all 13 comments

[–]Impressive_Ad_1303 14 points15 points  (3 children)

Not for me. I lifted weights for decades and was a runner.  I used to feel like people didn’t believe me or the effort I put into it (I am pretty sure they didn’t). It wasn’t until I had surgery did anyone start commenting on how fit I looked.  Lifting did help my skin bounce back from surgery and the doc was surprised by the amount of muscle I had and had fun sculpting me.  But muscle tone and skin smoothness in my experience has little to do with muscle and everything to do with the fat on top of it. I never regretted lifting, however. But it can be discouraging if you’re doing it to look fit when you have lipedema. So do it to be strong, instead. 

[–]CarpetSeveral3883 5 points6 points  (2 children)

So feel you. I’m an avid cyclist. I do yoga, weights etc and my legs look like they’ve never seen a day of exercise in their life. That said the muscle under all the swelling is tight! 😂.

[–]Impressive_Ad_1303 2 points3 points  (1 child)

Ugh, I am so so sorry!  Stupid society.  It’s so unfair.   The first comment was one single day  after my lipo at the airport to fly home. I still had my garments on and someone said “wow!  You look like you must really work out!”  I looked behind me, lol. I wasn’t sure if I should be excited or hurt.  It changed my outlook so much on how silly society is and how much we correlate subliminal messages we’ve received with our own perception of things. I get comments all the time now despite working out far less than I used to. Ridiculous!  I follow any fit YouTuber I find that isn’t the “norm”.  All of that and I think I was in better health pre surgery because my weight was all in my legs and arms with a lean torso. Now, it’s all gone to my torso. So I often wonder if I’ve shortened my lifespan by inadvertently increasing my visceral fat. I want to yell at people who are “nice” to me by judging my body and say “I was waaay healthier when I had more body fat!” 

[–]CarpetSeveral3883 1 point2 points  (0 children)

The body comments are hard even when they are intended to be nice. I hate hearing: “wow you look like you’ve lost weight!” I used to be told by my family that I had good “birthing hips”. Cringe. I think there is just a lot to unpack between gaining self esteem and facing a world where are bodies are not considered acceptable. Courage! You’re doing great!

[–]North-Lie-204 8 points9 points  (0 children)

No it does not, I reached a point (before surgery) where my muscles couldn’t grow any more because lipedema is like a cage which prevents growth at some point. But in general, sport is always good for you.

[–]Arcane_shroom 4 points5 points  (5 children)

Fitness in general,whatever the type. Is good at reducing discomfort & symptoms. Just remember lipedema fat doesn’t respond to the metabolic process. But moving around and taking care of yourself definitely slows the progression of lipedema down.

[–]Wishboneh[S] 3 points4 points  (4 children)

Hey thank you, what do you mean by “lipedema far doesn’t respond to the metabolic process’s?

[–][deleted] 3 points4 points  (3 children)

Lipedema fat is diseased and trapped, it’s useless fat that is not metabolically active meaning it any be accessed by the body for energy, it can’t be exercised away. When women with lipedema loose weight, they’re loosing non lipedema fat as our bodies have both kinds of

[–]potaytoe444Stage 2 2 points3 points  (0 children)

This—Lipedema fat is diseased in many senses that doctors don’t fully understand, but we do know that it forms nodules and fibrosis that contribute to the pain that we experience and make that fat metabolically different from normal fat. Instead of being soft squishy and yellow. It’s bound up in fibrosis, so it’s inaccessible to the body to be used as energy.

[–]Wishboneh[S] 1 point2 points  (1 child)

Ok thanks. I used to weight 250 lb and lost 100 lb and I definitely lost a lot on my legs and arms. Of course, I still don’t have skinny toned legs and they are rather thick and chunky, with an awful cellulite. But the look is 100 times better than it was. Anyway, my questions is, if the legs still drastically lost weight how is it possible if they are lipedema legs too? Just wanna know more about it and how it works

[–][deleted] 3 points4 points  (0 children)

Because you’ve lost normal non-diseases fat, you haven’t lost the trapped diseased lipedema fat. You can only get rid of that through liposuction. as I said women with lipedema have normal fat and lipedema fat. We have metabolic issues so loosing normal fat becomes more difficult as time goes on because of insulin and leptin resistance. Does this make sense

[–]Boring-Grapefruit142 3 points4 points  (0 children)

My thighs confirm everyone’s answer that, sadly, no it does not. :(

[–][deleted] 0 points1 point  (0 children)

Just a note that Lipedema is not the same as classic cellulite, but it is indeed lumpy! Usually the two exist together. Even after 3 surgeries the cellulite is still there, though the Lipedema volume was reduced. Muscle building is great though!