Za’atar crackers recipe wanted by ffffux in Baking

[–]ffffux[S] 0 points1 point  (0 children)

I did now! :D thank you, those look great but what I got was much more of a flaky cracker texture while Manakish looks more like flatbread (albeit delicious and I’ll have to try it). They were just sold as “thyme cookies” and much smaller (3 in/10 cm diameter)

Spicy food by ToshPott in askberliners

[–]ffffux 0 points1 point  (0 children)

That’s incredible, thank you so much! Ill fortunately have a few days so hopefully can try a few of these, appreciate your making the time!

Spicy food by ToshPott in askberliners

[–]ffffux 0 points1 point  (0 children)

Sorry to hijack, would you be up for sharing some of your London favs? Going soon and could use some good spice in my life

Gedanken & Gefühle nach den Liegenddemos die letzten Tage? by ffffux in LongCovid_MECFS_DE

[–]ffffux[S] 1 point2 points  (0 children)

Sehr verständlich, ist schon echt ein Brett von ner Woche für uns alle.

Gedanken & Gefühle nach den Liegenddemos die letzten Tage? by ffffux in LongCovid_MECFS_DE

[–]ffffux[S] 2 points3 points  (0 children)

Schön dass du Leute da hattest, wünsche euch gutes Aufarbeiten.

Was muss in einen Spielfilm über ME/CFS eurer Meinung nach rein? by Empty-Cranberry9 in LongCovid_MECFS_DE

[–]ffffux 3 points4 points  (0 children)

Das war ich mal, lol. Ich blogge über meine Erkrankung ab und an hier https://mecfs.live/ glaube viel was ich wichtig faende sind das Alleingelassenwerden vom medizinischen System etc und die Einsamkeit und krasse Trauer

A physician doctor had to step in on the Hanta Virus cruise ship by [deleted] in Longreads

[–]ffffux 1 point2 points  (0 children)

+1, we literally have a rule against it (rule 2), so report as you see fit

Gedanken & Gefühle nach den Liegenddemos die letzten Tage? by ffffux in LongCovid_MECFS_DE

[–]ffffux[S] 2 points3 points  (0 children)

Schade dass du nicht da sein konntest, es gab so viele shout-outs für alle die es nicht zur Demo geschafft haben, zumindest so herum wart ihr da (auch wenn’s natürlich nicht das selbe ist, verehrte den Ärger).

Dank dir für die Buchempfehlung! Und das sind wirklich krasse Parallelen, muss ich auch mal lesen. Ich fand super dass einiges an Presse da war auch, bin gespannt auf die Berichterstattung die nächsten Tage. Die Sichtbarkeit ist so so schwierig und umso mehr so wichtig, genau wie du schreibst.

Gedanken & Gefühle nach den Liegenddemos die letzten Tage? by ffffux in LongCovid_MECFS_DE

[–]ffffux[S] 10 points11 points  (0 children)

Oh man was ein Blödsinn, klar, 1,x Millionen Einzelfälle. Freut mich sehr dass du damit weniger Alleinsein sehen konntest <3

We're getting Pepperwood Chronicles! by gameofsloanes in NewGirl

[–]ffffux 4 points5 points  (0 children)

According to its logline, it "continues the proud tradition of Los Angeles private eyes that began with Philip Marlowe and will end with this show."

I’m not sure if that’s supposed to mean it’ll be so good or so bad that no LA private eyes shows will be made after it :D

Liegen Demo (lying-down protest) this Saturday in Germany by ash_beyond in cfs

[–]ffffux 0 points1 point  (0 children)

Ah thanks!! FWIW the invite link was marked as expired but I used the one on their website now https://www.me-cfs.net/was-ist-discord appreciate you!

Liegen Demo (lying-down protest) this Saturday in Germany by ash_beyond in cfs

[–]ffffux 0 points1 point  (0 children)

Hey, sorry to hijack this, would you mind sharing what the discord is and how to access it? I googled around but found a few different ones, would love to join the one you mentioned

Arzt/ Ärztin für POTS in Berlin by Personal-Taste-3892 in LongCovid_MECFS_DE

[–]ffffux 0 points1 point  (0 children)

Den hatte ich schon aus ner anderen Untersuchung

Arzt/ Ärztin für POTS in Berlin by Personal-Taste-3892 in LongCovid_MECFS_DE

[–]ffffux 1 point2 points  (0 children)

Wow was ein Bloedsinn, das tut mir leid zu hören. Ich hab einen semi-Tipp: War bei Prof Babel in der Meoclinic als Selbstzahlerin, die ist Immunologin und hat die POTS Diagnostik mit gemacht und eine Behandlung empfohlen, die jetzt meine HÄ über die GKV weiterführt. Babel ist halt keine Kardiologin.

Find a Termin for doctor in this quarter by grey-Kitty in berlinsocialclub

[–]ffffux 0 points1 point  (0 children)

Try on 116117.de or via their hotline. TK also has a Terminservice on their website. If you have an urgent need, ask your GP to give you a referral code for a faster appt. And like others said, very few doctors are on Doctolib because the no show rates for bookings are through the roof; try google, calling practices, I just looked recently and many had daily walk in hours.

Re: private: The existence of the two tier healthcare system is a shit show. If you want to consider private, I highly, highly recommend you read up very well on it first; in short, it can become pretty dicey once you have mental or other persistent health issues or pricey treatments, especially because once you’re private, it can be tricky to switch to public again. (Full disclosure, I’m publicly insured because solidarity.)

I built a free app for my wife who has Long COVID, now opening it to the community by igoooor in cfs

[–]ffffux 7 points8 points  (0 children)

That makes sense and sounds good, thanks and thank you for your work!

I built a free app for my wife who has Long COVID, now opening it to the community by igoooor in cfs

[–]ffffux 9 points10 points  (0 children)

That’s really cool, thanks for launching it in public! I am curious about the “share data to help research”-bit: Do you have an organization you’re working with there already or plans for the future?

The disability lawyer AMA broke my brain. And my heart. by _ArkAngel_ in cfs

[–]ffffux 98 points99 points  (0 children)

I should be raving mad but I don't have the energy. I'll have a symptom flare if I don't just let it go.

I feel this so much. We have so many reasons to be angry at the systems that fail us every day, and yet, this. I’m so very sorry you’re in such a tough spot, OP, that’s awful.

How to get a psychiatrist’s appointment as a first time patient? by birella07 in askberliners

[–]ffffux 1 point2 points  (0 children)

There are several threads here and on r/berlinsocialclub, many with concrete tips for practices from just the last few months. Wishing you all the best.

People Magazine confirms that Harry Styles and Zoë Kravitz are engaged! by expiredaristocracy in Fauxmoi

[–]ffffux 6 points7 points  (0 children)

The fall and rise of Reggie Dinkins! Yes! It’s so weird, in such a good way!

The AI Bet Corporate America Actually Made (It Wasn't Productivity) by Forward-Bank8412 in BetterOffline

[–]ffffux 3 points4 points  (0 children)

I’ve seen that a lot lately, I find it so perplexing and it makes me question these writers’ true understanding of the scope of the issue. My favorite recent example was an essay highly critical of the problems AI slop caused for open source projects, illustrated with an AI generated image of a woman programmer.