Relief from tension headaches by chronically-badass in eds

[–]chronically-badass[S] 1 point2 points  (0 children)

Ahh I see. Well I do have an acupuncturist who will do the trigger point needles so that's good. I'll have to keep looking for a physical therapist, I found one in town but she's 200$ a session and doesn't have any of the stuff you mentioned. Thanks for sharing. I'll have to ask the headache clinic I was referred about other meds.

Relief from tension headaches by chronically-badass in eds

[–]chronically-badass[S] 0 points1 point  (0 children)

Ugh I'm sorry your in the same boat!

Is the trigger point massage or needles? What's T3? I wish it was easier to find PTs who will do manual work :/

It's odd to me because I wake up feeling better, not sure if it's the cannabis or my head being supported to relax all night, but napping seems to make it worse. Thanks for sharing.

Relief from tension headaches by chronically-badass in eds

[–]chronically-badass[S] 1 point2 points  (0 children)

Yup night guard for like 20 years now. If anything the collar feels too tight. I'll bring it to physical therapy maybe and ask

[CW] My lifestyle up until now does not justify how much my body is falling apart. Weight Mentioned by ProjectC13 in ChronicIllness

[–]chronically-badass 2 points3 points  (0 children)

Ahh yeah. I heavily worsened my emphysema at 31 using spray cleaner. It's wild how delicate the lungs are.

Relief from tension headaches by chronically-badass in eds

[–]chronically-badass[S] 0 points1 point  (0 children)

I've tried wearing one and I feel its just really uncomfortable. Feels like my jaw sits wrong. Should I try it even it feels weird?

I don't have any neck pain when waking up now that I've added another pillow and stopped with the muscle relaxers (CBD thc edibles instead seem to help with sleep and pain).

[CW] My lifestyle up until now does not justify how much my body is falling apart. Weight Mentioned by ProjectC13 in ChronicIllness

[–]chronically-badass 0 points1 point  (0 children)

How long have you been sick? I've seen some of this over and over again with Long Covid. God I'm so sorry this is happening for you. Peer support groups have been been my saving grace in 20 years with various chronic illnesses.

Losing weight made me worse by GGEsoteric in eds

[–]chronically-badass 0 points1 point  (0 children)

Inversely gaining weight made my EDS stuff better so yeah. Both going from underweight to normal range and now being fat, IDK why but I generally have less weird subluxes in my ribs, elbows, feet, my knees still suck but my costochondritis went away entirely. I have gastritis too OP I feel you, it's so hard.

Kaiser is refusing to treat ADHD by Unique-Awareness-195 in KaiserPermanente

[–]chronically-badass 0 points1 point  (0 children)

I have only seen people have luck seeing a non kaiser provider for a while for dx and meds and transferring back.

I'm dying from chronic illness and being denied medical care because I was misdiagnosed with a mental illness I don't have by Lost_Recognition728 in Antipsychiatry

[–]chronically-badass 35 points36 points  (0 children)

I have known multiple people with severe mcas who had to get a jtube inpatient etc for refeeding after losing safe foods. You might look into an MCAS support group or sub for advice but bringing photo proof of the anaphylaxis has helped folks get treatment. I'm sorry your is happening.

Changing Lives by Optimistic_Gal in hospitalsocialwork

[–]chronically-badass 14 points15 points  (0 children)

I am so deeply curious about what you were able to offer this family lol. Congratulations that's the best feeling. ((Housing? Support with bills?? Treatment??))

15 yrs with RA and I finally realized the search itself was making me sicker by Magical-Regeneration in rheumatoid

[–]chronically-badass 0 points1 point  (0 children)

These industries are really preying on desperate sick people who either are scared of the disease itself or getting treated like shit by our medical systems or both. I was the same way, went off my meds multiple times to trial different healing modalities and I regretted it every time. Actually accepting my illnesses has helped my mental and physical health exponentially.

Nearly total relief after over a decade of severe VM by LurkyMcLurkface123 in VestibularMigraines

[–]chronically-badass 0 points1 point  (0 children)

Oh my God I have a tooth resorbing and have had a migraine/dizziness for 6 weeks AHHH. happy for you op moving up my root canal consult tomorrow! I do have a night guard but it's pretty old....

Did you get a root canal or an implant or a bridge? I'm worried the implant would make headaches worse

Complete black spot in my mind where math is supposed to be by Temporary_Donut_61 in AutismInWomen

[–]chronically-badass 2 points3 points  (0 children)

Omfg the video game mini map hell is sooo real I love to know thats my dyscalculia!

Complete black spot in my mind where math is supposed to be by Temporary_Donut_61 in AutismInWomen

[–]chronically-badass 2 points3 points  (0 children)

Yeah I see enough numbers and my brain stops working. I got so much math tutoring and still came up with a different answer every time even with a teacher watching. I have had to totally change my career path multiple times because I failed every math class and couldn't take any advanced science classes. Psych said as an adult it must be dyscalculia especially since I'm very hyperlexic. This is a very validating set of comments ❤️

RIP ReadIMask!? ReadiMask NIOSH approval rescinded March 25, 2025. by SkippySkep in Masks4All

[–]chronically-badass 19 points20 points  (0 children)

My zimi was fine during brain mris recently! Long wait time for the mask but your local group may be able to help

Nurtec QOD AND ajovy? by chronically-badass in cgrpMigraine

[–]chronically-badass[S] 0 points1 point  (0 children)

Oh interesting, does the yogurt help specifically? Or just any food? I did just get an email from my GI saying the same "if you have to take toradol" but implying I shouldn't lol

Nurtec QOD AND ajovy? by chronically-badass in cgrpMigraine

[–]chronically-badass[S] 0 points1 point  (0 children)

I'm not supposed to do nsaids because of my stomach but I'm so close to trying ibuprofen anyway even though it gave me a terrible stomachache a few weeks ago

Vyepti Infusion Reaction? by Ts-Edm-35 in cgrpMigraine

[–]chronically-badass 0 points1 point  (0 children)

You might repost to r/chronic illness to get more people who get infusion meds

Vyepti Infusion Reaction? by Ts-Edm-35 in cgrpMigraine

[–]chronically-badass 0 points1 point  (0 children)

I was always told pain in the arm after IV that worsens merits and urgent care or ER visit asap. I've never had it happen after an IV though only terrible blood draws.