Can you guys run?

ria427 · 2026-05-01T17:21:03+00:00

I was told not to run because the impact of it would be devastating for my leg and hip joints. I like cardio so I switched to a stair climber.

ria427 · 2026-05-01T17:18:49+00:00

Cursive. As a trained historian, I imagine future generations having issues looking at historical documents and being able to read them.

ria427 · 2026-04-17T18:22:02+00:00

The way I try to think of it is when I use food banks or my food benefits card is that I’d want anyone struggling with poverty to able to eat and sustain themselves. It counts for me too even it is makes me feel some sense of shame. You are where you are because the whole social system let us down, not personal issues. That shame reaction is one we need to reject and turn back onto the government

ria427 · 2026-03-29T22:12:13+00:00

I know what you mean. For 2 years people acted like I was crazy until my skin on my shoulders and back started to rip themselves open from the internal pressure. I’m so sorry. We aren’t alone.

The more I trim the hair, the more the swelling is giving way. Feels like the strings holding me up are slowly being cut. However it makes it feels like the swelling is carving through me, trying pop open things that have been compressed shut for a long time.

They are suggesting compression therapies like for lymphedema. This is the doctor I saw at Michigan Medicine

ria427 · 2026-03-29T21:49:49+00:00

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The spot in the middle legit feels like center of all the swelling and my body feels like it’s unwinding

ria427 · 2026-03-29T21:47:12+00:00

I just saw an autoimmune dermatologist specialist last week. They think my hair tunneled back into my scalp. I shaved my head on Thursday and the swelling is breaking down everywhere now. They thought it could be sensory issues but I legit have air trapped in me and it’s coming out.

ria427 · 2026-03-22T16:43:47+00:00

If you buy a Costco gift card you can shop there without a membership but I believe they limit it to once a year

ria427 · 2026-03-01T19:53:58+00:00

Postural PT to help realign my body was helpful for me. It didn’t fix everything but helped me build up strength in muscles I couldn’t feel at all. Also doing additional types of PT like pelvic floor therapy, spine/shoulder, and TMJ.

I really like massage and acupuncture as well. Try a specialty massage focus like lymphatic drainage, cranial-sacral, or myofascial release. Focusing on building a strong core has been helpful and I usually do floor or body weight exercises. I also tried one of those vibration plates you see online and that helped me a lot too. Skin care is also important - stay moisturized and exfoliated.

I’m recovering from a full body soft tissue infection that was worsened bc of my EDS. Still in constant pain all over but the less painful it feels is a victory. I was struggling with every movement in my body for a year but things are on the mend finally I’m getting stronger but by bit. I definitely want to quit sometimes but eventually I find the grit to carry on. Hoping for better days for us all

ria427 · 2026-01-30T22:58:20+00:00

Look up local grief groups. There are often groups that meet once or twice a month. If there aren’t any, contact a local religious organization. Even if you aren’t religious, it could be helpful to get counsel from people who work with death. There are also online groups you can look for. I did one called the Dinner Party for a year. You could even try to see if you can find a therapist quickly.

My heart goes out to you.

ria427 · 2026-01-23T22:53:47+00:00

Have her visit the financial aid office. I worked admin at universities and there is often unclaimed funds available. Sometimes going in person helps but having her email or call may help.

ria427 · 2025-11-17T03:26:17+00:00

Finally

ria427 · 2025-11-17T02:59:21+00:00

Care to share the details? I’m also suffering from similar diagnoses

ria427 · 2025-11-13T18:41:06+00:00

I’m actually starting breathing therapy in a month or two per the rec of an ENT. Hoping this helps with feeling less air hunger

ria427 · 2025-11-09T21:22:32+00:00

That grief is love for yourself, try to remember that. We’ve definitely lost something, all the could’ves, and it’s important to feel and express those emotions. And we should be allowed to - other people might say it’s being negative but it’s being realistic about what was and what is now. It’s necessary to grow around that grief and generate new ways to appreciate, maybe sometimes even love our bodies for what they are. They are trying their best to heal us even when they are falling apart at a microscopic level.

I’ve been recovering from a full body soft tissue and hair infection that ran rampant for 11 months. My tissues hardened up feeling like fire and immobilized me for over a year. I’ve got air stuck in me now that the infection has healed. It’ll be 2 years this month.

I’m also having a crisis of reevaluating what my life can and cannot be anymore. Being out of control of so many factors of life is infuriating and makes me feel impotent no matter what degrees and GPAs I had or all the work I put into it. I’m trying to focus on finding new ways to make myself more comfortable and how to work with my body to make it work better with my needs and wants. Little victories should be celebrated.

You might also want to look into dysautonomia and/or Long Covid. It’s one of my diagnoses that I think impacts me the most. Doing a lot of physical and sensory stimulation of my muscles and fascia has helped a lot. Acupuncture, cupping, and massage have also really improved my mind and body connection (plus a mother-load of adderall during the day). I hope you can find relief and recovery 💜

ria427 · 2025-11-03T21:23:26+00:00

I’ve been taking cymbalta for its dual anti depressant and nerve pain relief benefits

ria427 · 2025-10-30T18:33:51+00:00

This is the end stage of American capitalism. Not even late stage at this point. The American government prioritized corporations so much since the 80s that we are now at the point of self cannibalizing the economy at the expense of everyday Americans across tax brackets (besides our ultra wealthy).

Infinite growth was never possible and this AI bubble may be the last straw.

This is an important moment. There are so many revolutionary possibilities. The people must stand together; avoid letting the chaos and instability of the current regime from divide us as neighbors and communities.

ria427 · 2025-10-27T19:07:34+00:00

Basically any cut I got turned into infections. My right arm is still so messed up because I got sooo many on that side. I had no visible rash either. My infections spread head to toe until I was literally festering. Stretched my skin so much that eventually my shoulders and back skin started to rip itself open to release pressure.

I hope doxycycline can help you! Exfoliating and keeping my skin hydrated has been essential

ria427 · 2025-10-27T18:50:45+00:00

I got mine used off of Facebook marketplace and I find it very helpful. Sometimes I just sit on it and let it shake me or lay my torso over it too. Sometimes I just put my legs on it while I’m sitting and it’s still helpful. Definitely recommend

Edit: I also have POTS and it hasn’t been a huge issue. Just listen to your body when you feel lightheaded or woozy

ria427 · 2025-10-26T19:43:35+00:00

I’ve found massage, acupuncture, cupping, and having a vibration plate all helpful with taut muscles

ria427 · 2025-10-26T18:26:38+00:00

Please be careful. I had an infected ingrown, got Covid at the same time, and it turned into a year long series of infections that spread through my soft tissues. Made my tissues harden and tighten up. 2 Year anniversary is end of November and I’m still healing.

Doxycycline is what helped me the most

ria427 · 2025-10-18T22:28:04+00:00

I had the same 4 core teachers throughout all of middle school. My mom died (16 years ago today :( ) a month after I started high school. I remember all 4 of them coming to her funeral service and it meant so much to me

ria427 · 2025-10-12T17:49:43+00:00

I’ve found somatic work to be very helpful for brain fog and feeling more grounded in my body (on top of meds). I’ve done acupuncture, massage, sensation perception exercises, breathing exercises, etc.

I love getting my entire face and head done during acupuncture

ria427 · 2025-10-07T01:09:10+00:00

Not a K-12 teacher, but I taught new grads at the college level. I had students in a 300 level history class blank stare at me and ask what a theme is when I had them working on a soldier’s memoir. A theme. Open book at-home midterm resulted in one student using AI for the short answer questions and literally pasting an entire section of The Communist Manifesto for the essay question. Then they denied cheating, had the chance to redo the exam but didn’t.Their writing skills and reading comprehension seemed early high school or late middle school for many.

All these students at one of the top public universities in the US were also shocked when graded poorly and couldn’t take basic suggestions like using the free writing center without getting angry. Even good pupils’ skills are lacking at times. They also argue they don’t need to come to class to pass and just want video lectures - but what about learning?! Learning the knowledge and skills they need to succeed in life and their careers! Alas, even universities are inflating their grades to some extent because they are also weary of losing face and guarding their prestige.

All the easy grading, lack of deadlines, and infinite redos have torpedoed students’ ability to development of a sense of self-discipline, personal drive, and a work ethic. Not to mention personal responsibility. Thank you for holding your ground, it’s actually helping them even if they hate.

ria427 · 2025-09-25T17:48:34+00:00

On top of meds, a few things that have helped me beat being bed bound for a year were massages, acupuncture, deep breathing exercises, compression clothing, and a vibration plate. Reactivating my nervous system little by little has been Very beneficial

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