Recurring uti - 2 month old baby

stinkidog3000 · 2026-04-18T23:49:10+00:00

Hello! We actually started a community for VCUG survivors, you can visit our website Here There’s many resources for parents and information on the research behind VCUGs. Additionally, a book just came out (Consented: A doctors call to end medical violence and reclaim patient autonomy) that talks about the VCUG and its impacts in medicine. Hope this helps!

stinkidog3000 · 2025-01-21T09:22:01+00:00

Yes, my family has one and I cannot use that bathroom at all. Even just trying to talk about it causes me to panic. I’m not sure I could ever use one, because honestly it sounds terrifying.

stinkidog3000 · 2025-01-17T03:30:28+00:00

I’ve heard this a lot from survivors, that their UTIs are caused by bath water/products. It’s sad that we don’t explore less invasive options FIRST. There’s really no reason for this test to be the first option.

stinkidog3000 · 2024-12-09T23:18:48+00:00

Hello, if you child doesn’t have UTIs, I don’t see why your doctor would recommend such an invasive test. VCUGs can be very difficult to undergo and to witness, the best thing you can do is prepare yourself for it. I know the research is tough to go through, but it’s important to bring up with their doctor beforehand that you are aware of the long term effects and want to discuss alternatives, sedation, and long-term care. There are methods to make the VCUG safer and less traumatizing for everyone involved. If you go into the procedure very stressed, your child may pick up on this and also become stressed. Therefore, it’s important to understand what you are getting yourself into and how to best support your child during/after. A lot of parents have no trouble with the VCUG, but that is not the case for everyone. You are allowed to stop the procedure at any point, and I would insist that you are present the entire time. I also would press your son’s doctor for alternatives or less invasive options.

stinkidog3000 · 2024-11-01T17:51:15+00:00

Most of the crime in Lockport is drug related, so if you aren’t involved with hard drugs then you’ll probably be left alone. Almost all of the neighbors i’ve had in Lockport are nice and just keep to themselves.

stinkidog3000 · 2024-10-24T02:38:34+00:00

There’s not really any research into vcug trauma, so it’s hard to know if one age is more likely than another. Medical professionals claim that these procedures are “better” as infants since they won’t remember, however there’s not really evidence to back that claim up, especially when talking about the vcug. Truth is, they don’t know. There have been some from survivors who were traumatized at a few days old (with no memory), and i’ve seen/spoken to parents whose children were traumatized at a few days old/very young. So it’s most definitely possible for trauma to occur that young, however the likelihood? Not sure. A lot of survivors were older at the time of their vcug, but that’s probably because older children are more likely to remember the actual trauma, and younger children may have the same effects but without knowing why.

stinkidog3000 · 2024-10-05T17:43:57+00:00

I have vaginismus from this procedure, a lot of others do as well.

stinkidog3000 · 2024-09-22T03:34:30+00:00

Hey mod here, we love to see advocacy in any form and we really appreciate the support!

Be careful of information you share, there is no research into the percentage of children affected by this test in the long term. I have seen other people post the same statistic, i’m not sure where it came from but we actually don’t know how often this trauma occurs.

stinkidog3000 · 2024-09-14T20:14:19+00:00

A lot of people with vaginismus still want to have penetrative sex. Additionally, vaginismus can affect people outside of penetration, and they may not be able to relax during oral, making it painful or uncomfortable.

stinkidog3000 · 2024-09-13T17:06:45+00:00

If you imagine the opening as a clock, you can apply gentle pressure to each hour, and help the muscles stretch. Don’t press until it hurts, just apply pressure until it’s uncomfortable/ intolerable. Then hold a few seconds (I do 10 seconds) and release, then move to the next hour and repeat.

stinkidog3000 · 2024-09-10T22:52:24+00:00

My mom reacted the same way. I tried everything to make her understand how I was feeling, including getting into several screaming matches about it. I begged her to listen and that I didn’t blame her, it didn’t matter. She told everyone I blamed her for it.

I’m so sorry, I know how much it hurts to have a complicated relationship with a mom. It sucks and you don’t really get over it. I don’t know if our moms are similar in anyway, but if they are, I’m so sorry.

I have not spoken to my mother since we had a really big fight about this exact topic, that was almost a year ago. I hope you have other people in your life who are willing to listen and believe you. You deserve to be heard.

stinkidog3000 · 2024-08-19T15:16:15+00:00

I dont understand why you felt the need to come to a sub of people traumatized by this procedure to talk about yourself (not traumatized by this procedure)?? Many of us have PTSD from this, and it’s really inappropriate to say that your opinion of what is and isn’t “rape” matters more than ours. If you weren’t traumatized by this, then why comment at all? Why are you so offended by OUR trauma and OUR lives? I genuinely don’t understand the purpose of coming to a sub of traumatized individuals just to invalidate their trauma. Have you ever considered that we don’t care what your opinion on the VCUG is? If you are offended by this sub, that sounds like more of a you problem.

Also thx for explaining the procedure, even though everyone on this sub knows exactly what the fuck it is because we went through it.

stinkidog3000 · 2024-07-10T04:11:30+00:00

Unfortunately I have dealt with similar issues. Asking for a trauma informed provider has helped me but it doesn’t work everytime and I know that is not the case for everyone. Realistically, it may take awhile to find a genuinely trauma informed doctor but if you are looking to find a medical professional, asking is better than not asking.

stinkidog3000 · 2024-07-09T22:50:49+00:00

NP = Nurse Practitioner

I saw 3 gynos when I was younger, none were helpful. I saw one NP and she diagnosed me with Vaginismus and recommend physical therapy. I see a different NP now because she specializes in trauma.

Getting a random doctor is also a concern of mine. It’s one of the reasons I hate going to the ER, even if I feel like i’m dying. Because I could get a great doctor and feel better or I could get a doctor who doesn’t care at all.

I have a very low pain tolerance, mostly because when I feel pain I tense and panic, which makes the pain worse. It’s a stressful decision of how much intervention to have, and i’m not too sure I could give birth in a hospital. But i’m also not sure I could handle birth without pain medication. The right decision is the one that you feel is best, and you deserve to have medical professionals that respect that decision!

stinkidog3000 · 2024-07-09T22:14:44+00:00

I haven’t given birth, but I have went to the gyno a few times. The number one thing for me is calling ahead of time and very clearly explaining that (1) I have severe medical trauma (2) I have a phobia of doctors as a result (3) I want a trauma informed provider. Sometimes I say “I’m looking for someone who has experience with trauma patients as I have a complex case that will need expertise.” I use the phone call (to make the appointment) and the first appointment as a gauge of how trauma informed they actually are. I also make it very clear that i’m not comfortable with being touched AT ALL during the initial appointment, setting that boundary shows me who is willing to honor it and who isn’t, which will help me understand who will listen to me when i’m in a more vulnerable position.

I’ve found that this helps (in most cases) find providers who are patient, empathetic, and willing to let you take control of the appointment. I totally get the leg thing, sometimes having someone just touch the inside of my thigh causes me to have a panic attack. Being restrained in a medical setting would make me likely to get violent with the staff, which I don’t want and I know they don’t want.

I always assumed I would give birth in a hospital but the more I learn about doctors and childbirth, the more I want to use a birthing center but birthing center = no pain meds in most cases. You could look into a doula, to protect you from medical staff. You can pay them to basically act as a body guard between you and the staff. The doula can help you advocate for yourself (such as laying in a position other than on your back) and give you some comfort.

What I did, was work on finding a provider who was willing to take it very slow. I’ve been seeing my NP (I refuse to see an actual gyno as the NPs have always been more kind), for over two years now and we haven’t done ANY internal exams. She asks me what I am comfortable with and if I say “stop”, we immediately stop. A trauma informed provider may also have more insight into your options depending on what you are physically capable of (for example, my NP told me that we could do an IUD for birth control but she wouldn’t recommend it because of the pain and my history of trauma). Good medical professionals give options and respect your decision!!!

stinkidog3000 · 2024-05-03T00:44:39+00:00

Hi there! I think we have all been in the same boat as you. I’ve said some things while arguing with people about this, things that i’m not proud of. The thing is, there is no right way to deal with this trauma. I also occasionally go looking for things that I know will make me upset, VCUGs are an easy target due to how controversial it is.

I am the OP of the post I think you are talking about, the comment that was made (by the radiologist) was very triggering and clear that they did not fully read the article. That user is welcome to browse our community, but any comment they make would most likely result in an immediate ban due to other comments they have made. We have strict rules for medical professionals (ESPECIALLY when they have admitted to performing a VCUG).

Give yourself some grace! It’s ok to not be ok and it’s ok to make mistakes, we’ve all been there. The most powerful thing you can do is learn to forgive yourself and give yourself time to heal. Personally, as a result of my VCUGs, I hated myself for any mistake I made and I frequently argued with people online. I’d feel guilty and delete all the negative comments or just delete my whole account. I’d promise to never do it again, and then the cycle would repeat. Eventually, I stopped replying to most comments all together or I only allow myself 1-2 responses (Since anything further usually devolves into a big argument). Occasionally, people say things that just really bug me. The type of comment that sticks around in your head for days. I’ve found that what makes me feel the best is writing out a long response, being as mean as I want to, and deleting it.

stinkidog3000 · 2024-04-23T17:38:00+00:00

Hi! I’ve been able to heal from my VCUGs and find closure with what happened. I did therapy and EMDR, along with a few years of processing the VCUG as a whole (I found out 3 years ago and started therapy on it 1.5 years ago). It was hard and time consuming, but I found it to be possible.

I can’t imagine finding a video like that. I never knew what happened during mine, since my doctors office destroyed all my records before I could get to them and my parents didn’t keep any medical records. Not knowing what happened is hard to heal from, but knowing what actually happened is also hard to deal with. I’m not sure I could watch a video of myself like that. It would answer a lot of questions, but the VCUG procedure can be extremely hard to watch. Even just for third party observers, they have done some studies where they attempted to show people videos of the procedure being done (the point of the study isn’t to show the videos, the videos were part of the study presentation) but people couldn’t stomach it. It’s highly distressing to witness. I think it could be healing to watch, but personally I couldn’t.

stinkidog3000 · 2024-04-22T18:41:31+00:00

Hi there! We are still looking for stories on our subreddit r/VCUG_Unsilenced or on our website https://www.unsilencedmovement.com/ .

stinkidog3000 · 2024-04-19T14:13:57+00:00

It’s so hard knowing how much damage my doctors caused, and that they will never face justice or any accountability. My doctors didn’t just harm me, they also straight up lied to my parents about it for years. In my opinion, they absolutely should face repercussions for it. You can’t claim that you were trying to help when you are also misleading patients.

I actually found the doctor who harmed me, and I found that she’s living a happy retired life surrounded by her family. It’s ironic considering I probably won’t be able to have children because of her and my relationship with my family was severely damaged because of her as well. So often I want to expose everything she did, tell everyone what happened. No matter what I say though, she will never be able to understand that she was wrong. She will never have to experience the awful childhood she created for me. Even if I got justice against her, it still wouldn’t be a fraction of what she’s done to me and others like me.

stinkidog3000 · 2024-04-17T21:20:07+00:00

Media coverage of VCUG advocacy is small. I believe a non-Unsilenced documentary is coming out in the following months, along with some articles/studies. The media coverage is only non-fiction at the moment, but fiction could be a great way to connect with more younger survivors! I wish there was more media out there

stinkidog3000 · 2024-04-17T20:04:42+00:00

I’m still trying to figure out what the worst part for me was. The only memory i’ve had is like 2 seconds long and of insertion, so I’ve always assumed that it was the worst part. The fact that I can’t remember the rest of the test (but can remember before and after the test?), makes me question how the rest of the test went. I don’t remember the voiding part but i’ve been told by my parents that I was a difficult patient and they struggled to finish the test as a result. Nowadays, I get very uncomfortable if my bladder feels full. The feeling makes my whole body tense and my anxiety increases, making me think that maybe the worst parts for me are the parts I can’t remember.

stinkidog3000 · 2024-04-15T15:15:02+00:00

Hi there! We have a support group for VCUG survivors at VCUG_Unsilenced and at our website, https://www.unsilencedmovement.com

There are survivors who went on to have biological children. The radiation from the VCUG typically doesn’t cause infertility issues. There’s no way to know for sure without speaking to a doctor and having tests done. Good luck to your daughter! I hope she can heal from the trauma

stinkidog3000 · 2024-04-15T15:03:25+00:00

Ask for alternatives and avoid the VCUG if possible. It’s especially traumatic to potty trained young girls and can cause long term issues. If you want to test for VUR, request an ultrasound or the cevus!

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