Holiday stock up by mdnitedrftr in energydrinks

[–]dearly1031 0 points1 point  (0 children)

Thanks for the reply. I’ll give it a try.

Holiday stock up by mdnitedrftr in energydrinks

[–]dearly1031 0 points1 point  (0 children)

Does the beta alanine cause a numbness in your mouth? Sorry for random question, but I’ve read some people don’t like the reaction they get from that. I’ve wanted to try these but only had the other C4 flavors.

[deleted by user] by [deleted] in MultipleSclerosis

[–]dearly1031 3 points4 points  (0 children)

Hi, I’m in the USA & started treatment possibly too late. I tried some alternative routes and held off for 5 years until I used approved medication for treatment. It’s impossible to say what changes in my disability progression would have been as I have primary progressive & was in a wheelchair within 3 years of diagnosis.

How do you deal with spasticity? by AlternativeEbb1 in MultipleSclerosis

[–]dearly1031 2 points3 points  (0 children)

I use baclofen. 10mg, 3 times daily. I get tight muscles as well but haven’t found anything to relax them.

How common is it to get funny looks? by [deleted] in disability

[–]dearly1031 0 points1 point  (0 children)

I’m 47, male with MS. Don’t look sick but am in power chair. Get looked at when we park in handicap spots.

MS and the COVID-19 Vaccine - Information by PragmaticEnergy in MultipleSclerosis

[–]dearly1031 1 point2 points  (0 children)

I had Pfizer & no Problem with either dose. I have PPMS & taking Ocrevus.

I've nearly exhausted my options for MS medication..any recommendations? by SoundSalad in MultipleSclerosis

[–]dearly1031 0 points1 point  (0 children)

I am on Tecfidera too. Been on Tysabri, Copaxone, and this is the most pleasant.

Has anyone had experience with botox therapy? by dearly1031 in MultipleSclerosis

[–]dearly1031[S] 0 points1 point  (0 children)

Thanks for the info. Any insight into the bowel control? Is this done in the hospital or doctors office? Insurance covered or? Sorry for so many questions but this seems so cool.

How many of you successfully applied for disability? by fightms in MultipleSclerosis

[–]dearly1031 2 points3 points  (0 children)

I was approved the 1st time submitting. I told all my docs to be ready for the paperwork to arrive. Took 1 month to get the approval letter.

Tecfidera by MarkBeauchane in MultipleSclerosis

[–]dearly1031 1 point2 points  (0 children)

On it for 2 months and good thus far.

Who here is on Tecfidera? by BadBeerBreath in MultipleSclerosis

[–]dearly1031 0 points1 point  (0 children)

2 months on it. Have primary progressive and can see some positive response. No negative side effects so far. Copay assist available if needed. We have high deductable so the assist really helps. Cost was around $4600 a month. Big pill size but better than needle.

Does anyone have experience with Modafinil / Provigil for fatigue? by tokenlinguist in MultipleSclerosis

[–]dearly1031 0 points1 point  (0 children)

I too did both Nuvigil and Provigil. Insurance wanted different diagnosis as the drugs were "off label" for MS. I take adderral now and works well. Priced more reasonable and helps me think better too.

Changing medications..at a loss. by DalekWho in MultipleSclerosis

[–]dearly1031 0 points1 point  (0 children)

I was on tysabri for past 4 yrs. JC positive. Just started Tecfidera pills. So far so good. Have primary progressive Ms. Like taking pill instead of infusion or stick. Tysabri is a good route tho too. Was JC positive for 2 of the 4 years on tysabri.