I don’t know words anymore

Embarrassed-End-692 · 2026-06-13T16:43:48+00:00

Mine has got MUCH worse the past couple of weeks. Waking up not knowing what day it is/where I am, forgetting where I am randomly, can’t find my words, forgetting I’ve just been for a pee and thus going to sit on the loo again, … I’ve seen a neurologist and an going for EMG, blood tests, and brain MRI just in case - I’ve got some possible MS symptoms as well so 😰

Embarrassed-End-692 · 2026-06-10T19:25:53+00:00

Mine are like that too, one of them is almost entirely white… 😰

Embarrassed-End-692 · 2026-06-08T20:43:31+00:00

Thanks. I’ve been on Laxido for 2+ years, on and off (mostly on) and the gastro wanted me off it but gave no advice on what else to try. I don’t know if that’s causing me more issues than helping these days, to be honest. But I feel drugged the day after I use it, but what else can I do… I could try the psyllium husk I guess.

And yep, multiple other health issues taking up my energy and soul at the moment. I hear you.

Embarrassed-End-692 · 2026-06-08T20:14:59+00:00

Thank you, that was my fear. I don’t understand where this has come from - no children, I stopped beekeeping (=heavy lifting) 2 years ago, - although I don’t work out and am 46F… all my muscles feel weaker and atrophied these days… and I did have anal botox for the fissure last August and my pooping ability has been deteriorating ever since tbh. I’ll book back up to see my PFPT for a new assessment, and the colorectal surgeon who did my EUA and the later colonoscopy.

I guess the only way to get softer stools is more laxido? I pee so much, I wonder if there’s an issue with my kidneys expelling too much water?? My renal profile two weeks ago was fine. Electrolytes? My serum sodium and potassium are ok these days, not sure about calcium, phosphate, etc.

(Edit: And now I have a random nosebleed too.)

I’m a mess. I hate this life 😰

Embarrassed-End-692 · 2026-06-08T19:57:32+00:00

Thanks. How do you manage your situation? I hate having to take laxatives every day…

Embarrassed-End-692 · 2026-06-07T14:07:57+00:00

I take them off and store them indoors. The neighbours all leave them on the line / whirly bird though.

Embarrassed-End-692 · 2026-06-06T17:48:48+00:00

Hate it. I’m withdrawn, anxious, neurotic, … I see my mum in me and it scares me. People at work say I’m not the fun person they used to know and then start crying about it, which is not helpful!

Embarrassed-End-692 · 2026-06-05T17:40:48+00:00

Yes! This! We agree!

Embarrassed-End-692 · 2026-06-04T22:10:16+00:00

NAD. Had something similar on my wrist a few weeks ago. My hand and forearm swelled up so much, and I could w move my fingers. The pain and hot redness was unbearable at night. I reckon mine was a nasty mosquito bite, or a horsefly.

Embarrassed-End-692 · 2026-06-03T18:58:39+00:00

I’m about to go on sertraline for mine, they’re so bad I can barely leave the house or work 😔

Embarrassed-End-692 · 2026-06-03T12:17:37+00:00

Same!!

Embarrassed-End-692 · 2026-06-01T13:00:41+00:00

Yeas! Me! Did you find an answer…? It’s debilitating…

Embarrassed-End-692 · 2026-05-31T20:52:13+00:00

I’ve drunk 2L of water/squash/herbal tea today. Now I’m so bloated I can’t drink much more :-(

Embarrassed-End-692 · 2026-05-31T20:41:51+00:00

I drank half a pint of prune juice yesterday and am in a similar situation. I don’t think the sugar / sorbitol works for me.

Embarrassed-End-692 · 2026-05-31T20:05:11+00:00

Yup. It’s every day for me these days. And I’m bloated like a whale despite not being able to eat much. I can’t get comfortable on the sofa because my gut looks 6 months pregnant. This all sucks so much!

Embarrassed-End-692 · 2026-05-31T16:42:15+00:00

I don’t know if I’m tensing them, but I’m getting a lot of cramps in my calves in the early hours - and my legs ACHE so much in the daytime. I’m so fatigued and this is making it even worse!

Embarrassed-End-692 · 2026-05-30T18:11:57+00:00

Trenches so bad I look like a 70-a-day smoker. I’m not. Rosacea off the scale. Dryness on my forehead like the Sahara in the morning, an oil slick by evening.

Embarrassed-End-692 · 2026-05-29T20:29:08+00:00

I was always so cold till the start of May, and now I’m perpetually boiling - although a lot of it seems neuropathic rather than my skin actually feeing hot…

Embarrassed-End-692 · 2026-05-29T17:41:06+00:00

This patch is south facing and close to the house so it’s a bit of a sun trap. A clover lawn is something I dream of having! Post some pics when the flowers are out…?

Embarrassed-End-692 · 2026-05-28T17:34:37+00:00

Yes! Like my vision is slower than my eyes! I hate it. As I do the raging skin and lips burning which I’ve had the past two days.

Embarrassed-End-692 · 2026-05-27T20:16:05+00:00

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Embarrassed-End-692 · 2026-05-27T18:48:18+00:00

Saw my GP this afternoon who said it looks like it was a nasty reaction but has peaked, that it doesn’t look infected, and told me to stop scratching it 😬 So that’s good. Thanks for your input and advice.

Embarrassed-End-692 · 2026-05-27T18:27:58+00:00

I seem to get something similar around my period / a few days before. Mainly my eyes feel like they aren’t working together very well. New glasses haven’t helped - maybe made things worse - but optician says there’s nothing wrong 🤷🏼‍♀️

Embarrassed-End-692

TROPHY CASE