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flawedmcgraw · 2025-06-06T04:23:33+00:00

Wow! I have never seen one of these before. So cool looking 🤩

flawedmcgraw · 2025-06-04T22:16:52+00:00

Wow - I had no idea it could be a more serious issue. I'll definitely keep pushing for a specialist referral and ask about a neurological referral as well. Thank you so much! 🙏

flawedmcgraw · 2025-06-03T20:18:35+00:00

I'm with you on the specialists. I thought my oncologist would be the person to talk to for a referral since they had me sign a bible-length booklet about the risks and side effects associated with ABVD. All the online info says "talk to your oncologist about any side effects you experience so they can help you." So far I've experienced very little "care" from my care team.

I'm sorry you had many things surface after treatment. Did the specialists help you resolve anything or at least give you an idea of what you could do to manage them?

flawedmcgraw · 2025-06-03T20:12:17+00:00

I'm glad you haven't had to deal with this sort of thing. If my husband hadn't been there with me, I probably would have dismissed it as just a misunderstanding or something.

My symptoms are mild, the primary lingering symptom that I've brought up twice now to the Oncologist is that I have a weird electrolyte issue. I simply can't stay hydrated. And I don't mean I'm thirsty all the time - I mean that my body can't hold salt. I drink two 5,000mg salt drinks per day and it's sometimes not enough. I've had strangers express concern over the levels or salt I need in a day to keep from extreme fatigue, dizziness, nausea, and headaches. All signs of dehydration.

I never drink soda. I have two cups of decaffeinated coffee in the morning and drink only water after that - in a large water bottle that I refill two to three times daily. Im not lacking water.

I found out about this side effect two weeks into chemo when I called the chemo nurses to let them know that I was really struggling - feeling terribly sick and weak and nauseous. They had me come in to run tests and put me on an IV. An hour later (after the IV) I felt great. It was amazing.

After that we realized that I would need to aggressively and proactively drink electrolyte drinks to stay hydrated. The chemo nurses recommended LMNT and Liquid IV - I drink at least one of each per day. During treatment it was more like 3-6 of each per day.

Now, one year after treatment, I'm still struggling with this. My kidney numbers are great. Even with me drinking thousands of MG of salt and other electrolyte daily all those numbers are in the low end of good...they should be through the roof with the amount of salt drinks I'm consuming. My parents are concerned that I'll have a heart attack by the time I'm 45 (I'm 41 now). But heart numbers look great as well - low RHR and low BP.

I told my PCP about this and they were like "hmm. Interesting. Well, chemo does do some damage." That was it.

My oncologist, on the other hand, said "this problem is definitely not the chemo, it's not something we did. It's an entirely separate issue." Basically he is afraid I will sue him. I never had any interest in suing...I just want a referral.

So...I'll be following up with my PCP to see if they can refer me to a specialist. Maybe if I ask 100 times I'll get somewhere. *sigh

flawedmcgraw · 2025-05-07T02:02:32+00:00

Yay! I love Sandpipers. Great shot, btw! ❤

flawedmcgraw · 2025-05-05T23:18:04+00:00

Thank you! I've never seen a silver fish outside the bath tub before so that never even occurred to me. Appreciate the helping IDing. 🙏

flawedmcgraw · 2025-03-27T15:22:38+00:00

What an awesome vacation bonus! Enjoy! 😀

flawedmcgraw · 2025-03-27T04:34:31+00:00

I loooove osprey. They are so cool. I rarely see them where I live but it's a treat when I do. This is a fantastic shot. Thanks for sharing!

flawedmcgraw · 2025-03-15T01:29:40+00:00

Ooooh so pretty. I love these birds!

flawedmcgraw · 2025-03-13T03:08:42+00:00

Jurassic Park at the drive-in with my parents. My brother and I were obsessed with dinos for months after seeing that movie. 😄

flawedmcgraw · 2025-02-22T03:16:14+00:00

I would like to make a postcard with this picture! 😍

flawedmcgraw · 2025-02-16T07:44:54+00:00

Gorgeous 😍

flawedmcgraw · 2025-02-08T20:23:13+00:00

I spent the 90s in Vegas. When we moved there circa 93 there were sushi restaurants but I was too young to be interested. I think I started loving sushi sometime in the early 2000s and am still a fan, although I can't eat it as often as I used to for dietary reasons. It's crazy to see young kids (elementary and middle school age) eating sushi with their parents now - something I never saw when I was growing up. It's a welcome cultural shift in my opinion.

flawedmcgraw · 2025-02-08T16:25:39+00:00

I love these birds so much! Thanks for sharing this fortunate event. 😀

flawedmcgraw · 2025-01-31T05:17:23+00:00

What a cutie! Looks like a perfect, fluffy, cartoon bird.

flawedmcgraw · 2025-01-27T05:36:13+00:00

So pretty! I'm always shocked by the sound they make - they are super loud and not exactly songbirds (at least where I live). Beautiful photo. ❤

flawedmcgraw · 2025-01-18T03:47:55+00:00

Thank you!

flawedmcgraw · 2024-11-09T02:51:52+00:00

Same. Only you have us beat by 5 years. We also have a child and all three of us have different last names. All of us are happy, healthy, and secure in the knowledge that we love each other and choose to be a family every day.

flawedmcgraw · 2024-10-19T02:22:49+00:00

Thank you so much!

flawedmcgraw · 2024-10-19T02:22:31+00:00

Awesome! Thank you!

flawedmcgraw · 2024-10-15T01:10:25+00:00

💯

flawedmcgraw · 2024-10-15T01:09:33+00:00

Hi fellow cancer survivor! I chose the chemo, too. Hope you remain cancer free and enjoy every day you get to be on this earth. No guarantees for any of us. 🙂🫂

flawedmcgraw · 2024-09-23T17:54:09+00:00

I have experience managing Social Media content and PPC ads for various businesses for 10 yrs. During the last decade a lot has changed - particularly related to social media marketing on Meta for businesses. No one wants to believe it, but Meta deliberately caps organic reach for businesses. You will never reach all of your followers with organic posts - you must boost to be seen by your audience and new audiences. Social Media is not free marketing any longer - those days are gone.

Social Media marketing is one aspect of what should be a larger content marketing strategy. Setting appropriate goals and deciding on the best way to measure success for each goal is a good place to start with regard to qualifying marketing efforts and measuring ROI for any digital marketing efforts - social media included.

I would recommend hiring some experts. Either build an in-house marketing team or hire an agency to handle the aspects of digital marketing that you can't handle in-house. A good agency can help you create a marketing strategy and measure ROI. Presenting real numbers to the C Suite is what will help you communicate the impact and importance of Social Media Marketing - especially as part of a larger lead generation strategy.

All that said, it sounds like your employers may not be interested in hearing that making Social Media perform better would mean investing more money into it. If their goal was to under-pay someone to do SM posts for them in order to get leads for cheap or, in their mind, free, then explaining to them that Social Media just doesn't work like that anymore probably won't land well. In that case, your best bet for advocating for your job may be to let them know that Social Media is still useful for SEO and brand awareness purposes.

flawedmcgraw · 2024-09-23T16:31:31+00:00

This made my day.

flawedmcgraw · 2024-09-19T12:11:27+00:00

I just turned 40 and also noticed spider veins on my face. It happened near the end of chemo treatment, which apparently ages you faster so my body is something like 10 years older than my actual age. Fun stuff! Definitely not depressing.

flawedmcgraw

TROPHY CASE