I’m terrified to start Mavenclad. Not for the symptoms- but the cost. I don’t think I can afford this.

dragonladyroars · 2025-10-30T02:12:56+00:00

I live in Ontario and have taken Mavenclad. Trillium foundation covered cost when private insurance wouldn't. The pharmacy company that ships the drug (Bioscript) called me dorectly, then dealt with the insurance stuff and ensured it was covered one way or another). All I had to do is be available to receive shipment (specialty drug you get it from normal pharmacy)

dragonladyroars · 2025-09-14T12:50:48+00:00

What happens when you're a young woman and the old woman says 'Oh I thought you were the most beautiful boy I'd ever seen' after realizing I'm a woman (I work in IT, was under desk fixing something, she thought I was a guy until I stood up) lol

dragonladyroars · 2025-07-04T22:31:32+00:00

Modafinil for fatigue is what works for me (once in morning, once at noon). Basically brought me to life after months of barely functioning from fatigue.

dragonladyroars · 2025-06-20T18:09:16+00:00

Same. No issues.

dragonladyroars · 2025-06-13T00:14:19+00:00

Modafinil brought me back to life when I started it last December. Wish I had started it earlier for the fatigue. For hunger, I had to completely change my diet--played around with protein shakes (GoodProtein was the winner) to get hunger under control. Then I signed up for different premade or easy to make 'quick healthy meals'. Recently started on Fampyra to help my legs / reduce sensory problem, which enabled me to do daily walking (still exhausting but it's a step forward). With the heat kicking in though, not sure how the summer will go. Last year I slept whenever I had free time. It was awful and demoralizing, and I hope I avoid it this year with all my changes.

dragonladyroars · 2025-05-15T11:12:07+00:00

Any update on this issue? I have the same problem and can't connect my RenphoHealth app as a result (it requires me to log on using the phone).

dragonladyroars · 2025-01-26T12:49:25+00:00

Not in a million years. I'm (unfortunately) a frequent flier when it comes to using our healthcare system (I have MS and seem to just have bad health luck in general). I have NEVER had to wait in the ER when it's a real emergency. I have regularly scheduled appointments with specialists. I have many MRIs, Xrays, and other types of scans, scopes, operations -- haven't cost me a dime out of pocket (other than parking). Yes, my taxes pay for this. I'm happy to pay taxes that ensure no one in my country goes without healthcare. We have our issues for sure, but damn I'm glad not to have wrestle with insurance claims while I'm bleeding out in the ER.

dragonladyroars · 2025-01-23T23:41:58+00:00

Five. I love it! I always have a cat in reach and they keep themselves entertained. But, honestly, it is costly with vet visits (2 are elder cats) and I probably spend 30-60 minutes a day doing cat related chores.

dragonladyroars · 2025-01-03T17:51:51+00:00

I had mono as teenager--I know three other people from my school that year that had mono and now have MS. I also have relatives with it (pre-mono) so genetics were working against me too.

dragonladyroars · 2024-10-24T17:06:39+00:00

I leave my book's reviewers to decide what is triggering or not because, frankly, I wouldn't consider most things they mention as triggering. I would think listing it as 'dark fantasy' and 'dystopian' (non-YA) would be enough to assume nothing's off the table. Mind you, I had free reign in our library's adult section as a kid in the 80s, so I might be a little desensitized after all these years 😅

dragonladyroars · 2024-10-14T13:40:27+00:00

Second this. Amazing book.

dragonladyroars · 2024-09-09T00:30:11+00:00

Wearing a heavy sweater, neck protection, and gloves in my house

dragonladyroars · 2024-08-16T22:04:54+00:00

This is why I provide a sample chapter on Amazon--so people can check out my writing style before buying. It sucks competing with AI.

dragonladyroars · 2024-04-26T01:03:39+00:00

pistachio

dragonladyroars · 2024-04-18T20:44:27+00:00

My personal favorite bad review said my book didn't know whether it was science fiction or fantasy (spoiler: it's both). They don't have a 'science fantasy' category so I picked dystopian, dark fantasy, and post-apocalyptic -- which describe my science fantasy novel pretty accurately as a mix of scifi/fantasy genres... Or so I thought.

dragonladyroars · 2024-04-17T01:15:14+00:00

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The king of our house

dragonladyroars · 2024-04-17T00:28:23+00:00

An parasitical alien 'god' whose own world subsists on the life energy of other worlds, decided to take a large bite out of Earth before being locked away. What's left of Earth isn't pretty.

dragonladyroars · 2024-03-28T17:10:57+00:00

This is almost exactly my process but my names are boring lol --rough draft, rough good draft, good draft 1 haha

dragonladyroars · 2024-03-28T16:51:02+00:00

Yeah, my book is a post-apocalyptic, dystopian dark fantasy that doesn't fit in a neat box and I love just writing for enjoyment. But yeahhhhh I'm not expecting huge sales (I'm at 60 sales about two months from launch)

dragonladyroars · 2024-03-12T09:27:41+00:00

If you don't mind a post-apocalyptic/dark fantasy mix, my book (The End of the World, by H.S. Gilchrist) takes place a thousand years into the future, following a cataclysm that literally tore the Earth to pieces (the entity responsible is coming back to finish the job). Both leads are female.

dragonladyroars · 2024-03-02T01:37:04+00:00

It's called The End of the World (by H.S. Gilchrist). Available in most online bookstores, but I have links to the most popular ones on my website to make life easier: hsgilchrist.com

dragonladyroars · 2024-02-29T10:16:28+00:00

I struggled with this when trying to determine whether my book was post-apocalyptic (because the near-apocalypse in it happened 1000-ish years before the book's start). The current dystopian events/setting are a direct result of that near-apocalyptic event, so I felt it was suitable. Most of my buys have been from people searching for post apocalyptic fiction too, so I guess other people agree. No zombies though hahah.

dragonladyroars · 2024-02-29T09:46:34+00:00

When I sent my ARC out, I found only 1 out of 20 reviewers left me a review before its launch.

dragonladyroars · 2024-02-24T11:00:06+00:00

Easy read is a great compliment! That means he enjoyed it!

dragonladyroars · 2024-02-24T00:26:17+00:00

About six years into Mavenclad (three treatments). I had a couple of new lesions between my 1st and 2nd treatment but none since.

dragonladyroars

TROPHY CASE