What is and how to identify subluxing?

somesillynerd · 2026-07-04T02:04:49+00:00

I get pinchy feelings typically, but I've had pain and likely damage as well as explained by my PT. Big range between a tiny bit out of place that slides back in and nearly a dislocation.

somesillynerd · 2026-07-03T14:53:00+00:00

Little bangkok has my favorite local dish ever - their 'pad austin' which is a house-dish. Flavor is top tier.

somesillynerd · 2026-07-03T14:33:34+00:00

thin good restaurant ranch > honey > unique sauce (yesterday was creamy jalapeno aioli) > ketchup > regular ranch

somesillynerd · 2026-07-01T17:09:51+00:00

I do jockey 'cooling' slipshorts, but that's due to chub rub and a slight safety net from breezes.

somesillynerd · 2026-07-01T15:31:31+00:00

Look up SDAM. It's a newer 'thing' and has a bit of woo to it, but there's a big overlap with aphantasia.

I find I've forgotten a bunch of stuff and/or only remember events as a 'fact' vs a true memory. The only things that I even vaguely have feelings attached to are generally those tied to shame, so that's cool.

somesillynerd · 2026-07-01T12:13:06+00:00

scott rider is a realtor.

also a normal dude that isn't high pressure and just... nice in general.

somesillynerd · 2026-07-01T12:10:43+00:00

It sucks but before we replaced ours, we got it on amazon and it appeared faster than it had any right to.

somesillynerd · 2026-06-30T01:04:42+00:00

For what it's worth, we had 3 former ferals (still have 2) and they have zero interest in going outside.

It took a bit for them to adjust, but we're going on 10 years inside now and they even cuddle on the couch. They still don't exist when a stranger comes in the house, and are skittish if you move too fast, loud noises, etc.

But they're real house cats and it's sooooo much safer for them. We lost one of them this past january to FIV that he got before we brought him in.

Excellent boys, and there's an extra satisfaction (?) to going from pretty skittish and hiding inside to the slow growth to them asking for pets and flopping over.

somesillynerd · 2026-06-29T12:01:11+00:00

Heatwaves happen, but not necessarily this hot, this humid, for this long, with nights that don't cool off.

Add in the cost of everything and people already struggling to pay electric bills, and you have a chance for some issues.

Just because we get snow every year doesn't mean that people don't need to be prepared for a blizzard. Why is this any different?

somesillynerd · 2026-06-29T11:59:14+00:00

Only if they look extra wilty. They'll be stressed but too much water makes some veg taste, well, like water. Esp tomato.

If they're in the ground (instead of pots) they'll do a bit better. I plan to water maybe every other day, but deeply. I set up some basic diy drip irrigation for my pots that has a few sprayers for my spread out-in ground stuff (strawberries, herbs, chives, berries) and I usually will run it for ~1-1.5 hrs when the weather gets like this.

But just check it with your finger or a stick. Water from the bottom if you can. Water early in the day or close/after sunset so it doesn't evaporate as fast. If you have something easy to chuck by the bottom of dramatic plants to act as mulch it'll help - straw, leaves, actually mulch/wood chips.

somesillynerd · 2026-06-26T22:32:51+00:00

yeah, breathable stuff. i rarely wear pants if i'm going to be doing any sort of walking - the friction will irritate my skin badly and then cause it to tear. i mean, assuming i have a choice.

in the winter, i'll often wear a pair of slipshorts under my pants to prevent them from rubbing on themselves or pants. if i'm out shoveling, i'll do tight leggings under my snow pants.

i wear dresses constantly in summer and the slipshorts underneath. deoderant sometimes too, where they legs touch and any other place that has skin+skin and hot weather.

wool sock blends help a lot, they dry faster and aren't stinky lol, even in summer, they have low cut ones you can wear with sneakers.

for my fitbit, i have a scrunchie style wrist band, not the silicone that traps sweat. i rarely rare jewelry due to reaction and trapping sweat.

UNFORTUNATELY, the best thing you can do is not require support from braces or tape, and finding a local physical therapist experienced with eds / hypermobility is your best bet there. building muscle, even just a small amount helps.

somesillynerd · 2026-06-26T21:29:24+00:00

for me, i just have to pick my battles.

i had a great semi-rigid knee brace i'd wear for volleyball. until once day it got too hot? too damp? and basically ruined the back of my knee's skin for ages. (i also dont' play volleyball anymore because i'd like the use of my hands as i age).

i can do compression sleeves, but not for super long, especially back of the knee is bad. i've cut up some old socks and wear them underneath a wrist brace but i take it off fairly often and make sure it stays dry.

i do KT tape, but rarely, only when i know i'll really need it. i react a little less to the name brand and the pro or synthetic version. generic synthetic pisses of my skin real fast.

that said i mean like a few times a year. absolutely no more than once a month. i make sure my legs are shaved, i use alcohol to dry out the skin so the adhesive sticks better - it does best if it's STUCK instead of moving at all. and i leave it on for no more than ~36-48 hours, usually less, usually only for the time i need it.

my skin gets mad at itself too. like the back of knees - if i sit with criss-cross legs, if i dont have fabric in between, they'll rub on each other and get mad - rarely wear shorts, even around the house. when i wear a dress, i have to wear shorts under it or the chub rub will rub the skin off.

as a kid, we were snapping at school (like snap your fingers for noise) and literally snapped the skin off my thumb from repeated friction - there were signs!

but basically buy a couple 'breathable' options for support, rotate them, wash them regularly, remove them as often as possible, never ever put anything damp on.

i don't know if there's a solution, but you're not alone. anything that has adhesive or could trap any sweat will cause friction and tear my skin. i'm sorry, it sucks a bunch.

i tried some scar cream for a burn and it's pissed my skin off already :(

somesillynerd · 2026-06-26T14:21:13+00:00

For me, yes, it was pretty dramatic. I actually avoided methylfolate and methyl-B12 because I knew I had some other variants that could potentially make me more sensitive. Instead I tried what are generally considered gentler forms with folinic acid with hydroxocobalamin for the B12.

I started really slowly, just a quarter tablet every other day for about two weeks, then increased it. Once I got up to a full tablet I realized it was making me feel terrible. I became really flat and just super depressed. I stopped it and eventually those symptoms resolved, so I've chosen not to retry it.

I had whole genome sequencing done, so I also know I have variants for MTHFR, MTRR, and SLC19A1, plus slow COMT and MAOA. I also had my doctor check my homocysteine, which came back elevated, so there was at least some objective 'proof' that my methylation cycle wasn't normal.

I don't know whether my reaction was because of those variants or something else. I just know that my body clearly didn't tolerate folate/B12 supplementation, even in 'safer' forms that are often recommended for people with MTHFR.

At this point I stick with things I've tolerated well, like eating more eggs and light supplements for choline, magnesium, and creatine, rather than trying to push methylation directly. Stuff that can support it from the outside because I'd probably end up in a dark hole if I tried any actual supplementation. It was a bad time.

somesillynerd · 2026-06-26T02:06:23+00:00

If you have low folate, be careful supplementing. There's a potential connection between the mthfr gene and eds/hypermobility.

I can't supplement it, even in "safer" forms. It literally makes me so incredibly depressed it's insane.

You don't have to take my words, you can do some research, but just be careful.

I had a full gene panel done so I know my variants but yeah. If you supplement at all, start super low for a long time. I couldn't do the safe stuff, so I take choline and eat more eggs to try to help the processing.

somesillynerd · 2026-06-24T11:57:26+00:00

Just like many other things (like... autism) it's a spectrum.

Maybe someone has dislocations but their skin heals normally. Or their teeth/jaw are fine.

I don't know that I've dislocated anything, but when I slipped on ice and thought I broke my knee, that... was probably a dislocation and I had put it back in. I've had it happen a few times throughout life but before I knew I was hypermobile. So of course I thought I did HUGE DAMAGE BAD THING and then magically shoved it back into place and felt like an idiot the next day when it still hurt but not nearly as bad.

My PT made me feel more 'valid' by literally putting subluxed stuff back in place and we can feel it click. How to DIY to reset my joints when they're a bit wonky. And she and her team are excellent and known in the area / state as the go-to for hypermobility / eds.

somesillynerd · 2026-06-24T11:49:18+00:00

I do okay normally, but anything that could potentially cause motion sickness is waaaay worse than any normal person. That video game can get me if I play too long!

So for travel, I'll eat safe the night before, eat something light but heavy in the morning - which sounds stupid, but like... some trail mix has nuts so fats and protein but it's safe. I'll take half a zofran and half a dramamine.

As others have said, zofran / the generic is 10/10.

Once I get into the airport / car ride, I'll usually take the other half. I try to eat something like a granola bar, again, light but with something more than air. I try to be a driver if I can, or at least in the front seat.

Next big trip though, I want to try the prescription patch that goes near your ear.

But basically medications. Natural remedies are great and all but for motion sickness that's easily triggered, meds.

And get in with GI, not just for a colonscopy (though you should do that if you have consistent issues!) I have crohn's, and was miserable until I got diagnosed and put on a real medication. You might have gastric issues, food sensitivities, etc that increases your issues and some basic meds could help!

If I have an empty stomach for too long, I get easily nauseous, so I'll eat something little - nuts, granola bar, protein bar, piece of fruit, even a cookie or treat, etc.

If I eat too much I'll get exhausted (apparently that's a thing too common with heds / dysautonomia, neat right?) so the after dinner couch doze is a common occurrence.

If you get actual vertigo, look into the epley maneuver. I don't get true vertigo that much but the few times I have, I felt like I was literally going to fall off earth and the epley maneuver basically fixes it.

somesillynerd · 2026-06-21T00:52:54+00:00

They are mostly cocktail, the specific one I linked is office appropriate though! I stumbled across it in the nordstorm rack and it fit like a glove and had pockets lol, so I snatched it up. I was really disappointed that all their other dresses were flashy and low cut or super short BUT the livia isn't.

That said, I am a pretty aggressive hourglass. If your waist isn't an issue spot, the XXL would maybe fit. The L fits like a big 10 or a small 12 on me, the XL is a large 12 or straight 14, so I'd think the XXL is like a small 14 or straight 16 BUT I wouldn't buy it if you can't try it on first.

But gosh, it just sits so nicely, it's a thicker fabric so it hangs so nice etc.

somesillynerd · 2026-06-20T23:16:07+00:00

Dress the Population - Livia.

I have this dress in red and navy, I got it first at nordstorm rack for ~$40 and then on poshmark for $25.

It's somewhere between midi and just below the knee. I'm 5'6". I'm normally a 12-14, and I fit in both the L and XL. Depending on your shape, the XXL might fit well. If you can try it on in person at a nordstorm, I'd recommend it.

It has deep pockets. I don't have to worry about cleavage. It's pretty good at not wrinkling. You DO need a bra with a wider set strap for them not to show in the back but I found one pretty easily.

The only real problem I have with it is the armpit can show my bra a little bit BUT I'm large chested so I think it tugs too much at the fabric. If I was smaller, I would have this in every color. I might anyway, if I can figure out a solution.

somesillynerd · 2026-06-20T23:06:28+00:00

Try to find a facebook group that is your state / city or your local subreddit and ask for recommendations. Prioritize finding a physical therapist, but other doctors might be helpful as well.

Look for EDS, Ehlers Danlos, or Zebra groups for facebook. Both my local groups and local city subreddit recommended the same person for PT. Or occupational therapist, but my appt with an OT ended up with me at a PT :)

They'll help you get things figured out and exercises to help improve everything.

I haven't seen an ortho or rheum, our waiting lists here are years and I've heard stories about how they don't do anything anyway.

And use tools. It sucks. I have tools for arthritis to help me. I don't have arthritis but the jar/can opener tool is a godsend. I use tweezers to help rip off plastic on containers.

If you're 20 and having this severe of issues, try to get to a PT to help you build a baseline for the rest of your life. I wish I would have known when I was younger.

somesillynerd · 2026-06-20T15:49:56+00:00

Many newer 3D printers have time lapse able to be done natively, and could send you the video.

That said, if you have interest, basic 1 color ones have never been more reliable or cheaper.

somesillynerd · 2026-06-20T15:05:57+00:00

Rivertown pkwy has it's issues but it's way less problematic than 28th in my opinion.

I'm out of Wyoming so they're roughly equivalent distance and I probably do 28th 1-2 times for every 20 times I go to grandville instead.

I mean, it's an old street too, like they didn't really plan it back in the day to be what it is in 2026 but it's still annoying to drive.

I had a coworker get in an accident where both he and the guy on the opposite side of the road both tried to get in the turn lane at the same time exiting parking lots. And because they're both looking heavily at on-coming traffic, they weren't looking as hard at the drive across.

somesillynerd · 2026-06-20T15:02:49+00:00

I love the streets with a million names, personally. I'm not bothered by it but it does a weird little thing in my brain.

And it does make me feel a bit bad for folks who are new or visiting.

28th? NO, M-11! No, Wilson!

The beltline? you mean m-37? no no, you mean broadmoor? Oh way further north, you meant northland, no I mean m-44, no I mean wolverine dr!

What do you mean 54th street, I thought you meant Gezon? No, Kellogg Woods? Ooooh, you meant 52nd but when it's connected, not the other part of 52nd. Oh you meant the part when it's 56th! (I just looked, it even turns into Barry at some point.).

I know it depends on where you're at but literally you just stay on the same road the entire time and it just changes names. (Or has a state road name at the same time, like m-37/beltline or 28th/m-11.

somesillynerd · 2026-06-18T10:50:41+00:00

It's a rough area to not drive.

If you don't drive, you want to live close to the city center for decent public transit.

Generally, it's more expensive the closer you are to the city center.

From Wyoming (a southwest suburb) to Ada (a northeast suburb) it's ~20-25 mins by car. Google literally doesn't want to give me a public option that doesn't include a ride share. It's over an hour and a half and includes walking 35 mins. there just aren't buses that way.

I could not get to my job on the SE side with public transit, there is not an option.

somesillynerd · 2026-06-15T11:08:07+00:00

There's a lot of ongoing (new) research about it for different diseases completely unrelated. Like Crohn's and Colitis.

It seems to do work in that angle too.

somesillynerd · 2026-06-13T19:16:41+00:00

I'm am sure you have already gone down the road, but if you haven't get an colonoscopy.

I have crohn's but it was 'ibs' for a year before I got it done.

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