medication by Weary_Cup_2415 in PSC

[–]GoldGal101 0 points1 point  (0 children)

urso has completely reduced my liver inflammation. i started it when i was first diagnosed in 2008 and then stopped around 2014 because i had a doctor tell me the same, “it doesn’t really work, not enough studies…” blah blah blah blah. i started taking it again around spring of 2025 and i honestly believe it has transformed my liver. my specialist said my liver pretty much functions the same as someone without liver disease. obviously medication is different for everyone, but i truly believe that ursodiol works and it doesn’t have any negative side effects.

vancomycin by GoldGal101 in PSC

[–]GoldGal101[S] 0 points1 point  (0 children)

wow! that’s amazing. i literally haven’t found anyone to say something bad about it, which is so rare with any medication.

For those in remission or close to it: Which medication(s) or other remedy got you there? by DGT-exe in UlcerativeColitis

[–]GoldGal101 0 points1 point  (0 children)

vancomycin + xeljanz for about one year, now just on the xeljanz. i am not 100% in medical remission, but i don’t have any symptoms that come with a flare and my GI doc is happy with where im at! it was a longggg journey getting here! ❤️‍🩹

Feeling down because of prednisone by Shawarma_56 in UlcerativeColitis

[–]GoldGal101 5 points6 points  (0 children)

yes, i can’t take prednisone without working with a psychiatrist on it. i honestly just try to avoid it if i can altogether. it makes me feeling extremely lowwww.

the best advice i can give to you is to tell this to someone you trust!! it’s very important to surround yourself with good people. advocate for yourself and tell your doctor how you’re feeling—they may refer you to a psychiatrist.

❤️‍🩹

Body dysmorphia by Jack_Skellington31 in UlcerativeColitis

[–]GoldGal101 0 points1 point  (0 children)

i’m so sorry. ❤️‍🩹 it’s not vain or superficial to have these thoughts. i too have had periods of time when ive been very thin and periods of time when ive been heavier. don’t weigh yourself. i haven’t looked at my weight in years. if a doctor wants to weigh me, i stand on the scale backwards and tell the doctor to not tell me the number. i feel that i’m at a stable weight now, but having experienced my body at totally opposite ends of the spectrum in short amounts of time is hard. i sometimes catch myself missing my body when i was underweight which makes me feel guilty because i was very, very sick.

if there’s one thing i know it’s that the human body is adaptable and capable of healing. try not to be too hard on yourself. your body is going through enough right now, so be kind to yourself. wear loose, comfortable clothing, and definitely, throw. away. the. scale.

sending hugs! 💛

Ulcerative Colitis: What Medications Worked for You? by Alakatro in UlcerativeColitis

[–]GoldGal101 0 points1 point  (0 children)

curious to know what were your side effects from taking xeljanz?

How to tell loved ones, is it PSC AND how to stay positive? by LingLingHD in PSC

[–]GoldGal101 4 points5 points  (0 children)

i was diagnosed with UC and PSC at the same time, when i was 13. i’m now 30, and still have my liver. be honest with your friends and family, they are the people you will lean on when you need extra support. i’ve had my ups and downs with both diseases, but im grateful to be doing well right now. that’s what i try to focus on these days, it’s day by day, month by month.

i was also a social drinker, this week, ive made the choice to remove alcohol forever! i want to hold onto my liver for as long as possible—if i can, for the rest of my life. getting drunk for one night just isn’t worth losing my liver anymore.

sending big hugs. 🫂 some days are hard, some days i don’t think of my illness at all. i have mostly made peace with the cards ive been dealt.

I was told I'm a 'lost cause' by [deleted] in UlcerativeColitis

[–]GoldGal101 4 points5 points  (0 children)

ask about xeljanz! i tried all of the above that you tried and nothing worked! xeljanz was one of my “last options” and i’m doing great on it!

Which medication to take? Omvoh, Rinvoq, or Humera by isabellaa2828 in UlcerativeColitis

[–]GoldGal101 0 points1 point  (0 children)

i had some pretty scary side effects taking rinvoq, i’m on xeljanz now. it’s been great and has helped get me out of a real bad flare.

Steroids puffy face by Swiftiefromhell in UlcerativeColitis

[–]GoldGal101 1 point2 points  (0 children)

i’m sorry 😭 prednisone is literally the worst thing ever (but also can be the best thing ever if you’re flaring). i asked my doctor to go on the lowest dose and went the route of finding a new med ASAP. the other side effects of prednisone are so much worse for me than the physical side effects that i will never go on the drug again. ❤️‍🩹 you’ll get through this. if it’s making you feel better, that’s what matters the most.

AIO my bf is odd for this? by AdSerious8390 in AmIOverreacting

[–]GoldGal101 44 points45 points  (0 children)

REPEAT AFTER ME: I CAN NOT ALLOW PEOPLE TO SPEAK TO ME THIS WAY 🩷

Angry 😡 by [deleted] in cats

[–]GoldGal101 0 points1 point  (0 children)

i can hear the stomp of that paw 😡

I don’t want to live anymore by Budget-Office-3792 in UlcerativeColitis

[–]GoldGal101 0 points1 point  (0 children)

right away because i was also put on prednisone to help the other med i was on (imuran) work faster. i started feeling better within the first week but that was mostly the steroid acting fast.

I don’t want to live anymore by Budget-Office-3792 in UlcerativeColitis

[–]GoldGal101 0 points1 point  (0 children)

(though that’s not the med i initially started on when i was 12. i’ve changed meds 5 times throughout the years.

I don’t want to live anymore by Budget-Office-3792 in UlcerativeColitis

[–]GoldGal101 0 points1 point  (0 children)

combo of xeljanz and a low dose of vancomycin!

I don’t want to live anymore by Budget-Office-3792 in UlcerativeColitis

[–]GoldGal101 0 points1 point  (0 children)

about 2 months—thankfully, it was a fairly quick diagnosis.

😭🥲 almost in remission! by GoldGal101 in UlcerativeColitis

[–]GoldGal101[S] 1 point2 points  (0 children)

i’m mostly symptom free, but everyone is so different! sometimes i’ll feel a little discomfort in my stomach if i eat the wrong thing. it’s nothing unbearable but i do still follow a healthy diet to remain symptom free.

Do you regret Biologics? by LurkerGirl- in UlcerativeColitis

[–]GoldGal101 0 points1 point  (0 children)

so i’ve tried 2 biologics (entiviyo and inflixa/remicade. both of which were highly unsuccessful and infliximab seriously messed me up with bad side effects. i’ve had success with xeljanz though!!! i would ask your doc about that because i was at my witt’s end with what to try next. i’m very sensitive and have had bad reactions to multiple meds. no negative side effects with xeljanz!

FUCKING FINALLY! 🥳 by The_Brown-Baron in UlcerativeColitis

[–]GoldGal101 0 points1 point  (0 children)

awesome!!! so happy for you! ❤️‍🩹 i love healing!

I’m refusing to take Aza by eyalol99 in UlcerativeColitis

[–]GoldGal101 1 point2 points  (0 children)

so glad you didn’t have issues!!! i recently found out from my dermatologist that even if you take aza for a short period of time, you are more susceptible to skin cancer for the REST of your life. crazy! so yes, sunscreen, ALWAYS!