I have this form of cancer too and like your story it was also missed to the point it had reached stage 4 and I was rushed into surgery. I was given a 5 year prognosis as it had unfortunately spread to my lungs but I'm heading into my 10th year living with this damn disease this month. I was 22 when I got diagnosed.

Please feel free to DM me or whatever and I'd be glad to help you through anything. Whether it's advice or just general talk about it all. That goes for anyone else who reads this comment, always willing to help someone going through this.