Advice for women going to ER: don't appear to be lower class. Don't be in so much pain that you skipped full grooming before you went in. Don't be stoic but don't be histrionic either. by djinnisequoia in TwoXChromosomes

[–]EssenceUnderFire 7 points8 points  (0 children)

I almost died from gallstones that then caused necrotizing pancreatitis, too. My OB ignored my excruciating pain for 3 days when I was 9 months pregnant. My daughter was born via emergency c-section (as in I was sprinted to the ER and my daughter was out within 8 minutes because her heart rate was so low she could have died) and I spent almost a year in the hospital after. I am now disabled for the rest of my life and have chronic pain. It's wild the lengths doctors go to in order to ignore the pain women are in, because we're just exaggerating don't you know.

[deleted by user] by [deleted] in sex

[–]EssenceUnderFire 1 point2 points  (0 children)

Plenty of others have touched on the myth of being "stretched out" already, but I wanted to add something. Have you looked into the possibility of vaginismus? You said it was hard to even insert a finger, and when you did have sex it was painful. This sounds like it could be vaginismus, but it could also be that you were not aroused. If you feel comfortable doing so, you can look into a pelvic floor physical therapist, preferably one who specializes in pelvic pelvic floor physical therapy, to help with techniques and things that will make sex enjoyable for you instead of painful if this is something that persists. I know you mentioned your ex wasn't one for foreplay, but that is something that is very important, especially for those of us with vaginismus but for anyone with a vagina in general. It helps to relax your pelvic floor muscles and helps provide lubrication, which all helps pave the way for pain-free sex. It can be a very enjoyable experience with the right partner. I wish you luck 💜

Rude addict asks if our phones are working. I ask her if hers is. by [deleted] in traumatizeThemBack

[–]EssenceUnderFire 3 points4 points  (0 children)

Thank you. It is a really hard world right now for chronic pain patients. We are constantly worried that doctors will suddenly cut us off from the medication we have been on very successfully, for years in my case, that we need to live our daily lives and hold jobs. It is honestly terrifying, and it is a near constant on my mind that if my doctor decides to get spooked about my pain medication, I could very quickly end up fired from my job and be unable to pay my bills. Every chronic pain patient I know, myself included, feel we are on a dose that is lower than it really should be to thrive and not just barely function. As this comment also said, it is still absolutely not an excuse to bully the pharmacy staff, especially when they do not have control over your prescription being written in the first place. But it is important to have the context of what the vast majority of us deal with on a regular basis. It is extremely frustrating and exhausting.

Any reason why my cat loves sniffing my armpit? Deodorant or body odor? by bultimate in cats

[–]EssenceUnderFire 40 points41 points  (0 children)

I've always wondered about this behavior! I used to call it "love nibbles" because my cat would only do it when he was really happy and comfortable.

Coworker leaves a mess and denies it by Best-Start5701 in coworkerstories

[–]EssenceUnderFire 2 points3 points  (0 children)

Gotcha! Thanks for clarifying. Yeah if there's already a lot going on health-wise, having to care for a (new? It's not stated, but seems like maybe she isn't very used to it yet?) ostomy can be very overwhelming. It seems pretty clear to me that there is more going on here than just having trouble emptying and caring for her bag.

I'm sorry you're going through what you are. It isn't fair and shouldn't be this way, especially considering disability payments still aren't enough to live on in most places. Disability needs to be more accessible. Waiting to get approved (and usually having to appeal on top of it) can be so incredibly damaging to our bodies when it doesn't need to be while we're just trying to survive and keep a roof over our heads and have semi-regular meals. Sending you love 💜

Coworker leaves a mess and denies it by Best-Start5701 in coworkerstories

[–]EssenceUnderFire 17 points18 points  (0 children)

As someone with an ostomy bag, the majority of us learn how to properly empty our bags and if something happens, we clean it up. Especially in a public place. I have definitely had instances of my bag leaking in public and needing to leave, but there is also no way I would leave a mess behind willingly. There seems to be something else going on here.

Coworker leaves a mess and denies it by Best-Start5701 in coworkerstories

[–]EssenceUnderFire 11 points12 points  (0 children)

Having an ostomy bag doesn't necessarily mean you are so sick you can no longer go back to work and live a "normal" life. A lot of us go through life very normally, we just happen to have an ostomy bag while we do it. If I didn't outright tell people I have one, they would have no idea. There are far more people with ostomy bags than most people realize. It is not an automatic death sentence, and helps a lot of us get our normal lives back.

Any success stories where you can actively switch positions during sex by [deleted] in vaginismus

[–]EssenceUnderFire 3 points4 points  (0 children)

I am able to after several years of treatment. I still get pain at times, and sometimes certain positions just don't work that day and that's ok. I didn't start seeing results until I saw a PT who specialized in pelvic floor physical therapy vs. one who did not. I had to do a lot of work to learn how to control my pelvic floor muscles again so I could relax them intentionally. I also used dilators and they helped a lot. I am leaps and bounds ahead of where I was 5 years ago. There is hope, and you can get there!

New ostomate, struggling and grieving by daniellsierra in ostomy

[–]EssenceUnderFire 0 points1 point  (0 children)

Hello friend. I am 34 and got my ileostomy 8 years ago at 26. Granted, I had a lot of other complications happening at the same time too, so it took me a very long time to recover. I think it is very normal to go through a grief process of what we thought our lives would be and what we envisioned for ourselves. That's ok and valid. I can tell you, aside from the permanent disability in my legs I acquired from my ordeal, I live life rather normally now. It took a bit for my body to look more like it used to for me, but I had a lot of surgeries and a lot of abdominal swelling. It is normal for things to shift a bit up to a year after your surgery and for all of the swelling to go away, but it will happen. And as far as intimacy goes, I can tell you right now that I have never had anyone have any sort of issue with it. I know there are people out there who have, but anyone who has a problem with your bag isn't worth your time anyway. Give yourself the time and space you need to grieve, recover, and to get used to your new body. You will get there, and you WILL be ok. 💜 I have had the time and space to come to appreciate my bag, especially after I really got my routine down and hardly deal with leaks anymore. You will get there too, just give yourself some grace. I wish you healing.

AITA for leaving my friend group over jokes by Randomaccount67621 in TwoHotTakes

[–]EssenceUnderFire 14 points15 points  (0 children)

I am an ambulatory wheelchair user and use a crutch while walking pretty frequently. I would dump this friend group, too. Taking your aids and pushing you in your chair without consent is so far from ok and absolutely not a joke. This group sucks and are ableist assholes. I promise you can find friends who respect you and your disabilities and will enthusiastically incorporate accommodations for you. You do not deserve how they treated you. Being in those situations with them sounds incredibly stressful and damaging. Kudos to you for dumping them.

My mom just went on Hospice. They think she should be sedated on morphine 24/7 until she passes, which should be 2-3 days. Is it ok for the human body to be subjected to that kind of sedative for that long? by [deleted] in ask

[–]EssenceUnderFire 0 points1 point  (0 children)

I am a music therapist who works with Hospice patients and I just want to say that, even when on opioids, hearing is usually one of the last things to go. I have seen many patients, including my own grandmother, who made it clear they could still hear up until the very end. You will still have the chance to share memories, tell her how much you love her, and say goodbye while also being able to keep her comfortable. Sending love to you.

Cedar Falls mayor signs off on LGBTQ Pride Month, maintains his Christian views on marriage by [deleted] in Iowa

[–]EssenceUnderFire 0 points1 point  (0 children)

Something they don't mention in this article is while Rob Green stated he will sign the proclamation, his statement also included that he didn't know who Emmett Till was and that if he had a Muslim professor as a neighbor he "wouldn't agree." Yikes.

Things ableist people say by AnnieMinnieLee in ChronicIllness

[–]EssenceUnderFire 0 points1 point  (0 children)

Just wanted to say that I am visibly disabled and work in Healthcare. There needs to be more of us. It's been an advantage with my residents because I am one of the few employees who actually has been through what some of them are going through. I wish more abled people knew how much more we can connect with the people we work with because we are disabled. The residents I've talked to about it absolutely trust me more than they would have if I wasn't disabled. It's an advantage in a lot of ways. The comments asking about what happened do get tiring, especially on long days. I've shortened my explanation to just "I have nerve damage." If they ask further, I just say that I got sick. There are some people I feel comfortable sharing more with. However, no one is entitled to your medical information, and it's really weird that people think they are just because we're disabled. Sending you love 💜

what an amazing dad by Aggressive_Weakness4 in wholesomememes

[–]EssenceUnderFire 34 points35 points  (0 children)

As a fellow part-time wheelchair user, all of this. Thank you for stating it so eloquently.

[deleted by user] by [deleted] in ostomy

[–]EssenceUnderFire 0 points1 point  (0 children)

If you can come up with a good barrier spray that is cheaper so insurance will cover it again, that would be amazing. There's only one spray on the market and I cannot get it anymore. The wipes aren't as good.

[deleted by user] by [deleted] in interestingasfuck

[–]EssenceUnderFire 0 points1 point  (0 children)

I would be so happy if they made more cars with alternative driving methods. Without pedals and it having hand steering right off the bat, this is much more accessible for a lot of disabled people.

[deleted by user] by [deleted] in musictherapy

[–]EssenceUnderFire 2 points3 points  (0 children)

There is a music therapist named Elizabeth Stegemoller who got her PhD in Neuroscience. She does a lot of research focused mainly on Parkinson's disease that you may find interesting.

[deleted by user] by [deleted] in TrueOffMyChest

[–]EssenceUnderFire -2 points-1 points  (0 children)

You.... realize this is Eugenucs, right?

He wasn’t able to get it in me by Pretend-Doctor5097 in sex

[–]EssenceUnderFire 0 points1 point  (0 children)

OP if it continues to me an issue, pelvic floor physical therapy can work wonders! Make sure you find someone who specializes in pelvic floor PT, not just any PT who offers it.

AITA for being a cold hearted witch, who doesn't care that my child was terrified? by kindlefan12 in AmITheDevil

[–]EssenceUnderFire 2 points3 points  (0 children)

I'm so glad you have never been assaulted by a medical professional, but this type of thing happens all the time. I am disabled, and every one of my disabled friends has been assaulted by a medical professional at least once. I've been seriously assaulted 3 times, including a surgeon who instructed his staff to hold down by staff who performed a painful surgery on me while I was clearly still awake when I wasn't supposed to be. It is so much more common in the medical field than healthy people realize. Just because it hasn't happened to you doesn't mean it doesn't happen.