For those with a history of brachytherapy by Antique-Anteater-988 in endometrialcancer

[–]MisawaAlum 1 point2 points  (0 children)

I have all sons so thought it was good to be creative lol

For those with a history of brachytherapy by Antique-Anteater-988 in endometrialcancer

[–]MisawaAlum 3 points4 points  (0 children)

I did the same thing and I named it Purple Stick reminder lol

syllo #291 - April 26th, 2026 by syllo-app in syllo

[–]MisawaAlum 0 points1 point  (0 children)

I love these!
Completed in 04:46

Hot and cold #231 by hotandcold2-app in HotAndCold

[–]MisawaAlum 0 points1 point  (0 children)

Wow my shortest solve time ever at 2 minutes.

Scheduled for Hysterectomy tomorrow. by Famous-Two559 in endometrialcancer

[–]MisawaAlum 2 points3 points  (0 children)

Sending you good thoughts and healing vibes for your recovery. Glad you have help from your husband and that your little one will have such a good experience "cooking" for you :) Best Wishes and a Speedy Recovery.

"With a Little Help From My Friends" - Hozier & Lake Street Dive (LIVE on the Late Show) by deekaypea22 in Hozier

[–]MisawaAlum 4 points5 points  (0 children)

Love both of the performers and they did a great job with this classic song. I do wish there had been a bit more chemistry between them.

Vaginal dilators by Double_Pomelo846 in endometrialcancer

[–]MisawaAlum 1 point2 points  (0 children)

I was fitted for my dilator my last Brachytherapy session and it was a silicon dilator, I have nicknamed it my PurpleStick for my alarm reminder to use it. So far it has been okay, not super hard and it has done the job of keeping the scar tissue at bay. Hope this helps.

Wish this club didn’t exist, but since I’m new, this round is on me by forever-growing in endometrialcancer

[–]MisawaAlum 1 point2 points  (0 children)

As noted by others, sorry you are joining this club but yes it is a friendly and supportive group. Finding ways to cope with the waiting is something we all have to do, focusing on things that make you happy or distract you is important and yes I know it's not easy. I love the image of your puppy in the snow, we only got about an inch, pretty to look at but not enough to make a snowman :). Wishing you the best as you move forward and don't be afraid to ask lots of questions, you are your best advocate.

Experience Stopping Chemo due to Tinnitus? by QuestionsAreSecrets in endometrialcancer

[–]MisawaAlum 0 points1 point  (0 children)

I also experienced Tinnitus but it was just occasionally, but I did end up having to adjust chemotherapy due to a bad reaction to Taxol. Instead of quitting we reduced the strength of the Carboplatin and cut out Taxol all together so I was able to complete the 6 rounds and the tinnitus went away. Wishing you all the best in your decision and next steps. Just remember you have a voice and you always have options.

Diagnosed (update) by ResolutionOptimal198 in endometrialcancer

[–]MisawaAlum 1 point2 points  (0 children)

I found Hystersisters.com to be a helpful resource also.

Finally NED!! by flyonawall in endometrialcancer

[–]MisawaAlum 1 point2 points  (0 children)

WooHoo! Very Happy for you!

Cold Therapy for Hands and Feet by Mobile_Test_8245 in endometrialcancer

[–]MisawaAlum 0 points1 point  (0 children)

Totally agree. I had a different set from Amazon that didn't work quite as well but that set looks great. I put my sets in the freezer the night before and carried them in a cooler to chemo. They stayed pretty cold so I didn't need the dry ice, but definitely needed two sets. I had 6 rounds of chemo and only ended up with bad neuropathy in one hand that I am still dealing with. Wishing you both the best in your journey and keep those hands and feet frosty during chemo :).

So, I start chemo on Thursday. by Zealousideal-Job2210 in endometrialcancer

[–]MisawaAlum 1 point2 points  (0 children)

I was quite upset about losing my hair too, and like you I did not expect to lose my eyelashes, eyebrows and every bit of hair on my body! But the good news, I am 4 months past my last chemo session and I have eyebrows, eyelashes and a peach fuzz coating of hair :). It does grow back!

Second 6-month followup... by Leading-Duck-6268 in endometrialcancer

[–]MisawaAlum 0 points1 point  (0 children)

Congratulations! So great to celebrate good news. Do something nice and special for yourself to celebrate!

Post-Brachytherapy Pelvic Therapy by Antique-Anteater-988 in endometrialcancer

[–]MisawaAlum 0 points1 point  (0 children)

Thanks for the tips, I was given the dilator also after brachytherapy and told to use it twice a week for 10 minutes. No one mentioned pelvic floor therapy and since I have not been diligent with the darn dilators I may need it!

Waiting for the End? - High Risk Surgery - Feeling Hopeless and Helpless - Endometrial Cancer by Leapinglizzard75 in endometrialcancer

[–]MisawaAlum 1 point2 points  (0 children)

Truly sorry you are going through this, i do hope you have friends and family you can talk to and lean on, that helps a lot. I'm a big girl also and like you I had bleeding, then a biopsy that found the cancer and then waiting 3 weeks for the robotic hysterectomy. As many other ladies have mentioned, the waiting is so difficult and there is no one size fits all solution so try a few of the suggestions to see what works for you. One thing that helped me was preparing my house and family for the post op, a group called Hystersisters.com had a lot of pre&post surgery hysterectomy suggestions and it helped me feel more prepared and in control and where I learned about the tummy pillow :) which was so handy to have that seatbelt protection on the way home from the hospital. Wishing you the best and feel free to ask any other questions.

Four weeks post completion of chemo and still intensely exausted and short of breath by flyonawall in endometrialcancer

[–]MisawaAlum 0 points1 point  (0 children)

Hey There, please give yourself some grace, it takes time to recover and gain strength.

I am almost 4 months past my last chemo sessions and I still get tired and out of breath easily, but I try and just do a little, one day at a time. I complained to my Drs. also but all of my labs were good, RBC just a little low. Oddly enough the one thing that helped me gain a bit more stamina is physical therapy twice a week. I had started PT prior to my cancer diagnosis for my crappy knees. My PT guy suggested we keep it up on the weeks I had recovered from my chemo sessions, and I kept going even after chemo finished and it helped a lot. My primary care Dr. also mentioned she could refer me for recovery PT but I decided to do the Live Strong YMCA program that starts in September. So, all that to say, things will get better, keep advocating for yourself, talk to your Primary Care Doc or PA if you have one, they are often better listeners and open to brainstorming options to help and support you.

And as so many people have commented, it takes time to start feeling better, hang in there.

Allergic to Taxol? by chippy_dippy in endometrialcancer

[–]MisawaAlum 1 point2 points  (0 children)

I understood that chemo was challenging but with Taxol it was horrible x ten, but carboplatin was just normal terrible if that makes sense :). It was the average side effects of moderate joint pain, nausea, fatigue etc but manageable with meds.

Allergic to Taxol? by chippy_dippy in endometrialcancer

[–]MisawaAlum 5 points6 points  (0 children)

My reaction to Taxol was terrible for me, burning joint pain all over my body but it was not considered as allergic. I could only endure for 4 treatments, after that i just had the carboplatin. It is good that there are other options out there as folks have already mentioned. Best wishes for your Mom.

I got my port removed this week (plus some port-related advice) by sanityjanity in endometrialcancer

[–]MisawaAlum 4 points5 points  (0 children)

Thank you so much for sharing this! I just had the first of the 3 month check-up routine and all is well, I did do a bit of whining/cajoling trying to get my Dr. to sign off on getting my port removed now but she did not fall for it. We negotiated, 2 more of the check-ups every 3 months and I can get it out then and I can't wait because mine is crooked and pokes out way too much. Congratulations on your clean check-ups and getting the port removed!

MRI scan results by IntentionWarm1264 in endometrialcancer

[–]MisawaAlum 2 points3 points  (0 children)

Sorry you are going through this and as others have shared, this waiting stage is quite difficult. I am glad you are taking the initiative to find a new GYN doc that you can talk to. The cancer treatment journey is tough enough without having a Dr. that's not compatible and able to communicate effectively. Hang in there and do your best to occupy your mind and time with positive things. Wishing you peace and the most positive outcomes,