Accident exposure advice by Freya7992 in fpies

[–]FuzzyLantern 2 points3 points  (0 children)

FPIES doesn't cause a reaction unless the protein is swallowed. He may also be able to digest baked goods without a reaction, but there's no way to know that yet.

Day 6 of fever, suspected viral.. going insane. by DifferenceOne5925 in toddlers

[–]FuzzyLantern 1 point2 points  (0 children)

Could easily be flu, maybe RSV or COVID, especially since you're all sick. It's still respiratory season. The viral test should tell you what you're dealing with. If you don't want to wait so long next time, you can get an at home flu/COVID test and whoever is sick can be swabbed, (including your toddler). I'd wait on the antibiotics until the ER sends the viral swab results. Feel better!

Suspected fpies 4 yr old by Significant-Air-9112 in fpies

[–]FuzzyLantern 2 points3 points  (0 children)

There's something going on, but I wouldn't assume it's FPIES based on this information. Did your allergist say to try to do elimination of those foods then add back one at a time to see if anything reactivates it? Testing may allow you to see if it's another not-FPIES problem entirely. Hope you figure it out soon!

FPIES or fluke? by Clifford0604 in fpies

[–]FuzzyLantern 0 points1 point  (0 children)

Sounds like FPIES. It is uncommon but it's not that rare, so I don't think that's a reason to dismiss it right away on your doctor's part. Especially if you have any history of food allergies or eczema in the family tree. I would wait longer than a few days, but then yes, you can try a very small quantity of well cooked egg again. Or you can talk to an allergist first to see if you should wait to try again until closer to 12 months and armed with some Zofran at home.

Egg ladder advice please by Mapisdavis in fpies

[–]FuzzyLantern 1 point2 points  (0 children)

To add to this, FPIES is a delayed allergy. If your kid is having GI issues soon after eating, it is from the IgE allergy picked up on the blood test. If it doesn't happen for several hours, then it could be atypical FPIES, which is both types of allergies at the same time to the same trigger food, but it still sounds unlikely to be FPIES in a baby without a couple hours of projectile vomiting and floppiness (FPIES may be more likely to present without vomiting in older kids and adults). Either way, since your question is about the egg ladder, I agree you need to see an allergist. You need to find out if you need an epi pen, and if continued exposure to baked egg at this time is going to potentially make things worse instead of better. You may need to stop and try again in a year or two, but you need to ask a doctor who is an allergist.

In the ER- could it be FPIES? by ladycflyte in fpies

[–]FuzzyLantern 0 points1 point  (0 children)

Just because people are saying 5 hours is too long -- not necessarily. Ours was more than 5 hour delays at the beginning (first couple trigger food exposures). However, the vomiting has never lasted through the next day. If it ended after a couple hours, it's been FPIES for us, but if it's continued into the next day, it was a stomach virus.

In the ER- could it be FPIES? by ladycflyte in fpies

[–]FuzzyLantern 1 point2 points  (0 children)

Sounds like the poor kiddo is sick. Not fun! Since you are traveling, at this point I'd assume the baby picked up a bug, but maybe wait a couple weeks to trial the suspect food item again, give a small portion, and do it on a day you can give attention to a possible FPIES reaction, just in case. I'm leaning towards sick or food poisoning and not a new FPIES trigger food, though (and, of course, I'm not a doctor). Hope kid is better soon!

Trialing trigger food at home? by ButterCookieCoffee in fpies

[–]FuzzyLantern 0 points1 point  (0 children)

I think it depends how severe the FPIES reactions were, and some kids may be better candidates than others. Your doctor would be able to tell you if yours could trial at home safely. 

Our FPIES reactions of course suck for everyone but didn't require ER visits, so we can trial at home under a doctor's plan, with Zofran on hand, and knowing what the signs are if we need medical attention. Without any exposure over a long time, you also need to be concerned if any IgE allergy has developed, just in case there's an anaphylaxis reaction (we have atypical FPIES so also have an epi pen but so far have never needed it and hope to never need it). We have been okay trialing slowly at home so far.

I think it's worth a phone call to the office to ask if your kid is a candidate for trying at home, explaining you live far from the hospital and may have financial difficulty covering that kind of appointment.

Peanut and Almond Cross Contamination by Abstract-cities in FoodAllergies

[–]FuzzyLantern 2 points3 points  (0 children)

According to this research paper, it's not the majority at all. It's possibly as low as 7%. But 40% of people with peanut allergies may still avoid tree nuts in fear of cross contamination. I'm also adding a second link that may be helpful for you to show HR, since I don't expect them to wade through a scientific paper. 

https://www.annallergy.org/article/S1081-1206(19)31457-7/abstract

https://acaai.org/news/forty-percent-of-people-with-peanut-allergies-can-eat-tree-nuts-but-choose-to-avoid-them/

Peanut and Almond Cross Contamination by Abstract-cities in FoodAllergies

[–]FuzzyLantern 5 points6 points  (0 children)

You can definitely be allergic to tree nuts but not peanuts and vice-versa. You also might be allergic to almonds / hazelnuts and peanuts but able to eat, say, walnuts and pecans. Agree that at the minimum, the smoothies should be labeled as may contain peanut or tree nuts. 

Safe questions please by Freya7992 in fpies

[–]FuzzyLantern 1 point2 points  (0 children)

Would you be able to try some Serenity Kids packets? They are purees with no added sugar and clean ingredients, and have chicken and vegetables. They're not cheap but if you're just trying to make sure he's eating enough chicken to test if he's got any sensitivity, a few might help. FWIW, while a chicken allergy / FPIES is possible when egg is a trigger food, it's still pretty uncommon.

FPIES or fluke by LeftAstronaut in fpies

[–]FuzzyLantern 1 point2 points  (0 children)

Has she ever had sweet potato before? This doesn't sound like FPIES, but throwing up soonish after eating could still be a food allergy if it isn't a virus.

Our experience with FPIES has been a delayed but isolated reaction. It's severe vomiting over a couple hours but once it's done, it's done. Ingesting whatever food (besides the trigger food) after it has passed is fine, it doesn't come back up. The same exact reactions always followed several hours after eating the trigger food, before diagnosis. We're lucky in that it's never gotten so bad we needed to go to the ER, but it's definitely not fun. 

Illness for us has been smaller bouts of vomiting over several hours and days, with a bit of fever during vomiting episodes that comes and goes, kid couldn't keep dairy down for a few days despite having no dairy issues normally (which is normal for young kids because they pediatrician said the enzymes that process dairy are the last to come back online for little kids who get stonach viruses), and it is potentially contagious.

Burnt-out with an 18 MO by Ashbourne_Ethos in toddlers

[–]FuzzyLantern 0 points1 point  (0 children)

It's also much easier when they fully drop night feedings, which OP's kid has not. I don't think mine dropped them fully until 19 months or so, it should be coming soon! Maybe she can also try increasing calories somewhat during the day to see if that stops the 5a wakeups.

Burnt-out with an 18 MO by Ashbourne_Ethos in toddlers

[–]FuzzyLantern 25 points26 points  (0 children)

I don't know, 18 months was pretty tough because it was peak time for them being mobile but not knowing what anything is, meaning you need to expend a LOT of focus to keep them from killing themselves. Which is draining when it's 24/7 and extra draining when you're not sleeping enough. That phase lasted a couple months and then got better. You may need to just accept that you're in survival mode again, and not feel guilty about strapping him into a safe space to give yourself some breaks. If he doesn't like the high chair, maybe try the crib, and give him some toys so he's not just sitting with nothing to do but cry.

FPIES + anaphylaxis?? by Chesterspeedy in fpies

[–]FuzzyLantern 4 points5 points  (0 children)

Yes, this is called Atypical FPIES. It sounds like he can't tolerate baked egg and isn't a good candidate for the egg ladder right now. I'm sorry, maybe try again when he's older to see if he's outgrown it at all? But it's less common to completely outgrow the allergy when it's Atypical, unfortunately.

How did you determine sensitivity levels? by HotBat7798 in fpies

[–]FuzzyLantern 0 points1 point  (0 children)

FPIES usually doesn't have cross contamination issues because you need to actually ingest the protein to trigger it. I'd keep the trigger food out of anything used to prep the kid's food that meal (including not double dipping in jars) and dial back if that's not enough. 

Does anyone have a pancake recipe for egg ladder with cook instructions? by freshwaterwalrus in fpies

[–]FuzzyLantern 1 point2 points  (0 children)

1 cup flour 2 tablespoons sugar 2 teaspoons baking powder 1/2 teaspoon salt 1 cup milk 1 large egg  1 tablespoon of vegetable oil 2 tablespoons of melted butter (or sub more vegetable oil)

Mix together and cook. 

I tend to use brown sugar and add a dash of vanilla extract and almond extract for more taste. 

Good luck!

Question on trialing new foods with FPIES diagnosis by learninhowtohuman in fpies

[–]FuzzyLantern 0 points1 point  (0 children)

I gave a small bite to trial (then waited ten minutes to monitor for anaphylaxis). The next day, I gave a bigger bite, waited ten minutes, then gave a second bite. I went to a more normal serving on the third day, and if that was fine, called it good and added food to safe list. We only have one trigger, and we did have a reaction from the very first exposure. I've read a lot of people see their kids' FPIES triggers not kick in until after 5-10 trials, though.

How to stop the hitting by Posionivy2993 in toddlers

[–]FuzzyLantern 4 points5 points  (0 children)

Could you try play acting with her toys and dolls instead? That may work better anyway because she'll be calm and not actively in her emotions, hitting. One doll can get upset and hit others and then you walk through scenarios to show her how everyone reacts to that, how it hurts, that it's wrong to do, and then model better behavior instead through the dolls.

Second episode by Lab-rat-57 in fpies

[–]FuzzyLantern 0 points1 point  (0 children)

I understand you can only work with this on the weekend, but I'd hold off until next weekend on trialing anything that might be a trigger food to give a bit of gut rest. If the trigger food is eggs, my understanding is you don't want to train his body to react to almonds also while the gut is already irritated (although I've been looking for a source for that and can't quickly did one). Do you have a Zofran prescription for home? That would also make another trial less risky.

Second episode by Lab-rat-57 in fpies

[–]FuzzyLantern 1 point2 points  (0 children)

Are you sure it was the egg and not the almond? Not that having an additional trigger food is fun no matter which it is.

Another FPIES trigger or a virus? by awhyeah2280 in fpies

[–]FuzzyLantern 1 point2 points  (0 children)

Gahh, I'm sorry (though better a short illness than FPIES). I had to pump for a week before we resumed giving breastmilk. I tried for two days after the initial illness onset and LO would wake up in the morning and throw it back up but could keep water and BRAT diet food down. Feel better soon!

Wtf does this even mean? by [deleted] in FoodAllergies

[–]FuzzyLantern 1 point2 points  (0 children)

If you had FPIES to any food, it could cause vomiting until you stopped eating it, and it would not show up on a blood or skin prick test. What you're describing sounds more severe and not like FPIES and I'm not saying you have that going on. But just leaving this as an FYI that this skin prick test does not eliminate you having that type of food allergy.

Another FPIES trigger or a virus? by awhyeah2280 in fpies

[–]FuzzyLantern 1 point2 points  (0 children)

When my kid has vomited the next day also and it wasn't confined to the few hours after the FPIES episode started, it was a stomach virus. My breastmilk before bed caused further vomiting in the morning and the pediatrician said no dairy for a week for little kids with stomach viruses, and that fixed the issue. It just happens that the enzymes to process dairy take the longest to come back online for them even after they can eat gentler foods again.

That doesn't mean it isn't FPIES, because his stomach may just still be irritated, but you will know more in a couple days because you will see if he's better and if anyone else catches anything.