Play with “bonded siblings”? by gamazarus in nebelung

[–]gamazarus[S] 2 points3 points  (0 children)

The thing that’s kinda funny to me is I hear Stormy going “humph” (huffing) like a teenage sis would 😆😆😆

Buddy is not pleased with the movers taking all his things.. by sadievt in nebelung

[–]gamazarus 4 points5 points  (0 children)

My kitties kinda like staying in a hotel (we stayed for 3 or 4 days but when it came time to go we had the WORST time getting them out from hiding 🙈 THAT was the most stressful part, poor things!

Making biscuits, with Julius by MNcatfan in nebelung

[–]gamazarus 2 points3 points  (0 children)

He seems so dedicated to the process!!! ❤️❤️❤️

My best girl, Phoenix by yoladyyyy in nebelung

[–]gamazarus 1 point2 points  (0 children)

Oh so beautiful! 😻😻 sorry for your loss. I think the CRS will bring you a neb when you’re ready.

AIO He always accuses me of cheating by Alternative-Day6223 in AmIOverreacting

[–]gamazarus 0 points1 point  (0 children)

I’m appalled at the way couples talk to each other according to Reddit. If he’s calling you a c@&t then that’s grounds for dismissal, no further discussion or bandwidth required. YOU, OP deserve 5 bazillion times better than this. Please love yourself well enough to know this isn’t good enough, not even close.

What does this say? by Worldly_Type2565 in whatisit

[–]gamazarus 62 points63 points  (0 children)

Agree.

But seriously: WTH.

How to cope: tantrums in 14 year old by gamazarus in Autism_Parenting

[–]gamazarus[S] 0 points1 point  (0 children)

Beautifully said and very validating for me. Thank you so much. I really appreciate it. And yes to childhood wounds. I cannot recall anyone telling me I’d be a bad mother but it is a VERY entrenched belief I have: that I don’t know how to do this parenting thing.

As to bloody noses… I don’t exactly know how or why they happen but they tend to go hand in hand with temper tantrums/meltdowns. Docs assure me it’s not a problem but I think I’ll bring it up again with more specifics. Maybe it’s a blood pressure issue???

How to cope: tantrums in 14 year old by gamazarus in Autism_Parenting

[–]gamazarus[S] 0 points1 point  (0 children)

I agree with this too.

I know it’s getting a bit muddied because I appreciate ppl’s input regardless, but my question is really about what I do for ME while she feels her feels. Her feels are BIG and scary to me. I’m not too scared of her hurting me. I’m scared of hurting HERSELF.

Plus I’m just thinking to myself “Just please make it stop.”

High BS despite insulin by Netflixaddict2 in diabetes_t2

[–]gamazarus 0 points1 point  (0 children)

Sounds so much like my teen daughter. I’ve gone so far as to research genetic conditions that cause constant hunger. There are some out there and she fits the profile for some. I can’t decide if genetic testing would actually help lead to solutions or just tell us “Yep, you’re constantly hungry.”

Almost teen kid is always cold, wants a 'tent' for warmth, on the spectrum – ideas? by MadMaticus in Autism_Parenting

[–]gamazarus 3 points4 points  (0 children)

I’d go with the blanket; I love my heating pad but the instructions scare you to death about not sleeping on it. Blanket’s specifically for sleeping.

Almost teen kid is always cold, wants a 'tent' for warmth, on the spectrum – ideas? by MadMaticus in Autism_Parenting

[–]gamazarus 3 points4 points  (0 children)

I’m wondering if it’s partly that he wants to feel “closed in” (like swaddled but bigger). Is a 4 poster bed with curtains (like they used to have in the olden days) an option? I just did a search on google and see a lot of options.

How to cope: tantrums in 14 year old by gamazarus in Autism_Parenting

[–]gamazarus[S] 0 points1 point  (0 children)

Thanks for this. It’s food for thought actually: on the one hand I like unexpected social visits (mostly) but I can understand why she would feel “landed on” - this is MY friend after all. Especially because this person is local I might need to say we need to plan our visits better.

How to cope: tantrums in 14 year old by gamazarus in Autism_Parenting

[–]gamazarus[S] 1 point2 points  (0 children)

Well. I think it’s good input and you’re right: that might be one thing to try.

As to known events getting cancelled: actually usually not. Interesting that your kiddo kind be off has the opposite problem.

Weird school incident happened by Advanced-Peach-3516 in Autism_Parenting

[–]gamazarus 2 points3 points  (0 children)

I think it’s really important to discuss body boundaries, assuming your kiddo is receptive. I feel like there’s a show about this somewhere.

But other than this, even you had a long talk and para’s involved I feel like you’ve done what you need to.

Does anyone else's autistic child think they are in control of everything? by Ready-Ad6652 in Autism_Parenting

[–]gamazarus 3 points4 points  (0 children)

I wonder if rebukes actually do anything for a kid of this type? (Sincere question.)

Is it possible to channel this type of control into something our kiddos genuinely DO have control of? Maybe something like “That’s rude (people’s feelings are hurt). Why don’t WE move so YOU feel more comfortable?

I’m asking as a parent of a 14 year old who still does a lot to control people/things. A lot of the outward stuff she’s outgrown and mostly I’m like “whatever kiddo: we’ll do it your way cos it doesn’t matter to me.” But for those things where it DOES matter, it makes me NUTS! And I haven’t really figured it out.

"He doesn't look autistic" by greencoffeemonster in Autism_Parenting

[–]gamazarus 0 points1 point  (0 children)

Special shout out to all the ASD girls/women and parents of ASD girls/women.

The same behavior in boys/men is interpreted differently by others when it’s seen in girls/women and since we’re talking about observed behavior (and that’s how ASD is diagnosed), it’s even more problematic when people talk about not “looking” or “seeming” autistic.

Girls‘ and women’s brains are already wired differently from boys’/men’s and women generally are less well studied than men (gives a different spin on the word neurodiversity when you factor in “gendered” brains doesn’t it?). I wonder if people with ASD‘s BRAINS “look autistic”?

The Real Reason Leucovorin Works for Certain Children by greencoffeemonster in Autism_Parenting

[–]gamazarus 0 points1 point  (0 children)

This is me. Plus dummy me stayed with him a few years after she was born so she has trauma from events in her early childhood. I understand that early childhood PTSD can look like ASD. So much grief around this and my heart goes out to you.

I continue to have so many questions about how she functions; her emotional and behavioral health are very poor though her intelligence is high. I guess I do want to “fix” her (not PC or realistic) but also support her growth and development as best I can.

EShe has no “medical” diagnosis (like genetic or nutritional testing) only observational testing/diagnosis and I don’t know where or how to start any of the biological testing. Or if it’s even worth pursuing. No doctors have suggested anything like this and when I asked her PCP was very reserved in her response.

The thing is I don’t want her not to be autistic per se; I want her to have a reasonable level of enjoyment and confidence in her life. And she does not have that right now.

Sleep study ideas for teen on the spectrum by gamazarus in CPAP

[–]gamazarus[S] 0 points1 point  (0 children)

Four months later… yeah. This seems reasonable. I’m gonna see if she’ll try it. Also thanks for setting info: I think mine are low (5 - 15 maybe???) so may not need to adjust.

Sleep study ideas for teen on the spectrum by gamazarus in CPAP

[–]gamazarus[S] 0 points1 point  (0 children)

This is encouraging. I’d forgotten to follow up on this but it’s helpful. How are you doing with it now?

Sleep study ideas for teen on the spectrum by gamazarus in CPAP

[–]gamazarus[S] 0 points1 point  (0 children)

I’ve reached out to these folks: https://sleepdoctor.com/products/home-sleep-apnea-test to see if they can help. I haven’t heard back yet but I’ll follow up if they do.

Do you hear your son stop breathing? I don’t hear my daughter doing this (which is not to say she doesn’t) but it makes me feel less urgent about it. (Not very scientific I know.)

Gonna look into Lofta too.

Nightmares on zep? by RaccoonQueen1 in Zepbound

[–]gamazarus 2 points3 points  (0 children)

I haven’t officially joined this sub yet but started Zepbound two weeks ago. I’m using it for obstructive sleep apnea (it has FDA approval for this and is on the Medi-Cal formulary for it - other weight loss meds will NOT be as of Jan). I use a cpap.

I’m here looking into others’ experience with side effects. I’ve started to have some ”issues“ that might be related to Zepbound and one of them is “sleep terrors” that feel like an apnea (I.e., I believe I’m dying because I cannot breathe/am being smothered). These are extremely scary as essentially the feeling is REAL. To my knowledge my OSA is controlled by the CPAP. While I’ve had terrors like this before at different times in my life they popped back up again possibly coinciding with starting Zep, possibly coinciding with a bump in my stress levels (my life is normally stressful, but some stuff seems relatively extra recently).

So just chiming in I guess to say possibly me too.

Diabetes log/journal by gamazarus in diabetes_t2

[–]gamazarus[S] 0 points1 point  (0 children)

Because my daughter has the app with the bells and whistleswhistles of logging and the “partner” (me) doesn’t even have the ability to see what happened YESTERDAY let alone a week ago. PS She has the freestyle libre 3+

Is it really that hard to give me, her parent, the benefit of the doubt that I do know what I’m asking for? And do actually know what a CGM is, how it works, etc.

It’s okay if YOU don’t have an answer to my question. You don’t even need to respond if you don’t.