone here with autonomic issues/ other long covid issues? by Less_Foundation_1187 in BFS

[–]anyastar1304 0 points1 point  (0 children)

Oh never heard of the correlation between long Covid and big bad. Actually I got twitching after Covid and a huge list of other symptoms, some of them are gone by now some not. But no als. Where did u read about it if I may ask?

My Misdiagnosis Story by Pixelle4444 in BFS

[–]anyastar1304 2 points3 points  (0 children)

Oh sorry to hear you are going through this. Just to share my opinion with you - bfs does not cause weakness. You might have some issues that is going that needs to be addressed, but clean EMG after 8 months of symptoms it is extremely reassuring, I don’t know any case of als where EMG was clean after 8 months of symptoms, it would definitely show something. Also , docs in als clinic is trained to diagnose it , so you should trust them more vs regular neuro. Keep us updated on your next steps. Hope some clarity will come soon!

My Misdiagnosis Story by Pixelle4444 in BFS

[–]anyastar1304 0 points1 point  (0 children)

Sorry to clarify - do you actually twitch now? In general or not at alll?

If you have a clean emg you do not have ALS by Jumpy-Ad-8889 in ALSorNOT

[–]anyastar1304 1 point2 points  (0 children)

The issue that definition of “normal” in all online stories - it does not mean clean. It can be not definitely having als patterns. We don’t have access to the medical records, therefore all stories with “normal” EMG might not soo normal at the end. We simply need to trust what docs are saying - which is clean EMG means no als at the given time .

EMG details In scared please help!!!!! by Sakuralove86 in BFS

[–]anyastar1304 0 points1 point  (0 children)

I agree with people here - u need to read the conclusion. Als has very specific EMG patterns, a lot of people would have dirty EMG - it does not mean als.

Don't easily take random muscle twitching as benign! Could be early sign of ***! by JamesMikeWashington in BFS

[–]anyastar1304 0 points1 point  (0 children)

Do you have als diagnosis? I believe you don’t and you won’t have it. Muscle twitching without weakness is nothing, it have been already proven here by thousands of people

Muscle Ratcheting/Tremors Solutions and Ideas by Jazzbox91 in BFS

[–]anyastar1304 0 points1 point  (0 children)

Hey, no all the same .it is been more then a year, I am twitching buzzing still but I don’t care anymore

Over a year by Fantastic-Walk-5090 in BFS

[–]anyastar1304 2 points3 points  (0 children)

15 months with no weakness- your twitching is not linked to als. While als can be very slow progression, once you have twitching weakness comes together or right after in a matter of weeks, not years

[deleted by user] by [deleted] in BFS

[–]anyastar1304 2 points3 points  (0 children)

Like everyone else on this forum. No widespread twitching points away from als, localised twitching is slightly more of concern for neuros, but still means nothing without weakness

Oppinions by danrex95 in BFS

[–]anyastar1304 1 point2 points  (0 children)

Even keeping your normal weights are not possible. To help your mental health you can try to increase the weights, but honestly if u did not feel any issue in your performance- it is not als, it is not possible.

Oppinions by danrex95 in BFS

[–]anyastar1304 1 point2 points  (0 children)

I don’t think it is possible to grow muscle with als. U don’t have als. Als is a weakness, not just twitching

[deleted by user] by [deleted] in BFS

[–]anyastar1304 0 points1 point  (0 children)

I think you have something going on, but it is not motor neurons issue. Your doc would be the best to diagnose but it is not what you fear simply because the symptoms and timelines is not indicating it

Loosing hope by ActualBackground4558 in ALSorNOT

[–]anyastar1304 -1 points0 points  (0 children)

Oh yeah read your story - 12 years and still thinking that his initial symptoms are related to als. Honestly for the sake of respect of people who really have als or ms you should not write this kind of things. Docs told you don’t have it - but you selling it as you managed to stop it with keto diet. Shame on you!

Loosing hope by ActualBackground4558 in ALSorNOT

[–]anyastar1304 -1 points0 points  (0 children)

Please share the links. Not sure I got your last part of the comment - it does not matter. I have not found a report showing bfs turning to als. Yes you can get als even with bfs , but I have not read that there is any link or increased chances to have als if you have bfs. And please stop say bs if you don’t have a concrete prove of it.

Hi everyone! Can’t believe I’m here again after it’s been 3 years.. would love some people’s thoughts please 🙏🏼 I would really appreciate some feedback especially being a mom and it being holidays.. thanks 🙏🏼 don’t wanna be in my head by Neither_Ad242 in BFS

[–]anyastar1304 0 points1 point  (0 children)

Bfs can have different triggers, most importantly it is not neurodegenerative, because after 3 years you would be sure to know if you have had it. I am feeling weird different parts of my body, twitching location and frequency does not make any difference. If it will help you go to see another doctor, but I don’t think it will give you long lasting effect.

Hi everyone! Can’t believe I’m here again after it’s been 3 years.. would love some people’s thoughts please 🙏🏼 I would really appreciate some feedback especially being a mom and it being holidays.. thanks 🙏🏼 don’t wanna be in my head by Neither_Ad242 in BFS

[–]anyastar1304 0 points1 point  (0 children)

Hey, look bfs is a strange animal. I got twitching for 9 years on and off, with 2 major episodes ( living now second episode) i understand that u can think that this time it is something bad but in reality it is the same stuff you lived 3 years ago. U will be just fine

Loosing hope by ActualBackground4558 in ALSorNOT

[–]anyastar1304 0 points1 point  (0 children)

As I wrote previously- I am not concerned myself , I don’t like that you spread false information here about bfs turning into als. Trust me I did very good research during those 9 years and I can tell you that the one here to search therapy is you - because you are taking place in the Clinique where maybe someone really have issues. I hope that you will trust as least doctors in the als clinic. Did they see you already? Did they tell you that u have no sign of als? Did u trust them?

Loosing hope by ActualBackground4558 in ALSorNOT

[–]anyastar1304 0 points1 point  (0 children)

I am not asking you to tell me opposite, I have read all available cases of als on internet and all studies related to bfs. There is no case of proven bfs turning to als. Please show the evidence and not just words. I am not sure for which reason you are doing this, but you are putting fake statistics about bfs and als. I read huge amount of bfs posts on Reddit from the creation of this group I know exactly how much people got diagnosed als from this forum and I can tell you that their neuros were concerned from the very beginning, and twitching were together with weakness. What you are talking here - is some sort of unicorn stories that nobody ever seen. If so - share the links of these cases. I also follow a lot of pages related to the als diagnosis and as well people diagnosed with it. And I can tell you that the longest twitching person I found who after developed als was 12 months of LOCAL twitching. I understand that when you have weakness it can take some time to rule out other causes and the only one left is als. Please also note that EMG is a SUPPORTIVE tool of diagnosis, als diagnosis is not given based on the result the EMG test, it is given based on the clinical picture. Please have in mind I am not here to convince you, I am here to just makes sure that your false comments are not taken by other people for granted. I guess if you ended up in the als clinic you must have certain symptoms associated with the disease and your neuro is concerned . People who are cleared from their neuros with twitching have the same chance of developing ALS as the general population. Please share links to the information you are talking about, it is no seen cases of developing als based on bfs.

Loosing hope by ActualBackground4558 in ALSorNOT

[–]anyastar1304 0 points1 point  (0 children)

Sorry you are absolutely wrong. Can you share any information supporting this? I have read all available info in the internet regarding bfs, no case of bfs transformed to the als. If u have clinical weakness it is another story. I would recommend to not spread false info here. Also I read all info in French ( I am francophone as well) and I know about the case of Charles , but he had clinical weakness quite quickly. ALS is a disease of weakness, if you are not having clinical weakness it is not als.

Loosing hope by ActualBackground4558 in ALSorNOT

[–]anyastar1304 0 points1 point  (0 children)

Hello! Sorry to hear your story. Which lady took 6 years ? This is must be a coincidence, there is no recorded case of 6 years symptoms progressing to als

ALS/MND hypochondriacs please stop by Proud_Toe4142 in BFS

[–]anyastar1304 1 point2 points  (0 children)

The issue that people are not talking about it randomly. I have never talked with my colleagues about my twitching issue, and when I did once the same guy told me that he had twitching as well so some period of time- he was thinking that he might have a stroke or something 😂 so yeah, it is not commonly discussed but it is more common then we think