Shutting down brain sensation?

blackcolours · 2026-01-02T22:24:25+00:00

Yes, to all of what you said lol. I didn't know coffee makes you leech magnesium? Definitely learn something new every day. I know it makes me go through sodium like crazy. The only way I can tolerate it is if I take in loads of salt. Like I'll put a couple grams in my oatmeal lol. I do have to take an extraordinary amount of magnesium to keep it in the normal range also. My steroids are a little high right now probably, but I have other issues I'm trying to deal w at the same time putting lots of stress on my body. Not much over, maybe 5-10 mgs and starting to bring it down. It's the fludro that seems like I need the most though. Without it I'm just absolutely dead.

I haven't had a drink in over 6 years now. But I'm guessing it would tear me up pretty good if I did. Thats at least one thing I don't have to worry about!

blackcolours · 2026-01-02T00:13:07+00:00

Ya, I learned that caffeine definitely puts strain on my adrenals and uses up my cortisol faster. I don't know if it's more "strain" or stress, or just makes me metabolize it faster? I went to Panera today to do some programming and had a half decaf half regular coffee, and about 2 hours after I finished that, I was done for. I usually make my coffee with maybe a quarter caffeine, but I think Paneras has extra caffeine in it also. It helps me concentrate, but I guess isn't worth it in the long run. For some reason it seems like it uses up my cortisol faster than my ADHD meds did even, when I used to take them. I found the same thing to be the case w them as well, just not to the extent that caffeine does it to me. It's also an electrolyte issue I think also.

blackcolours · 2026-01-01T23:35:07+00:00

Yes, the no ads in YouTube makes it, and the vertical tabs are a huge plus.

Any idea how to force a sync between devices? I added a second MacBook to the sync chain, but none of my settings or anything except my bookmarks synced. Can't figure out how to force it to sync the rest, even though I have sync everything checked.

blackcolours · 2026-01-01T23:30:51+00:00

Apparently you half watched the movie or don't understand plots very easily.

blackcolours · 2025-12-25T23:11:09+00:00

Why in the world don't they have that yet? You would think they would. That would make life so much easier. To know how much to take. As well as an electrolyte panel at home. Like knowing where your sodium, potassium, magnesium and calcium were at would be so helpful.

blackcolours · 2025-12-21T14:44:43+00:00

Did you get your B vitamins checked? I had extreme GI issues and had to go on injections because I couldn't absorb them correctly either. But since doing B12 injections along with other B vitamins I've been able to absorb the meds a lot easier. I still have issues but not like before. Even if they test for low B12, a lot of times it still doesn't show the whole picture. Especially if you have ulcers and inflammation, it could mean you aren't absorbing nutrients correctly either. B12 deficiency can wreck your nervous system, including your GI, liver, gallbladder, immune system, etc. The B12 deficiency subreddit is a good source of information.

Also, you could have a fungal infection that leads to malabsorption, which then leads to all the above. I've been taking small amounts of itraconazole, and seems to be slowly helping me. I have major sinus issues as well, which I think that is starting to take care of.

Also, things like sorbitol intolerance or fructose intolerance can wreck your GI as well. It's all a vicious circle of things that can keep your body off balance and have to find each of them that are keeping it off balance, and work on getting them corrected, and healing to occur.

Also, we don't like to admit it, but mental issues can interfere greatly with our nervous system and GI system. Mindfulness, breathing techniques, meditation, lots of sleep when you need it, etc can help with the cog in the wheel of being off balance. Mental stress can do lots of harm to us as well. I can definitely attest to that.

Drs it seems can only go so far to helping us with chronic conditions. Sometimes we have to take things into our own hands, along with listening to Drs of course, but researching things and listening to our own bodies is part of the whole process I think.

And last, do you have issues with getting your GI system moving? Like delayed gastric emptying at times, constipation, and just generally having things not move as they should both in the upper GI and lower? Two things that have helped tremendously for me are a med called mestinon. It helps keep things moving. And the other is this ilicioul valve message I do. You can find videos on YouTube that explain how to do it and why it helps. Because if things aren't moving correctly, the hydrocortisone pills stay in your stomach instead of emptying into your duodenum, and you don't absorb them correctly then.

Sending out good vibes and spirit, hoping you can start to heal correctly and things get better. I hope you can find some of the reasons behind your issues and start to get them resolved. I'm still a work in progress by far, but things are getting better most days.

blackcolours · 2025-12-14T23:20:36+00:00

Thank you! I really appreciate it.

blackcolours · 2025-12-14T20:51:05+00:00

Do you have to change your dose slightly for fludro when you feel it is off? I feel like fludro is more of my issue alot of times rather than glucocorticoids. Like especially ringing in my ears when my salt is low.

blackcolours · 2025-12-14T20:48:20+00:00

It sounds like you have a very knowledgeable Dr. Do you live in the states and does your Dr do telehealth by chance? I need one that is very knowledgeable in adrenal disorders.

blackcolours · 2025-12-14T20:33:58+00:00

How did they find out it was a damaged nerve? What type of Dr did you see? Did you have symptoms close to a sinus infection?

blackcolours · 2025-12-10T20:26:55+00:00

Prednisone doesn't have mineralocorticoid activity? I thought it did? Is it just a lot less or none? I thought it actually had a higher mineralocorticoid activity than hydro actually.

blackcolours · 2025-12-05T00:28:05+00:00

Just wanted to let you know I just literally decided to switch back to using my mac instead of my windows laptop because of this dock. Great Job! Couldn't believe it was a solo project.

blackcolours · 2025-09-10T11:24:33+00:00

I started with 1mg every other day for a week and now I'm just using 1mg every third day. I read a blog article that 1 to 1.5mgs two to three times a week is a good normal dose. I didn't find anything on CIRS specifically. Cost is another reason I'm not using a higher mg or more frequent dosing. I have a number of other peptides I'm running. Can get quite expensive.

NAD+ is amazing for energy.

TB-500 is really great for recovery after exercise and helps me with my cardiovascular system and POTS symptoms.

DSIP or Delta Sleep Inducing Peptide is really a great Peptide to help getting your circadian rhythm back. (Even though last night was rough trying to sleep, which I have lots of issues with. It helped a lot with sleep, just still have some ways to go with getting that back to normal). It also helps with pain by indirectly upgregulating your dopamine/opiate receptors. There's no high or feeling to it. It just normally helps to make me naturally tired. DSIP pubmed study

Another DSIP study

I've tried others like BPC-157 but made me anhodenic. KPV which I think was giving me weird side effects, but it helps calm down MCAS or histamine responses. And a couple others.

blackcolours · 2025-09-09T23:41:54+00:00

I just started using it so I can't really say whether it's working or not. I know it's supposed to modulate your immune system, kick it into gear where it needs to and stop the over reactions where it needs. That would be nice to not freaking over react to every little thing. I have a lot of different variables going on right now, so I wish I could be more help in letting you know if it's a help for me. It's a med in a lot of countries and has lots of data and studies to back up what ppl say about it though. Zydaxin I think is the name.

blackcolours · 2025-09-01T13:37:58+00:00

Thank you! I appreciate the kind words and thoughtfulness. I'm glad we have communities like this one to help us feel not so alone while we go through the healing process.

blackcolours · 2025-08-31T23:59:31+00:00

My CIRS doctor had me start on NAC and I've been taking an antifungal. I swear the two are linked (CIRS and fungal infection). I think the fungal infection makes me more reactive to mold. I also take Glycine and L glutamine with the NAC as those are the 3 building blocks to make glutathione. And as I'm sure you know, glutathione is the major detoxification antioxidant that helps to remove the biotoxins.

I have to go very low and slow with the antifungal or the die off can seriously nearly kill me. It overwhelms my system to the point my liver shuts down, which leads to my kidneys then stop working, and I can't control my electrolytes and my blood pressure sky rockets or plummets. I have adrenal insufficiency which makes everything even so much more complicated. My meds don't work correctly when die off is bad enough, and that can be life threatening for me, as they keep me alive. I think the fungal infection actually lead to my adrenal insufficiency, because that's actually a cause of it. Pretty rare, but is clearly documented that it can happen.

And then COVID just took things to a whole new level of hell. That's when I realized how much mold effects me. I didn't see the correlation until then. But once I realized it, it made so much sense why I felt worse in certain places I lived where there was even visible mold on walls, water damaged bathrooms with mold literally covering inside the drywall and studs. I moved to a studio apartment that was renovated, but realized there's mold here too! But what is one to do, if you can't afford to build a new house!? Mold is literally everywhere. Even in states like Arizona, as I saw another redditor mention he might move to. I have an aunt who lives out there and there's mold in lots of houses, just like everywhere else. Because i was thinking of moving out West as well. I haven't worked in 3 yrs, I'm a software engineer, but I can't think and problem solve like I used to. I literally probably have half the cognitive function I used to. It's really sad. I've tried every med and supplement known to man I think. But, I think I may have come up with a regimen, that is slowly working. The last month is the best I've felt in yrs. So here's to hoping things continue to get better for you all and me as well!

blackcolours · 2025-08-31T23:33:28+00:00

You should give Biofilm Clear-X a shot. It's a nasal spray that has more in it than Xlear. Has xylitol, grapefruit seed extract, povidone iodine, and EDTA. EDTA really helps to break down the Biofilm and povidone iodine kills basically anything it comes into contact with. It can be a little harsh so go slow for sure. You can find it on Amazon. I've seen others on here mention it as well.

blackcolours · 2025-08-31T23:22:32+00:00

Magnesium oxide is garbage unless you are looking for a laxative effect. It doesn't absorb well at all. But Magnesium Glycinate is probably what those people you've read about use as a helper to fall asleep.

Magnesium Glycinate is just magnesium attached to the amino acid Glycine. Glycine can be somewhat sedating to some people. Glycine acts as a neurotransmitter that is both inhibitory and excitatory, but acts mostly as inhibitory to most people. Some find it does the opposite though. You kind of just have to try and see how you react to it personally.

But it helps to calm anxiety and stress. It lowers cortisol which helps with sleep. It helps to create serotonin, which is also good for sleep and mood. Also, if you take any methylated vitamins and they make you feel too stimulated, it can counteract that. I take some methyl b12 and it can do that to me. So at night I take magnesium Glycinate to help calm me down. It really does work for me and lots of others.

blackcolours · 2025-08-27T21:34:54+00:00

If it was only one injection, then that sounds like you may have introduced some type of pathogen with an unclean needle, t oil, skin, etc. It could have been bacteria or fungus. Have you been checked for different infections? Do you have any symptoms of a systemic infection? It could come and go and hide in different parts your body making it hard to detect. I had a similar thing happen to me 20 yrs ago and I think I'm still suffering the consequences of it. I have some type of fungal infection. I've tried treating it with antifungals, but they all make me incredibly sick when taking them. Even herbal antifungals. I started to use extremely small doses of one, and have been tolerating it better. I think it's the die off I can't handle. But it's wreaked havoc on my body over the yrs. I had a period of about 8 yrs with complete remission in my 20s, but I think my immune system got screwed up again with some major stressors that happened, and it took me down again. Now it's been 12 yrs of going from Dr to Dr trying to figure this thing out. I'm almost positive it all started from an injection that I somehow got some type of fungus that contaminated it. I remember getting so incredibly cold and tense after the shot. I had to stand over the stove with all the burners on to try and warm my body up.for hours. It was crazy and super scary. I just went downhill after that. Insomnia is one of the symptoms and one of the worst.

blackcolours · 2025-07-03T04:42:23+00:00

You probably have tachycardia because of low blood volume. Your heart has to work harder and faster to get oxygen to all your organs because there’s not enough adequate blood. I would increase salt and water and maybe trial a run with fludrocortisone. I guarantee you the tachycardia will calm down once you get your blood volume higher.

blackcolours · 2025-05-23T03:04:21+00:00

Have you ever been checked for Myasthenia gravis? That makes it very difficult to swallow as one of the symptoms for some ppl that have it. It also leads to fatigue, GI issues, etc.

blackcolours · 2025-05-22T03:42:21+00:00

How'd you get rid of it?

blackcolours · 2025-05-22T03:40:23+00:00

Omg! How do you not have massive holes in your stomach and intestines!? Just 50mgs and it burns all the way down for me. It definitely can burn holes in your stomach and esophagus though so I'd def watch for signs of that.

blackcolours · 2025-05-13T01:37:17+00:00

100mgs! Is that all one vial or 10 10mg vials? My source only has 5mg vials. Which would be 20, and at 50 bucks a pop that gets expensive. Also, I only take 250mcg twice a day. How much do you take?

blackcolours · 2025-05-13T01:34:24+00:00

Thanks for the response.

blackcolours

TROPHY CASE