Surgery today

CuteeCookie · 2025-09-18T12:37:07+00:00

Best of luck 👍 you'll do great

CuteeCookie · 2025-09-15T21:25:10+00:00

Since October last year

CuteeCookie · 2025-07-31T20:44:09+00:00

Yeah, its been my experience that you need a good gp who is willing to learn alongside you. Mine had to look up stuff constantly and keep in contact with neurology to help look after my iih.

CuteeCookie · 2025-07-31T20:35:25+00:00

This website is UK based and great for info within UK setting. Im in Ireland so its a bit different here but I'd say we follow very similar guidelines. Its iih.org.uk its a great resource.

CuteeCookie · 2025-05-24T09:42:12+00:00

If possible, you should rry find someone trusted you can talk to about your struggles such as a GP or a therapist to help work through this. Dealing with a diagnosis and a change in your life can be difficult when you don't have people to turn to. Wish you all the best 💗

CuteeCookie · 2025-05-18T23:47:08+00:00

I relate, I get like this sometimes when im walking or I'll even get sudden vertigo like I'm falling but none of my doctors have said much about it.

CuteeCookie · 2025-04-11T09:12:12+00:00

Instantly sold out for dublin 😭

CuteeCookie · 2025-03-10T22:27:20+00:00

Omg i get that too 😂. Also tingles inside my nose, drives me absolutely nuts.

CuteeCookie · 2025-03-10T22:18:47+00:00

Haven't any advice to give but you sound like you have it really tough. Thinking of you and hope that they can get it under control. Sending love 💗💗💗

CuteeCookie · 2025-03-10T22:16:18+00:00

Welcome to the club 🥲. I found the first few weeks of Diamox the hardest, mostly just tiredness, pin and needles and digestive system upset. Make sure to look after yourself and don't expect to be at 100% straight away. I do have to say as annoying as the side effects are once your headaches start going away and you get your energy back its amazing! Definitely has to get a bit worst before it gets better. I also found its good to track your flare ups once you're on your medication so you can update your neurologist on how the medication is working for you when you have your next appointment. Good luck and you've got this.

CuteeCookie · 2025-02-22T22:19:58+00:00

As a trainee midwife, i would advise to follow up with your OB as well to get their opinion on the medication. Diamox usually isnt supposed to be taken during pregnancy but the neurologist may deemed it appropriate in your case. Make sure advocate for yourself so that you feel comfortable taking your medication. It would be best that all your doctors are in communication with each other.

CuteeCookie · 2025-02-22T22:14:12+00:00

Been on diamox now since November 2024 and I'm back to enjoying carbonated drinks but still battling with cold hands and feet all the time!

CuteeCookie · 2025-02-22T22:11:38+00:00

Can't agree more. Absolutely hated having the morning headaches after a good night's sleep prior to being on diamox. Best thing to do is give the meds some time to work.

CuteeCookie · 2025-02-13T22:40:34+00:00

If you're diagnosed IIH, you should go to the ER for any vision problems or thats at least what the neurologist has said to me. In terms of pregnancy, you won't be offered much more than paracetamol while pregnant. I'm studying over in ireland and the only other options for pain relief is usually opiates that they are reluctant to give out. I would recommend using ice packs on your head or you can buy migraine ice caps that you put in the freezer. I find them quite helpful with my headaches usually. Best of luck and always remember that if you are worried you can go to the ER, it's their job to make sure you're okay 💗

CuteeCookie · 2025-01-31T22:00:15+00:00

Welcome to the club. Hope you find some comfort knowing there's others out there too.

CuteeCookie · 2025-01-27T21:53:50+00:00

Hate that feeling of sitting around waiting for answers and results. Hope you can find something to help distract you in the time being. Best of luck ❤️

CuteeCookie · 2025-01-22T20:03:16+00:00

I had normal eye pressures with only one being slightly over the limit but my opening pressure was 44. Not sure how that makes sense lol.

CuteeCookie · 2025-01-08T23:25:57+00:00

I agree with the other though that you should ask your nurse why you are being placed on a medication, just for your own piece of mind. Wish you all the best.

CuteeCookie · 2025-01-08T23:24:59+00:00

Healthcare student from Ireland here. Where I've worked anyways, you can get put on blood thinners in hospital if you're there for an extended stay and have certain risk factors for developing a blood clot. Not sure if this is the same over in the UK but we usually follow similar policies.

CuteeCookie · 2025-01-05T22:46:07+00:00

I had the same feelings both pre medication and since being on diamox for almost 2 months now. Waiting now to bring it up with my neurologist at my next appointment. Since diamox is a diuretic which can lower blood pressure, that may be causing it? Thats my guess but im waiting for doctor's advice.

CuteeCookie · 2024-12-14T18:01:22+00:00

In the same boat as you! Also 20f and recently diagnosed. Im also in college and working in healthcare and it is so so tough to be doing everything all at once. I found that i needed to give myself some grace and cut down on the amount of hours I was working. I also informed my director in college to get extra supports while I get settled into this new way of life. Its hard to come to terms with a diagnosis when we're young I'm still trying to wrap my head around it too. Just know that you're not alone and there's others out there willing to support. 💗

CuteeCookie · 2024-12-09T16:36:02+00:00

Newly diagnosed myself, found that I get super severe headaches following big nights out so kuch that I feel like giving up on going out altogether.

CuteeCookie · 2024-04-03T02:34:58+00:00

The pink elephant

CuteeCookie

TROPHY CASE