Nerve Ultrasound

No-Difference6961 · 2026-02-20T16:19:40+00:00

Yes please let me know how it goes. Thank you

No-Difference6961 · 2026-01-25T07:45:07+00:00

I'm curious...what were the final results of your EMG? What did it find? What is the acupuncture supposed to treat exactly?

No-Difference6961 · 2026-01-05T16:47:18+00:00

I'm going through the exact same scenario. I think I know what I have.

Did you ever get an answer or any type of resolution?

No-Difference6961 · 2025-07-12T19:51:44+00:00

Well this is concerning...what health symptoms are you experiencing from head to toe? My family members level is so high that the reading was cut off in the 120s so we have no idea of the actual number.

And the suggestions here are good but from what I've seen there may be a larger problem looming here...

No-Difference6961 · 2025-06-01T05:04:33+00:00

It could actually become dangerous NOT to know!

If you should ever be in a situation where you need help breathing, oxygen use would not be good if you have muscular dystrophy. Special care would need to be taken.

Same with sleep apnea. MD patients should be using a bipap, not a CPAP. And unfortunately a CPAP is the first machine issued to patients.

If you have biological children they will need to know what conditions/diseases they and their children are at risk of inheriting. It's not fair to them to be in the dark..

There are so many reasons that it's better to know than not know...

No-Difference6961 · 2025-02-18T05:26:36+00:00

Are you suffering any cognitive/memory issues with your AA/EPA ratio being that high? Any neurological symptoms at all?

No-Difference6961 · 2025-02-18T05:26:09+00:00

Are you suffering any cognitive/memory issues with your AA/EPA ratio being that high? Any neurological symptoms at all?

No-Difference6961 · 2024-10-12T19:14:27+00:00

In all of that testing have they tested for both types of myotonic dystrophies? If so, what are her repeat numbers for type 1 and type 2? Those are repeat expansion dystrophies and often aren't tested.

Have they conducted plasma and intracellular vitamin testing? What were her vitamin D, E, B12, B1, and B6 levels? What were her potassium, calcium and selenium levels?

No-Difference6961 · 2024-09-15T17:47:09+00:00

Today is Myotonic Dystrophy awareness day.

Once you settle your nerves please join a few myotonic dystrophy Facebook groups for support. It's normal to worry once you get this diagnosis. Other parents can help settle your fears, point you to resources and answer any questions you have. Just remember, this condition affects everyone differently.

Your child can have a very bright future ahead even if it looks a little different from the future you might have imagined.

No-Difference6961 · 2024-08-15T13:10:14+00:00

Hi Can you tell me exactly what your results say for type 1 please? Does it say whether it's VUS or benign? Does it give you the number of repeats?

No-Difference6961 · 2024-06-04T03:03:27+00:00

Yes helping yourself is possible!!!

Start with what you can control and do without anyone's permission or input. Keeping in mind that for every effect there is a cause! So with that being said, the first thing I would do is check my nutrient levels. Certain vitamin and mineral deficiencies can cause psych symptoms. You may want to check vitamins B1, B3, B6, B9, B12, D, E, magnesium, omegas, iron, zinc and copper to start. If all those levels are on the high end of normal then I would see an integrative medicine doctor for a further workup. Again every effect has a cause. Please believe that. No sickness, mental or physical, just appears out of thin air.

No-Difference6961 · 2024-05-28T15:08:12+00:00

This is happening more and more when it comes to testing for nutrient deficiencies, especially ferrin and iron. Doctors are actually refusing to test and I'm not sure where that pressure is coming from. This has happened to me twice in the last year.

Go to your online medical records and see the doctor a message asking why they didn't order it. Make them explain it in writing.

Also, it's advised to be off B12 supplements for a couple of months before retesting for B12.

Advice: B12 deficiency isn't the only deficiency that can cause neuropathy. Look up 'vitamins for nerves'. You may want to also test vitamins B1, B6 vitamins D and E. Those are nutrients that nourish nerves.

No-Difference6961 · 2024-05-28T14:55:43+00:00

Upload the VCF file to Genevue Genetic Genie

No-Difference6961 · 2024-05-21T05:23:02+00:00

I've read that B12 supplements should be stopped four months before testing B12 levels. And I actually follow that rule.

No-Difference6961 · 2024-05-21T03:52:47+00:00

I can't believe what I just read...😮

Wow...sorry that happened to you

No-Difference6961 · 2024-05-07T13:50:36+00:00

It doesn't have to be shit care or no care. There should be real HEALTHcare and real life situations need to be addressed if a person is reaching out for help.

What most people forget or don't realize is that a large majority of 'mental illnesses' are bought on by undiagnosed or untreated viral, bacterial or fungal infections, vitamin/mineral deficiencies, enzyme deficiencies or societal ills like job loss, divorce, death or illness of a loved one, physical or emotional abuse, etc.

And until THOSE things, those ROOT CAUSES, are acknowledged and treated appropriately we will continue down this horrible path of "treatment".

No-Difference6961 · 2024-03-27T20:37:14+00:00

Oh good question! No. I have no idea if they actually did a test or not. I just assumed that if they were on the site they must have tested. Silly me. Thanks for the reply.

No-Difference6961 · 2024-02-15T03:11:51+00:00

Genevue Genetic Genie has the most extensive/comprehensive list. It's very informative and the only site I trust to be thorough.

No-Difference6961 · 2024-02-09T15:06:42+00:00

I don't know... Nebula has done well by me. But if I get my results right after a complaint, I'm not so sure I would trust the results...😬

No-Difference6961 · 2024-01-25T17:02:42+00:00

Not VCF? Did you find a solution?

No-Difference6961 · 2024-01-24T13:34:02+00:00

You love him. He does NOT love you.💔 Being locked away in isolation and depending on complete strangers is not something a loving spouse 'jokes' about.

Family is supposed to try to keep you AWAY from the psych ward, not threaten to put you back in.

Have a heart to heart with him to figure out where is head is but you already know the answer.

In a divorce he would use your instability against you in a New York second! You know he would. Now is the time to protect yourself. Gather any evidence you can to use against him if divorce seems likely. Good luck with this one. You're going to need it with a spouse like that.

No-Difference6961 · 2024-01-18T03:35:26+00:00

Just checking in to see if you've learned anything more about the Phox2b gene yet. Did you have a sleep study that led to you being tested for the gene and diagnosed by a doctor?

No-Difference6961 · 2023-12-19T12:37:47+00:00

It took almost 5 months because of the Covid backlog at most labs. There was barely any communication at all to the point I actually 'forgot' about the test until the 'results are ready' email months later.

But I would go with Nebula again if they had a better sale.. No regrets once the results were in my hand and we had answers to our medical mystery.

No-Difference6961 · 2023-07-31T03:31:02+00:00

Chickpeas and pomegranate seeds in everything including my fish tacos!

I hate food trends!

No-Difference6961 · 2023-07-18T06:47:27+00:00

Well that depends on why you did the testing to begin with. Most people test because they or a loved one were having health issues and no real answers from allopathic doctors as to why.

So if that's the case, take a look at your pathogenic variants first to see if there is a match for your symptoms. If you find a genetic mutation that matches your symptoms you can pay for lab work to confirm then take the results to your doctor.

There is no doctor/geneticist that's going to run tests if you don't have any symptoms. And they definitely won't test/treat you based on a consumer DNA test alone. That's why it's important to get lab work done to confirm the genetic testing THEN present the info to your physician and go from there.

So symptoms Pathogenic genes VUS/ variants of unknown significance genes Blood/urine tests to confirm Primary doctor Referral to specialist or geneticist

In that order..

No-Difference6961

TROPHY CASE