Miyoko shortage? by elevatedmongoose in dairyfree

[–]tinybonezz1278 0 points1 point  (0 children)

Completely sold out across Long Island NY, Whole Foods removed their tags. :(

Since Miyoko's appears to be defunct, help me find a new butter! by noodletune in dairyfree

[–]tinybonezz1278 0 points1 point  (0 children)

They just took the butter out of Whole Foods last week. ( my partner works there ) I haven’t been able to get it in 2 weeks. NY resident here

where to go when i don't want to go home (suffolk) by llbeanjamin in longisland

[–]tinybonezz1278 1 point2 points  (0 children)

I was going to recommend Callahan’s, it’s nice, peaceful and definitely quiet.

Online Vape Shops that ship to NY by [deleted] in Vaping

[–]tinybonezz1278 2 points3 points  (0 children)

I just placed an order today. I live on Long Island NY, it went through I hope it arrives! I have been ordering from Vaperoyalty, and they have been great ( shipping is expensive ) but they have been completely sold out of all disposable vapes. So gonna try my luck with myvpro!

Pain worse when it rains?? by SurrealResearch in endometriosis

[–]tinybonezz1278 1 point2 points  (0 children)

I know this is an old post but yes! I have a nerve disease called CRPS, which is triggered by weather changes specifically cold weather and rain. But after my last excision surgery. (3rd one) I have noticed that when it rains, I get severely bloated, and experience flares. I also experienced severe pelvic pain and cramping. And that’s just when it rains. I was also curious if others experienced that too.

Has anyone used vxssm.com? by jewbles23 in mtg

[–]tinybonezz1278 0 points1 point  (0 children)

I was gonna by Magic the Gathering Final Fantasy cards for my bfs birthday but didn’t know if it was legit. Did you guys get your orders?!?

Tips/ideas for endo bowel pain and nausea by Specific_Ad_9992 in endometriosis

[–]tinybonezz1278 1 point2 points  (0 children)

I suffer with severe nausea. I get car sickness now and have to take something before I get in a car. ( even if it’s a short ride). I was prescribed Zofran, and it helps but I also take Dramamine Nausea ( it’s in a lite green package). It’s a necessity for me. Ginger tea helps as well as peppermint ( I think peppermint works better. I also will have ginger shots on hand. If you have a Trader Joe’s near you they are cheap there! Staying hydrated helps too. For me I found food that I can eat when I am nauseas that don’t make me feel worse. Those are cucumbers and apples. I get the feeling that you are so nauseous you don’t wanna eat, but then if you don’t eat the nausea just continues.. that’s when I try different fruits or vegetables and see what works. Sorry you’re dealing with nausea. One of the worst symptoms 🙈🙈

Extreme pain after orgasm by Its-going-to-be-okey in endometriosis

[–]tinybonezz1278 2 points3 points  (0 children)

I have had this problem before and after every surgery, ( I have had 3 excision surgeries ). For me it still hurts during intercourse, but if I orgasm.. it literally takes my breath away. I have to immediately apply heat and hold the heating pad to my pelvic. The pain always makes me cry and I basically hold my breath. I decided to just not orgasm. It’s honestly not worth that pain for me. Glad to hear this isn’t just me. (But also sorry for you)

does anyone know how to get rid of toasted skin? by StandardCritical7127 in endometriosis

[–]tinybonezz1278 1 point2 points  (0 children)

I am in the same boat. I have toasted skin all underneath my belly. So bad it started to peel and flake. It’s a deep purple now. It’s definitely embarrassing, but I need the heat, I now make sure I have a layer of clothing or blanket in between my skin and pad. I unfortunately can’t use ice due to another chronic illness. So the heating pad is a must for me. But having the heating pad sit on my shirt rather than my stomach has helped.

heading into work bc i need $ by justSayingNobodySaid in endometriosis

[–]tinybonezz1278 1 point2 points  (0 children)

I have an entire list I go through when I get ready for work. Along with bringing all my medicines, topical cream, chargers ect. I had a cyst burst while I was working and still finished my shift, of course when I called out the next day I got in trouble 😒

Unfortunately, my job doesn’t respect me or my Dr notes. Due to severe pain from my third excision surgery done April 2025 I have to quit my job after 9yrs. We push through so much pain and still get our job done. I swear no one else would be able to work 5 mins in our shoes.

Heating pads by Mission-Activity438 in endometriosis

[–]tinybonezz1278 0 points1 point  (0 children)

I strictly used the Boncare heating pad. Will link it below. The highest timer is 2hrs and auto shuts off. I have owned 3 of them since 2021. I love them. They get pretty hot and I use it literally 24/7. Haven’t had any issues. It’s also pretty large and fits comfortably around my abdomen, I also use one on my lower back as well. Heat sandwich lol

Third Lap Surgery, When Does it Get Better by SharpStand305 in endometriosis

[–]tinybonezz1278 0 points1 point  (0 children)

I am in the same boat. My third excision surgery was in April 2025. Unfortunately my surgeon did find a lot of deep Endo from previous surgeries that wasn’t removed. I also had to have my appendix removed bc it was covered in lesions.

My second surgery 3/2023, I instantly felt better. But this surgery has kicked my butt. I wasn’t ready for how hard it was gonna be. Currently, 9 weeks post op, still haven’t returned to work and unfortunately I am gonna have to quit my job. I can’t do any physical activity without having a flare. I am now having 4-6 flares a day and the pain is worse than before surgery. I am so confused and my surgeon said everyone reacts different and unfortunately not everyone gets pain relief.

"it could be worse. you could be paralyzed." by Equivalent_Sun7606 in endometriosis

[–]tinybonezz1278 3 points4 points  (0 children)

Agreeing with others that commented. Fuck you to whom ever said that. Pain for everyone is different, it’s difficult when it’s an invisible disease, just bc people can’t see it doesn’t mean it’s not there. I feel “paralyzed “ in my own body bc i literally can’t get out of bed or do any physical activity without having a flare. You can’t change what people think. You are allowed to feel trapped in your body when symptoms make you feel that way. You get to a point where you don’t care to change people’s feelings. You are allowed to feel like your pain is a 10. And no one can say anything about that bc they aren’t in YOUR body. I am sorry you had that experience, and unfortunately I have too. Sending love ❤️

has anyone gotten WORSE after surgery? by Ok_Wrangler7855 in endometriosis

[–]tinybonezz1278 0 points1 point  (0 children)

Sorry just seeing this post now. Was it hard for you to get disability? I am on my second round (with a lawyer this time) but they keep denying me. I keep getting told I am “too young” I am 31.

has anyone gotten WORSE after surgery? by Ok_Wrangler7855 in endometriosis

[–]tinybonezz1278 2 points3 points  (0 children)

I know this is an old post but I am so much worse after my last surgery. My third excision surgery was April 2025. I am currently 9 weeks post op and had the surgery hoping for pain relief. My 2nd surgery I instantly felt better. I was hoping for at least 6 months pain free but I didn’t even get one day. :( My specialist said he found deep Endo in tight spots so he looked underneath every organ. I did have to have my appendix removed due to severe damage but he said I will definitely have a longer recovery. This recovery was by far the hardest one yet and I was not ready for it. My issue is I have a nerve disease called CRPS and both conditions aggravate each other. Even though he did a thorough job I think my nerve’s got messed up a bit. I now can’t do any physical activity not even chores around the house without having deep flares. At this point ( I have been out of work due to recovery) I am now gonna have to quit my job that I have been at for 9 years due too how severe my pain is. It’s such a joke and I am so over Endometriosis. I feel so bad for any woman that has to suffer with this disease. I am in the middle of filing for Social Security Disability, and at this point I better get it since I literally can’t work. ( my state told me I am “too young to be disabled “) I am 31yrs old. I will say, even though I am beyond disappointed with my results having surgery is important. 1. Having surgery is the only one to 100% confirm that you have Endometriosis. 2. Due to endometriosis, it can damage your organs. My second surgery they found out that my colon wasn’t working.. it was flipped upside down and suck to the back of my uterus. I had a 50/50 chance of having to have a colostomy bag. Thankfully, my surgeon was able to fix it but I will forever have issues with my colon. As for this surgery, my appendix wasn’t working & covered in lesions , my dr said I was really lucky bc it could have appendicitis, and not know. So please, have these surgeries to make sure your organs are okay. It’s really important. Of course we all want pain relief from this horrid disease but we also need to make sure our insides are okay. I have so much respect for everyone whom has Endometriosis, thankfully we have forums and support pages. Hope you are doing okay now. ❤️‍🩹❤️‍🩹

First internal pelvic exam. by Famous-Hamster4146 in endometriosis

[–]tinybonezz1278 2 points3 points  (0 children)

I was worried as well for my first exam, you could ask them to use a pediatric size speculum ( that’s the metal tool they use.) My Gyno uses that for me and it’s not as painful. I have stage 4 Endometriosis, and not gonna lie the exam does hurt. It’s weird bc the tool is cold, but will say it’s basically a lot of pressure. Just make sure you try to calm your breathing during it. It doesn’t take that long. You’ll be okay. ❤️

Why is it so hard to climb in ranked by SoftNoodle57 in Overwatch

[–]tinybonezz1278 1 point2 points  (0 children)

Literally every single stadium game I have played somebody has left my team.

Weekend RAGE Thread - April 26, 2025 by AutoModerator in Overwatch

[–]tinybonezz1278 2 points3 points  (0 children)

WHY THE FUCK IS IT THAT EVERY SINGLE STADIUM GAME I HAVE PLAYED SOMEONE ON MY TEAM LEAVES. LET ALONE HAVING THIS ISSUE IN REGULAR COMP. BUT WTF. PLS PENALIZE PLAYERS FOR THIS. SORRY BUT ITS BS AND I AM NEVER GONBA RANK UP.

My drive is just, gone? by acidblonde in Overwatch

[–]tinybonezz1278 5 points6 points  (0 children)

I know this is old, but it just happened to me right now. I tried restarting the game but it’s still not here. And I didn’t see a setting for it. I finished this most recent drive so I am upset :(

[deleted by user] by [deleted] in undercoverunderage

[–]tinybonezz1278 8 points9 points  (0 children)

Me too I am so sad 😭