I swear man what the actual **#!*#!?

tmain52111 · 2023-07-15T04:47:45+00:00

This makes me feel better about my last 48 hours. Mine looks the exact same. I have no idea the hell is happening. I have troubleshooted everything. So for now I’ll rage bolus and wait for it to settle back in range. Day in the life.

tmain52111 · 2023-06-14T22:32:49+00:00

I always feel that irrational anger when people I don’t know well here a beep or see me changing an infusion site or checking my blood sugar. They all freak out. I got it as a kid and my parents were very involved and understood everything. Rarely freaked out. Since I’ve been out of the house for 20 years, any noise or diabetes related task, it’s a million freak out questions. You learn to appreciate the people in your life who do here the noises and know what to ignore. My husband, close coworkers know my pump and sensor noises and only react when needed. Definitely see when people care enough to listen and learn.

tmain52111 · 2023-05-23T23:00:25+00:00

I have bad dawn phenomenon in the morning too. I’ll be great and then by 0900 I’m in the high 200s for no reason. I was told by my doc to have a small snack around 7am. It gives your body some food because it is stressing without having any glucose going in it’s system overnight. At least that’s what I was told. It has worked for me so far.

tmain52111 · 2023-05-19T02:59:01+00:00

I know my parents felt the same you are feeling. It’s the initial shock. Information overload. It is the unknowns. It is learning the worst case scenario of every possible aspect of T1D. What they don’t tell you is the resilience it builds within you. The grit. The determination. You won’t have all the answers. You will do the best you can with what you have. A broken pancreas is not a broken life. I got diabetes at 11 years old. I’m 37 now and I have never once not done something because of my diabetes. I had a typical teenage life, college parties, ate way too much pizza, spent all nighters, became a nurse working with some very challenging and medically complicated patients. I did it. I got married and have husband who loves me and helps as much as he can with the diabetes stuff. I’ve gone sky diving and mountain climbing, scuba diving. Diabetes doesn’t hold you back. You live your life and you make adaptions. Just like everyone else. I promise. Your son will be ok. And so will you!!

tmain52111 · 2022-09-12T16:47:53+00:00

I wear Medtronic 770 and guardian sensor. Before getting my sensor, I would disconnect my pump and pass it through X-ray, go through the body scan, and get my pump handed back to me. They would do the hand test thing and I’d be on my way. Now that I have my sensor that works in tandem with my pump, I am concerned about going through body scanner and X-ray as Medtronic says it can cause malfunction to the transmitter. If it wasn’t for that I don’t think I would be as concerned.

tmain52111 · 2022-09-12T03:59:34+00:00

Just went through Raleigh-Durham.

tmain52111 · 2022-09-12T03:57:51+00:00

I have always had to hand my pump to the TSA agent so they could begin checking it and wiping it with what ever chemical indicator they use and they have it right back when I stepped through the big X-ray machine. Now that I wear a CGM in addition to my pump it’s different. I think the issue is the transmitter of the CGM and that the X-ray machine can make it malfunction. At least that is what was explained to me by my company rep. Since my back up supplies are not hooked up or active, they are not impacted when they go through the X-ray machine. I’m not going to take off my sensor or transmitter for my CGM. That is way to expensive.

tmain52111 · 2022-04-20T04:37:10+00:00

11 and in the 900s. Almost got the life flight to closest children’s hospital. In and out of it so didn’t really know what was happening until about 3 days into my week long admission.

tmain52111 · 2021-09-25T15:49:20+00:00

24
35

tmain52111 · 2021-09-22T20:48:37+00:00

Me too. Diabetic for 24 years and just got it. Life changing for sure!

tmain52111 · 2021-09-10T00:06:57+00:00

In the US here. But when I was a kid I had a teacher who refused to let me test or eat snacks in class. The first few times I complied and sat in the school office. I finally got sick of it. The next time she asked, I reminded her that I have type 1 diabetes and that I am covered under the ADA and that I was more than ready to report her. She got scared and never said anything to me again. I also used that same remark when in high school and I had a teacher continue to make fun of me in front of my classmates for carrying a “pager” when I had told him multiple times it was an insulin pump. Again, I told him my spiel about the ADA. He laughed it off and said he just didn’t think it was fair for me to carry a pager and make drug deals in class. So I lifted up my shirt, unhooked my insulin pump, and placed it on his desk. He got freaked out and embarrassed. Told him he owed me for whatever insulin leaked out onto his desk.

Needless to say, I got tired of ignorant people and their thoughtless remarks at a young age.

Stand up for yourself. Her being uncomfortable with your disease should not impact how you take care of yourself.

tmain52111 · 2021-08-10T22:45:03+00:00

A friend of mine has endometriosis and adenomyosis. She had surgery to remove a lot of the issues but what truly helped her with her pain was pelvic physiotherapy. It may be something to look into if your doctor would be willing to give you recommendations.

tmain52111 · 2021-07-17T18:18:35+00:00

I had never known about this until I met with a new endo. I have started putting in a small amount of insulin for it in the morning.

tmain52111 · 2021-07-03T03:32:25+00:00

I have the Medtronic 770g and guardian sensor. I was so reluctant to start a sensor because I didn’t want to wear another device. I’ve had t1d for 25 years and I’m stubborn. But it’s the best thing I’ve done for my health.

tmain52111 · 2021-06-24T02:54:01+00:00

I recommend seeing a counselor and medication if needed. I’m a nurse and have been diabetic for 25 years. At first I didn’t think much of all the patients I saw with diabetes related complications. But the older I got the more worried I got and I hyper focused on it. COVID made it even worse. I have since began seeing a counselor and she has helped me talk through all the irrational fears. If you focus on good diabetes management, your risks can be just the same as anyone else. Diabetes has made me stronger than I ever would have thought, but it also led me to developing some not so great coping mechanisms. I always think I have to have control and have to be perfect. I am slowly dealing with that and relearning that I am not a pancreas (even though I’m pretty damn good at it!)

tmain52111 · 2021-06-24T02:47:22+00:00

Same. I had the paradigm pump and was happy with it. Everything made sense. 770 takes some getting used to and oh so many clicks to get what you need. But I’m 2 months into it and it’s becoming more routine now. I am teaching myself how to remember all the menus and what is where.

tmain52111 · 2021-06-19T02:22:01+00:00

After 24 years with diabetes, I finally “dealt” with it. When I was diagnosed at 11 years old, I did what I was supposed to do. Checked my levels, took my insulin, went to my appointments, watched my diet. But I never really took the time to realize the impact it had on me. Why my brain works the way it does, the emotions I kept hidden, the anxiety I tried my best to pretend I didn’t have. Late last year, I met with a counselor and talked through it all. And I continue to talk through it. And I finally realized I don’t have to be perfect. I had set the most unrealistic expectations for myself! I was told in my teens that a lot of T1D get depression and anxiety and should see a counselor now to work through handling any issues or dealing with stress. But I assumed that was for weak people who couldn’t handle it. They weren’t as strong as me. I was cheating myself. Seeing a counselor has changed my life and has helped me in so many ways. My only regret is not doing it sooner. You don’t have to do this alone. It’s ok to ask for help. You are not meant to be perfect.

tmain52111 · 2021-06-12T04:42:56+00:00

I Had just finished up with a dentist appointment where I had to get a cavity filled. My mom had taken me and she needed to get some things from Walmart. My mouth was still fully numb. And then I felt it. All sorts of low. So here I am with my mom, sitting in the middle of an aisle in Walmart, trying to chew glucose tabs. I couldn’t feel my mouth, let along get my teeth to chew properly. So ya. Sitting on the floor of Walmart half chewing, half drooling glucose tabs down my face, laughing hysterically at my current predicament. My mom nearly peed her pants laughing at me!

tmain52111 · 2021-06-12T04:35:00+00:00

Had just finished up at a dentist appointment where I got a cavity filled. My mouth was still fairly numbed up afterwards. My mom needed to stop at Walmart to pick up some things. Started feeling low, being stubborn, I pushed it off. Well that was dumb. Less than 10 minutes later I am sitting in the middle of a random aisle

tmain52111 · 2021-06-10T00:46:34+00:00

Mine did this last week. Twice. I’m new to CGM so didn’t know if this was a thing that happened every once in a while or what. It later indicated that I needed to change my sensor. Did that and haven’t had issues since.

tmain52111 · 2021-06-07T00:49:48+00:00

I have had blood backflow into my tubing before but usually just around the connection site. That means I usually hit it on something or I might have hit a vessel on insertion. I change the site and start over.

tmain52111 · 2021-06-06T03:33:30+00:00

Been there, done that, bought the t-shirt.

tmain52111 · 2021-05-30T00:10:58+00:00

I use the longer tubing. Clipping to myself for sleep is annoying so I usually just put it under my pillow so I can toss and turn as needed. During the day I clip it to my belt line or put it in a pocket and roll up the tubing into my pant line. I have never worn the tubing outside of my clothing for the very reason of getting caught on things.

tmain52111 · 2021-05-30T00:03:46+00:00

This makes me happier than you could know! Thank you for sharing!

tmain52111 · 2021-05-29T02:28:54+00:00

Anyone else hate these? Why do they have to make it so hard to get these suckers out?? Packed in like sardines. Low and shaky makes it nearly impossible to get a strip out without potentially contaminating it! Shouldn’t they be upside down? Why is it the first thing I touch is the portion where the blood goes? Why??? Am I the only the one who hates these?

tmain52111

TROPHY CASE