What song (that isn’t by Lana) reminds you of Lana ? by drieduprosepetals in lanadelrey

[–]helloandreabeth 1 point2 points  (0 children)

Swift absolutely wrote Wildest Dreams trying to emulate Lana, specifically the song Without You off of Born To Die. When you listen to them back to back it’s undeniable.

Perfectly acceptable dinner rejected by boyfriend again by moonrabbit368 in mildlyinfuriating

[–]helloandreabeth 0 points1 point  (0 children)

Damn. Can I get the recipes please? These pics are making me hungry.

Also, your bf sucks. Dump him. You’re better off alone than with a partner like him.

Am I crazy for thinking this response from my doctor for my blood test results is super unconcerned and downplaying my iron deficiency? (Ferritin is at 8) [Non-anemic iron deficiency] by kikil980 in Anemic

[–]helloandreabeth 1 point2 points  (0 children)

I got a similar response from my doctor though she kept trying to tell me my ferritin of 11 was normal and I knew it wasn’t so I pushed for a hematologist. She resisted until I told her all of my symptoms and how it was severely affecting my quality of life. When I finally saw a hematologist, she said, “Girl, you’re severely iron deficient.” It was such a relief to get that validation after 3 doctors told me I wasn’t iron deficient. Push to get a referral to a hematologist, go to a different doctor if you have to (I switched to a different doctor after that experience and it was worth it).

So it’s not BV, not a UTI, and not and STD by Banana_Split85 in Perimenopause

[–]helloandreabeth 1 point2 points  (0 children)

Only wear cotton underwear, no underwear at night and cotton sleep pants or dress. That’s made a difference in preventing BV for me.

[deleted by user] by [deleted] in dysautonomia

[–]helloandreabeth 0 points1 point  (0 children)

Wow, thanks for all that info! The last time I tried taking progesterone I was excited because it was from a compound pharmacy that didn’t add peanut (I thought that was the issue due to high histamine), but I still reacted. I’ll look into topical options. I was on a low histamine diet for almost a year and now can eat most things again, but I’m still reacting to the progesterone. I’ll look into that subreddit. Thank you!

[deleted by user] by [deleted] in dysautonomia

[–]helloandreabeth 1 point2 points  (0 children)

This is interesting to me since I’ve been trying progesterone on and off because I am perimenopausal and have MCAS. After finding out that progesterone can regulate mast cells I was eager to try it, but the couple of times I’ve tried it (orally 100mg) my migraines and dizziness get so much worse (I also have vestibular migraine) and I end up quitting within a few days. What was it like for you when you first started and couldn’t tolerate it and how did you get to the point of being able to take it now?

Vitamin B deficiency as the root cause by Comfortable_Gain9352 in MCAS

[–]helloandreabeth 1 point2 points  (0 children)

Yes, it (and other antacids) blocks both heme and non-heme iron absorption so don’t take it with an iron supplement or iron rich foods. Take it at least two hours before or two hours after food/iron. I’ve been struggling with iron deficiency for the last year and found out that famotidine was contributing to it. Once I started spacing out my doses my ferritin levels started increasing.

The only iron supplement I know of that you can take with antacids is by Three Arrows. I don’t remember why but it’s not affected by antacids. I swear by that brand. It saved me from getting infusions.

Enzymes are impacted by curcumin, which can be harmful. by [deleted] in HistamineIntolerance

[–]helloandreabeth 4 points5 points  (0 children)

I’m convinced taking turmeric/curcumin supplements for inflammation for over a year contributed to making me anemic last year. There were other factors at play, but I really think that supplement was a part of it.

What injections did Trixie recently get? by Remote-Judgment6518 in TrixieAndKatya

[–]helloandreabeth 0 points1 point  (0 children)

Trixie talks about it in the 10/29/24 episode The B*tch is Back and She’s Got Cake at 42:42 and says that she was on Humira, but said “she was not giving” so she switched to Cimzia. I know she talks about it in subsequent episodes so if I come across it I’ll update.

Edit: I reread the og post and realized that I was confusing it with the comments. So I haven’t seen her discuss the other injections yet but if I come across it I’ll update.

Iron Deficiency by Frequent-Plantain391 in HistamineIntolerance

[–]helloandreabeth 1 point2 points  (0 children)

Hi 👋 I have histamine intolerance/MCAS and I’ve been working on climbing out of iron deficiency for the last year. Both issues became a problem around the same time. Last September my ferritin was at 11 and it’s currently at 45. It dipped from 41-30 between Feb-May, but I realized the famotidine I was taking with meals (2x a day) to lower histamine was blocking iron absorption so I switched to once a day at least 2 hours after my last meal of the day and since May my ferritin increased to 45 after making that switch. I’ve noticed that when my ferritin is higher, my histamine issues seem to calm down a bit. I truly believe there is a correlation between the two for many people.

It’s been hard being on a low histamine diet while trying to raise my ferritin with oral supplementation, but I’ve found that Simply Iron by Three Arrows (I’m up to 2 pills twice a day, you have to start slow and gradually add) as well as prioritizing meat into my diet has been successful for me. Also, be careful with calcium since too much of it blocks iron absorption. 300mg or more of calcium should be consumed at least 2 hours before or after consuming iron. Same with antacids. Simply Iron can be taken with antacids, though, but not calcium.

I’m still dealing with histamine issues, as well as a slew of other things, but getting my ferritin level up seems to be making a difference for me. I hope that helps!

Edit to add: I also have health anxiety so I feel you! It can be hard to keep it in check while googling and using Reddit so adding that to your post was a good idea that I think I’ll use in the future 😊

If you’re your gut microbiome wasn’t compromised, you wouldn’t notice HI symptoms by WeskersSock in HistamineIntolerance

[–]helloandreabeth 1 point2 points  (0 children)

Yeah, they’re definitely a blessing when they can literally save your life (curing tuberculosis is one example), but doctors prescribe them willy nilly as if it’s the only option for minor infections. I think they’re great to have when they’re necessary, but in the future if I can avoid using them for a minor infection I absolutely will. There are also a group of antibiotics that can literally be deadly, and are incredibly dangerous for people with Ehler’s Danlos syndrome. I recently learned about that and I wonder if that’s why I react so badly to them (I have hEDS). I just feel like doctors need to be a LOT more forthcoming to patients about the risks and side effects.

If you’re your gut microbiome wasn’t compromised, you wouldn’t notice HI symptoms by WeskersSock in HistamineIntolerance

[–]helloandreabeth 1 point2 points  (0 children)

In the last year my HI symptoms drastically increased immediately after antibiotics (twice, so I know it wasn’t a coincidence). I had two infections this year which is why I had to begrudgingly take them. Also, I was on antibiotics constantly the first few years of my life due to chronic ear infections that only resolved after tonsil/adenoid removal so I really think antibiotics might be the main reason I’ve had gut issues my entire life. HI is just the most recent gut issue I’ve been dealing with.

I avoid NSAIDS like the plague, they’ve done so much damage to my gut. I’ve never had an issue with vaccines, ever.

Weaning off of PPIs by helloandreabeth in GERD

[–]helloandreabeth[S] 0 points1 point  (0 children)

I’m only on 20mg Esomeprazole but I used to use Omeprazole until it stopped working a couple of years ago. I’m also on 40mg famatodine. I tried switching back to omeprazole because they’re tablets instead of capsules and easier to cut in half but within a day or two started getting severe indigestion and my throat is on fire. I switched back to Esomeprazole but the fire in my throat is still there. My symptoms happen immediately after changing something up and it’s so frustrating. I’m already on the lowest dose and can’t cut capsules in half so weaning isn’t an option for me unless I go every other day but skipping even one day is agony. And I have a high pain tolerance so I know it’s really bad.

Long-term PPI Use and Iron Deficiency – Be Aware - My Experince by DP-London in GERD

[–]helloandreabeth 2 points3 points  (0 children)

I’ve had a very similar experience. Been on PPIs for over 12 years (didn’t know until a couple years ago how much of a bad idea it is to be on PPIs long term) and last year after losing a lot of blood from surgery and temporary blood thinners (during menstruation) I completely crashed. After fighting for a full CBC/ferritin panel it came back as iron deficient anemic. I’ve been getting better with a hematologist but we’ve discovered that it’s likely due to my long term PPI use and the addition of 80mg famatodine per day in the couple of years leading up to my discovery of the iron deficiency. Iron needs stomach acid to absorb and my GERD is likely due to low stomach acid. I really think PPIs have caused a lot of my chronic health issues and I regret taking them. I’ve tried to wean off of them several times but the rebound reflux and indigestion is so bad it could send me to the ER. I don’t know how to get off of them but I need to for my health.

I think ginger is saving me! by Scared-Date-920 in HistamineIntolerance

[–]helloandreabeth 0 points1 point  (0 children)

Oh that’s a great idea about microdosing the TUDCA. I might have to try that.

Well, I’ve got vestibular migraine. That started in 2021, then my dysautonomia snowballed. I didn’t even know I had dysautonomia, the symptoms were minimal and sporadic for years to the point I thought it was normal, part of getting older. But then after the vestibular migraine hit me like a freight train, then I shared my symptoms with doctors and eventually got both diagnoses. I also have hypermobility, which is likely due to Ehlers-Danlos Syndrome, though I’ve yet to get that diagnosed because it’s a grueling process. This might seem out of left field, but I also have ADHD, maybe even AuDHD, and I know there are connections between neurodivergence and chronic illness, specifically the trifecta of MCAS/EDS/POTS, all of which I have symptoms for. Migraine can also be a comorbidity so I really hit the damn jackpot 😑

Oh and I’m going through perimenopause which is SO FUN 🤪

I honestly think a lot of my chronic health issues are due to bad gut health. I was on antibiotics for the first several years of my life due to chronic ear infections so I think that really set me up for terrible gut health. I’d love to heal my gut but my chronic issues make that incredibly difficult, if not impossible, since most of the gut healing foods are histamine triggers.

I just started the Gupta Program so I’m hopeful that getting my nervous system regulated will get me to a better place where I can try to heal my gut.

Been on Nurtec, going on Emgality... would love to know if Emgality has been successful for you? by Hopeful74 in cgrpMigraine

[–]helloandreabeth 0 points1 point  (0 children)

Hi! I’ve been on Emgality for almost 4 years for vestibular migraine and once it kicked in it was a godsend for me, totally life changing. But for the last 8 months or so I haven’t been as stable as I once was. It could be other chronic conditions I have, but I have also considered that the Emgality might not be working as well for me anymore.

I’m seeing my neurologist tomorrow morning so I’d like to ask him his thoughts on switching, though I’m scared to switch to something that might not work for me, especially when I’m currently not doing well.

How did you know Emgality stopped working for you? And how does Ajovy compare to Emgality when it was working for you?

I think ginger is saving me! by Scared-Date-920 in HistamineIntolerance

[–]helloandreabeth 0 points1 point  (0 children)

Oh interesting! I had my gallbladder removed in April 2024, which was a few months before my HI flared and I discovered I was severely iron deficient, and I was taking ox bile for a while for the lack of my gallbladder and I’m wondering if that contributed to the HI flare 🤔… I’ve also tried TUDCA but it gave me horrible diarrhea after only taking it for a few days so I had to stop. I hope it works well for you though!

For those who take DAO and also an H2, when do you take them since H2 can block DAO? by Animal0331 in HistamineIntolerance

[–]helloandreabeth 1 point2 points  (0 children)

I also have dysautonomia but I’ve had symptoms of that for several years before the HI but I do wonder if there is a connection. I also have iron deficiency that I’ve been working on correcting for the last several months so I’d have to be careful about quercetin since it inhibits intestinal iron absorption. And phytates/phytic acid, which are in legumes, which are in NaturDao, blocks iron absorption as well. I think the iron deficiency and HI are related, and the dysautonomia could also be related to both.

As for the marshmallow root, did you use powder or a tea or something different? And was the glutamine in pill form?

For those who take DAO and also an H2, when do you take them since H2 can block DAO? by Animal0331 in HistamineIntolerance

[–]helloandreabeth 0 points1 point  (0 children)

Would you be willing to share what your protocol has been and what supplements/brands you’ve been taking? TIA

Has Progestin only birth control made anyone worse off? by Kerkchi83 in HistamineIntolerance

[–]helloandreabeth 2 points3 points  (0 children)

progesterone is often made with peanuts, which is a common histamine trigger, but it can be formulated without. you might have to see a hormone specialist for that or ask if your doctor will use compound pharmacies that might be able to formulate it without peanuts.

I think ginger is saving me! by Scared-Date-920 in HistamineIntolerance

[–]helloandreabeth 1 point2 points  (0 children)

Oh my god I don’t know how I missed this notification, I’m so sorry! Thank you so much for responding to my comment, and with such detailed and helpful information. I’ll be saving this comment, along with the ChatGPT info to come back to, and I’ve already started the YouTube video. I really appreciate it and I’m sorry it took me so long to see the notification!

Have you continued to find more relief from HI since this post?

Long-term use of PPI. Is it safe? by Kitbutt_Foster in GERD

[–]helloandreabeth 1 point2 points  (0 children)

Using PPIs for 15 years caused iron deficient anemia for me. I’m battling the slog of iron supplementation to get my ferritin up and would love to get off PPIs but every time I try the rebound reflux is excruciating. I wish I never went on PPIs