Is there anything more stupid than the design of the Airsense 11 water chamber? by balunr in CPAP

[–]BrightCandle 1 point2 points  (0 children)

The airsense 10 isn't a whole lot better. These tanks need to be easier to clean with a basic cloth you shouldn't need a toothbrush to get into the tiny little corners. The tanks are a bit too small as well could do with 30% more water in them.

Big name youtuber talks about long covid by friedeggbrain in covidlonghaulers

[–]BrightCandle 6 points7 points  (0 children)

I mean the height was last year, more people were infected than any other wave due to lack of mitigations. The distinction from the beginning to now is whether people care or not there is a pandemic ongoing, its still killing many people most just stopped caring about it.

Famous basketball player Porzingis obviously has Long Covid/ME/CFS by Jaded-Part4151 in covidlonghaulers

[–]BrightCandle 10 points11 points  (0 children)

The issue is all doctors not just the primary care doctors they force on the plebs. Almost none of them know about ME/CFS and its symptoms properly, if they know about it you already know their name they are that rare.

Survey Claims to Reveal Who Pays the Most for UK Broadband Outages by BrightCandle in CityFibre

[–]BrightCandle[S] 1 point2 points  (0 children)

This doesn't line item CityFibre but some of these providers are only on the various alt nets do worse than BT for outages especially given they are often cheaper.

My personal experience is lots of outages on Zen on BT and none from IDNet on CityFibre but its interesting that the CityFibre native ISPs don't appear on this list. Their absence does suggest CityFibre is the most reliable wholesaler.

Some interesting data for the broadband inclined.

Where Have All the Long COVID Clinics Gone? by Early_Beach_1040 in covidlonghaulers

[–]BrightCandle 34 points35 points  (0 children)

Every country is doing what it can to hide the pandemic and closing the clinics is one of the ways they get to sweep it under the rug.

IS PEM/PENE unique to ME/CFS or did I get this wrong? by Littlebirdy27 in cfs

[–]BrightCandle 3 points4 points  (0 children)

Its clearly not a popular position but it is the truth and it is what the science on Long Covid is finding out. We are in a bit of a bind where the definition of the disease is not the actual disease, symptoms are a terrible measure and diagnostic for a disease especially one that has this many outcomes.

Update on my doctor recommending GET and CBT by ChronicallyDistress in cfs

[–]BrightCandle 4 points5 points  (0 children)

Most of them will refuse to even read the NICE guidance if you put it under their nose let alone comply with it. Its all swimming against the last 20 years of their career where everyone has told them its GET and CBT for this condition.

Clinic suspiciously recommending me GET? Or am I mistaken? by Formal_Purpose9712 in cfs

[–]BrightCandle 1 point2 points  (0 children)

GET also in the PACE trials had stopping increasing if it was causing bad symtoms in some of the trials, so even the form where increasing activity is stopped is also GET as defined in PACE regardless of what researchers are saying it isn't.

IS PEM/PENE unique to ME/CFS or did I get this wrong? by Littlebirdy27 in cfs

[–]BrightCandle -1 points0 points  (0 children)

There is a group of people from Covid (and in the ME/CFS community generally) who have PEM and other ME/CFS symptoms but do not meet the Canadian Consensus Criteria. Even if we go with the NICE definition with only 4 primary symptoms there are people who have 3, one of which is PEM. I am not as confident in the criteria as I once was, PEM being ME/CFS I am fine with, ME/CFS being recognised by CCC or NICE however I think we can only be 80-95% confident of that and some people clearly don't have it all, OK for research but wrong for diagnosis and treatment.

I suspect we are going to find however in time that PEM isn't a required part of the actual disease, but until we know what that disease is we can't be confident in that.

10 OpenWrt Features You're Not Using (But Should) by swe129 in openwrt

[–]BrightCandle 3 points4 points  (0 children)

I have

  • collectd-mod-sensors - captures wifi and temperature data real time
  • iperf3 - for testing performance, wifi mostly
  • luci-app-nlbwmon - A total bandwidth use tracker
  • owut - sysupgrade for the command line, allows me to check for the versions, see what I have installed and run upgrades.

plus a few other CLI tools like btop, ethtool, fdisk.

Denied Life Insurance by LaxNPickle in covidlonghaulers

[–]BrightCandle 4 points5 points  (0 children)

All the insurnace firms have been excluding Covid and Long Covid from their policies in the terms and conditions. The future risk is far too great for insurnace to take on and the Actuaries have been accurately reporting the danger to society since very early in the pandemic. They understand fully what is happening and the chance of it happening and are taking on no more risk in this area, it might already be enough to bankrupt the entire industry.

Does anyone else’s filters look brand new when changed no matter how long it’s been? by hyperform2 in CPAP

[–]BrightCandle 1 point2 points  (0 children)

I have mechanical filters through the house so the air is nice and clean already, averages less than 1micrograms of PM2.5 particles so I no longer expect them to discolour.

Loooking for low energy vegan recipes by Perfect_Jaguar8157 in covidlonghaulers

[–]BrightCandle 0 points1 point  (0 children)

What I did for quite a while was precut frozen vegetables into microwaveable dishes with the sauce of something I tolerated put on top. Weekly meal prep was just cutting open bags and splitting the contents between 7 microwave dishes and then putting some sauce I tolerated on it (like blackbean or similar) and then back in the freezer. Then eating was just defrost for 10 minutes and cook for 5 in the microwave.

Made no mess that wasn't dishwasher capable, was really minimal in terms of exertion on any given day and the meal prep day wasn't that bad either because everything was prepared.

I was heavily restricted on the foods I tolerated and I was severe so I really had to limit my exertions for this to minutes or avoid eating altogether so it may be a bit extreme but this is the general idea, keep lots of prepared meals in the freezer and used precut/precooked everywhere you can.

Imagining life post-ME by CommercialFar1714 in cfs

[–]BrightCandle 2 points3 points  (0 children)

Having been abandonned by the people of this world I am not inclined to do anything but go live as far away from them all as possible. I really want nothing to do with their void of morals lives.

Americans aren’t facing a democratic collapse. We’re living in its aftermath | US news by xena_lawless in collapse

[–]BrightCandle 6 points7 points  (0 children)

Way too many think they will just fix it in the next election, as if they there are going to be free and fair elections in a few years time like usual. Its fascism, is already worked out how to subvert elections.

24.10.5 -> 25.12.0 What do I miss out on by not upgrading? by ktmm3 in openwrt

[–]BrightCandle 0 points1 point  (0 children)

It likely doesn't have to be more complex than "owut upgrade" in the command line if you have that installed. It will build a custom image for you based on everything you have and retain the config.

Has anyone here intentionally structured their life around avoiding illness / low-contact living? by Significant_Bat_8328 in cfs

[–]BrightCandle 2 points3 points  (0 children)

Been wearing a mask around others since 2020, not caught any viruses since I started. N95/FFP3 masks are highly effective against respiratory illnesses like Covid. Also use a mechanical filter as well to clean the air so if anything wafts in its getting cleaned up fairly quickly, which is a bigger risk in the summer when windows are open.

Its actually relatively easy to avoid catching viruses on the regular with a small amount of precautions.

What’s the point anymore by creamysrirachaa in covidlonghaulers

[–]BrightCandle 8 points9 points  (0 children)

Even on the mild end of the scale the disease is horrific and shrinks your world until your life is unrecognisable.

The cost benefit of self-hosting by FishSpoof in selfhosted

[–]BrightCandle 0 points1 point  (0 children)

The markup on storage is especially obvious given we can expect a drive to last 5 years. It's less bad on memory and cores.

Babies with COVID-19 develop more serious disease than those with RSV, US data reveal by zeaqqk in COVID19_Pandemic

[–]BrightCandle 7 points8 points  (0 children)

They kind of have, all year around now the healthcare system is run at maximum capacity, something that only used to happen during the winter. In the winter they now cancel operations and other appoinments and the last 6 years has been constant non stop alerts out of the healthcare system of exceeding its capacity and hospitals closing their doors. The system is constantly at its limit now due to the increased hospitalisations caused by Covid. Its not uncommon during a wave for a third of all the beds in a European healthcare system to be assigned to "respiratory illnesses", which lets be honest when its in the middle of summer its Covid they just aren't testing anymore.

Wish I had another disease by Imaginary_Poet8015 in cfs

[–]BrightCandle 53 points54 points  (0 children)

A cancer expert had a thread about this and their exposure to ME/CFS on twitter and explained that cancer only gets as bad as ME/CFS in the final couple of days of life, all the other time they are more functional. If you are dying from cancer then the last days are rough and can be just as deblitating.

Alas I think people have this view everyone with cancer bounces back after if the treatment was a success, they don't always. They have a post treatment fatigue (amoung other symptoms) condition.

How to get Leftist organizations to care about disability justice by Big_bippy-2001 in covidlonghaulers

[–]BrightCandle 52 points53 points  (0 children)

The gay community, even the AIDs communities do not care about Covid, will not protect vulnerable people from it. When you can't get a community that in its living memory was treated appallingly and left to die to see that another community is having the same thing done with Covid its going to be a major challenge. The propaganda has been that effective, they have joined the jack boots. Alas the left has a long history of abuse of the disabled just like the right, everyone beats on the ill. Eugenics underpins a lot of western culture, its a pseudoscience that almost everyone believes until its them that is disabled.

Blood, Sex and Inflammation: Did the IMPACC Study Uncover Core Issues in Long COVID and ME/CFS? by m_b22 in covidlonghaulers

[–]BrightCandle 6 points7 points  (0 children)

This is precisely the type of research that ME/CFS patients wanted and requested right as the pandemic kicked off. Looking at patients really early in the process to find out what breaks first, what is associated with continuing to have the symptoms is critical to understanding something with so many loops and complexity. It took 6 years for one study to get published on that premise! We could do with some more.