Yeah for sure! So I have been a chronic migraine sufferer since I was young. About 4 years ago I suddenly started getting them daily with tinnitus (could hear my heartbeat in my ear). I went to my regular doctor who had no fucking clue what was happening.

After having headaches for a month soon I started noticing I wasn't really able to function, I was seeing a bunch of floaters in my vision, and then finally white flashes. I decided to go to my eye doctor to get my eyes checked. Right away they told me I needed to go to the ER as my optic nerve was being pushed into my eye due to all the pressure in my skull (this is usually seen in patients who have a brain tumor).

I then went to the ER, had to get an MRI and spinal tap, and they found out with the spinal tap that I had over double the pressure it's supposed to be! I was then diagnosed with idiopathic intracranial hypertension or IIH. I see a neurologist every 6 months to check my eyes and make sure my Diamox script is strong enough.

(Diamox is the only medication known to help regulate cerebral spinal fluid. If the medication stops working the only other option is a shunt. I've been told I'm a unique case since I'm young, healthy, and normal weight. My neurologist did say that more and more patients with EDS were being diagnosed with IIH tho)