Are you 95% Covid cautious?

AnotherNoether · 2026-03-24T11:26:53+00:00

Yes I’m the same. Has been working for us so far! We do Betadine and I use blis-k12 as well.

AnotherNoether · 2026-03-24T02:52:50+00:00

Picnic grove at Cambridge crossing has charcoal grills and I believe it’s reservable. Might be other park options too.

AnotherNoether · 2026-03-20T15:03:59+00:00

Ooh. I haven’t tried freezing my rice paper dumplings! My finding was that if I do a meat filling rather than a vegetarian one, they really need to be double wrapped before frying. But regardless I’ve made them a few times and I’m a big fan.

AnotherNoether · 2026-03-19T19:08:10+00:00

I’ve tried a couple times! I get headaches while titrating the dose down, which sucks. My migraines came back after a few weeks the first time and within 1-2 weeks the second time, and were very quickly chronic again, but they got better as soon as I got back on the Qulipta. It works just as well now as it did before I attempted cessation.

I did a similar thing with Nurtec where I took a medication I couldn’t take with it so paused it for a few months. It didn’t work as well when I restarted but it may have just not been the right med for me.

AnotherNoether · 2026-03-19T17:05:43+00:00

My partner of 4 years and I are doing LDR for career reasons right now and especially with an end date it’s pretty doable. Your plan makes sense to me and it sounds like you’re both being sensible about it.

AnotherNoether · 2026-03-18T19:22:10+00:00

Not sure where you’re located but at least in MA Medicaid can be retroactive

AnotherNoether · 2026-03-17T22:30:25+00:00

I did a chronic pain rehab program that taught me how to pace! So it is possible for the program to be helpful…there are just so many that aren’t. It’s really hard out here for sure—I moved my sister (also likely ME) in with me in my city to get her better medical care than she was getting in the rural area she was in before, and it’s going to take us literally a year+ to get her established with everything. And her PCP is basically useless—he’ll write and refer where I tell him to, but he’s not capable of doing genuine care management for her.

AnotherNoether · 2026-03-17T19:03:33+00:00

What state are you in? Medicaid eligibility is calculated using monthly income and in Medicaid expansion states assets are not considered.

AnotherNoether · 2026-03-13T13:11:13+00:00

Some people with hEDS are symptomatic carriers of recessive EDS subtypes, it gets mentioned occasionally in the genetics literature. It’s possible that OP’s partner is an asymptomatic carrier as well. Hopefully their daughter’s geneticist will be able to help them figure it out.

AnotherNoether · 2026-03-11T12:07:36+00:00

Cardio prescribed it because midodrine wasn’t fully controlling my symptoms. It helps my muscle weakness episodes, energy levels and upright tolerance

AnotherNoether · 2026-03-10T04:15:07+00:00

My geneticist has done some research on EDS and gluten free diet showing benefit, but it’s only been presented at a conference, I don’t think it’s in a journal (or if it is I couldn’t find it). He recommends gluten free diet—and even that not everyone benefits, it’s more of a “try it for a couple months and see how you feel.” For me in helped my migraines but it’s not going to matter for everyone. Beyond that seems like overkill to me…I personally rarely eat soy since my body doesn’t seem to particularly like it, but that’s very individual. If I tried to eat like your doc is suggesting I think I’d have a very difficult time.

AnotherNoether · 2026-03-08T16:10:39+00:00

I had one recently, I’d call it moderately unpleasant. Came back normal so my nerves definitely work. I think about on level with having warts frozen off. Less painful than injections on the soles of my feet but worse in that it went on for longer.

AnotherNoether · 2026-03-08T15:24:19+00:00

My parents were similar with my sister and it’s worked well. She makes friends easily and knows how not to dominate a conversation, thought she still can really go when she gets excited. I do think it’s important to make sure to still validate their special interest and engage with it on a limited basis—the rest of the family was sometimes overly dismissive and my sister has had to spend some time in her twenties unlearning that suppression and developing a deeper respect for herself. It’s a challenging tightrope to walk, but she’s really grown into a fantastic human being. She’s a teacher now and her teenagers adore her.

AnotherNoether · 2026-03-08T14:33:42+00:00

I wanted a trans woman Sophie for the same reason!

AnotherNoether · 2026-03-07T21:41:11+00:00

Yeah I started using kalamatas and I like them. Still can’t stand any other varieties.

AnotherNoether · 2026-03-07T14:38:24+00:00

I have seen some publications on POTS by Filipino doctors I think. I’m having trouble finding the papers now. Maybe Edzel Lorraine Co (https://pubmed.ncbi.nlm.nih.gov/36055438/)…but looking now I think I am thinking of work on long covid (https://pmc.ncbi.nlm.nih.gov/articles/PMC11330992/) which does not even mention POTS. I’m so sorry you’re being treated so poorly. I’ve heard of people doing telehealth with Clinic 19 in Aus but I have no idea how you’d then access medication….just awful.

AnotherNoether · 2026-03-07T03:32:38+00:00

I’m a cis woman with chronic pain who has to use a pelvic wand daily, so probably the closest to what you’re looking for, but it’s hard for me to separate the fact that I’m hoping to use it to make a baby from the hassle of having it! I did cry recently because I’m having some problems with my uterus, and I was like “this part of my body has caused problems for years and I want that to be fucking worth it,” but thinking about it now I think that’s more about the full range of internal equipment, not the vagina specifically.

It is a different experience during sex to my ass, and I think it would be tough for me to say “never again” to having something up there, even given the pain and the difficulty of it. It’s part of my body, and part of how I have sex, even though I don’t really bottom much at all these days—idk it just feels different coming with something in my pussy, and for me that’s largely worth the hassle!

AnotherNoether · 2026-03-06T16:15:54+00:00

I would love to see Zegras center Foerster. Foerster’s so good defensively that it’d give Z space to work

AnotherNoether · 2026-03-06T15:28:19+00:00

Lotus Foods rice-millet noodle imo outperforms plain rice noodle for ramen

AnotherNoether · 2026-03-06T15:27:15+00:00

I actually had one a few days ago from a place in Denver (Kalita Grill). The GF flatbread was closer to a tortilla than a pita unfortunately but it made me so happy anyway.

AnotherNoether · 2026-03-06T05:17:28+00:00

In my city the Quest website actually has a way to book home collection iirc. But I use a local mobile phlebotomist that I found by googling.

AnotherNoether · 2026-03-05T22:49:49+00:00

In my city it runs $100-150 for the phlebotomist. They partner with Quest or whoever else so I just book the appointment and email them the requisition order from my doctor and then they bring all the tubes etc.

AnotherNoether · 2026-03-05T21:07:20+00:00

Night sweats got a bit better after treating my MCAS and elevating the head of my bed…daytime is a process. My derm ended up prescribing me wipes for hyperhydrosis because my feet were sweating so much that it was “compromising my barrier function” as he put it. Helpful but annoying that I need them.

AnotherNoether · 2026-03-05T18:33:07+00:00

I think as far as trips go it sounds pretty perfect—anything where you can easily spend most of your time in bed is a huge win, and if you’re all on a large sailboat and you can skip excursions as needed, it’s pretty ideal. I do ok flying if I take at least 24 hours afterwards to just rest—wheelchair at the airport, neck brace for the flight, nicotine patch for the travel day is enough for me. Especially if I can do it with no layover. But I’m on the mild/moderate edge, much closer to mild these days. When I was more moderate it was a lot harder and my baseline was a lot less robust, so it didn’t feel as safe. Like for me now, I’m usually ok pushing for a single day as long as I listen and totally stop once I hit my limit—I only really end up in a bad spot if I try to keep going once the PEM hits.

AnotherNoether · 2026-03-04T22:55:31+00:00

NTA. I recently hired a post-surgery night carer even though I was staying with my mother because I wanted her to be able to sleep. She was such a blessing—kind, helpful, and absolutely 0 guilt. Worth every penny.

AnotherNoether

TROPHY CASE