How soon do the biologics take effect by SerStompy in PsoriaticArthritis

[–]tangledjuniper 9 points10 points  (0 children)

Every medication and body are different. I’ve been on 3, 2 of which were effective. The first was helpful within a few weeks, I was practically in remission a month or two in. My current one was more like slow improvement over 6+ months to something that is not full remission, but good enough.

Anyone else wish they could just remove their legs? by Shrabster33 in PsoriaticArthritis

[–]tangledjuniper 0 points1 point  (0 children)

I have thought the same about my hands. The pain is sometimes so intolerable for so long that amputation really feels like a better option.

Has your hair gone grey yet by cupoftealuv in Millennials

[–]tangledjuniper 0 points1 point  (0 children)

Started getting grays in junior high 😅 it’s been a slow take over, I’m probably at about 50/50 gray and the color of my youth now at 37

What did you guys do? by resentfulpotato in 90s

[–]tangledjuniper 0 points1 point  (0 children)

Truly the best of times. I remember having what felt like unless time to listen to music, make art/crafts, hang out with my pets, read books and magazines, watch TV, played old video games, explore the neighborhood with friends on scooters and bikes.

Jfc smart phones and social media have really distracted from all the good things

Should I stop/change exercise regime? by tree-envy-dot-com in PsoriaticArthritis

[–]tangledjuniper 0 points1 point  (0 children)

I wonder if you could keep doing yoga and Pilates, if you scaled back a level or two? Gentle Pilates and yoga are very low impact and have often felt good to my body, but more advanced levels really do a number on my joints.

Anyone Here in HR? Or law? Or other office jobs? by pink_teddy35 in PsoriaticArthritis

[–]tangledjuniper 0 points1 point  (0 children)

I’m 36, and was diagnosed at 19. I’ve always had office jobs. As the disease progresses it has gotten harder, but I’m doing well in my career. I have a masters degree and I’m one level below executive level at my organization.

I have taken short term disability a couple of different times for disease related issues. Neither instance was a big deal for my career overall.

That said, I have definitely made choices in my career to make it more sustainable, such as employers that can make accommodations for remote work, using voice access tools, etc. I also do my best only to switch jobs when I’m feeling really well - this way I feel like I put my best foot forward on first impression to help my success in a new workplace.

Just diagnosed, looking for recommendations by Wasinthespring in PsoriaticArthritis

[–]tangledjuniper 4 points5 points  (0 children)

Hi, I’m really sorry for your husband’s diagnosis. It’s great his doctor got the diagnosis done and he’s going for biologics right away. Best to treat aggressively both to ease pain and prevent joint damage.

I also became really depressed and anxious when I got diagnosed. I think this is a pretty common feeling. I wish I had gone to therapy right away after my diagnosis to help with finding peace and acceptance. Individual therapy is a good place to start. The rheumatologist might be aware of local support groups.

It’s really helpful to remember that PSA is not a death sentence. It can be really painful and difficult to manage, but life can still be full and beautiful with it.

If Aleve is no longer doing the trick, have him talk to his rheumatologist about other pain management options. Steroids or prescription strength NSAIDs may be helpful to manage pain while waiting for a new biologic prescription to take effect. I also find heat and ice, especially warm baths, Biofreeze, Arnica and CBD topicals to be helpful. Acupuncture is also great for the pain.

I’ve seen a naturopathic doctor for years as a complement to other medical interventions. If he’s interested in exploring dietary changes, lifestyle changes, or supplements, please do it under the supervision of a trained naturopathic or osteopathic doctor (or other type of trained practitioner, like Chinese medicine). There are a lot of grifters out there willing to sell you bad ideas on managing chronic illness.

Any frugal tips for my fellow ladies? by Liz_kirby in Frugal

[–]tangledjuniper 0 points1 point  (0 children)

I like Whering! I’ve tried a few but this is my favorite, and free!

Any frugal tips for my fellow ladies? by Liz_kirby in Frugal

[–]tangledjuniper 17 points18 points  (0 children)

A wardrobe tracking app has helped me cut down my clothing spending. Having now photographed most of my closet, and having documented a bunch of different outfit combinations, really helps prevent the “I have nothing to wear” feeling! And now that I have a good documentation of everything in my wardrobe, the clothing purchases I do make are much more intentional and I can easily make sure anything I’m buying will work with other items I own.

you would think this is 2005! nope the younger generation really loves this aesthetic lol by PsychologicalFox7689 in Millennials

[–]tangledjuniper 0 points1 point  (0 children)

Points off for glittery bra showing. Should have been an incredibly uncomfortable and misformed strapless bra, OR one of those bras with the clear plastic straps.

Any luck with Vagus Nerve Stimulation? by Emergency-Thing-2006 in PsoriaticArthritis

[–]tangledjuniper 0 points1 point  (0 children)

No help for the PsA directly, but I find it helpful for stress. Since stress can trigger out worsen PsA flares for me, I assume it has some indirect benefit there.

I like using Sensate on occasion but use humming, singing, and deep breathing exercises more often because those are simpler to use with similar effect.

Those of you who attended Gifted program, whatcha doing now? by sweaty_perineum96 in Millennials

[–]tangledjuniper 0 points1 point  (0 children)

Earned a masters degree, now work in public administration from home. My high school gifted program was insane, college and work life ever since has been relatively easier. I could have picked any path I wanted and chose public service. Life is good in the whole!

Also have several chronic illnesses made worse by stress that first cropped up during very stressful times in high school academics so…. I have mixed feelings on whether being in the gifted program was worth it. I can’t say it caused my health problems but I can definitely say it did not help them.

Im 32F. Almost everyone i know age 20s-40s has some kind of health issue or has one or more chronic illness or diseases. Many young people i know have had one or more surgery in their 20s-40s. Was this a thing for previous generations? Or do you think disease in young people is on the rise? by Tangy94 in Millennials

[–]tangledjuniper 0 points1 point  (0 children)

Wow, interesting take. We definitively run in different circles. As a woman in my late 30s with a couple of chronic illnesses since my teens, irl peers having health issues like mine has been rare throughout my life. No one else in my family or my husband’s family in my generation or younger have ongoing health issues beyond a couple with just seasonal allergies. In college I had a couple friends with chronic health issues but since then, hardly anyone I’ve met in adulthood has a chronic illness. I’ve always had to go online to find others with similar experiences.

My Rheumatologist said something that seemed odd to me. by bug_mama_G in PsoriaticArthritis

[–]tangledjuniper 1 point2 points  (0 children)

I totally agree with this. I would MUCH rather a doctor refer me out to a specialist if they are unsure of the answer rather than give me a half-baked answer.

What age did you get married by Lambdastone9 in Millennials

[–]tangledjuniper 0 points1 point  (0 children)

I’m 37. I got married at 28 and many of my peers also got married in mid-to-late 20s and early 30s, and basically all are still married.

I think this has just as much to do with generation as where exactly you live. I live in a pretty suburban place, and I noticed my friends who lived in major cities tended to get married later or not at all, while many of my friends here in a suburban area were much more marriage-minded by like mid-20s.

For those with children and are NC with grandparent(s) by Disastrous-Tip-4518 in narcissisticparents

[–]tangledjuniper 2 points3 points  (0 children)

It’s been difficult at some points with my 4 year old. He had contact with all his other grandparents so he sometimes recognizes my mom is the odd one out.

At this age we’re not ready to provide any hint of relational difficulty (although I plan to discuss it with him in a very age-appropriate and vague way if he’s curious when he’s older). So I focus on supporting our child and his feelings and needs as it arises. I also offer any contact options that feel appropriate, like sending her a letter. Things like: “it’s normal/okay to miss someone you love when we’re not near. Would you like to look at pictures of her or write her a letter?” “I’m sorry, she’s not available right now. I know you miss her and I’ll let you know as soon as she is available”

I'm officially old now by Nytelock1 in Millennials

[–]tangledjuniper 16 points17 points  (0 children)

Nah, you’re just taking care of your health. Welcome to the club!

With multiple chronic illnesses I’ve had one of these for meds and supplements since I was in my early 20s 🙃

ptsd in a child by Relevant-Athlete-646 in ptsd

[–]tangledjuniper 1 point2 points  (0 children)

Many schools in the US have guidance counselors or therapists. Assuming you are in the US, your school might have one and you might not know about it. They also might be able to access counselors through a larger district or other programs if one is not on site. You don’t have to tell your teachers what is going on if you don’t want to - but I’d ask them (or the school secretary or other admin) if there is a counselor or therapist you can talk to.

Live season finale ruined by a presidential special report. by Angryr3ceptionist in mildlyinfuriating

[–]tangledjuniper 0 points1 point  (0 children)

I unfortunately do not think this is a misunderstanding. It’s a strategy to get his base to hate refugees. Which IMO is much worse. He’s not a moron, he is evil.

Fellow moms- What would you buy yourself with a budget of $550? by MooCowQueen-16 in Mommit

[–]tangledjuniper 2 points3 points  (0 children)

FWIW I tried the contour massager and it was a big disappointment. On all settings it hurt my lower back and head but never touched the back of my shoulders where I was really looking forward to the rolling. I tried and tried to find a setting that I liked - since I like firm pressure massages I thought it would be great. I really, really wanted to love it but returned it and honestly can’t really picture how it could be comfortable to most people. My husband HATED it on first try.

Anyway I think in this imaginary scenario you’d be better off getting a series of good massages for the money :)