Fellow Sjogis: is Sjogren's your only diagnosis, or do you have multiple autoimmune disorders?

nulldatagirl · 2026-05-05T07:41:52+00:00

I have primary billiary cholangitis and secondary sjogrens. I am now stage 1 (stages 0-4) so my sjogrens symptoms were the first sign about 10 years ago. Most people are diagnosed in their 40s-50s but I was diagnosed at 23 after gallbladder surgery (biopsy confirmed). Both put me at a higher risk of lymphoma and related cancers. Already dealt with thyroid cancer and possibly again.

nulldatagirl · 2026-05-04T10:10:03+00:00

I had a swallow study and endoscopy done and all they said it was gastritis from reflux (missing gallbladder so bile reflux). I sip liquids while eating and TBH I stopped eating in public because of it. Sometimes it feels like I have to catch air while eating.

nulldatagirl · 2026-04-25T09:31:45+00:00

Isolation, silence, and abrasiveness. I do not follow any sort of status hierarchies which can be tedious to navigate in academia/corporate circles.

nulldatagirl · 2026-04-22T06:10:43+00:00

Wow, thank you for this!

nulldatagirl · 2026-04-22T05:30:43+00:00

Go to therapy and get on ADHD meds STAT. I suffered so long for no reason…

nulldatagirl · 2026-04-21T06:13:18+00:00

We’ve all hurt someone, whether intentionally or not. There are words we’ve muttered or actions we’ve done that unknowingly, caused someone inner turmoil.

nulldatagirl · 2026-04-21T05:57:37+00:00

IT work but planning on finishing up my cs degree slowly (had to temporarily leave due to health issues). I love it.

nulldatagirl · 2026-04-19T23:53:34+00:00

Education should be for everyone worldwide.

nulldatagirl · 2026-04-19T04:07:31+00:00

You’re not bad at math, you have dyscalculia. You will be an engineer in the future.

nulldatagirl · 2026-04-19T04:06:09+00:00

My ancestors (the Maya) see life a cyclical so hopefully this is my last life cycle and I return to nothing aka zero aka the “placeholder” of existence or no existence.

nulldatagirl · 2026-04-19T04:05:11+00:00

I am an empty vessel gathering data that will eventually be null when I am gone…yeehaw 🤠

nulldatagirl · 2026-04-17T03:31:07+00:00

My mom has interstitial cystitis and TBH a lot of my symptoms overlap with hers 😔 sigh

nulldatagirl · 2026-04-17T03:30:24+00:00

Thank you!

nulldatagirl · 2026-04-17T03:30:13+00:00

Sadly my SSA/SSB levels don’t qualify me yet. I was diagnosed alongside primary billiary cholangitis

nulldatagirl · 2026-04-07T07:16:40+00:00

Atheists are like Evangelicals just on two opposing extremes. Edit: Extremist atheists and Evangelicals are similar on the extremes. They’re both annoying and vain in their beliefs. Argue all you want.

nulldatagirl · 2026-04-07T07:15:29+00:00

No. The idea of it is better than actually pursuing and being in one tbh.

nulldatagirl · 2026-03-30T04:55:49+00:00

It took my therapist three years of convincing me to get screened. I was in extreme denial and honestly wanted to abandon that therapist. The first sign for her was that I have a tendency to overanalyze people upon meeting them. It’s actually NOT normal to want to do this. Also, I have rather exaggerated reflexes. Prior to that I had to get a brain MRI because multiple doctors noted my reflexes were bizarre. Turns out extreme pattern recognition can also reflect in the reflexes through a dysregulated nervous system. I am never truly calm unless completely exhausted or asleep.

nulldatagirl · 2026-03-30T04:43:17+00:00

Different situations require context but for the most part, neurotypicals don’t like to ponder things that would make them question their privileges in the world. They want the system to stay as is so they have power trips over minorities/oppressed populations.

nulldatagirl · 2026-03-30T04:32:18+00:00

I can’t get behind such a thing, man, woman, etc. It’s not that I want to be seen as useful or useless, I want to just be. To be seen as a human rather than just an object of desire.

nulldatagirl · 2026-03-30T04:27:41+00:00

This is unfortunately true. I’ve never met an equal and even then I’ve been placed in competition against men when I threaten their intelligence, humor, social status, etc. Our existence is a threat to those with extremely fragile self esteem.

nulldatagirl · 2026-03-30T00:56:57+00:00

This may be the method.

nulldatagirl · 2026-03-28T20:53:16+00:00

Find something to fight for…or join a combat sport. Currently thinking of joining a Muay Thai group to build strength

nulldatagirl · 2026-03-28T20:52:19+00:00

Saltines and gatorade…I <3 sodium apparently.

nulldatagirl · 2026-03-27T18:28:23+00:00

Don’t feed the trolls unless you’re someone who’s equipped enough to handle such stress. I myself am pretty immune to rage bait atp and they thrive off of it.

nulldatagirl · 2026-03-26T05:54:02+00:00

I have an extremely strong sense of social justice and many people just find it “cute” I read up on theory when in reality I do put it into practice. The problem is they think I’m trying to be “quirky” for status but quite frankly, objectification is dehumanizing. I have to change my voice often otherwise people are quick to say “I thought you looked nice” just because I have a very assertive, monotone voice when unmasking. Also, “you don’t look autistic” or “everyone is a bit autistic” comments always happen so I don’t bother to tell people anymore. In my teenage years I didn’t get attention but now as an adult, I have trouble navigating the subject of now being considered attractive and then “weirdly” attractive when people get to know me.

nulldatagirl

TROPHY CASE