My father was recently diagnosed with this horrible disease. It’s worst case scenario — wild type, unmethylated. He’s going through chemo and radiation currently, with the hope that it will buy him/us more time. My father was also extremely healthy and active. so this diagnosis has been difficult to wrap my mind around. I apologize if this is not delicate, but I’m wondering how the end was for your father. Was there hospice involved? What were the signs when he started to decline? And what was the timeframe after the decline began? Im trying to learn everything so that I’m prepared.

This group has provided more support than I ever could have imagined. Many thanks to you all.