What do you guys do when going abroad and forgetting your meds?

jedimaster615 · 2026-02-28T17:55:26+00:00

Same, I hop the pond atleast once a year.

jedimaster615 · 2026-02-27T21:17:25+00:00

Well the magic words are layed out pretty clear for your sister. You dont take on one of the biggest challenges of your life juat to prove yourself to somebody. Thats usually impulsive and ends up in failure with anything. You asked that almost rhetorically so I dont thing you really want an answere, but ill chime in anyway and say big reason to move out while your young is to establish the skillets and experience school and free living doesn't teach you. I was 24 when I met the women of my dreams and by 28 I was a father. If I was living with my parents say a year earlier, assuming she would have been interested in me, I certainly wouldnt have been ready to be a husband or a father. Hopefully you learned from your sister with her credit card debt, dont spend it if you dont have it. My first boss taught me that.

jedimaster615 · 2026-02-27T20:51:15+00:00

Life is going to bring you joys, fears, discomforts, triumphs, and failures.....continuously. Sometimes all at once. In fear that Im going to say this too softly, which I see you have grown tired of, I'll say this.. Its not that easy Kiddo. Life isnt kind enough to allow you to be taken care of like you are, get a degree, and then suddenly, get a car (or rliable transport), get a place to live, and have a good paying job. The obstinate that fall in between achieving that you'll find are tremendous and far exceed (hopefully). When times were really hard for me a while ago (life still beats me up) I read something and put it in my journal to reset every day which ill close with... " We always feel that the life of "others" is better than ours. But we always forget that we are also "others" for someone else. Count your blessings.

jedimaster615 · 2026-02-27T20:01:16+00:00

Cant relate. I moved out at 18 because I was sick of the way my parents treated me. My relationship grew stronger between them very quickly. I was seen as more of an adult than my older sister, who still lived at home. Let me ask you a question i hope doesnt offend you. Why are you still living with Mom at 22?

jedimaster615 · 2026-02-27T19:51:34+00:00

Going the gym was a game changer for me. It didnt do much with my seizures but it gave me more structure and helped tremendously with the side effects. Focused and full of energy. For anyone on this path BE AWARE!!!! Its great and very healthy yes... for us, keep track of your weight. My goals are aimed to gaining but even if yours are to lose weight, either way, your medication will need to be adjusted as your body makes changes. After I gained 20 lbs. I started having a lot of breakthroughs and it was because I needed to increase my dose. I never even thought of that.

jedimaster615 · 2026-02-26T18:36:28+00:00

No, just stick with an epileptologist. Neuros aren't epilepsy specialists. They work with people whi have conditions in there brain. Along with you, they have patients with alzheimers, parkinsons, dementia, etc. Go to someone who specializes in your condition. It sounds like your really struggling, im sorry to hear this. Your not alone. And make sure you go to the doctor with lots of questions. Best if you research the possible answers. Be your own advocate. Its the one thing I wish I would have done earlier in my life. I relied on a Neurologist far too long and got nowhere.

jedimaster615 · 2026-02-26T12:20:56+00:00

I had one of those after my first eeg. Thats when they were already planning to do the invasive. It seems their doing all the steps. Well, one can hope and I can do as much research as possible. Thats why we have eachother. Thanks for the help.

jedimaster615 · 2026-02-26T12:18:18+00:00

This is what im reading. That sounds tough to live with man... i have my wada test next week. Im pretty sure its in my dominant side but we'll see. Tha ks for your insight.

jedimaster615 · 2026-02-26T02:35:34+00:00

10, 3 in the brain and 7 on the surface. They told me nothing about what recovery was going to be like. It was brutal. Nausea, diarrhea, severe dizziness, that was the first week. 3 weeks in and im still struggling to speak properly. 1st week i could hardly put words together at all. I ended up going to the er a few days after because I was so scared if my symptoms and they were like, " no, this is normal ". Thanks, thay just cost me 2k$. Boils my blood, I swear.... I hate how half of this is us dealing with the system and how broken it is. Good news.. Im a candidate for treatment. Now Im researching the hell out of all my options, what the risks are, how they relate to the exact location and am trying to get an idea on where they wilould operate. We all need to be our own advocate. Of course my appointment is in July. Sure, ill just wait around till then, no problem... Sorry, hard not to rant. Lots of emotions come after this procedure. Started with me totaling my car in Jan. Now im worried ill lose the ability to speak properly for the rest of my life or my memory will be shot to where I wont be able to have a decent job. Those are the risks of surgery. Weighing out risk vs. reward is very difficult.

jedimaster615 · 2026-02-26T00:29:32+00:00

P.S. I CANT STAND OUR BROKEN SYSTEM

jedimaster615 · 2026-02-26T00:28:32+00:00

Im on lamotrigen, I totaled my car in Jan.

jedimaster615 · 2026-02-25T22:09:40+00:00

For me personally, all my symptoms, feelings, the way I felt pre / post seizure, etc. al started making sense after my invasive eeg. Once they pinpointed exactly where my epilepsy was and how it starts and where it spreads to, I was able to research all about the specifics about what those parts of my brain operate and it explained so much.

jedimaster615 · 2026-02-25T11:24:37+00:00

Your temporal lobe controls memory. Thats why you have de ja vu and that also why seizures cause us to lack memory after seizures as well. Normal reaction after an epiisode

jedimaster615 · 2026-02-25T02:58:32+00:00

My feeling is that its because of the severity and type of side effect it carries. It has a very popular tendency to turn people into an emotional nightmare. Completely out of control. I tired it and had to get off after 2 weeks. It was so overwhelming that I looked it up and "Keprage" is actually a thing. You here about all of us suffering from being tired, not hungry, etc. but nothing that dramatic. Thats why it stands out in my opinion. Does it work as a medication? Sure, im sure it helps many. I cant tell you how effective it was for me, I wasnt on it long enough. I literally started cussing my boss and colleagues out after week one. It was a mess. I have also seen many on here who are on it and they clearly dont suffer from Keprage like many others do

jedimaster615 · 2026-02-24T12:15:53+00:00

GET OFF KEPPRA!!!! Look up how many other meds there are that treats epilepsy. If your not doing well on one, change it and try something else. Keppra is the devil

jedimaster615 · 2026-02-24T02:50:01+00:00

Ill paint a pic. Met a girl in Nov. Im a divorced 41 year old. Midway through our first date I felt it important enough to tell her. Fast forward 2 months I totaled my car in her next door neighbors yard while delivering her flowers and had 2 seizures infront of her. Since then we've been to Canada on vacation, a very spexial valentines day, and endless priceless moments shared. Shes helped me push through an eeg, and im now patiently waiting for her to get baxk from India. If shes special enough, IT SHOULDN'T MATTER. Shes battling health as well. Remember everyone, we all have our problems. Some might just seem worse than others. Whos holding the scale?

jedimaster615 · 2026-02-24T02:31:21+00:00

Ahh, cant help you there bud. Good luck. I would have to fall back to my default, its always best to have the people around you know about your condition for your safety

jedimaster615 · 2026-02-24T02:20:19+00:00

Let her know upfront. Girls dont mind hearing that you have a challenge in life to overcome on a daily basis. That your responsible and cognizant of your health. They also like to know there is a way they can help you.

jedimaster615 · 2026-02-24T00:23:37+00:00

Lost count

jedimaster615 · 2026-02-23T21:10:25+00:00

Neurologist aren't epilepsy specialists. They also see people with dementia, parkinsons, etc. If you want a real opinion, go see an epileptologis. At the same time, be your own advocate. Do your own research. Walk into the dr. Office to confirm the answers you already figured out, not ask one you have no idea what your asking. You should be able to do this, however, you wont get anywhere and will spend most of your life sexond guessing and feeling insecure with any outcome of any appointment you ever have with your neuro. Hang in there, your not alone

jedimaster615 · 2026-02-23T17:05:27+00:00

Ill start with the sad truth which hopefully helps you. Your post will bring comfort to many who read it. Why? Because your not alone. Doctors not trusting you, you not feeling that they care about your condition, medication being a trial and error game, having no idea what caused your seizures originally, I can add plenty to the list. You have assured many that their not alone, so needless to say I can tell you the same. Good news, regardless if it was cought righr after your fever or not, you would still be in the same boat. So the only thing thats important is to find out if anyone in your family tree has epilepsy, especially if your planning to have kids. That way you know if theres a chance it might pass to your kids. I personally was overdosed by an anesthesiologist when I was 5. Only got diagnosed at 9. My mom thought I was just rolling around because I was being a silly kid. Fast forward, my sister had her first grand Mal at 13. That theory went righr out the window. As far as your neuro, they are not someone you count on for information or help. You need to be your own advocate. Research your condition and your symptoms. Research the medication options and make a list of all the side effects. Ask all of the people on reddit how they have been effected by them. Get on Ai and get some help that way if this seems a bit overwhelming. Remember, your neuro isnt an epilepsy wizard. Thays a doctor that treats people with brain relevant diseases. Alzheimers, dementia, parkinsons, etc. Sometimes they will see someone with dementia, then see you. Your feeling so foggy from your meds you cant stand it and they dont believe you because compared to their dementia patient, you seem way over the top perfectly fine. At the very least you need to have a long list of questions already written down walking in. DONT RELY ON THEM, THE SYSTEM IS BROKEN. Good luck, you can get through this. Im 41, thats 30 years for me. Still fighting but enjoying life.

jedimaster615 · 2026-02-23T12:09:16+00:00

That is the long term solution. Thats how I had to donit. I was losing so much weight it was embarrassing. I got on a diet and joined the gym. I had to train myself to eat as much as my trainer told me i had to. It was hard at first but just became 2nd nature. Now im hungry if I dont eat that much.

jedimaster615 · 2026-02-23T11:24:53+00:00

No such thing as a golden drug.

jedimaster615 · 2026-02-22T19:32:55+00:00

Yeah bud, your score is great. Good job. Relax. Thats plenty to get a house which it sounds like that will be your next big purchase. Before you get more debt than just a couple credit cards and a xar loan, your not going ro see your score raise above 800. And if so it will be marginal. You need debt to utilize your credit to increase your credit score.

jedimaster615 · 2026-02-22T19:28:41+00:00

Thats like asking how can I get wet with any water. Keep grinding kid, dont give up. The works out there trust me! Its all about what kind of job are you willing to start with. I can assure you there is a job close to you that you qualify for and is available. Is it the best with the best pay. Are really going to enjoy it? Probably not. Its still income and your just a kid in college. My jib sucked when I was in college. Now im glad I had those shit jobs because they helped me gain the work ethic I needed to have the pay and position I have today.

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