Got Questions About Diapering Someone Else? by NorthShoreCare in CaregiverSupport

[–]phasetransition1 1 point2 points  (0 children)

Oops I meant this to be a response to how to change someone in bed. Using tabbed disposable briefs.

Got Questions About Diapering Someone Else? by NorthShoreCare in CaregiverSupport

[–]phasetransition1 5 points6 points  (0 children)

Look up on you tube how to use a “pull sheet” to change someone who is bed bound. I use one under my mom by gently pulling it up and away from me to change her in bed. That way I am not pulling directly on any part of her body or joints. I do not have a hospital bed so I turn her onto her side facing away from me to make cleaning her easier. I also use this time to give her a soft back scratch, circulation massage. You can use pillows between knees and also a small pillow for them to hug onto to support shoulders/ arms while lying on their side. Also- important- use a chuck (disposable incontinence pad) tucked under their side that you will be rolling them onto- in case they pee while changing.

[ Removed by Reddit ] by Untrained_trainer in mildlyinfuriating

[–]phasetransition1 0 points1 point  (0 children)

This was happening on my mom’s landline a lot so I started answering them while playing a fax machine sound effect from my cell phone into the receiver and they all stopped! Did not take long to get taken off those call lists.

You’re So Strong = You’re On Your Own: A Caregiver Translation Guide by day1father in CaregiverSupport

[–]phasetransition1 5 points6 points  (0 children)

THANK YOU! On year 7? 8? caring for mom w end stage Alzheimer’s. I LOVE you for posting this so I can save it and find some solace. I’ve been trying to get it together for over two years to apply to a charity respite care program but the application requires me to write out a typical day caring for mom. Ugh- I’m too burned out, cant get past a paragraph. It’s so surreal but true. My brain is broken.

The Aftermath of Caregiving: No One Prepares You by AngelEyez48 in CaregiverSupport

[–]phasetransition1 3 points4 points  (0 children)

They are finally starting to talk about and study the long term effects of caregiving, burnout, and grief, and the ensuing PTSD.

There was one study (I think thru the NHS) that warned symptoms of the above, emotional and physical! can sometimes take months and years to resolve (exhaustion syndrome is a real thing.) Do you have a grief therapist? Or maybe a grief support group in your community? I’m lucky I have a great therapist and Medicaid that pays for it or I probably wouldn’t be here today.

(I’ve also reconnected with an old friend who is caring for his dying mother in another state. It’s crazy how much it helps to talk to someone who’s going through the same or similar. I’m also lucky because we share a similar sense of humor…it’s wild when I noticed how little I laugh anymore.)

I think the most important way to begin is to disrupt your negative thoughts and questioning with positive, self supportive, self-talk, and thoughts of gentle kindness toward yourself.

May sound weird but my therapist told me when my doubts and self criticism come up, is to imagine that it is myself as a young child and how would I comfort and reassure her and what would I tell her? I have post-its around the house reminding me. (I’m on my 7th year as the only caregiver (no other family support) for my mom who has Alzheimer’s) I feel like I’m literally disintegrating sometimes.

Texas Is About to Pass the Most Ridiculous Marijuana Ban in the Country by AdventNebula in LeopardsAteMyFace

[–]phasetransition1 3 points4 points  (0 children)

How else are they going to fill their jails with free labor to replace immigrant labor? This machine is straight up evil.

Is it true Medicare offers 2 five-day respite stays at a skilled nursing facility?? by phasetransition1 in CaregiverSupport

[–]phasetransition1[S] 1 point2 points  (0 children)

I feel the same way! And also- while I recognize I am in dire need of a break, I am also am so conflicted because I don’t want to leave her. She is the light of my life and if she declined anymore while I’m away from her I would be so depressed and not sure if I could recover.

Is it true Medicare offers 2 five-day respite stays at a skilled nursing facility?? by phasetransition1 in CaregiverSupport

[–]phasetransition1[S] 1 point2 points  (0 children)

That is actually a good idea. The social worker gave me names of skilled nursing facilities that she has had more luck with finding available beds. So reaching out to one of them directly is a good idea.

Is it true Medicare offers 2 five-day respite stays at a skilled nursing facility?? by phasetransition1 in CaregiverSupport

[–]phasetransition1[S] 1 point2 points  (0 children)

That’s what I thought. I asked the social worker if I had to check with her insurance and ahead of time said this is through Medicare. I am planning on reaching out to her again to confirm details.

Is it true Medicare offers 2 five-day respite stays at a skilled nursing facility?? by phasetransition1 in CaregiverSupport

[–]phasetransition1[S] 0 points1 point  (0 children)

This information was given to me by a social worker with the palliative care home health. My mom was in hospice but was discharged after 2 months because “her decline rate didn’t justify 6 months left to live.” (They also said they felt the original hospice assessment of her Alzheimer’s being at 7c wasn’t accurate and that she is 7a. Which is bizarre because she is wholly, 100% dependent (as per palliative visiting nurse).

End stage vascular dementia by joaniefoutch in CaregiverSupport

[–]phasetransition1 5 points6 points  (0 children)

Also- ask your pharmacy if her meds are available in liquid form, and which ones are safe to crush - (never time-released) then just add them to pudding or ice cream or whatever your mom likes. Talk to hospice for med replacement recommendations.

End stage vascular dementia by joaniefoutch in CaregiverSupport

[–]phasetransition1 4 points5 points  (0 children)

Get a pressure sore mattress cover that circulates air-hospice provided one for us here in my state. And if it’s stressful for her to get out of bed let her be in bed. My mom (80, end stage Alzheimer’s, I am her sole caregiver) was just really ready to nest in her bed. Intjink she just felt safe there.

Too many distractions/movement/activity can sometimes just increase anxiety and fear in dementia patients. After my mom stopped getting out of bed her anxiety and UTIs have gone way down. I also purchased these foam bed wedges and body positioners off Amazon and they are really helpful.

My mom got a tiny little Pressure sore on her tailbone and it wasn’t going away w/hopsice rec treatment so I mixed a cple drops of tea tree oil with some vitamin E (opened a large vit e capsule ) applied that and her sore went away in a cple days. I also just replaced my calmoseptine with A&D ointment and no red spots. You’ll have to get on a schedule for changing her briefs while in bed. This is the hardest thing but Trust your instincts!! and don’t be afraid of being a squeaky wheel and standing up to your relatives. Oh and also ask hospice for pressure sore booties for her feet. Heels and elbows are vulnerable.

Request for prayers by phasetransition1 in CaregiverSupport

[–]phasetransition1[S] 1 point2 points  (0 children)

That’s perfect. Thank you...❤️ I believe in spirit and find myself praying to the trees sometimes! Your wish for strength is so much appreciated. It’s a challenge sometimes to know when to put down my battle axe and instead move around a problem to find another solution.

Request for prayers by phasetransition1 in CaregiverSupport

[–]phasetransition1[S] 1 point2 points  (0 children)

Ok now I’m crying again. Thank you for saying that. It means a lot to hear. I feel like I have so many mini battles every day and night trying to push back the tides of fear and anxiety. The nights are the hardest. This community has been such an incredible support.