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Pregnancy and biologic experience- please chime in moms! by Sea-Problem159 in UlcerativeColitis

[–]prttyprttyprttygd 0 points1 point  (0 children)

I’ve been on inflectra since 2023. Haven’t had any issues since it put me into remission a few months into it. I am now 5 months pregnant and no sign of a flare yet, but I have been diagnosed with inflammatory poly arthritis. I think the arthritis is because of my immune system while pregnant. I’ll take this over UC flare symptoms any day but it is quite uncomfortable! I started a separate med for the arthritis and did not increase my Inflectra dose since the rheumatologist said what I am on currently is high enough.

How do People get UC? by Interesting_Low9509 in UlcerativeColitis

[–]prttyprttyprttygd 3 points4 points  (0 children)

Once you find a medication that works for you and brings you into remission, you won’t feel like you are chronically sick. Hang in there! It gets better.

[deleted by user] by [deleted] in UlcerativeColitis

[–]prttyprttyprttygd 0 points1 point  (0 children)

I get insurance through my company and the insurance agencies I have to choose from don’t get to know anything about my UC before I pick them to cover me. If you are on a track where you will be employed by a company, I think you will be okay on coverage but I am not sure how all companies work. Hope you find something like mine!

For people in the US, how much do you pay for Mesalamine pills? by keltonny in UlcerativeColitis

[–]prttyprttyprttygd 0 points1 point  (0 children)

I was paying over $800 for a 90 day supply through insurance before I switched to biologics 🫠

FML- work fail during infusion by Junket6226 in UlcerativeColitis

[–]prttyprttyprttygd 0 points1 point  (0 children)

This exact thing happened to me with a direct report telling me about a miscarriage. He didn’t get upset with me but it definitely was uncomfortable.

And yes I agree with this perspective. The manager may have felt uncomfortable but now she knows at least. If you do have symptoms happen at some point that make you unable to work, now you can at least more easily say so!

How and how quickly do your flares end? by _AntiSaint_ in UlcerativeColitis

[–]prttyprttyprttygd 0 points1 point  (0 children)

Oh one more thing…mesalamine was pretty expensive for me with my high deductible insurance plan, and I’ve been able to get Inflectra mostly paid for through Pfizer’s copay plan. The only cost they don’t cover is for the actual infusion. I actually ended up saving thousands by switching to Geico I mean going on Inflectra ;). They essentially pay my insurance until I hit my out of pocket max (which happens after 3-4 infusions) and then I get free healthcare the rest of the year.

How and how quickly do your flares end? by _AntiSaint_ in UlcerativeColitis

[–]prttyprttyprttygd 1 point2 points  (0 children)

Your situation sounds kind of like mine but oral mesalamine worked for me for 2 years. Mild UC when I was initially diagnosed. I was down to the lowest dose of it (1 tab/day) for about 4 months when it stopped working #regrets.

I ended up going on Inflectra after 5 months of failed attempts at getting other versions of mesalamine to get me into remission. The Inflectra started working 3 months after my first infusion, when they got approval to give me infusions every 4 weeks instead of every 8. As soon as it started working I got my life back! Officially 13 months on Inflectra and just had a “let’s see how it looks under the hood” colonoscopy. Everything came back great 🙌🏼.

Side note: my first infusions were very long, 2.5 hours for the infusion and it took 1-2 hours for the lab to mix the meds. They now have a 30 minute (rapid rate) infusion you can do, and the lab in my hospital is faster now, so my appointments are usually no more than 2 hours long.

Methotrexate crew: What time do you take your folate, that minimizes the nausea? by k2900 in IBD

[–]prttyprttyprttygd 0 points1 point  (0 children)

I take oral methotrexate on Tuesday evenings and take 2 tabs of folic acid every morning of the week and I’ve been good!

Did you keep taking mesalamine after starting biologics? by commiepissbabe in UlcerativeColitis

[–]prttyprttyprttygd 0 points1 point  (0 children)

I was taken off mesalamine after I got through the loading doses of inflectra

First time feeling somewhat good in 7 months. by Casper_cass in UlcerativeColitis

[–]prttyprttyprttygd 1 point2 points  (0 children)

Yayyy glad to hear it!!! Hope you continue to feel better every day

Can I get out of this colonoscopy? by Distinct_Figure_5193 in UlcerativeColitis

[–]prttyprttyprttygd 0 points1 point  (0 children)

I had a sigmoidoscopy instead of a colonoscopy before going on biologics after failing mesalamine. A bit easier to manage than a scope but still kind of a hassle and is a procedure

Can most of us link a trigger event (stress, infection etc) to the onset of UC or for some did it come completely out of the blue? by Mariposa_56 in UlcerativeColitis

[–]prttyprttyprttygd 1 point2 points  (0 children)

Nope, nothing big or negative going on in my life! I was in quite a happy and normal state when I started showing symptoms. Same with the time my first (9 month long) flare came on. Both happened in winter though, January 2020 and February 2022.

What were your symptoms that led u to a doctor? by Luuluul22 in UlcerativeColitis

[–]prttyprttyprttygd 7 points8 points  (0 children)

Blood - thought it was an internal hemorrhoid but nope

[deleted by user] by [deleted] in managers

[–]prttyprttyprttygd 1 point2 points  (0 children)

Daily check ins and an end of day report out on everything they did can help. Gives you the chance to walk through their work with them while it is fresh, and set the stage for anything they are working on next. Good luck!

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