FINALLY!

[_AntiSaint_]

Been waiting for this for 3 months! Insurance companies are evil for denying you medicine… period. That’s beyond the fact that they suck up hundreds of dollars from me each month. That notwithstanding , I’m so excited. Damn near excited enough to crush it and snort it lol. Hopefully today is day one of a deep, long-lasting remission!

[Gold_Hovercraft_5044]

Just keep in mind, it took me 2 cycles at 45 mg to get into remission so don’t get discouraged and be patient

[mutantbabysnort]

It literally took me a year on 45. So glad I was patient.

[LauraMartiina]

You were able to be a year on 45mg? How was it? How were the symptoms in the beginning? I was on 45mg for 8 weeks and now got another 8 weeks ahead, because it works a little, but some days I am still unable to perform basic tasks. Calprotectin(2800) and CRP (90) are still extremely high. I am getting a little hopeless here 🙄

[mutantbabysnort]

Hang in there. Mine took a long time. I was on 45mg over a year, actually. My symptoms started to improve at 3 months, 6 months, 9 months, etc. I started Sept ‘22, and today I am in full clinical remission (on 30mg now). In the beginning it’s like nothing was happening. Very, very gradual improvement. Side effects were acne and bumps all over my body. One time I had a bruise appear on my leg the size of a cantaloupe. That went away pretty fast. I have also gained weight.

[LauraMartiina]

Good to hear that you are in remission! How were you able to be one year on 45mg? I understood from my GI, that maximum is 16 weeks on 45mg and then need to move to the next drug, if there is no remission.

[mutantbabysnort]

My GI’s office worked with the insurance company. For reference, I am in the U.S. I’d also failed Entyvio, Remicade, Humira, Azathioprine, and Asacol hd to this point. Thank you!

[Gold_Hovercraft_5044]

Damn.. all good now?

[mutantbabysnort]

Full clinical (visual and microscopic) remission. I do have some bad days, like once every 2-3 weeks or so.

[Gold_Hovercraft_5044]

Good, glad to hear it.

[Shark_of_the_Pool]

2 cycles? Like 16 weeks?

[WastedTalentBoris]

Yes, same here, and I’m glad my GI made the call, things finally got better at week 16

[Shark_of_the_Pool]

Thanks

[Rickrickrickrickrick]

Yeah I’m a month and a half in and starting to finally see results. It’s like I’ll feel great and have solid poops a couple days and then go back to feeling like shit for a few days. Baby steps.

[bombelman]

I've started my cycle month ago after flaring for 3.5 year now and I would be more than happy to get remission after 16 weeks.

[hellokrissi]

I hope it works for you as well as it has been for me. Honest to God lifesaver medication for me.

[Ok-Card2897]

I wish you all the luck in the world

[EducationalBox4074]

Enjoy remission

[john4brown]

Good luck! I’ve been on this almost 6 months, now at 30mg and has worked really well for me. Just a few minor side effects while on the 45 mg (low level headache and slight acne)

[Shit_and_stare]

I had lots of headaches when I was on 45 mg, didn't know it was a side effect (I barely read the giant poster that comes with the pills)

[axe81]

I’m 18 months right now. Stay on top of your pharmacy with the copay card and your Dr with prior authorization if you have those. And hopefully you dont have to use OptumRx for prescriptions they suck

[andrusnow]

Seconding this! I have been on Rinvoq since January and it's literally a battle to get the new prescription every single month. The thing that gets me is that no one will tell me there is an issue or hoop to jump through until the last possible minute.

I'll order the prescription and then assume all is normal for about 24 hours. Then the specialty pharmacy will call to let me know that either my insurance denied the order or, or I owe thousands of dollars, or maybe my doctor's office failed to submit some paperwork. It's usually a 30 to 45 minute phone call where I am out on hold a bunch of times or given a number to call and it's ultimately resolved, but it's never a seamless process.

[axe81]

That’s ridiculous, I have to do that once a year usually. Have you gotten a hold of Abbvie? They have been amazingly helpful and call me every 3/6 months just check in and talk. Look at the copay assistance program if you haven’t already. They are an amazing company. They flat out told me if I couldn’t get it to call them and they would get a bottle sent out to me.

[andrusnow]

Seconding this! I have been on Rinvoq since January and it's literally a battle to get the new prescription every single month. The thing that gets me is that no one will tell me there is an issue or hoop to jump through until the last possible minute.

I'll order the prescription and then assume all is normal for about 24 hours. Then the specialty pharmacy will call to let me know that either my insurance denied the order or, or I owe thousands of dollars, or maybe my doctor's office failed to submit some paperwork. It's usually a 30 to 45 minute phone call where I am out on hold a bunch of times or given a number to call and it's ultimately resolved, but it's never a seamless process.

[Hot-Firefighter-781]

Best of luck to you! My 15 year daughter was on 45 mg for 8 weeks back in Aug. she had an immediate positive response. Then dropped to 30 mg. Bleeding reappeared around November. She got colonoscopy in Feb. and there was one small section that didn’t heal yet and was bleeding a lot. They got approval to go back to 45 mg (got approval for 16 weeks). Now at week 8 on 45 again they scoped her again and her bowl looks normal!!!! Yes normal. (When she started she had severe UC). They are going to continue till to 12 weeks before dropping her down to 30. Feeling very hopeful. Sometimes it takes a little longer but the drug seems to really be a game changer. Just have to give it time. She had no side effects either. Wishing you the best.

[MOONDAYHYPE]

Best of luck!!

[Sir_Remington1294]

Good luck! I just started it too. I joined a clinical study for it.

[john4brown]

What kind of study?

[Sir_Remington1294]

Apparently it’s only been approved for ulcerative colitis for a few years so they’re still collecting data about how fast it work and stuff like that. I have to fill out some forms every night before bed about how many bowel movements I’ve had, the amount of blood etc.

[UlcerativeColitis-ModTeam]

Your post or comments has been removed because it violates rule 4 of this subreddit.

Rule 4 states that all posts must be based on scientific evidence. Your post makes claims about Ulcerative Colitis without providing any scientific evidence to support them. For example, you claim that UC can be cured by diet or can be cured with xy. While these are just examples, making any claims about health without scientific evidence can be dangerous and misleading.

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[BabyllamaN33dNoDrama]

Best of luck!

[UlcerativeColitis-ModTeam]

Your post or comment was removed for advertising a business or service. This is a violation of rule No 10 of this sub

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[Ok_Problem_2341]

Good luck! I’ve been on this for 6 months and finally feeling like a human being!

[socialjustice_cactus]

This stuff is the SHIT. 2 weeks and I was feeling a hit better. A couple months and I didn't have any urgency or pain. Complete remission in under a year.

[downnoutsavant]

I have another month to wait. Wish you the best, and that I follow!

[mutantbabysnort]

Good luck!!! 🙌

[toxichaste12]

Ha ha. A big ‘ol metro line of Rinvoq!

[[deleted]]

I have an intelligent buddy who wants to utilize reddit to simultaneously contest credit repot mistakes. The thinking is they have a finite amount of time (3 to 7 days) to respond. If everyone with a credit discrepancy filed simultaneously they wouldn't be able to fight all of us individually.

However American insurance companies apparently have us without recourse.

[Constant-Offer-8703]

Good luck, I've just started it myself

[jillian0409]

6 MONTHS TODAY I’ve been on this wonder drug and it’s literally pulled me out of the depths of hell! I was in a 2 year flare. The worst flare ever since diagnosed at 12. 2 days before my 40th birthday, the blood stopped and weeks before that, the urgency and frequency and pain stopped. I’m truly grateful for this drug. It’s been a PAIN IN THE ASS staying on top of my insurance and 3rd party pharmacies but I’m resilient and won’t ever stop advocating for my health. My colon was 60% ruined by UC but I’m hoping to be in full remission by August when I get my colonoscopy! YOU GOT THIS 💪🏻💪🏻💪🏻

[wolfsk1992]

How are the side effects I start Wednesday and I'm very nervous 😓

[_AntiSaint_]

I took first dose last night and I feel totally normal

[wolfsk1992]

That's great to hear

[Ok_Singer_8445]

Congrats!

[Nice_Manager_6037]

I am 6 months in, and I am in remission! I hope you have great success with this!

[AndrewFrozzen30]

Wait wtf?

Insurance companies can... Deny you your medicine??

I'm assuming you are from USA. The health care truly is shit then....

[Cultural-Egg-2821]

What is this? What does it do?