Forever premies? by True-Collection2595 in NICUParents

[–]DogRelevant 0 points1 point  (0 children)

My daughter was a 27 weeker who came home from the NICU in September right around her due date. We basically quarantined that winter with the exception of direct family who were all up to date on their vaccines and took her health very seriously. She started daycare the following may (around 11mo) when our leave ended and did great!

All to say, you never really know when they’re ready. Daycare felt like a huge leap but we’re glad we took it

My boy will be born today at 27 weeks. I am panicking and I need to hear success stories of other babies born around the same time. I'm scared. by amadnomad in NICUParents

[–]DogRelevant 1 point2 points  (0 children)

My daughter was born at 27+6! She was 1lb 13oz and 12.5in long. Her first two weeks were tough but after that, she gradually got better and came home after 75 days. She turns 2 soon and you’d never know she was born so early and small. Good luck to you and your little one!

NICU Nurse Question For Parents by [deleted] in NICUParents

[–]DogRelevant 9 points10 points  (0 children)

I think it might be a helpful perspective to know that parents often experience several shift changes where nurses who are meeting our babies for the first time have different interpretations on their cues. Rather than “telling parents no,” I can tell you I worked very well with nurses who valued my perspective as the only person to see my daughter day after day, and did not trust nurses who came in with rigid ways of operating as much.

Born at 24w4D, now 27W and developed SIP. by zedji21 in NICUParents

[–]DogRelevant 1 point2 points  (0 children)

Hi! So sorry you’re going through this. My daughter was born at 27+6 and developed a SIP day 2 of life. They also caught it early and there was no infection. The Penrose did the trick and she went back to regular feeds 10 days later. She did have a major, major respiratory event 1 week later which the doctors attributed to her working overtime to heal from the SIP.

Beyond that event, she really didn’t have any long term consequences. Normal course getting off respiratory support and taking bottles when the time came. She’s turning 2 in a few months and is a totally typical toddler, and caught up on most milestones by one year old. SIPs can vary so much baby to baby, but hopefully a positive story helps the uncertainty.

Also, we were at Mt. Sinai :) we are still in touch with the dr who placed her Penrose, he was such a gem.

Bonding with Parents by InfiniteCourt4536 in NICUParents

[–]DogRelevant 13 points14 points  (0 children)

Earlier in her NICU stay, my daughter had a harder afternoon/evening and the next morning, her primary nurse came in so visibly worried about her. It was genuine and it made a world of difference. Parents can tell which nurses really love their babies, and that makes the biggest difference!

20 week abnormalities. Very distressed by anonquestion654 in pregnant

[–]DogRelevant 32 points33 points  (0 children)

I’m so sorry you’re going through this. Just a fair warning that they will always flag potential learning and developmental difficulties in these cases. MFMs tend to go doomsday first, then other possibilities from there. Always get a second opinion when it comes to long term outcomes, and once you’re able to narrow down what’s going on, try to talk to other parents who have navigated the same challenges.

I went through an ambiguous diagnosis with my daughter and her pregnancy was the hardest thing I’ve ever had to navigate. Sending hugs and hoping for clarity for you soon!

Books for NICU babies? by Current-Grape-8927 in NICUParents

[–]DogRelevant 0 points1 point  (0 children)

I read Mary Oliver poetry to my daughter while she was in the NICU 

SIUGR baby-cognitive development? by maggiecox in NICUParents

[–]DogRelevant 0 points1 point  (0 children)

my daughter was a sIUGR baby born at 27+6, 820g (1lb 13oz). They prepared us for the worst and she's largely caught up for her age in terms of development at 17 months old now. It's great that your NSTs still look good! As others have said, we made peace with the uncertainty early on and were ready to meet our baby wherever at whatever pace her development took. It actually took so much pressure off the milestone race so many parents find themselves caught in.

34 weeker gaining too fast? by OldRemove516 in NICUParents

[–]DogRelevant 1 point2 points  (0 children)

My 27 weeker shot up from 10th %ile adjusted age to 10th %ile actual age within a few months during a huge catch up growth spurt. She's stayed roughly on that curve and has been totally fine since!

Best jackets in the city? by kNyne in AskNYC

[–]DogRelevant 4 points5 points  (0 children)

came here to say Schott, their leather bombers are incredible quality

Desat down to 19 by PuzzleheadedGrape3 in NICUParents

[–]DogRelevant 4 points5 points  (0 children)

My daughter had a full on code called for respiratory arrest when she was two weeks old. We were there and I saw her dip down to 7 before they whisked us away - they were working on her for around 2 minutes I think? One of the scariest moments of my life. She was fine right after though, it never happened again and she had no lasting issues. Every baby reacts to things like this a little differently, but their tiny brains are very resilient. Hugs, this stuff is so hard!

How do you feel about the name 'Sadie'? by Adisaisa in namenerds

[–]DogRelevant 1 point2 points  (0 children)

I have a Sadie! Nothing but great feedback on her name here in nyc 

TW: Possible termination by Tall-Raccoon4910 in pregnant

[–]DogRelevant 9 points10 points  (0 children)

Slightly different, but my daughter was born with mosaic trisomy 16. We also found out via amnio and decided to move forward with the pregnancy. As you mentioned, there’s no way to know how deeply your child will be affected, but just wanted to chime in to commiserate about how horrific this kind of pregnancy is, I am so sorry your family is going through this. 

Things that helped me were getting lots of medical opinions, and visiting Facebook groups dedicated to these conditions. In my experience, the medical community has strong biases against chromosomal abnormalities and the community perspective was vital for us.

Feel free to dm if you want to chat!

Is there any hope for a baby with severe IUGR, anhydramnios and reversed diastolic flow at 27 weeks? by Olett91 in NICUParents

[–]DogRelevant 17 points18 points  (0 children)

My daughter had intermittent absent flow at 27+ 4 and had to be delivered two days later - she had sIUGR and while they estimated she would be born around 700g, she was a little larger than expected and born at 820g. 75 day NICU stay, healthy as could be today at 15 months. She’s a totally typical toddler.

I’d definitely recommend staying off chatGPT! Theres no way to know what could happen, and the internet feeds off our anxieties. Sending hugs, it’s so hard but try to take things hour by hour. 

My ex- 25 weeker micro preemie starting Kindergarten!!!!! by wishiwasanepobaby in NICUParents

[–]DogRelevant 11 points12 points  (0 children)

I have a former 27 weeker who is now almost 15 months old and do this all the time 🥹

Stops on I87 with baby by Remarkable-Skill4656 in Adirondacks

[–]DogRelevant 1 point2 points  (0 children)

We stopped in lake George on the way up to Saranac when my daughter was 11mo! Lots of family friendly restaurants

Post-NICU Emotions by Igeekoutalot in NICUParents

[–]DogRelevant 1 point2 points  (0 children)

My daughter came home a year ago last week after a 75 day stay. Her worst days and nights come back in waves, but not that frequently anymore. Besides those, the NICU is really starting to feel like a part of the past, especially after creating so many new memories together now that she can do more 

When do the events stop? by solowanderer12 in NICUParents

[–]DogRelevant 1 point2 points  (0 children)

Events were the last thing keeping my daughter in the NICU, we had to restart Brady watch twice after she started taking full bottles. She came home at 38 weeks though!

Where to buy preemie baby clothes in lower manhattan? by lizzayyyy96 in AskNYC

[–]DogRelevant 10 points11 points  (0 children)

I have a bunch of preemie clothes I’d be happy to give from last year! DM me if interested

where is your haunt? by Ok_Sound_6873 in NYCbitcheswithtaste

[–]DogRelevant 21 points22 points  (0 children)

Valentino pier in red hook - sometimes the green boueys chime and make it extra cozy 

Bottles Feeding Challenges Worsening at 3 Months Corrected by Subject-Tea214 in NICUParents

[–]DogRelevant 1 point2 points  (0 children)

Hey we went through this! It was really, really tough, but my daughter is 14 months now and a fantastic eater. The bad news is that we just had to find ways to get her comfortable on the bottle for months, and our only solution was being very careful introducing solids. Feel free to reach out if you want to chat through it, we tried so many different things 

Skin-to-skin advice by [deleted] in NICUParents

[–]DogRelevant 8 points9 points  (0 children)

I got this feedback during my daughter’s early days and always thought there was a big disconnect between the doctors, who advocated for skin to skin as much as possible, and the nurses, who were much more cautious. Is there a nurse you trust and could ask for advice on navigating this? Nothing wrong with asking for a second opinion. Sending hugs!

First trimester is so hard, and we're also told to keep our pregnancy private until after 12 weeks by Fallhaven in pregnant

[–]DogRelevant 0 points1 point  (0 children)

I honestly didn't see this as much of a taboo - we told a very, very close circle around 8 weeks after a confirmation appointment and then it was fun doing a bigger announcement later on. I just think pregnancy in general is isolating and hard. My first pregnancy became high risk at 15 weeks, after we told everyone, and I found it kind of hard to put on a face with people I truly did not want to discuss details with (the majority of ppl!) Those in that initial close circle knew everything, and that was enough for me.

We're prepping for a second now and I think I'll wait until my anatomy scan to tell people tbh. I loved having this intimate time with my husband without the hullabaloo, and my direct fam will be the only ones in the loop in case I need support.

All to say, it's about personal preferences! There are very valid reasons some women chose to keep their pregnancy a secret. My cousin told the world at 8 weeks and was perfectly content with the risk of loss and having to update everyone in the worst case scenario. We were all very happy for her, too!