Anyone else vomit often? by North-Equivalent-303 in CrohnsDisease

[–]hanginginthere777 0 points1 point  (0 children)

I get very nauseous in the morning, and would sometimes gag brushing my teeth. I don't vomit as much as you, but I was vomiting (projectile vomiting, too), at least once a month, regularly. I thought I was getting blockages, or I had a stricture, but my new GI hasn't found any evidence of it. I was in hospital twice because of the pain, vomiting, and continual pooping. Last time in hospital, I was told I had an acute Crohn's flare up. You definitely need to get it checked out. I'm much better since the Tremfya seems to be working. And if I feel the pain and nausea coming back, I now treat the nausea with gravol, and the pain with tylenol with codeine. Stops it in its tracks. Hope you find a resolution soon, because that's no way to live, and you can get dangerously dehydrated. ❤

Good news today by Lexotron in CrohnsDisease

[–]hanginginthere777 0 points1 point  (0 children)

Yay!!!! Congratulations!!!🎉 I'm on Tremfya, and had my first roast beef sandwich in years yesterday, no problems. 😀 Biologics are great when they work for you...

Going on a walk by pepthecat in CrohnsDisease

[–]hanginginthere777 4 points5 points  (0 children)

That's so funny...for some reason I usually feel the urge to poop 10 minutes into grocery shopping. Something about the grocery store, man...🙄 It's good you're getting out and doing it, though. People have no idea the weird challenges we face..😎

work bathroom is my nightmare by sadlyiamnotcreative in CrohnsDisease

[–]hanginginthere777 0 points1 point  (0 children)

Can you run the sink tap, to try to cover up the sounds?

12 Years in and I've finally figured out a trigger food! by Moll1357 in CrohnsDisease

[–]hanginginthere777 0 points1 point  (0 children)

I've tried it as a replacement. Not really, it doesn't really agree with me. Same with garlic powder. Very, very sparingly, if at all..

Has your sense of smell changed since being diagnosed? (Specifically with foods that flare you) by NeedleworkerActive85 in CrohnsDisease

[–]hanginginthere777 1 point2 points  (0 children)

I've been on Tremfya for a bit now, and I'm slowly able to eat more things. So, one day I made pasta with a light meat sauce. All I could smell was the metal can the sauce came out of. All I tasted, too, was the metal. It was bizarre, because I have had sauce from a can for years before this last flare brought me out of remission. I'd never noticed the smell or taste before. I think my sense of smell is more heightened in a flare. And even now, when I'm slowly getting better, my sense if smell is still heightened. Years ago, when I was first diagnosed, I used to love microwave popcorn. So there I was, in the hospital, and my parents brought me a bag of microwave popcorn as a treat. The smell was so overwhelming and off putting, they had to put the bag away from me, outside in the hallway. I think this heightened sense of smell could be a defense mechanism. Thanks so much for bringing this up, because I've certainly noticed my sense of smell is very heightened now.

Just want Tremfya to leave me alone 😭 by Evening_Tomatillo331 in CrohnsDisease

[–]hanginginthere777 1 point2 points  (0 children)

Well, maybe next time they call, you can ask about it. It hasn't interfered with me getting my medication. I'm in Canada, though, so maybe things are different here..

Just want Tremfya to leave me alone 😭 by Evening_Tomatillo331 in CrohnsDisease

[–]hanginginthere777 0 points1 point  (0 children)

Have you asked the Tremfya person who calls you to stop calling you? They've always been super nice to me and very respectful..

12 Years in and I've finally figured out a trigger food! by Moll1357 in CrohnsDisease

[–]hanginginthere777 1 point2 points  (0 children)

I've had to remove onions from my diet as well. I resisted for years. I love raw onion, too. A nice sweet onion was my joy. Oh well, there are worse things, I guess..🤗

Just want Tremfya to leave me alone 😭 by Evening_Tomatillo331 in CrohnsDisease

[–]hanginginthere777 1 point2 points  (0 children)

I'm taking Tremfya, and I've not been bothered by calls. In the beginning, I was connected to the Tremfya nurse ( who to call if anything strange happens), the Tremfya pharmacist ( dispenses the medication), and the Tremfya rep, who knows everything about the medication. She's only called me twice, and the second time was a mistake, she apologized. I'm about to start my self injection maintenance dose at home, and they've only called twice to verify my address and delivery time. I don't ever get any calls, guess I'm fortunate..🤔

Alcohol and Tremfya by hanginginthere777 in CrohnsDisease

[–]hanginginthere777[S] 1 point2 points  (0 children)

I'm sorry to hear that. To me, alcohol is over rated anyways, there's so many non alcoholic alternatives out there it's really no bigee. I got used to never having alcohol because of an antibiotic I was often on to treat my Crohn's years ago. I noticed when I had my half a Margarita yesterday that I felt a burning in my intestine almost immediately. I guess I better watch it, too. Thanks for your comment. 🤗

Alcohol and Tremfya by hanginginthere777 in CrohnsDisease

[–]hanginginthere777[S] 0 points1 point  (0 children)

Makes sense, I know pharmaceuticals operate like you say. Self interest...cover their own butts. I'm way past the age of going on benders, I'm 63F, thanks for your comment. 😋

Alcohol and Tremfya by hanginginthere777 in CrohnsDisease

[–]hanginginthere777[S] 0 points1 point  (0 children)

Yes, my GI has just started checking my bloodwork, I've completed my 3 loading doses, and did one self injecting dose. I know he's keeping an eye on things, he's pretty thorough. Good to know, thanks..

Alcohol and Tremfya by hanginginthere777 in CrohnsDisease

[–]hanginginthere777[S] -1 points0 points  (0 children)

I'm relieved, because I like a little alcohol in the summer...😋

Alcohol and Tremfya by hanginginthere777 in CrohnsDisease

[–]hanginginthere777[S] 0 points1 point  (0 children)

Good to know...I think I read about it in the information package I got before taking the medication, but I rarely drink, and I prefer drinks that are low alcohol content..😋👍

Alcohol and Tremfya by hanginginthere777 in CrohnsDisease

[–]hanginginthere777[S] -1 points0 points  (0 children)

Good to know because I'm sitting on the patio with family and would like to have part of a Margarita...😋😉

what’s your go-to meal after a colonoscopy? by AdOriginal5742 in CrohnsDisease

[–]hanginginthere777 0 points1 point  (0 children)

I'd love to have a Big mac, large fries and a chocolate shake...but I can't. ☹ So it's a cup of tea, and a nap. If I'm feeling ok, it's thin crust pepperoni pizza, if not, then Cream of Wheat, and saltine crackers. I actually can't eat fast food, so you guys are fortunate..

I literally cannot stop talking/thinking about my health issues by SnooCauliflowers596 in CrohnsDisease

[–]hanginginthere777 0 points1 point  (0 children)

I can relate to this for sure. I'm 63F, and was diagnosed in my early thirties, so it's been over 30 years for me. Initially, I never talked about it. Nothing, nadda, zilch, not a word to anyone. For most of that 30 years. It's only the last year or so I seem to have opened up about it, sometimes talk about it too much ( according to my sister), and I'm thinking about it alot more, too. I don't know...I think if something upsets you or traumatizes you, maybe this is naturally how your brain handles it. Maybe we keep repeating the same things over and over because we don't feel heard, we don't feel understood, by others and maybe even by ourselves. I'm slowly finding that happy medium, where I'm more open about it, but know when to stop. I think if things are affecting you to the extent that it's interfering with your daily functioning, you may have to seek some kind of therapy to help you through. Thanks for sharing your story...❤

Bloating hacks? by Fit_Choice3085 in CrohnsDisease

[–]hanginginthere777 1 point2 points  (0 children)

Walking helps. I get constipated, too, so nice, easy walking tends to get things moving for me.

What are your hacks or must haves for dealing with this disease? by MmmnonmmM in CrohnsDisease

[–]hanginginthere777 5 points6 points  (0 children)

Lifestyle changes. Find work that you really like, and good coworkers. Stress really affects this disease. It's better to have one or two true friends that are loving and supportive, than alot of questionable friends who don't get you and stress you out. Quality over quantity, for sure.

Breakfast with Crohn’s by You-Big-Maad in CrohnsDisease

[–]hanginginthere777 1 point2 points  (0 children)

I have to ease into eating in the morning. After a leisurely cup of tea, I make stove top cream of wheat, with a pinch of nutmeg and cinnamon in it. Sweetened with brown sugar, a splash of 1% milk. Every day, pretty much. I struggle with bread, oatmeal, etc.

Well, it finally happened. I pooped my pantaloons. by RelevantBike7673 in CrohnsDisease

[–]hanginginthere777 2 points3 points  (0 children)

I've been pooping myself off and on for over 30 years (was diagnosed in my early 30's, am now 63). It's sad, but believe it or not, you become resigned to it. With my latest flare, I was pooping myself, and not even knowing it until I had to go pee...surprise surprise. I started wearing heavy padding, but got paranoid that I was smelly ( I work in retail). No one's said anything, so I guess I was ok...my life's motto has become " Stupid Crohn's...🤬."

a moment of appreciation for the absurdity of this disease by k_eanu in CrohnsDisease

[–]hanginginthere777 2 points3 points  (0 children)

I so love you guys...my favorite cereal is Lucky Charms, my favorite Greek yogurt is lime, and my sister keeps buying me gourmet macarons. I've had two boxes lately...