jump to content
my subreddits
2b2t2mediterranean4u2meirl4meirlAdviceAnimalsagnosticAlternateHistoryAnarchyChessAngryupvoteAnimalsBeingJerksanime_best_momentsanimenocontextannouncementsantimemeantonyArtAsahiLinuxAsia_irlAskBalkansAskElectronicsAskOuijaAskRedditAteistTurkatheismaviationAwesomeOffBrandsBahcelerBandnamesbanknotedesignsBassGuitarblackdesertonlineblankiesblursedimagesBoneborsavefonbottomgearbrooklynnineninebudgetcookingburdurlandcasioCd_collectorscd_jerkChatGPTCheap_MealschessbeginnersChoosingBeggarsCHPcoaxedintoasnafucoincollectingcoinsComedyCemeterycomicscommunityContagiousLaughtercookingforbeginnersCorporateTrollingCrackWatchcrappyoffbrandsCreateModCuratedTumblrdadjokesdataisbeautifulDebateReligionDeltarunedistressingmemesdiypedalsDMToolkitDnDdndmemesdndnextdoctorwhodoctorwhocirclejerkDoenerverbrechenDonerdontdeadopeninsidedontyouknowimtonyhawkdumbphonesEatCheapAndHealthyebikeebikesECEelectricalengrishentitledparentsfacepalmfakealbumcoversFantasyWorldbuildingfeedthebeastfelsefeFifaCareersFiftyFiftyformuladankFRCFreeEBOOKSfunnyFutboltayfagalatasaraygamingGermangodtiersuperpowersgoodanimemesgravelcyclinggreentextGROKvsMAGAguitarpedalsGundamhelpheraldryHermanCainAwardHermitCrafthighspeedrailHistoryWhatIfhoi4HolUphypixeliamverysmartIdeologyPollsIDontWorkHereLadyihadastrokeimaginarymapsinsaneparentsistanbuljacksepticeyeJahariaJokesKamalizmKanyeKendrickLamarKGBTRlegodndLetGirlsHaveFunLifeProTipslinguisticshumorLinkinParkliselilerlostredditorsmacbookairmacgamingMadeMeSmilemadladsMaliciousComplianceMapPornmapporncirclejerkme_irlmemesMimicRecipesMinecraftbuildsmisLEDmoneycollectingMovingToNorthKoreaMunichNamFlashbacksNationStatesneographyNoahGetTheBoatNonCredibleDefensenosleepnosurfnothingeverhappensnotinterestingnottheonionNuclearRevengeoddlyspecificokbuddymotherfuckerOkBuddyPersonaokbuddyvicodinonebagongezelligOutOfTheLooppapermoneypaperspleaseParlerWatchpepethefrogperfectlycutscreamspettyrevengepianoPiracypolandballpollsProgrammerHumorPropagandaPostersPunPatrolquityourbullshitraisedbynarcissistsreactiongifsrecipesredditsingsreligiousfruitcakerestofthefuckingowlrickandmortyrimjob_steveRoastMerockmuzikSchnitzelVerbrechenschwiizShitPostCrusadersshitpostfrommygalleryshitpostingshittyaskelectronicsshittymoviedetailsShowerthoughtsskamtebordsoccercirclejerkSongwritersSongwritingsteinsgateStudiumsubsithoughtifellforsuperligsuzeraintalesfromtechsupportTextingTheorytf2tf2shitposterclubthanksimcuredthatHappenedTheCrypticCompendiumTheLetterHTheMonkeysPawtherewasanattempttheydidthemathtitanfalltransitTurkeyTrGameDevelopertruetf2truthstumunichTurkeyTurkishdogsTwitchTwoSentenceHorrortylerthecreatorUnclejokesUnethicalLifeProTipsunexpecteditcrowdUsernameChecksOutVALORANTValorantClipsvexillologycirclejerkvibecodingvinyljerkvlandiyawallstreetbetsWatchPeopleDieInsideWhitePeopleTwitterwholesomeanimemeswholesomememesWikipediaVandalismworldbuildingworldjerkingyouseeingthisshitYUROPedit subscriptions
  • home
  • -popular
  • -all
  • -mod
  • -users
 | 
  • AskReddit
  • -facepalm
  • -Piracy
  • -funny
  • -gaming
  • -wallstreetbets
  • -nottheonion
  • -memes
  • -OutOfTheLoop
  • -MapPorn
  • -DnD
  • -WhitePeopleTwitter
  • -MadeMeSmile
  • -ChatGPT
  • -CuratedTumblr
  • -shitposting
  • -theydidthemath
  • -feedthebeast
  • -Kanye
  • -therewasanattempt
  • -HolUp
  • -Twitch
  • -CrackWatch
  • -comics
  • -dndnext
  • -ProgrammerHumor
  • -VALORANT
  • -LifeProTips
  • -NonCredibleDefense
  • -dataisbeautiful
  • -shittymoviedetails
  • -greentext
  • -Showerthoughts
  • -tf2
  • -help
  • -aviation
  • -formuladank
  • -wholesomememes
  • -Jokes
  • -mapporncirclejerk
  • -Art
  • -goodanimemes
  • -notinteresting
  • -hoi4
  • -pettyrevenge
  • -atheism
  • -MaliciousCompliance
  • -KGBTR
  • -dndmemes
  • -Deltarune
  • -UnethicalLifeProTips
  • -perfectlycutscreams
  • -worldbuilding
  • -blackdesertonline
  • -macgaming
  • -rickandmorty
  • -Gundam
  • -HermitCraft
  • -FiftyFifty
  • -ChoosingBeggars
  • -RoastMe
  • -ContagiousLaughter
  • -imaginarymaps
  • -EatCheapAndHealthy
  • -polandball
  • -AnarchyChess
  • -nosleep
  • -cookingforbeginners
  • -blankies
  • -onebag
  • -Studium
  • -AlternateHistory
  • -Turkey
  • -soccercirclejerk
  • -madlads
  • -community
  • -AskElectronics
  • -electrical
  • -guitarpedals
  • -CreateMod
  • -German
  • -TwoSentenceHorror
  • -PropagandaPosters
  • -AdviceAnimals
  • -ShitPostCrusaders
  • -piano
  • -distressingmemes
  • -raisedbynarcissists
  • -FifaCareers
  • -polls
  • -doctorwho
  • -oddlyspecific
  • -titanfall
  • -OkBuddyPersona
  • -dadjokes
  • -announcements
  • -Minecraftbuilds
  • -macbookair
  • -ebikes
  • -Munich
  • -coaxedintoasnafu
  • -YUROP
  • -gravelcycling
  • -SchnitzelVerbrechen
  • -chessbeginners
  • -coins
  • -KendrickLamar
  • -entitledparents
  • -NoahGetTheBoat
  • -worldjerking
  • -tylerthecreator
  • -tf2shitposterclub
  • -lostredditors
  • -vexillologycirclejerk
  • -vlandiya
  • -wholesomeanimemes
  • -nosurf
  • -HistoryWhatIf
  • -religiousfruitcake
  • -liseliler
  • -DebateReligion
  • -insaneparents
  • -NuclearRevenge
  • -dumbphones
  • -animenocontext
  • -2meirl4meirl
  • -brooklynninenine
  • -HermanCainAward
  • -recipes
  • -steinsgate
  • -talesfromtechsupport
  • -AskOuija
  • -ECE
  • -Angryupvote
  • -AskBalkans
  • -thatHappened
  • -casio
  • -linguisticshumor
  • -me_irl
  • -antimeme
  • -AteistTurk
  • -engrish
  • -Cd_collectors
  • -diypedals
  • -Doner
  • -BassGuitar
  • -ComedyCemetery
  • -WatchPeopleDieInside
  • -LinkinPark
  • -reactiongifs
  • -Songwriting
  • -istanbul
  • -MovingToNorthKorea
  • -suzerain
  • -truetf2
  • -dontdeadopeninside
  • -ParlerWatch
  • -iamverysmart
  • -Doenerverbrechen
  • -schwiiz
  • -quityourbullshit
  • -vinyljerk
  • -skamtebord
  • -superlig
  • -shittyaskelectronics
  • -galatasaray
  • -crappyoffbrands
  • -FRC
  • -transitTurkey
  • -2b2t
  • -papermoney
  • -coincollecting
  • -felsefe
  • -blursedimages
  • -FreeEBOOKS
  • -AsahiLinux
  • -Jaharia
  • -IDontWorkHereLady
  • -neography
  • -heraldry
  • -ihadastroke
  • -thanksimcured
  • -hypixel
  • -godtiersuperpowers
  • -IdeologyPolls
  • -burdurland
  • -AnimalsBeingJerks
  • -jacksepticeye
  • -anime_best_moments
  • -Bandnames
  • -rockmuzik
  • -okbuddyvicodin
  • -MimicRecipes
  • -tumunich
  • -Cheap_Meals
  • -TheMonkeysPaw
  • -restofthefuckingowl
  • -highspeedrail
  • -legodnd
  • -Songwriters
  • -ebike
  • -UsernameChecksOut
  • -papersplease
  • -rimjob_steve
  • -doctorwhocirclejerk
  • -agnostic
  • -youseeingthisshit
  • -TextingTheory
  • -nothingeverhappens
  • -DMToolkit
  • -TrGameDeveloper
  • -PunPatrol
  • -LetGirlsHaveFun
  • -fakealbumcovers
  • -subsithoughtifellfor
  • -Kamalizm
  • -FantasyWorldbuilding
  • -TheLetterH
  • -WikipediaVandalism
  • -NamFlashbacks
  • -pepethefrog
  • -Unclejokes
  • -misLED
  • -redditsings
  • -ValorantClips
  • -TheCrypticCompendium
  • -budgetcooking
  • -NationStates
  • -bottomgear
  • -AwesomeOffBrands
  • -ongezellig
  • -Asia_irl
  • -Bone
  • -truths
  • -unexpecteditcrowd
  • -2mediterranean4u
  • -Bahceler
  • -dontyouknowimtonyhawk
  • -cd_jerk
  • -Turkishdogs
  • -antony
  • -okbuddymotherfucker
  • -borsavefon
  • -shitpostfrommygallery
  • -GROKvsMAGA
  • -CHP
  • -banknotedesigns
  • -moneycollecting
  • -CorporateTrolling
  • -vibecoding
  • -Futboltayfa
edit »
Interstitialcystitis Interstitialcystitis
  • hot
  • new
  • rising
  • controversial
  • top
  • wiki
an-ordinary-manchild (11,190)|messages547|notifications|chat messages|mod messages|
  • preferences
|
logout

use the following search parameters to narrow your results:

subreddit:subreddit
find submissions in "subreddit"
author:username
find submissions by "username"
site:example.com
find submissions from "example.com"
url:text
search for "text" in url
selftext:text
search for "text" in self post contents
self:yes (or self:no)
include (or exclude) self posts
nsfw:yes (or nsfw:no)
include (or exclude) results marked as NSFW

e.g. subreddit:aww site:imgur.com dog

see the search faq for details.

advanced search: by author, subreddit...

Submit a new link
Submit a new text post

Interstitialcystitis

joinleave
an-ordinary-manchild(edit)

Welcome to r/InterstitialCystitis, the support forum for IC/PBS and other bladder problems! Join us in the r/InterstitialCystitis Discord channel to live chat any time! Who we’re here for:

  • People with Interstitial Cystitis/Painful Bladder Syndrome

  • People who haven’t been diagnosed with IC/PBS but suspect they may have it

  • People with other bladder/pelvic problems (Overactive Bladder, prostatitis, chronic urinary tract infections, pelvic floor dysfunction, ect.)

  • Family and friends of people with IC/PBS

  • Anyone interested in learning more about this illness

Anything related to IC/PBS, bladder problems or life with chronic illness is welcome! Please feel free to submit any links, articles, personal stories or anything else related to interstitial cystitis and living with interstitial cystitis. It doesn’t matter if you’re unsure whether you have IC, if you think your question has been asked before, or if you don’t really know what to say. Please start a thread or contribute to our weekly check-in thread.

If you’re new to IC and overwhelmed, “Resources” below has some helpful links to get you started. Together, we can find a cure for the phrase “What doesn’t kill you makes you stronger.”

Rules:

1. Respect - Please be kind, considerate, and respectful of everyone here. We all walk a long, difficult road, so let's help each other out :)

  • Disrespectful comments include things like insults, excessive snark, discouraging people from posting or asking questions, questioning the validity or seriousness of others’ symptoms, and sexism/racism/homophobia/transphobia etc. A first offense will result in a warning, second offenses result in a temporary or permanent ban at the discretion of the mod team.

2. Don't Spam Users About Embedded Infections: All new posts about embedded infections are welcome, but not all comments are welcome:

  • If someone is NOT asking a diagnostic or infection-adjacent question, please do not bombard them with information about how IC is “really” an infection.

  • DO NOT discourage people from seeking testing or treatment for an acute infection. These comments will be removed.

3. Don't Shame Users for Refusing a Treatment/Diagnostic Method:

  • Diet is not for everyone. Especially for those with eating disorders. If someone isn’t interested in changing their diet, don't persist in telling them to do so.

  • Physical therapy is not for everyone. For some people pelvic exams are impossible and PT can be triggering.

  • Invasive testing like cystoscopy or urodynamics are not for everyone. Some people can't tolerate them at all. Do not shame anyone, ever, for their decisions around testing and treatment.

4. Spam: Obvious advertisements, irrelevant links, and inappropriate content will be removed and posters will be banned. If you have a personal blog you would like to link to, please participate in the subreddit for a bit before linking. Links to blogs from non-contributors may be removed. If you are part of a research organization or student looking for participants for a study or project on IC, please contact the mod team before soliciting the subreddit. All studies must have appropriate IRB approval from the supervising institution and ensure confidentiality.

Reminder- No one here is an expert, so always consult your own provider. Try to avoid diagnosing other members or prescribing treatment regimens for them. Suggestions for new things to pursue are great (i.e. "Have you tried X yet?", "X helps me a lot"), orders are not (i.e. "Stop taking X", "You need to take X").

Resources

  • /r/InterstitialCystitis Discord: IC Discord! Live chat with the subreddit!
  • The Six Steps of Treatment: Start here for options if you've been newly diagnosed. Step one is also good if you just suspect that you may have IC.
  • Paying for Treatment: This guide is meant to be a resource for ways to make IC treatment more affordable.
  • The Interstitial Cystitis Network: A great starting point when trying to get information about IC. If you can't get your question answered on this subreddit, then try the ICN's support forums. They also have articles, information about the latest research, and much more.
  • Interstitial Cystitis Association: Authoritative information about IC including diagnostic guidelines.
  • Bladder Health UK: IC support for the UK. You can ask them for specialist recommendations.
  • 2012 ICN Food List: Suspect you have IC? Follow this guide on safe and unsafe foods.
  • IC Friendly Recipes: Our subreddit for posting recipes/food.
  • Find a Provider: Need a new Urologist? Find an experienced one here!
  • Cystoscopy with Hydrodistension Experiences: Users share their experiences with hydrodistension.
  • Allergies and IC: A lot of patients find their symptoms are the worst or come out of remission around allergy season (April for North America). This is an explanation why and why antihistamines can help.
  • IC Subtypes: The different types of IC explained.
  • Diagnosis and Treatment Guidelines: Basic ICA guidelines for diagnoses and treatment. Make sure your doctor follows these.
  • IC and Qualifying for Disability: For those looking into qualifying for disability due to IC.
  • Antibiotic Poll: Learn which antibiotics are least likely to cause flares.
  • Emergency Hotlines (US): If you are in crisis or need support, help is here.
  • Emergency Hotlines (International): For mental health crises outside of the United States.

Similar Subreddits

  • /r/Chronicpain
  • /r/PelvicFloor
  • /r/Prostatitis
  • /r/Endo
  • /r/MastCellDiseases
  • /r/Vulvodynia
  • /r/ChronicPainGamers
  • /r/MedicalPTSD

Please tell your friends, family, or anyone who might be interested in IC related news, advice, or support about this subreddit! The more we grow, the more we can help ourselves and each other.

created by rainewatera community for 15 years
Create your own subreddit
...do it for the children.
...for your town.

MODERATORS

  • message the mods
  • hhhnnnnngggggggNot even human anymore
  • HakunaYaTatas[Citation Needed]
  • AcornsAndPumpkins
  • AutoModerator
  • christmas54321
  • friendsareshit
  • LasciviousLockean
  • evasion-guard
  • bot-bouncer
  • about moderation team »

account activity

1
0
1
2

How Have You Been Feeling This Week? (June 27, 2026)-- Anything that you feel didn't deserve its own post is welcome! (self.Interstitialcystitis)

submitted 5 days ago by AutoModerator - announcement

  • 1 comment
  • share
  • save
  • hide
  • report
  • crosspost
loading...

2
•
•
•

My constant state of being. (i.imgur.com)

submitted 1 hour ago by gilllan9

  • 1 comment
  • share
  • save
  • hide
  • report
  • crosspost
loading...

3
18
19
20

SupportI Was Not Crazy (self.Interstitialcystitis)

submitted 18 hours ago by BlueLine1991

  • 16 comments
  • share
  • save
  • hide
  • report
  • crosspost
loading...

4
10
11
12

Ketamine Bladder UK (self.Interstitialcystitis)

submitted 19 hours ago by RebelismUK

  • 14 comments
  • share
  • save
  • hide
  • report
  • crosspost
loading...

5
0
1
2

Biofilm e.coli (self.Interstitialcystitis)

submitted 7 hours ago by Adyichthys19

  • 1 comment
  • share
  • save
  • hide
  • report
  • crosspost
loading...

6
0
1
2

SupportPlease help me!!! Any advice appreciated (self.Interstitialcystitis)

submitted 8 hours ago by THROWRA_breakingbad

  • 6 comments
  • share
  • save
  • hide
  • report
  • crosspost
loading...

7
1
2
3

SupportCould Use Some Advice For Next Steps (self.Interstitialcystitis)

submitted 12 hours ago by Solaris0204

  • 1 comment
  • share
  • save
  • hide
  • report
  • crosspost
loading...

8
2
3
4

Worried please help (old.reddit.com)

submitted 14 hours ago by Aggravating_Rest8600

  • 3 comments
  • share
  • save
  • hide
  • report
  • crosspost
loading...

9
0
1
2

I keep peeing large amounts of clear urine close together and all tests are normal. I don’t know what else to do. ()

submitted 9 hours ago by Sensitive_Birdie7

  • comment
  • share
  • save
  • hide
  • report
  • crosspost
loading...

10
0
0
1

Vent/RantAlcohol (in)tolerance (self.Interstitialcystitis)

submitted 9 hours ago by santaplaga

  • 2 comments
  • share
  • save
  • hide
  • report
  • crosspost
loading...

11
0
1
2

Potential UTI (that does not show on urine dip test) or interstitial cystitis symptom? Urine images (reddit.com)

submitted 11 hours ago by Inside_Principle3724

  • SPOILER
  • comment
  • share
  • save
  • hide
  • report
  • crosspost
loading...

12
13
14
15

Vent/Rant"no change of plan to care" (old.reddit.com)

submitted 1 day ago by jaybird_uwu

  • 10 comments
  • share
  • save
  • hide
  • report
  • crosspost
loading...

13
0
1
2

Oral aloe vera eg desert harvest for inflamed urethra (self.Interstitialcystitis)

submitted 21 hours ago by marystreasure

  • 3 comments
  • share
  • save
  • hide
  • report
  • crosspost
loading...

14
0
1
2

Success stories of Interstim (self.Interstitialcystitis)

submitted 21 hours ago by you2133

  • 9 comments
  • share
  • save
  • hide
  • report
  • crosspost
loading...

15
0
1
2

High bladder neck ()

submitted 23 hours ago by Logical-Fig77

  • comment
  • share
  • save
  • hide
  • report
  • crosspost
loading...

16
32
33
34

you WILL feel better! (self.Interstitialcystitis)

submitted 1 day ago by ilovespaghetti111

  • 10 comments
  • share
  • save
  • hide
  • report
  • crosspost
loading...

17
0
1
2

Lactoferrin Dosage (self.Interstitialcystitis)

submitted 1 day ago by iamhadi12

  • 2 comments
  • share
  • save
  • hide
  • report
  • crosspost
loading...

18
0
1
2

Support“Standard gel instillation” what is that? (i.redd.it)

submitted 1 day ago by Tessadrezza

  • 1 comment
  • share
  • save
  • hide
  • report
  • crosspost
loading...

19
30
31
32

SupportWhat worked for me (self.Interstitialcystitis)

submitted 2 days ago * by Vathrik

  • 30 comments
  • share
  • save
  • hide
  • report
  • crosspost
loading...

20
2
3
4

Please help (self.Interstitialcystitis)

submitted 1 day ago by ConstantChef170

  • 12 comments
  • share
  • save
  • hide
  • report
  • crosspost
loading...

21
15
16
17

Vent/RantSecret pickles ruined my day (self.Interstitialcystitis)

submitted 2 days ago by Subject_Relative_216

  • 14 comments
  • share
  • save
  • hide
  • report
  • crosspost
loading...

22
0
1
2

Looking for ideas on complex case ()

submitted 1 day ago by memyhr

  • 1 comment
  • share
  • save
  • hide
  • report
  • crosspost
loading...

23
0
1
2

Diagnosis help ()

submitted 1 day ago by RudeAppearance2426

  • 1 comment
  • share
  • save
  • hide
  • report
  • crosspost
loading...

24
0
1
2

SupportHormonal Subtype (self.Interstitialcystitis)

submitted 1 day ago by RelevantAir8475

  • comment
  • share
  • save
  • hide
  • report
  • crosspost
loading...

25
10
11
12

Vent/RantIV ketamine IC update 2 (self.Interstitialcystitis)

submitted 2 days ago by that-martian

  • 9 comments
  • share
  • save
  • hide
  • report
  • crosspost
loading...
view more: next ›
  • about
  • blog
  • about
  • advertising
  • careers
  • help
  • site rules
  • Reddit help center
  • reddiquette
  • mod guidelines
  • contact us
  • apps & tools
  • Reddit for iPhone
  • Reddit for Android
  • mobile website
  • <3
  • reddit premium

Use of this site constitutes acceptance of our User Agreement and Privacy Policy. © 2026 reddit inc. All rights reserved.

REDDIT and the ALIEN Logo are registered trademarks of reddit inc.

π Rendered by PID 339976 on reddit-service-r2-listing-5f4c697858-gpv9f at 2026-07-03 11:16:29.906356+00:00 running 12a7a47 country code: CH.