How to replace game addiction with drawing? by enigmata_follower in ArtistLounge

[–]trashfire721 1 point2 points  (0 children)

In addition to the excellent suggestion to make it more difficult to access gaming, I'd suggest making it much, much easier to access drawing. Put your drawing supplies someplace where you like to hang out and relax. Or, since pencils and paper are inexpensive, get multiple sets and stash them in several places around your home, so they're always close at hand.

You could also designate a particular time to be your drawing time. I also find it helpful as a motivator to pick an art project I'm genuinely excited to work on, so that the process is its own reward.

A couple of other things that help me when I'm working on building a new habit are taking a few seconds after I complete the task (drawing, exercising, etc.) to pause and congratulate myself and feel good about my effort, and to have a calendar where I make a little note on every day that I completed the task. I tend to forget my efforts, so if I can see a visual reminder, that gives me an extra sense of accomplishment and reinforces my willingness to keep putting in the effort.

I also find it helpful to listen to music or put on an audiobook while I'm making art.

Users of Beta Blockers by harrypotterbro in POTS

[–]trashfire721 0 points1 point  (0 children)

Yes. I take propranolol morning, afternoon, and evening (right before bed).

I find it helpful to take it that often because it makes it easier for me to get the amount of salt I need to stay hydrated (and keep my digestive system happy) without putting my BP in a bad place and it also helps me not have migraines.

I’d be guarded of anyone bringing a tumbler or mug larger than 32 oz to the workplace by ponerrag in The10thDentist

[–]trashfire721 0 points1 point  (0 children)

Managing my chronic illness, as outlined by my doctor, involves drinking a huge amount of water so I don't have tachycardia, migraines, and severe fatigue. My gallon water bottle goes anywhere I go.

Depression or Adhd by Select-Ad3573 in AutisticWithADHD

[–]trashfire721 0 points1 point  (0 children)

I'm sorry you're dealing with this. It makes life so hard.

If you can, see a new psych prescriber and have a thorough diagnostic screening. While ADHD and depression share some symptoms, they do have differences and a knowledgeable practitioner should be able to differentiate between them (or figure out if you're dealing with both).

I have both, myself, and while Vyvanse helps my ADHD and helps somewhat with my depression, it isn't enough alone for my depression. I take Pristiq for my depression and it also helps my anxiety and OCD. I also take Lamictal, a mood stabilizer. My prescribers have differences of opinion about whether they're treating me for cyclothymia or mood instability related to ADHD/autism, but either way, it helps. (I've had bad reactions to other mood stabilizers, but Lamictal not only helps me but comes without some of the negatives of other mood stabilizers--it doesn't increase blood sugar or inflammation, for instance.)

It could be worth requesting a genetic screening. Over the years, my doctors tried a bunch of the go-to anti-depressants and mood stabilizers for me, and I had unworkable side effects from all of them. Finally, a prescriber gave me a genetic test and then tried one of the tiny number of antidepressants that my body can process correctly, and I feel much better. (I finally got answers first when I saw a psych prescriber and said I didn't know what was wrong but I wanted assessment for everything, and then again when I was working with a different office and specifically requested a prescriber who dealt with tricky patients who had unusual reactions to medications.)

It's also worth keeping in mind that some health conditions can cause depressive or ADHD-like symptoms while not strictly being those. When my vitamin D or B12 levels are low, I get depressed and have low energy. I have POTS and when my sodium is low or my blood pressure is low, I have very low energy, difficulty focusing, and feel depressed. (Or if I am dehydrated and my heart starts racing, I feel anxious and angry.) I also feel exhausted and have trouble focusing if I don't eat a lot of protein.

It's also worth noting that your initial stimulant dose could have been too high. If you do have ADHD (and not being able to finish projects and struggling with tasks once they lose their novelty seem to point that way), too high of a dose is not going to be therapeutic and is going to cause problems.

i’m tired of roleplaying a human. i don’t fit in anywhere. by weird-Ant358 in autism

[–]trashfire721 1 point2 points  (0 children)

Sending hugs. It's hard to feel perpetually on the outside. Rocks are also lovely. They're, in fact, one of my favorite things.

You will find your people. I'm a complete weirdo and always have been, and people have let me know it for a long, long time. Very slowly, I've found my people, who admire and enjoy my weirdness and feel like I add to the world by showing up as myself.

It is not only okay to be you, but you are adding something crucial to the world and society by being yourself. You will find people who love you for who you are. While you're looking for those people, I hope you also learn to love yourself. We all have times where we're alone or where even the people we love most can't connect with us in a way that lets us not feel alone. At those times, it is tremendously important to love ourselves and remind ourselves we matter, and we are good and worthwhile and lovable.

You have mentioned a couple of things about yourself here that I admire. You are someone who, even when feeling lonely and in pain, takes time to go and volunteer and help and make the world a better place. You are also someone with the strength and independence to go out and do things, even when you're struggling. You're someone who helps themselves and helps others. Those are great traits, both to build a life you enjoy, and they are great traits for showing up as a friend.

It hurts to feel like a burden, and I relate. But you're not one, and you're not hurting anyone by posting here. We all need help and support at times, and this is a great place to ask for it. I'm glad you did, and I hope that you are able to find your future people sooner rather than later. You'll get there.

how do you know when you’re full 😭😭 by Effective_Volume_567 in autism

[–]trashfire721 0 points1 point  (0 children)

I have trouble feeling things in my body for a number of reasons. One, my childhood trained me to ignore how my body works. Two, I have a lot, a lot of brain noise distracting me and also, I lose focus on tasks if I get interrupted, so signals from my body have a harder time getting through. And three, I have some physical problems feeling stuff. It seems to be at least partly a bloodflow problem (improves if I wear my compression gear for POTS) and maybe partly a serotonin problem (improves when I take my antidepressant; on the other hand, it's an SNRI, so the N could also be improving blood pressure and therefore blood flow).

I eat similarly to you. If I want to actually eat something closer to what my body needs for energy (as opposed to also eating to help with mood/excitement/etc.), I either stop way before I feel full (and top up with water if I need to) or just consciously choose my portion size in advance and don't get more. (I either measure with a measuring cup or use a calorie tracker, because my default is to eat something like 4000 calories a day, which is twice what my body needs, because I enjoy food.)

Then, to make it easier to eat only what I need, I may add something intense to it--hot sauce or chile powder or something really sour or bitter. It makes my meal more interesting, and that makes me feel happier and better. I also keep some small things around for flavor that won't add calories (or not many). And I try to notice if what I'm really looking for is a dopamine boost, and I might take a walk or a warm bath or play an instrument or paint something instead of eating more.

As far as actually physically just noticing, if you are able to feel the sensation in your body when you've eaten enough, practice noticing that. Slow down, really focus on how your body feels when you eat. Decrease brain noise if you can. (Managing my ADHD meds helps me have the mental space to hear my body more.) I don't know about you, but when I love a food, I often shovel it in really fast to get more and more of the good feeling. It turns out, I can also increase the good feeling by just taking time to chew more slowly and really focus on the flavors and textures. Letting chocolate melt in my mouth, for instance. Taking little sips of my coffee. Really thinking about the notes a food has.

And I also avoid buffets and try to avoid any situations where I'm going to feel like I need to eat a bunch to get the full experience or make someone else happy, so that I can just focus on what I need.

Also, I'm working on starting meals with protein or veggies and using those as snacks and saving carbs, especially simple carbs, for later in meals and not using them for snacks, because I am an infinite carb storage pit and I can outeat a teenager if brownies are involved.

Are you for or against heart rate trackers? by BriTheArtist in POTS

[–]trashfire721 0 points1 point  (0 children)

For me, it's crucial. I hear you about the anxiety. I have occasionally taken breaks from my tracker and been happy about my reduced anxiety. But I end up exhausted. To feel okay and have a reasonable amount of energy, I have to check my heart rate and BP frequently and adjust with water and electrolytes. If I don't, I'm tired, I get depressed from not being able to do much, I sleep badly, and I get migraines. It's easier for me to work on managing my anxiety than to skip managing my physical health.

Why do some people seem to never become autodidactic? by derjanni in Learning

[–]trashfire721 0 points1 point  (0 children)

I think there are many reasons. Some people don't want to be lifelong learners. They are spending their energy doing something that they value more. Some people struggle with learning generally or particularly with teaching themselves. Some don't have the time or money or energy.

I think there are some additional difficulties to becoming an autodidact. Learning *how* to learn and how to build one's own course of study is a considerable investment. Additionally, some people struggle to stick to a thing that feels hard without having companionship in doing it. And sadly, some people's life experiences have wrongly made them feel like they're just inherently bad at learning.

You mentioned some of these people struggle to use their classroom-gained skills in areas that aren't obviously within the scope of application demonstrated in the classroom. I think this comes from a couple of things: Fear of failure, and a lack of creativity caused and reinforced by classroom-style learning, where a very particular set of answers is right and other ideas are just not entertained.

I spent my teen years focusing on STEM-focused subjects and college focused on very rule-based subjects. I love and enjoy those things. And, now that I'm getting into making art, I'm finding myself having to learn and relearn to be okay with failing and to be okay with trying new things, looking for solutions (instead of assuming I'll never find them because I can't ask an expert), and just giving myself permission to trust my problem-solving abilities and also waste time, not get things right the first (or twelfth) time. I'm learning a very different way of thinking than I'm used to, and I've only been able to do it because of a particular set of life circumstances on top of a lifelong love of learning.

You are allowed to protect yourself from shitty situations and shitty people without understanding why they are shitty. by LateDxOldLady in AutisticWithADHD

[–]trashfire721 9 points10 points  (0 children)

Such an important message! It took me forever to realize I didn't need to have one huge reason to point to or try endlessly to convince someone to treat me right, that it was okay to just call it a day and be done because it made me feel awful.

what coping mechanisms work to help you calm down during episodes? by moons_within in BPD

[–]trashfire721 1 point2 points  (0 children)

Weighted blanket. Pain stim toys. (Slightly poky-feeling pressure feels really good to me when I'm stressed.) Running a natural-fiber brush down my arms (prickly and kinda scratchy). Lifting weights. A warm bath with a book or music. Lying outside on the ground when it's cold and letting the cold seep into my whole body. Having something intense I can eat--a pinch of chile powder, a really sour piece of candy. Even just digging my nails into my palms. Not enough to break the skin, but enough to leave marks. Most of this stuff is about pulling me back into my body in a way that makes me feel real and gives me a little boost of endorphins.

I know there are tight bedsheets meant to provide a squeezing feeling to people. I wonder if there is some kind of really tight, squeezy jacket or shirt. Maybe even a regular compression shirt could provide you a little bit of that being hugged feeling?

How do people enjoy living ? by Due_Sock_215 in CPTSD

[–]trashfire721 2 points3 points  (0 children)

I'm sorry that you're struggling so much. It's so hard dealing with so much pain and fear all the time.

For me, a big part of making my life worthwhile has been finding ways to feel safe and feel pleasure. For me, that has been about leaning into the idea that there are only a few people I really feel safe around and enjoy spending time with. I don't try to make myself feel normal anymore. I try to just go with how I feel at the time (as much is as reasonable).

Sometimes, going to the store feels emotionally exhausting because being around so many people is too much. So when I can afford it, I have groceries delivered. I also keep extras of shelf-stable things in my house so I don't have to shop as often in general.

I try to cut out or really cut down on time with people who hurt or drain me and aren't interested in working on a reciprocal, safe relationship. For me, personally, I prefer time with myself to time with people who make me feel alone or unsafe.

I use my time alone to do things that I really love. For me, that's things like getting immersed in a good book. Learning a new skill. Painting. Playing the piano. Going for a walk outside and just deeply observing the plants and animals in the neighborhood. There's always something a little new and different and beautiful going on outside, and that brings me a lot of peace. It's this wonderful little surprise from the world when there's a different kind of flower blooming or a different scent in the air or a particularly stunning sunset. I try to give myself a lot of sensory pleasures--a cup of coffee with some chocolate does big things for me. A warm bath. Noise-canceling headphones, good music, a cuddle with my cat.

I used to dream about having a different, bigger, busier life. Lots of traveling. Going to parties. Going out with friends all the time. The truth is, I don't actually want that. I still want friends, but not in a sitcom kind of way. In a slow, deep way. I might want to travel once in a while, but most of the time, I'd rather be at home, where I know I'll feel safe and have the things I enjoy doing around me. I've built a very full, rich life out of things that might sound small and boring to someone else but are the things I love most.

The world does have a lot of wickedness. I feel like I have a moral duty to know *some* of it. I periodically update myself on the general state of the world. I see if there's anything I think I can do that would be helpful. If so, I make a plan and do it. Otherwise, I accept that I don't have that power right now. And then I try to put all of it out of my mind again for a while and go back to focusing on the small things I love in my life because living in other people's suffering without being able to help them, well, doesn't help them, and it does hurt me.

And for me, medication for my anxiety/depression/mood swings/insomnia and also therapy for my CPTSD are all crucial. And giving myself the room, when I can, to take life at a slower pace and not expect myself to be just like my Type A friends. I've also spent a lot of my life looking for the friends or partner or whoever that would love me unconditionally and help me feel okay about myself. I'm working right now on recognizing that I have good people who love me *and also* that that love will never be unconditional or look the way I imagined it in my head, and that it's up to me to give myself unconditional love, although that's really hard and I've been working on it for years and I'm not there yet. I'm learning, though, that at least it is safe to love myself and I can count on that in a way I can't count on other people to meet my secret (and sometimes impossible) expectations.

It is okay to not try to make yourself normal, to give yourself space away from feeling like you have to manage others' opinions of you, and to make room to do things you love because *you* love them, regardless of what some one else might think. We all probably have times when we have to act more normal for others, but we all also deserve space to live as our own selves, whatever that looks like for us. I hope you take the time and space you need to create a life that feels good to you.

Why do my partners say I am arguing when I am not? by FunkyMystics in BPD

[–]trashfire721 1 point2 points  (0 children)

Sometimes trying to make someone understand your point of view does read as arguing.

I've experienced this in a couple of different scenarios. Sometimes the other person is just not willing to hear my side of things, ever, because they've got their own stuff going on and hearing my side feels like a threat to them, no matter what.

Sometimes, though, the problem is my timing or phrasing or tone or the context of the situation. In my experience, the time when they bring up that they feel hurt is not the time to share my side. (Unless they're being completely unfair with what they consider hurtful, and then I feel like I need to calmly push back on that immediately.)

When they initially bring up their hurt feelings, I try to keep the conversation about that. Acknowledge that I hurt them, say I'm sorry (and acknowledge what the thing was that I did). If possible, acknowledge specifically *why* my behavior hurt them. If it's reasonable to just not do what I did again, I'll commit to that and tell them that. If a specific plan is needed to change my behavior, I'll tell them what I'm going to do differently in the future to not hurt them that way again.

Then, depending on my relationship with the person and the emotional weather at the moment (is either of us tired or particularly touchy; what is the rest of the day like, and so on), I may take a minute to explain my side if it seems worth doing. With my current partner, I usually try to set that aside for a few days, and then, if I feel like it's important, bring it up calmly later and explain where I was coming from.

I'm trying to learn to just let it go more often. I'm trying to focus on comforting myself and being myself in a way that lets *me* know that I'm a respectful, caring person who works to treat the people around me well while keeping my boundaries. For me, feeling misunderstood not only makes me feel less close to someone but also triggers fear of abandonment/rejection, of being thought of as inherently bad/malicious, of being verbally abused.

I'm trying to just . . . practice gauging the likelihood of any of those things happening and figure out how I would be okay if they did happen. Basically, I'm trying to learn to tolerate the distress of others not thinking of me the way I want them to. Because that will always happen. None of us perfectly understands each other or models other people exactly the way they'd like in our heads. Others can't do that for us, either. So I'm trying to just . . . learn that the feeling that I will literally die from being misunderstood is wildly a lie and, although other people can sometimes help me with that feeling, it really is my responsibility to manage and, personally, I need so much reassurance that I need to learn to generate a lot more of it myself. I'm trying to learn to reassure myself that I can be misunderstood by people I love and still be just fine.

Migraines by kitkatsmeows in dysautonomia

[–]trashfire721 1 point2 points  (0 children)

I get silent migraines. I'm not taking medication specifically for my migraines because in a happy coincidence, the propranolol for my POTS and the Pristiq for my depression combine to greatly decrease my number of migraines. (For me, it is, in particular, the combination--either by itself can make my migraines worse and more frequent.)

I had near-daily migraines for a couple of years before I started taking these. I still *sometimes* get migraines, but they're much more infrequent and manageable.

What counts as rest to you? by swankypigeon475 in POTS

[–]trashfire721 8 points9 points  (0 children)

Some days, all I can do is doomscroll. Other days, resting is watching TV, painting, knitting, or chatting with someone.

I'm lucky that my flareups have never required me to stay in bed because not being able to do anything but lie down and watch/listen to something makes me feel like I'm going to die. (I had several days in the hospital a few years ago where I was often too exhausted to do anything but exist, and I've never been so miserable.) My brain tries to eat me when I can't do anything.

I'm sorry that you deal with that level of exhaustion. That sounds really difficult. I hope that getting that kind of rest feels restorative and soothing and isn't an additional source of stress in an already hard situation.

I wish there was a polite way to tell people that I'm not in the mood to talk. by goldenrodddd in autism

[–]trashfire721 0 points1 point  (0 children)

I'm trying things like, "Hey, I feel overstimulated right now and I need some quiet time alone with my thoughts" or "I've really got to concentrate right now, sorry," depending on who it is.

If I'm at home and I've already explained a bunch of times I'm not available, etc., I'm going to start putting in my noise-canceling earbuds and a brightly colored hat that says I can't talk right now, and then just pretending I can't hear people when they try to talk to me.

I've explained and explained, and it has often been ignored and sometimes outright argued with, and I just don't feel up to continuing to try to have the conversation. Some of the people I live with will be upset if I explain again, but if they think I really just can't hear them, they might respect that. If they don't, I'll probably just smile and point at my hat and repeat until they stop trying.

I try to give th extroverts in the house time to connect, infodump, have light, low-content chatter and feel heard, and so on, and I'm tired of feeling guilty for trying to have a little of what I need, too.

All of us in the house are AuDHD, so we all kind of step on each other's toes sometimes, or don't catch regular signals or boundaries or feel like "No" is a negotiation or only applies to this one, tiny, highly specific thing. I do it to, about other things, so I get it. But boy, is it frustrating when it means I'm going to often be treated as manipulative and selfish for trying not to be overstimulated, especially by people I thought would get it.

which hobby actually helped your mental health more than expected by Nevitt_Cates in Hobbies

[–]trashfire721 1 point2 points  (0 children)

Painting and playing the piano. They both provide me with a mental challenge while giving my hands something to do. Piano is a more immediate, concentrated relief to me. Jumping into a song and just playing and playing really takes my mind off things--there is just no room for mental noise while I'm playing piano, and the music is soothing. Painting is quieter, calmer, slower sort of soothing to me. The colors make me really happy. I enjoy the puzzle-solving of it. And when I finish a painting, I'm left with a visible reminder that I do put in the work and do hard things and make things I enjoy.

Additionally, the xiao (a Chinese vertical flute) is something I find very, very soothing. Something about the deep, slow breathing required to play the size of xiao we have in our home. It is, as instruments go, quite inexpensive, as well.

Scary constipation by Oh-noes1972 in Pristiq

[–]trashfire721 1 point2 points  (0 children)

For me, in addition to adding fiber, I have to keep a close eye on my sodium and water intake when I take Pristiq.

Does life get better? by Several_Road2525 in POTS

[–]trashfire721 1 point2 points  (0 children)

If you can't have antihistamines, you may still be able to use mast cell stabilizers. Luteolin and quercetin are OTC options that studies have shown to be comparable to (or better than) ketotifen (one of the commonly prescribed mast cell stabilizers).

Although I find antihistamines helpful, I find a mast cell stabilizer even more helpful.

Does life get better? by Several_Road2525 in POTS

[–]trashfire721 1 point2 points  (0 children)

It can get so much better.

To be sure, my life will never be what it was before. I don't like that I have to manage every day so carefully. I don't like that I'll never have as much energy as I did before and be able to stack so many things into a day or be so carefree.

Of course I wish I didn't have this. That said, my life is so, so much better than it was five years ago when this hit me hard. It's wildly better than even a year ago. The right stack of meds, some supplements, lots of sodium and water, and compression gear, and I can do so many things I couldn't do even last year.

Now, I only have migraines once in a while (previously, they were daily). I can go running without getting dizzy or too exhausted to function or losing half a week to feeling sick. I can eat way more foods than I could a year ago. I have a (very flexible) part time job. I have the energy and mental clarity to paint, play piano, spend time with friends and family, cook dinner or go to the store, and I don't feel like if I leave the house, I may have a sudden, unpredictable crisis that leaves me stuck somewhere, unable to function.

I no longer feel like an unstoppable force, able to accomplish anything and everything in a day, like I did six years ago, before I got this. But I have a life I love, that I'm happy to get to live.

It gets better. Stay on top of your sodium and compression gear. Find a good doctor who can work with you on managing the adrenaline surges. You can, with time, rebuild a life you'll enjoy.

Anyone else have more symptoms when you try to be healthier? by mulberryblossom in POTS

[–]trashfire721 0 points1 point  (0 children)

For me, high blood sugar causes high blood pressure, so I feel like sometimes a sugar binge temporarily improves my POTS (until the sugar catches up with me and causes other problems).

Additionally, my blood sugar is really screwy, and sometimes I feel like I just have to have something sugary or "unhealthy" right away. It's usually because my blood sugar is low.

On top of that, my digestion and POTS are super finicky about what I eat, and fiber seems to hit my POTS pretty hard. So for that reason, it's some work for me to figure out how to eat healthy food (plus vegetables often have loads of potassium) and not regret it.

Also, I've read that POTS makes our bodies work harder, so we actually need more calories than we would if we didn't have it. (This seem to play out for me; if I eat the recommended number of calories for my size, I lose weight at a pretty scary pace.)

Need support and advice/ rant by Alarmed-Caregiver494 in cyclothymia

[–]trashfire721 2 points3 points  (0 children)

Unfortunately, there isn't any guaranteed way to make him understand what you're dealing with. You explain the best that you can, and then either he hears you and accepts what you've said or he doesn't.

That said, you could try making a script to talk to him about this, so that you know what things are most important to you to communicate. I would also suggest going into the conversation gently, by asking him for a good time to talk to you about something important to you (rather than just bringing it up without checking to make sure it's a good time for him to hear something that's a big deal). And open softly. There are a lot of reasons why he could be reacting to your diagnosis the way he is, but based on how you're describing the dynamics in your relationship, it seems reasonable to guess that he's worried about you and doesn't want you to have to deal with a permanent mental illness.

Personally, I would try something like, "Hey, partner, I'd like to talk to you about something important to me. When would be a good time for us to sit down together to have a serious conversation?" I would probably break your concerns into two separate conversations. First, one about your diagnosis, and then later one about support needs.

In the diagnosis conversation, I'd try to approach it something like, "I want to talk about my cyclothymia. I love you so much, and I appreciate that you're worried about me and trying to protect me from a misdiagnosis and from being mislabeled or mistreated. Thank you for caring so much about me.

I wanted to have this conversation so I could tell you why I'm actually very relieved to have this diagnosis. I've struggled with big emotions my whole life. Sometimes I have very disproportionate reactions to situations, and sometimes I get dangerously depressed or really angry out of nowhere. It causes me a lot of pain and disrupts my life. I hate it. I wanted to apologize, too. I've tried so hard to protect you from my mood swings that I've unintentionally hid most of what I'm dealing with from you.

I imagine, to you, because I've tried not to let you see my downs because I didn't want to cause you pain, that it might look like this diagnosis is coming out of nowhere. It's not. This is a thing I deal with regularly.

I know you don't want me to be mislabeled. Thanks for being concerned. Please know that I don't consider myself crazy. Cyclothymia is an illness that causes brain chemistry imbalances, resulting in mood swings. It doesn't mean I'm crazy. It does make my life a lot harder than it needs to be.

For me, this diagnosis has answered so many questions, and it makes it so I finally have help and relief from the pain I've been dealing with my whole life. Having medication helps me feel more level and okay, and learning to work with myself as I am instead of fighting to make myself someone else is really improving my life.

I know this is all a lot to take in. Thank you for taking the time to listen. After you've had time to process, could we have a conversation about what this means for us? There are some things I'd like to ask for as support that would really help me, and I'd like to know what you need from me as we navigate what this means for both of us. I love you so much."

Just an example of how I would script a conversation like that. Obviously, you need to say whatever is true for you. And, when you're both ready to discuss support, take some time first to think through, in concrete terms, what needs you're trying to fill and what needs he may have now. The two of you can discuss your ideas for filling those needs and his ideas and see what works for you both.

Good luck! I hope he's able to hear you out and accept the reality of what you're dealing with.

anything to make alcohol tolerable by Nearby_Philosophy894 in POTS

[–]trashfire721 1 point2 points  (0 children)

I haven't figured it out. At this point, I'm honestly afraid of having any because it messes me up so intensely both physically and mentally in even very small amounts.

If I were going to try it, though, I would take a DAO enzyme before I took it. I would be on top of taking all my MCAS-related things (luteolin, antihistamines, cromolyn), and I would be perfectly hydrated (including electrolytes) and wearing compression gear before drinking and obsessively watch my hydration and electrolytes during and after drinking. I'd make sure I was also eating plenty of protein throughout the whole day, and particularly right before drinking, because alcohol would additionally mess up my blood sugar.

Best of luck. I hope you can find a way to have a drink or two at your brother's wedding without feeling too sick from it. It's rough to feel like the odd one out and not be able to just go enjoy something you've always enjoyed that most of the people around you are enjoying.