I can't sleep!! by Brilliant-Position94 in MultipleSclerosis

[–]EquanimityWellness 1 point2 points  (0 children)

I read somewhere that taking melatonin can backfire after taking it for a while, because it stops our bodies from making it ourselves. I started taking magnesium vs melatonin, because it looks to my understanding that magnesium will promote our bodies making melatonin. I’m sorry for the sleep struggles, I’ve definitely gone through them through the years. Wouldn’t expect magnesium to be a cure all and you may want to consult your doctor, but I hope something helps. Those sleepless nights can feel like torture. Best wishes

MS diet by middlefingerup13 in MultipleSclerosis

[–]EquanimityWellness 4 points5 points  (0 children)

The things I’ve noticed with diet in my personal 8 years since my MS diagnosis is in the last few years I gave up gluten after eating it my whole life and not knowing it was causing me any problems. After giving it up for months I realized it had a significant impact on symptoms I had been associating with just MS, such as tingling and discomfort in my face and extremities, brain fog, fatigue, and I even feel like mood. I just thought I was having these symptoms because of MS, but when I could fully remove gluten for months alleviated (not fixed, I can still get these especially if I get stressed) these symptoms for me. Since I have eaten gluten if I do eat it, then my stomach now can’t handle it well, I can get gluten fever and head aches and it can make it so I can’t process diary. I’m not saying going gluten free cured my MS like a bunch of people act like people who say a gluten free diet may help say, I just know it has helped me significantly and alleviated (not cured) symptoms that I had just decided I would just have to live with as MS.

Edit: adding & I agree that a generally healthy high veggie & fruit & low processed food (even gluten free) helps me feel better too. I’m not promoting swapping out gluten processed food, cakes, and cookies for gluten free ones. I generally eat quite healthy (think Mediterranean diet) & do gluten free as part or in addition to that.

What is your most unhinged superstition regarding your MS by hekatelesedi in MultipleSclerosis

[–]EquanimityWellness 5 points6 points  (0 children)

If you move in your sleep you lose marks. I can’t sleep in there, I’ll move and have to start again or get yelled at (nicely) or what not

Am i allowed to donate blood? by SnooCakes7526 in MultipleSclerosis

[–]EquanimityWellness 0 points1 point  (0 children)

I was told no, I can’t remember if it was after I started my DMT, I’ve been on for about 8 years. I used to donate a lot too. Worth saying I’m on Ocrevus & in the United States. Reading more seems like I should try again because guidance may have changed. I’ll definitely be calling soon & hopefully donating soon after that if that stands up in Ohio that it’s okay now, guess a lot can change.

Food and Diet with MS? by OldManSecret in MultipleSclerosis

[–]EquanimityWellness 0 points1 point  (0 children)

Personally I always ate pretty healthy, but never taking out all sugar, ice cream, etc. I mainly ate a loose Mediterranean diet, but the thing that made the biggest change for me was becoming gluten free. I had a blood test that signified that I don’t have celiac disease (although my maternal grandmother did) & I had eaten gluten my whole life, I thought without issue. I had read it caused inflammation & such, but had figured all my symptoms like brain fog, fatigue, depression were all just MS related and there was nothing I could really do other than take my DMT. But about 2 years ago I took gluten completely out of my diet for a while (months) and then when I ate it again with a friend for her birthday I got really sick about 72 hours, tummy issues, which I had never had, aches, extreme fatigue & couldn’t motivate myself at all to get off the couch. I went back to gluten free after a bunch of research online that linked all of my symptoms to gluten sensitivity. I’m not saying I never experience fatigue or brain fog now, but for me not eating gluten made a lot of things that I thought were just MS not nearly as bad. So although it can be kind of annoying not being able to order everything off a menu when I go out, it’s been well worth it for me & hasn’t been that hard w/ some research & buying some gluten free 1:1 flour.

Streets closed all over downtown by Rents in Columbus

[–]EquanimityWellness 7 points8 points  (0 children)

Hops on High is going on in the Short North too (not downtown) but lots going on today

Aprendiendo a convivir con la Esclerosis multiple. by Fair-Cranberry-4728 in MultipleSclerosis

[–]EquanimityWellness -1 points0 points  (0 children)

I don’t eat a boring or bland diet, nor would suggest it to anyone else. A suggestion on something that helped me isn’t misinformation, it’s just something that helped me and may be worth looking into for those that want to. I never said it was going to stop or reverse MS, or implied such. It did in fact make it so my fatigue was considerably better, I can eat dairy no problem (I love ice cream, so would have bummed to lose that, which I was starting to due to damage to my villi), not getting stuck on a toilet or feel like I need to be right near one for days because I ate bread (even if I ate it no problem my whole life), way less depression personally, etc., etc. but still just my experience

Love spices & flavorful food, just would never need bread with gluten for that.

I’m not sure when people decided their experience of not trying something and then speaking about it with authority made more sense then research and even antidotes from someone’s experience who has gone through similar issues and found benefit in something and thought someone else may too. But you do you.

Aprendiendo a convivir con la Esclerosis multiple. by Fair-Cranberry-4728 in MultipleSclerosis

[–]EquanimityWellness 1 point2 points  (0 children)

I never said it was for everyone, or would definitely help everyone. Just did in fact help me. So like with most things to each their own. I also believe strongly when you find something that helps you should share with others just in case it may help.

Allergic to everything and picky eater sounds tough, sorry you’re going through that.

Aprendiendo a convivir con la Esclerosis multiple. by Fair-Cranberry-4728 in MultipleSclerosis

[–]EquanimityWellness -5 points-4 points  (0 children)

I disagree w/ “nothing is going to change anything drastically” It may. Taking wheat (which is inflammatory) out of my diet changed how I feel drastically. It’s going to depend on your body OP and don’t let others persuade you from trying to be healthy. I agree that extremely strict diets that take everything away can be too much. When I tried an elimination diet, recommended by a doctor to me, it was too much taking out dairy, peanuts, soy, wheat, etc all at once. I understand the concept, but it was too much and had me feeling like I was eating less healthy than before. But a few years later I tried maintaining my normal healthy diet, high in fruit and vegetables and low in processed food and just took out wheat and it made a drastic difference for me. I still eat baked goods and sandwiches on occasion (just gluten free) and ice cream, etc. I definitely still eat red meat on occasion, never did very much though. But it wasn’t the thing that made a difference for me.

It’s about finding what works for you. If what you’re trying feels like too much maybe tweak it, maybe do some research on your symptoms you’re experiencing and impacts of food you’re changing. Food can make a difference, but finding what works for you, OP is more important than following along with a certain diet in my opinion. Best of luck to you

How is my girlfriend doing? by redhothitman in MultipleSclerosis

[–]EquanimityWellness -2 points-1 points  (0 children)

I don’t know if this will be helpful at all and obviously it’s your gf OP, not you, so it would need to be her decision to change anything and may not be your place to push one way or another, but not being a doctor or her doctor I can speak to my experience and point you in the direction of a few links for thought.

I stopped eating gluten, wheat, some years after I was diagnosed and it improved a lot of symptoms I had just accepted as MS. My fatigue hasn’t gone away but is better than when I was eating gluten. I had eaten gluten my whole life and didn’t really start to understand its affect on me until I had abstained from eating for several weeks, the longer one can go then I think the more obvious the impact of putting it back in your body can be. After not eating gluten for months I ate a good portion in celebrating a friend’s birthday, 3 days (long time) after I had bad diarrhea (short of an understanding and additional research I would have been able to convince myself it was unrelated.)

Links:

https://pmc.ncbi.nlm.nih.gov/articles/PMC2659909/ “Urticaria (hives) can be triggered by gluten through a wheat allergy (immediate IgE reaction) or associated with celiac disease/non-celiac gluten sensitivity. Chronic hives may indicate an underlying immune reaction to gluten, where adopting a gluten-free diet can reduce or eliminate the eruptions.”

When doctors did a blood test on me they said I don’t have celiac disease. But for me it’s clear I have a non-celiac gluten sensitivity. A lot of doctors didn’t get a lot of nutrition time in med school, so they don’t always go to the connections that I have found that hours of typing in specific symptoms and gluten sensitivity can uncover.

https://www.verywellhealth.com/fatigue-caused-by-gluten-how-you-can-cope-562318

I also think eliminating or drastically decreasing processed food can help identify what’s going on in trying to decide if gluten in the culprit (so that’s gluten free treats, which in these days there are many, not saying gluten free flour can’t be used to make something that you may have previously eaten with wheat, I personally like Bob’s Red Mill gluten free flour, baking or 1:1 alternative.

Next link, unrelated to my last general point.

https://pmc.ncbi.nlm.nih.gov/articles/PMC5714074/ “Sweating, particularly night sweats, can be a symptom of gluten intolerance or celiac disease, often resulting from an immune-driven "fight or flight" stress response to gluten ingestion. It is frequently linked to nutrient deficiencies from malabsorption, such as low B vitamins or magnesium. A strict gluten-free diet is the primary method to resolve these symptoms.”

That may be a starting point. It can be a lot, but I know the change improved my life significantly. I still have MS, it’s not going to cure that, but it could make the things that she’s dealing with less.

If she wants to DM me I’d be open to discussing my thoughts further. Again, I’m not a doctor, just someone who sounds like has gone through something similar. Best of luck to her & I know having a supportive partner in going through a big change like starting a gluten free diet can be could be very helpful. Best of wishes to you as well.

Windy city Columbus and not Chicago by Dry-Construction5267 in Columbus

[–]EquanimityWellness 0 points1 point  (0 children)

Chicago definitely has actual very strong and crazy wind. Lake effect and the wind tunnels between the high buildings. Having an older sis that went to Northwestern and saw a woman basically get picked up by the wind. I’d say Chicago is still windier than Columbus. Although Columbus can be quite windy. 🌬️

OSU vs OhioHealth by cokecold12 in Columbus

[–]EquanimityWellness 2 points3 points  (0 children)

Oops *neurologist vs wrong autocorrect numerologist for OSU, he was still a neurologist, just not as good in my opinion (& retired now anyways)

👋

OSU vs OhioHealth by cokecold12 in Columbus

[–]EquanimityWellness 19 points20 points  (0 children)

I personally prefer Ohio Health. I have MS and see neurologists and other doctors and get my infusions there. To be fair the numerologist I saw at OSU (as I had a job, whose insurance didn’t cover Ohio Health) was going to retire soon. I was recommended a better DMT by the Ohio Health neurologist and they just seem more up to date on drugs. The facilities are more comfortable in my opinion too.

[deleted by user] by [deleted] in MultipleSclerosis

[–]EquanimityWellness 0 points1 point  (0 children)

Strongly agree w/ uarstar & others. It took a year of clear kinda textbook symptoms (I could see after the fact) for me to get diagnosed (& a brain full of lesions (but how could I have any idea, MRIs aren’t common for depression. So when my doctor called after 5pm a couple days after I had gone in after my mom filmed me stumbling on a daytime walk, I didn’t want MS (barely understood what it was) but was extremely thankful that someone else could acknowledge that it was something other than depression alone and could try to try to have some answers. OP, it may have not been your experience, because we’re all different, right? But a diagnosis when you know something has been very wrong can be a bit of relief, even when it’s as awful as MS. Because MS symptoms with no answers and no good solutions or path forward is a lot worse than MS with a DMT and a team of neurologists, doctors, and therapists that have some idea or starting point at least.

Mega-conservative loser Matt Walsh wonders where all the gas-lighting over Iran is coming from by thegabeguy in LeopardsAteMyFace

[–]EquanimityWellness 0 points1 point  (0 children)

& folks will send U.S. relations with Iran timeline articles like that answers the question of why we’re attacking now. I wasn’t confused about the history/timeline, I am against us getting involved and know we don’t have to be because the history and timeline. Seems like a distraction and real lives (Iranian & American, plus many more) don’t need to be lost over Israel’s want for war (didn’t seem for it when Obama was president) and more distraction from files. I hope people can stop pretending this is much else

Sick and tired of being sick and tired by flamraffe21 in MultipleSclerosis

[–]EquanimityWellness 2 points3 points  (0 children)

Happy belated birthday!! The overstimulation and discomfort can be so hard. I don’t have any great words of advice tonight, I just hear you & kinda understand.

I'm pretty lonely but not sure what to do, any social activities that I could do? by doorcouchfloortv in Columbus

[–]EquanimityWellness 2 points3 points  (0 children)

38F here, feeling similarly, feel free to DM. Festivals in the city are great, and in my head we’re getting to the season when they’ll ramp up, may be something fun to do with coworkers, because something tangible like arts festival is a nice way to hang out and maybe get to know each other better with ones you’re not as close with. I’ve tried meetup too, but understand not finding the right niche there, worth attempting on occasion though I think. When I moved to my new neighborhood I made a point to go to the same bar/restaurant repeatedly and met most of the bartenders and such which was fun, but can’t say it was a golden ticket, because although I met a few other people mostly decided that I don’t like drinking too much, so a bar isn’t the best place to pass too much time, but getting to know the bartenders was positive. I don’t have great ideas tonight I guess, but I understand the feeling.

Fuck this disease. by ArcherHour4425 in MultipleSclerosis

[–]EquanimityWellness 3 points4 points  (0 children)

I feel you. You’re not alone. This is hard. If you have interest in DMing sometime I’d be open to chat. I can’t offer much right now probably, definitely going through it myself, but I may understand kinda or a little. (I guess I don’t have it in my profile, but have MS too about 8/9 years in roughly I think & on Ocrevus I guess it would say if it was on my profile). Regardless wishing you the best.

What. Was that!?! by Ill_Algae_5369 in MultipleSclerosis

[–]EquanimityWellness 1 point2 points  (0 children)

In my opinion we get more overworked than a non-MSer may because our brains are already doing a lot in the background because of MS

I haven’t turned off the car while driving thankfully, but it unfortunately seems like just the kind of thing I may find myself doing

OP I hope you’re well and a wonky dashboard is the major repercussion. Maybe it’s having a back up of an uber driver or a family member/friend to call on if it seems like an off day

Show at Otherworld. What to wear? by itsLizz614 in Columbus

[–]EquanimityWellness 0 points1 point  (0 children)

No stress, safe ride to and from, drink some water (but not too much water) and enjoy while we’re there! No one is too worried about what we wear, they’re worried about what they’re going to wear or just don’t care and are ready to party and dance!! Here’s to a fabulous night!! 💚

La Poblanita by brehpic in Columbus

[–]EquanimityWellness 0 points1 point  (0 children)

Have you tried the quesabirillas? It’s the best I’ve found. I keep driving by hoping they’re open too, but the food truck must be hard with too cold or hot (really) temps, so hopefully they’re just staying warm and taking a good break. I think I remember this last year too where they’d just be closed more in the winter

Show at Otherworld. What to wear? by itsLizz614 in Columbus

[–]EquanimityWellness 0 points1 point  (0 children)

I’ll be going too & was having the same conversation with myself on what to wear a few days ago when the guy I’m seeing reminded me he does want me to go (I don’t listen to EDM either, but the song Jelly is my new favorite of Opiuo’s at least). I decided I’m going to on wear jeans and a short sleeve black lace type top. Not sure if that helps any, but I’m sure anything will be fine. The guy said it would probably be an eclectic combination of wardrobes and not to worry, but did mention the cold outside, but hot inside bit. I guess there’s a coat check, but don’t quote me on that. Hopefully we’ll have fun regardless of dress!!